Propranolol for POTS & My Experience (I've taken it for 4 years)!
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- เผยแพร่เมื่อ 26 เม.ย. 2021
- Here's my experience with propranolol (inderal), a beta blocker, for postural orthostatic tachycardia syndrome. For me, it has definitely been the most beneficial treatment I have tried for POTS / dysautonomia so far. In the beginning, it was extremely helpful and allowed me to exercise again and do live more of a "normal" life for a few months. Unfortunately, my health declined again, and I started dealing with more serious conditions/symptoms.
But even to this day, I still notice if I miss a dose of propranolol! I'm thankful for the difference it makes for me. Whatever it is, I hope you find something that helps you! ❤️️
Here are some links to some research studies done on POTS patients taking propranolol:
pubmed.ncbi.nlm.nih.gov/23616...
pubmed.ncbi.nlm.nih.gov/19687...
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#ChronicIllness #POTS
Propranolol is the only reason I can live any sort of normality. I’m so grateful.
Have you noticed any hair loss? I'm so scared of that side effect yet so desperate for help..
Any weight Gain on Propranolol?
Thanks so much for sharing more of your journey. It's so nice to find others who are spreading and awareness about POTS.
Thank you for the difference! This was a perfect explanation to pass on to family that are trying to understand .
Thank you for sharing!! I always appreciate hearing your story and experience. It continues to be informative and helpful💚
Thank you Megan! ❤️️❤️️
Thank you for this! Just got diagnosed with this 4 months after having COVID and I just started propranolol but I'm scared. This video helped me.
Hi , how are you doing I’ve also been diagnosed with this post covid 😢
I have been scared as well because I don’t want my blood pressure to drop
Same I think I have it but I have not been diagnosed. I get dizzy and can feel my heart beat when I stand up and it gives me anxiety..ugh and then I just feel uneasy. I hate this. I never had this problem prior to having covid.
Thanks for sharing! I’ve been on propranolol for pots for about a year now. Before that I was taking metoprolol, which caused such intense fatigue I could barely do anything without having to lie down. With propanolol I’m able to live a much more normal, functional lifestyle, with just moderate symptoms.
Hi, did your blood pressure ever drop from it?
Thank you for sharing your experience Rachael 😊 my doctor just prescribed propranolol for shaking on my hands
Thank you for this video. I was given this today for suspected POTS. Cardiologist seems to think I'm onto something after 5 years of PURE hell. Tilt table test coming soon
Just got my doctor to presribe me this today! My cardiologist and neurologist both think its a good idea. Been sick 3 years and haven't found any management yet. I have very bad head pressure and chronic headaches and migraines, pots, neck stuff. My main symptom of pots is terrible fight or flight, tremors, unable to sleep, waking up hungover feeling, tachycardia. Your channel has been very helpful!
Have you taken this yet? I’ve been prescribed it about two weeks ago and haven’t taken it yet. I’m too afraid
@@diabeticsugarbaby it made me have chest tightness. Only started with 10 mg twice a day and started taking half, still did. I was so sad
Thank you for sharing this!! I’m going to talk to my md about it. I hope it will enable me to go for a very short walk without my hr increasing 40 points. 😀
I hope you find something that helps! ❤️️
Oh honey I’m dealing with all exact same conditions + severe genu varus I got to go through surgeries for + hashimotos + post partum thyroditis + current hashimotos phase I luckily have for the first time managed with first time taking Propranolol I am so so grateful for this, I feel how I imagine normal would be. I also have hyper mobility syndrome and this pill makes me feel more grounded in my body. Yassss
Thank you so much for sharing, I have been researching and thinking about both LDN and Propranolol for a while now so it was good to hear about your experience. I too am very sensitive to medications and usually don't do well on them, and have had BP issues on beta-blockers in the past, so it is good to know about starting on a low dose. It must be so frustrating that you had the improvements but then your health declined again :(
I am also sensitive to medications. Usually people start off on 10mg of propranolol, but I decided (on my own) to start off with 5mg. Seems to be working, but I am going to try bumping it up to 10mg next week to see how I feel on it. There is definitely an adjustment period of about a week when you start taking it.
@@oldmedstudent1750I'm thinking of taking it today for the first time. Same, I've been given 10mg to take whenever i want and can take up to 3 tablets a day. I was gonna try cut it in half and have 5. I'm still really scared of taking it. I have healthy blood pressure. I'm only taking it for anxiety
tysm for this video! I'm working on a diagnosis rn but basically at the ER they discovered I more than likely have POTS (we did the stand test- my heart rate jumped ~35bpm but they weren't allowed to diagnose me there). the other doctor I've gone to said POTS wasn't real so we're looking for another. Anyway, I didn't know a medication existed for POTS. Thank you so much!!
For some years now I've been waking up dizzy, and I'll walk into walls or feel nauseous. I was told it was my sinuses. I was, however; diagnosed with tachycardia some years ago. Sitting down or standing up my heart starts racing. I have really bad attacks(palpitations) in my sleep, and it wakes me up. Exercising completely drains me, and makes me extremely tired. Often, I'm so exhausted that I start yawning uncontrollably, and I'll fall asleep suddenly. Sometimes my blood pressure just drops. Thanks for sharing your story. I don't talk about my condition much, because some think I'm out for attention. I just suffer in silence.
I was misdiagnosed often. Was told it was in my head, and I was having panic attacks. This is why you have to keep getting second opinions like I had too so often.
Hi there sorry to hear that you were not believed . Do you have other symptoms as I have Ehlers Danlos Syndrome (EDS) and it causes pots as well . Hope this helps and I wish you all the best .
Strange head pressure too? I do.
Same, but haven't been diagnosed with anything. Only been to doctors about anxiety and chest pressure and have been given propranolol. I wake up a lot with heart pounding. And stress messes up your heart rate. But I don't know why I have exhaustion even after sleeping, dizziness most days too
Wow this really helped. I had no idea what POTS was, and totally blew it off just looking for information on Propranolol. When you said Lyme Disease I almost fell over, I had to rewind the video.... I have Lyme and I faint sometimes and always feel dizzy. I just started Propranolol and it's a game changer... Def affects my sleep though. Thanks for the info
I only take 10mg a day around 1pm with food since it is fat soluble. I don’t find it affects my sleep but 10mg per day is pretty much the lowest of the lowest dose you can take.
@@philosophyofthestars I take like 20 mgs a day and I have noticed bad sleep for sure. We’ll I stopped thc too so I’m guessing that’s it. I weigh like 220 so that isn’t the highest dose for me ya know. Can I ask you what else you used for Lyme? Because I found some stuff that blows it (Lyme) out of the water. Lemme know if you would like the name.
Thanks for the information and reply…
Thank you so much for sharing. I have recently been diagnosed with POTS. My Dr. thinks that I developed it after my second shot of the Moderna Covid-19 Shot. I had tried Propranolol before for my BP/Migraines but had left it because I really didn't see a huge improvement with my BP. I ran across your video and I have decided to give it one more shot to see if it helps.
Thank you and God Bless.
Will your POTS ever go away??
Guanfacine or Clonidine (alpha-2 agonists) have worked best for me, since I had bad reactions to beta blockers. Guanfacine and Clonidine signal the body to not dump so much norepinephrine and adrenaline into circulation, making it ideal for treating hyperadrenergic POTS like I have.
I also have Ehlers Danlos syndrome and I'm very sensitive to medications.
Well, at least your hair |clearly| has not fallen out from taking propranolol. My hair went bald-looking at my temples the first week of starting propranolol, so I wear my hair down now 🤩
It’s great to hear from you! I was just prescribed Midodrine today. One question I have for you is how did they find you had pressure problems? There suspecting I have a csf leak so I am going to have intercranial pressure monitoring very soon. I do not remember if you had high or low brain pressure!
All the best with the midodrine! :) I have so many friends that have had great experiences with it. Unfortunately it didn't work for me (it actually can raise intracranial pressure). I have intracranial hypertension so high pressure! I was diagnosed through spinal taps. I haven't had ICP monitoring myself, but I've heard its pretty inaccurate so just be careful, especially since its so invasive!! I hope you find answers and help soon!! -Rachael
I had a spinal tap and pressures are fine but they told me that can be inaccurate as well, so time to go more invasive. So much confusion some times you do not know where to turn. I pray this shows the reasoning for the head pressure!
What's your standing BPM b4 propanol and after meds
15yrs ive been trying to figure out what it was….. finally got it, but i just got prescribed meds and am skeptical
❤️
Hello,
I am taking 5mg to start; I am feeling dizzy when standing. Did anyone have this experience when starting?
I am diagnosed for MCAS/ POTS and possibly an auto immune issue. Does any one have this problem? Would love to hear im not alone
Hi! This video has helped me so much! I have POTS and was prescribed a higher dose, specifically prescribed capsules of propranolol ER (extended release). Just wondering if if everyone here takes the extended release? I want to ask my doctor for 20 mg capsules (if there is such a thing) so that I may cut in half so I can start with 10mg. Are extended release what I need?
Dr K just prescribed this for me. And Dr H agreed. I was scared to try this honestly because Atenolol was a bad experience for me.
Hope all goes as well as possible for you!
I’m supposed to start this today and I’m so scared. Very very scared.
I take propranolol for my thyroid disease I have Graves’ disease and type 1 diabetes
I know this video is 2 years old, so hopefully you see this comment. I’m curious about propranolol and the effect it has on resting heart rate. I’m newly diagnosed with POTS but my baseline (resting/laying down) heart rate is on the lower side, between 40-60 bpm depending on if I’m asleep or awake. Did you notice that the propranolol lowered your resting heart rate as well as standing?
What is your dosage of propranolol?
We truly must have the exact same DX’s. I also have Lyme and wondered what your treatment is for that? I’m currently doing oregano oil after the antibiotics didn’t work for me. Had to stop due to side effects.
I have been doing pulse treatments for my lyme. Because I'm very sensitive, we've had to start at very low doses and work our way up! I'm doing a combo of herbs and antibiotics. So far I've tried samento, zithromax, tetracycline, doxy, oil of oregano, and monolaurin. The first time I took oil of oregano I almost ended up in the hospital with a herxheimer reaction. That stuff is *strong*. I take the liposomal version, which is supposed to be more mild. Its possible your side effects could be herxheimer reactions. Regardless, I hope you find something that helps you in your treatments. Its such a tough road! You definitely aren't alone. ❤️️
@@HealingWithRachael wow. I tried zithro and my heart did weird things so I was told to stop. I don’t even know if it was related but it scared me enough so I did. I have been taking high doses of vitamin c and d3 and b12 and it’s seemed to help a bit too.
It is a great medication, but did you noticed aging become faster on this medication?
Has the medication made you gain any weight at all? My main worry for any medication is if it can cause weight gain.
How did flying go for those people who have POTS? I still haven’t sat in a plane and I have worries sometimes because of POTS and changing altitude
I just flew about a week ago, two flights and they both were 2 hours. There was a very slight increase in POTSiness and wooziness on the first flight, but I chose to remain seated on the 2nd flight and felt 100% fine. I was on propranolol for both flights (as I am all of the time, I take the medication every day) and am on an SSRI for anxiety. I also drank plenty of liquid IV and wore compression stockings for the flight. Hope this helps
Ive gotten some really weord symptoms thst i think is pots, when i lay down its ok but i feel fainty, but when i stand up i feel like im hoing to faint and my pulse goes up, feel like puking and really weird, its worste in the morning and at the evning its almost good, i dont know if its becuase its much cooler in the evning, sorry for my bad english im swedish
I had weight Gain on Metoprolol, any weight Gain on Propranolol
Dear God, I pray for your rich mercy to heal Rachael, to lift her burdens and sweeten her life. I know I am a sinner but I pray for Rachael's sake that you relieve her burdens and give her the young and healthy life for which she longs. I pray this in Jesus' name. Amen.
My neice has EDS n POTS she feels great with 30 mg propanolol she is only 14.m so worried about its side effects
Look at the Pots Treatment Center in Dallas
I just got diagnosed with POTS two weeks ago and was put on this I still haven’t taken it I’m so afraid 😅 ugh I wanna take it but I’m scared of side effects due to being super sensitive to medications
Did you ever take it? I just started today and I’ve been scared because it drops my blood pressure, did it do to you?
I am super sensitive to medications too and it has worked wonders for me. I hope you’ll try it! ❤
@@cerinarascon1985how are you now?
I'm confused, but maybe you said you are only on 2 prescription medications. I thought I heard only taking 2 medications. But you said that was LDN and Propranolol. Then you said you're taking melatonin every day. Can you clarify?
Hi Valerie! Sorry for the confusion. Yes I believe I said only 2 prescription medications. I take several over the counter medications/supplements/herbs as well! Hope that makes sense. :)
@@HealingWithRachael Totally! I have a handful of daily prescriptions. I also usually lump the daily non-prescription meds and supplements in as well. Makes it easier when talking to my doctors. After all that's who I'm usually discussing that with. :)
You’re so beautiful