Living with Ulcerative Colitis - Nour’s Story

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  • เผยแพร่เมื่อ 28 ก.ย. 2024
  • Learn about Nour’s journey with ulcerative colitis (UC), an inflammatory bowel disease (IBD) that affects the large intestine. Nour shares the ways in which UC has impacted her life, and how important it is to share her story to help bridge the communication gap between patients and healthcare providers. She encourages others to follow her lead and advocates for herself and others to make a difference. You can discover more about Lilly’s efforts in the immunology space: e.lilly/48ujTGN

ความคิดเห็น • 27

  • @spinningpersonintheworld4767
    @spinningpersonintheworld4767 7 หลายเดือนก่อน +8

    Thank you for sharing. I’m watching this while laying in my bed doing homework because my stomach hurts too bad to sit up from a colitis flare. It’s good to see you can still be a success and push past it.
    Thank you 🙏

  • @MerpMeepMeep
    @MerpMeepMeep 6 หลายเดือนก่อน +24

    Right when u think the medicine and ur diet is going well and u think u got things under control, it happens :/ hope y’all r doing well

  • @lexicrystal1473
    @lexicrystal1473 2 หลายเดือนก่อน +3

    Thank you for your story. I was diagnosed with ulcerative colitis four months ago and boy has it been rough. I’m trying my best to get through the bad days. I’m so glad I’m not alone in this.

  • @eddkennedy6458
    @eddkennedy6458 2 หลายเดือนก่อน +9

    Eat real food, diet has everything to do with this disease but doctors will never tell you this i have had UC for 18 yrs and been on all types of medications, Pentasa, Imuran been hospitalized several times on a drip, my son jack mentioned the carnivore diet so i tried it and i have not had any flare up in over 3 yrs and i am off all medications i feel at this stage that the medical profession just want everyone on medications that only suppress the disease

    • @RandyJacobson-iw2wq
      @RandyJacobson-iw2wq 2 หลายเดือนก่อน

      Ii had chronic colitis I changed my total diet and was on Remicad for 3 years thank God it worked it is in remission now for 6 years!

    • @maryambaadshah5718
      @maryambaadshah5718 หลายเดือนก่อน

      @@RandyJacobson-iw2wqplease share how …am struggling wid it

    • @RaCosta42
      @RaCosta42 หลายเดือนก่อน

      I was diagnosed with this disease 3 months ago and was hospitalized two weeks ago. The doctors just fill me with medicine, and I remain in crisis. Please share a little more when you can about your diet, I agree that it is the way to go, I have an integrative approach to treating this problem and I don't want to continue taking medications that make me worse. As I am Brazilian, I had an online consultation with an excellent doctor in my country and he told me about supplements, diet (something I had already been doing for two years), I changed my diet completely. I will research more about the carnivore diet, thank you for sharing your experience.

    • @RandyJacobson-iw2wq
      @RandyJacobson-iw2wq หลายเดือนก่อน

      @@RaCosta42 ask your doctor about Remicade

    • @Youtuber.0.1.0
      @Youtuber.0.1.0 หลายเดือนก่อน

      Please search for the carnivore diet. It helped a lot of people with this disease.

  • @bindumishra6710
    @bindumishra6710 5 หลายเดือนก่อน

    Hi, how to manage stress in this disease

  • @Masterful_Striving
    @Masterful_Striving 9 หลายเดือนก่อน +8

    How do I become an advocate. I was recently diagnosed with the illness I feel isolated with nowhere to go. I have a BA in Communications and minor in Sociology and I feel as tho my skill and story can not only help me but can help others on this journey.

  • @taybasultanamazumder4128
    @taybasultanamazumder4128 5 หลายเดือนก่อน +7

    Thank you for sharing your story ❤It's really worth it to watch and feel that I am not alone in this journey

  • @RohimBadsha-i7u
    @RohimBadsha-i7u 15 วันที่ผ่านมา

    Martin Jeffrey Perez Angela Jackson Elizabeth

  • @GwjejGsgsjj
    @GwjejGsgsjj 14 วันที่ผ่านมา

    Johnson Jason Walker Margaret Robinson Elizabeth

  • @GwjejGsgsjj
    @GwjejGsgsjj 14 วันที่ผ่านมา

    Brown Scott Lewis Charles Thomas Timothy

  • @GwjejGsgsjj
    @GwjejGsgsjj 11 วันที่ผ่านมา

    Lee Sandra Harris Charles Wilson Sharon

  • @TheRealNighthawkBaby
    @TheRealNighthawkBaby 5 หลายเดือนก่อน +1

    I’ve suffered years like that , it sucks dear beens a living hell

  • @binduchoudhary719
    @binduchoudhary719 5 หลายเดือนก่อน +2

    Wlcm to comment box all strong and self confident people.. I am also suffering from UC but now I am totally recover My self

    • @Ibrahimskiduniya
      @Ibrahimskiduniya 5 หลายเดือนก่อน +1

      How you recover plz share

    • @autonomy6786
      @autonomy6786 3 หลายเดือนก่อน

      How would you cover that

  • @Playboyy1985
    @Playboyy1985 25 วันที่ผ่านมา

    I love how this pharma companies make these videos as if they’re not charging you 90K a year for medications like Humira. No shame

  • @muthus6719
    @muthus6719 หลายเดือนก่อน

    The same exactly for me what u said. (from 2015) i am from india-tamilnadu-chennai.
    going with adult diaper.

  • @craftme
    @craftme 3 หลายเดือนก่อน

    The first thing to do is to become a vegan. Cut off all kinds of beans. Eat sauerkraut first thing in the morning. Ask your doctor about
    Mesalamine.

  • @lakea.6218
    @lakea.6218 5 หลายเดือนก่อน +1

    20-50mg/kg of high potency oregano oil softgels (Zane’s)
    3,000mg black seed oil softgels
    2x per day (morning and night)
    --------
    Look into Dr. Brownstein’s work with regard to iodine metabolism.