Driving At Night With Keratoconus
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- เผยแพร่เมื่อ 17 มี.ค. 2022
- Driving at night with keratoconus can be extremely difficult. In today's video, Dr. Thanh Mai goes over some ways that can help manage driving at night with keratoconus.
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Here I am again 2yrs later sharing this again! People really don’t understand how hard it is and I try my best not to complain!
I hate driving ! I was just diagnosed with KC last week! I don't think people believe how hard it is to see with the lights.
No they don't
I do. I hate driving at night with car headlights
I relate to this so much😭
I hate that I can’t drive after a certain time of the day, and it so much worse during the fall and winter when the days get shorter and the time change. I feel like such a burden to my family and friends, and working is complicated too.
Im 22 and have the large scleral lenses. It definitely makes driving easier but its still scary af driving at night. I would highly recommend the scleral lenses tho, first time i put them on i got choked up because i never knew people could actually see this well
I have keratoconus and just got into scleral lenses a few years ago. It was also very emotional for me to wear sclerals for the first time. I didn't realize how bad my vision had become until I saw perfectly.
Jacob, the same for me. I wear scleral lenses and they definitely changed my life. It's incredible how I manage to solve all my problems and deal with good vision. I never expected that I'd be able to see the way I do nowadays. My keratoconus is in a very advanced stage and these lenses are my only way to see well. And btw, I'm 21.
I didn’t like those lens because they zoomed in on my face lol and I’m 22 as well
@@lucasgabriel5522 i'm in my mid 40s. i have a very advanced keratoconus in my left eye, and my right eye is still OK. I have an appointment to try on lenses next week. I'm afraid that my eye may reject it. Thanks for sharing your story
@@shleffy You're welcome. Don't get afraid of it. I also felt afraid of it because of it was my only chance. Even so, these lenses saved my life and now I have a normal life. Before the scleral, I wore another lenses, but they were small and terrible, i didn't adapt to them (wore everyday for 3 years). But the Scleral, even months without wearing anything on my eyes, I didn't need to adapt. It's quite nice and easy to wear, wash and treat my eyes. Don't worry!
Driving during the day isn’t that bad with KC since I live in a super bright area but at night. Omg I want to cry. It’s so terrifying.
Great video!
Keep telling people how bad it is and I usually get. O yeah I can’t see with out them either. Smh great video!!!!
I wear polarized sunglasses when driving at night, and it definitely helps
How much will 6/15 vision improve with scleral lens?
When I was a kid I always played with the lights because I had astigmatism crazy I didn’t know I had a disease.
It's strange. People describing keratoconus and astigmatism always describe a starburst effect, but what I experience is an almost ringlike smear, with faint smears coming from the right side (say 3:30ish) and the bottom side (6 or 6:30ish) both arcing to a common point around the bottom right (5 o'clockish) where they combine to a soft visual "echo" of whatever light/ letter/ pattern I'm seeing.
Thankfully this image remains fairly close to the original, though I'm seeing a slightly fainter double of the line underneath this post as I'm typing this and the letters all have their own innate shadowing effects (in white since I'm using darkmode at the moment), for example. And when I come across high-contrast vertical lines the farther from my center of focus they are the wider and more pronounced a slight prisming effect occurs, with the light spots smearing bluish over dark towards the center of my view and orangeish towards darker spots closer to the edges of my field of view....
that's more like me, I get like a halo effect around lights.
With my KC I see both the star burst and the slurring you describe. Even when my vision was “perfect” according to my eye doctor I saw starburst halos. But now they are more intense. That combined with the smear just makes road lights way too crazy.
These are called higher order abberations. Try Ovitz lenses they are designed to counter HOA(ghosting, flaring)
How does everyone view their phone or computer screens? Any tips on making things easier?
As dimly as possible with the bad eye shut sadly. Avoid Apple products, they don't go dark enough and IOS hard blocks you from adding any overlays to.
Am 20 'd after c3r surgery i feel progressing vision blurring what can i do😭😭..... Left eye 6/6 vision, but now its blurring 😭😭😭😭😭😭
How r u now
My life has ruined with this astigmatism. nights i cant go out even in meters i cant recognize friends.
I have keratoconus and I'm just 22 yrs old😢😭😭😭😭😭😭😭😭😭
I have keratocunus iam 17 years old
I have keretakonus and I am 19 years old
me also 22 age,done cxl right eye
I am also 22 and had crosslinking surgery in my right eye, it hasnt got worse but I still suffer the pre-surgery symptoms
@@emmettfay is crosslinking expensive?And what are the symptoms?
What's the best scleral lenses or rgp
Scleral.
As someone who has Keratoconus since 15 years I would say it’s way worse than how it looks in those pictures
Yup... It sucks..
@@CopusThakur Definitely yes. I don’t know about you but scleral lenses help and I would recommend them
@@cond.oriano3264 I am wearing them.. Since 2022. How you deal with fogging..? , how many hrs do you wear them.. Do they completely cover up all the glares, starbusts and halos at night or just minimize them
@@cond.oriano3264 I want to know the experience of others 😶do to these things, I'm suffering from extreme anxiety disorder...
@@cond.oriano3264 I m wearing them... I have a few questions, how do you deal with fogging?.. How many hrs do you wear them.. Do they completely coverup all the haloes and glares or they just minimize them..
Keratoconus sucks! And driving while having keratoconus sucks even worse. Even the road signs have glare so if I try to use the bright beams I can't see a thing. If I absolutely need to drive I night I wait until is late when there's less cars on the road and less lights. My KC is progressing rapidly. I had cross-linking done in one of my eyes, and it just made my vision worse. I refused to get the other eye done. I've tried rigid lenses, soft lenses and scleral lenses, and all are very uncomfortable. I'm at my wits end.
How many days has your C3R been performed?
lenses become comfy after a while, give it a try
@@xo121w I used them for several months. I couldn't get used to them.
@@AstridinGeorgia bad fit then. find better optometrist
@@AstridinGeorgia how do you feel about transplant surgery? I am pretty depressed as Im not even eligible for the cross-linking, as my KC is advanced in the left eye.
I hope I get cornea transplant soon for my kc
Did you get it? How was it?
Not yet my insurance keeps selling me out
Literally having arguments with my girlfriend because I can't drive at night. I've almost gotten us in accidents.
show her this video
Very understandable girlfriend bro, hope you found something better.