Dzień dobry. Przez 20 lat prowadzenia działalności dorobiłem się sprzętu różnego rodzaju i magazynu pełnego różnych części, czasami dla mnie zbytecznych. Spawam tworzywa sztuczne i metale wszelakie, toczę frezuję. Oferuje bezpłatna pomoc w sprawach technicznych, jeżeli potrzebujecie takiej pomocy pozostaje do dyspozycji
Thats amazing. I just hope tht in case the machine ever needed to be repaired or if it just broke for any reason that they would have a way to handle it all
Amazing love, es usted un padre increíble qué manos más maravillosas para hacer estas máquinas y estos trabajos por su hijo enhorabuena y siga usted así es un ejemplo a seguir para todos los seres humanos
Thats not a vent its a cough assist. It helps Get the secretions out of his chest he not able to cough up the mucus becuse of weakness in the lungs so it does it 4 him...
@@sdlock83 not everyone wants that. I definitely don't..I'm on bi pap 24 hrs and they keep pressing for trachea but I refused it might be easier but also more work for who doing his medical care
Cuando no tienes mas medios, los padres son capaces de hacer maravillas como esta, que mierda de sociedad donde tenemos que llegar a estos extremos para mantener a nuestros hijos vivos.
''probably'' thats the key word i never said i knew i said ''probably'' that argument is a double edge sword,the people saying ''let him live'' are talking in name of someone they dont know
Bianca Araújo I'm really happy to hear this! My brother has Duchenne and he showed this to me. I was really worried about him (the guy in the video) since it's an old clip and there's no update on his condition. Is there any other channel or is he available on social media?? I would really like to know more about him :)
I have nothing to complain about. My heart goes out to you.
God Bless you.
Dzień dobry. Przez 20 lat prowadzenia działalności dorobiłem się sprzętu różnego rodzaju i magazynu pełnego różnych części, czasami dla mnie zbytecznych. Spawam tworzywa sztuczne i metale wszelakie, toczę frezuję. Oferuje bezpłatna pomoc w sprawach technicznych, jeżeli potrzebujecie takiej pomocy pozostaje do dyspozycji
Stay strong!
Beautiful eyes🌺
Thank you :)
Thats amazing. I just hope tht in case the machine ever needed to be repaired or if it just broke for any reason that they would have a way to handle it all
Amazing love, es usted un padre increíble qué manos más maravillosas para hacer estas máquinas y estos trabajos por su hijo enhorabuena y siga usted así es un ejemplo a seguir para todos los seres humanos
someone living like this is torture
is that keeping him alive. he looks like hes going thru hell
I know 😢
I have this disease... I have 12 years... And this time is waiting for me...
Don't think about this too much.
Chcesz popisać ?
@@dystro5799 Masz na myśli pogadać?
Tak @@BerryTheCheetah
Meu DEUS PAI TODO PODEROSO ,tenha misericórdia de todas as pessoas, que estão com esse tipo de enfermidade!
Restaure,SENHOR,a saúde de todos!
szanuje w opór
I'd like to die in this situation
same
THE COLLAR SHOULD NEVER BE BUTTONED UP IT SHOULD BE OPEN
I see he has a ventilator. Why not use that?
infections, that's the key word :P
Thats not a vent its a cough assist. It helps Get the secretions out of his chest he not able to cough up the mucus becuse of weakness in the lungs so it does it 4 him...
@@shawnamarie5771 Might as well as invest in a ventilator and get a tracheostomy to make his life easier.
@@sdlock83 not everyone wants that. I definitely don't..I'm on bi pap 24 hrs and they keep pressing for trachea but I refused it might be easier but also more work for who doing his medical care
Oh God, poor young man....
I want to die at that point
I have same problem. But.....
What ....i..... Do....
Go to Jesus Christ
Cuando no tienes mas medios, los padres son capaces de hacer maravillas como esta, que mierda de sociedad donde tenemos que llegar a estos extremos para mantener a nuestros hijos vivos.
why keep him alive, any moment in his life must be painful
Let him enjoy the time he has.
thats the point,probably he isnt enjoying it
and is pain for the sake of pain
''probably'' thats the key word
i never said i knew i said ''probably''
that argument is a double edge sword,the people saying ''let him live'' are talking in name of someone they dont know
Bianca Araújo I'm really happy to hear this! My brother has Duchenne and he showed this to me. I was really worried about him (the guy in the video) since it's an old clip and there's no update on his condition. Is there any other channel or is he available on social media?? I would really like to know more about him :)
@@Pupurina009 If possible, can you please share his Facebook ID / his name?
You are an example for all of us. You are a super heroe. Keep fighting!
Francisco de la Torre Fighting for what?
humanix, if you dont know, I cant explain you.
humanix The will to live??
God bless him
Muhaiman Ali it looks like God cursed him. Watch the video again.
Life is a test it's not paradise..
He needs a BIPAP if he's still alive...
He is. His choice many years ago was not to have BIPAP. I don't know his reasons. The system works, though.
Отпустите его на небеса. Это похоже на адскую машину пыток
This is horrible :(
Να.λεμε.και.του.σραβου.τοδηκιο.δεν.ειναι.ζωη.αφτι.χορις.παρεξηγοισι.να.βλεπουμε.και.αφτους.τους.ανθρωπους.για.να.μη.κλεγομαστε
Yeah no i'll keep my mental instability than ... this.
life with dignity... :(
That is not that poor dude
Czy ten biedak jeszcze żyje?