I had this exact thing happen to me in 2011. Did the 5 day EEG study and everything. Here I am in 2023 and just got diagnosed with POTS and PTSD. Therapy and increase of salt and change of meds helped out tons! Good luck to you!
Im on the same boat, Ive struggled with many symptoms over 2 decades but labs/tests always look great. I finally let go and started focusing on things that were in my control...diet, lifestyle, including stress management. Diet has been lifechanging. Eliminating processed foods, eating whole foods...and for me easing it on heavy carbs (I found out i may have blood sugar issues) made a BIG difference. Sometimes we have to take matters into our own hands, and find alternative routes. May god bless your family and mental health as you manage this bump on the road. Best wishes 💕
I'm sorry for the frustration, but so thankful that it's not epilepsy. The thing that helps most is the positive attitude. I know it's not something you can maintain daily, but you still maintain. I know it's because of your faith, and I'm so thankful you haven't lost it! May the good Lord continue to carry you gently through this process. Our prayers are with you ❤
Ty Carlin , you're amazing. So sweet of y'all to share this personal stuff. We love y'all and we do pray for you. Gods timing. Love you guys. Mom Bates is always the best. She makes time for all her babies when they need her. Priceless!
Carlin / Evan, You most likely already told your care providers this but if not, be sure to let them know about taking ashwagandha, which is found in both AG1 & Nutrafol that Carlin takes daily, as it’s been found to interact with seizure medication negatively. She may not have any interaction but it’s good to let them know incase there is. ♥️
Happy to hear that you're not an epileptic. Nice to see that you're in such good spirits considering going through this frustrating situation. Hopefully sooner than later they will figure out what's going on and, no more seizures. So nice to see you and Evan in such good spirits going through all of this. Sending much love your way! See you on the next one! 🤗💕
Okay Mama Bates is the best! I just watched Lawson & Tiffany’s vlog where she attended their first ultrasound, she visits Erin & Chad, and here she is coming to the hospital for Carlin’s test. With 19 kids she still finds a way to be present and active in the kids life and always provides the greatest advice. Bless Mama Bates!
You're right Evan. My phone went off at 11:18 pacific time. It was early. Blessings to both of you. A stressful situation, I'm sure. Especially with young children at home. You guys are doing so great. An inspiration to all. Prayers.
So thankful it is not epilepsy. Praying you will both get the answers soon. God bless you and your beautiful family!!!! You guys brighten my Saturdays!!!! I love y’all!!!! 🙏🙏🙏🙏♥️♥️♥️♥️
Having a chronic illness or autoimmune disease is exhausting, and we adapt & get used to it. Sad to say! Sending hope & comfort to you, Carlin! You got this momma!
I 100% agree with your comments. My issue is that unless I’m having a bad day and using my crutches or electric wheelchair I look like any other fit and well person. People can’t see my MS or my stoma/urostomy equipment attached to my stomach hidden under my clothing. Fatigue also has to be high up on my the symptoms as it doesn’t allow you to go out of the house, even get out of bed some days let alone socialising. I have lost so many friends since I got sick as I have to cancel things at short notice if I wake up and can’t move my body due to extreme pain. Chronic illness etc sucks and takes away almost all of your quality of life. I’m wishing you all of the best and that things will get better for you. Xx
I continue to pray for you Carlin.. for complete deliverance and healing from these episodes as God wills. My husband and I are in full time ministry in NC. We hope to visit your church next Sunday evening. Prayers for all of your family.🙏
That was so sweet of Mrs. Bates to come stay at the hospital with ya'll, especially till 4:00 am. Prayers for Carlin that they can eventually find out what's wrong. Ya'll had me cracking up at the end about the room being cleaned 😂!! I would have read it the same way Evan.
I pray that you find answers to your health issues and that you can move forward with your life. It was strange that America and Russia did their Emergency alert test on the same day, same time?
So proud of you guys- that must have been a tough 5 days, but you always manage to keep your spirits up. So happy that something else got crossed off the list and praying for more answers. Love The Stew Crew Saturday mornings!!🙏😘
I am so happy that Epilepsy has been ruled out for you Carlin. I can’t remember if POTS and/or Dysautonomia has been ruled out for you also. Evan you have a beautiful voice! I remember doing the 5 day EEG with my son at 2 years old and 4 years old. Keeping him entertained was tough! It is quite the boring hospital stay for sure!
Prayers that Carlin gets some answers. I too have Epilepic episodes with no “diagnosis”(be 5 yrs. in Dec since started), and told its “all in my head”, and stress. But I know there’s something but have come to accept whatever it is and just continue to try to live my my life, just know now what not to do(that can cause a episode), Carlin just keep enjoying your family and your life, and don’t let whatever it is take control. God Bless you!!
Great news Carlin. I do understand your frustration. I'm going through the same type of deal. I've had two biopsies(thinking I have cancer), but nothing shows. Im just living life with happiness and not dwell on what could or might be!
27:02 I’ve been fainting since Jan 2022 and finally received a diagnosis or Dysautonomia. I think it would be beneficial for you to look that up and see if you have symptoms of that. I’ve had a lot of the tests you’ve had, and it took me changing cardiologists in order to finally get that diagnosis. Good luck!
I also have this along with many other rare diseases. I was wishing today if someone had asked Carlin about this or if she is or was oddly flexible. I feel like with doctors it’s the luck of the draw if you’re going to get a good one that wants to really look into it and help you.
Evan you are such a strong support for Carlin. You are both very fortunate to have each other . Well done Carlin that can’t have been easy for you. 5 days is a long time. 🍀🍀🍀🌻🌻🌻🌻🌻🌻
Can't wait to see the new vlog and hope you guys have a great Saturday afternoon and evening with the kids and hope everything goes smoothly according to the doctors and nurses and praying for Carlin and hope the testing goes well.🙏💖
As someone who took 17 years for a correct diagnosis. I am praying so hard for you Carlin. I understand i’m sitting here on the edge of my seat wanting you to have a seizure so bad so you can get answers. I know that feeling prayers and love to your family ❤
Carlin you are so brave I'm praying for you I can't imagine what you are going through but one thing I know God's got you and you are loved and prayed for blessings to you and your precious family we love y'all❤❤❤❤
Praying for you and your family Carlin. Just remember God is still the best doctor and prayer is still the best medicine. 🙏🙏🙏 ❤❤❤ Love you Carlin and family!!
My Sons five day seizure study, finally got him the diagnosis of his seizure types, what parts of the brain they were coming from and he is successfully treated with the right seizure meds now. His seizure activity is from a Brain injury he sustained at birth, but it took until he was eighteen years old, to get the meds right. Probably because he was growing, and has other health and developmental things going on. I had seizure like issues for a couple years, that turned out to be Narcolepsy. Once treated, problem near perfectly solved. So many things can cause seizure looking episodes and seizures. So glad you are getting to the bottom of your health battle. 🙏🙏🙏
My heart goes out to you and the kids I know. This is hard on everybody, but my prayers are with you. And the doctors to find out why you're having seizures. God will give the doctors the answers and you😊
I have to agree that it could be POTS. I’ve thought this from the beginning! My daughter has it and her symptoms are and have been exactly like Carlins! Continued prayers for you both! 🙏🏼❤️
Kelly Jo is the sweetest Mom ever !! Love the entire family. Carlin and her family are precious and always put a smile on my face. Thank you so much for shariñg your lives. My prayers are with you, Carlin, and I know that God has you in His hands.
Aww Carlin you really are amazing, coping with all that with such a good natured attitude; and Evan you are such a wonderful husband, giving your wife this support and comfort right along side her!
It's so cute to see how Kelly is always showing up when Carlin isn't doing good.❤️ And also how supportive Evan is during all of this!! U guys are an amazing family!!!
Neurologist here 🙋🏻♀️ from the moment I started following your story, it’s sounded like classic PNEA (psychogenic seizures). Pursue therapy, PT, ask your neurologist about it (they can follow you for it) and stop testing and move on
I thought the same thing. My sister started having psuedo-seizures that started about 2 hours after she was in a head-on car accident. We really thought she was having real seizures, but extensive testing showed they were not! They lasted for well over a year and happened when she was stressed or tired.
This makes me wonder what kind of abuse she has experienced. We keep seeing criminals being discovered from these extremely religious families like the Duggar’s and Ruby Franke… makes me wonder about Carlin’s family. You never know what goes on behind closed doors.
Awww I cried when kellie Jo came in. I love yall but I miss the whole Bates family show. I pray that they find out why you are having episodes and you can get better soon. We love yall
My mom had the Tilt Table Test a few years ago, it was to trigger a response in her body in a controlled environment. Ever other test she went through was deemed "normal". So she was thinking the same thing would happen "Nothing" would show. They strap you to a table and slowly tilt the table up until your pretty much standing, mom started talking and within a very short time was a mid sentence and she fainted. She didn't have POTS, she was diagnosed with when most people stand up we have valves in the legs to help shuttle blood back to the rest off the body - in my mom's case the valves dont full close meaning she has lack of blood supply getting back to the heart and resy of the the body. I dont live with her but I'm glad that she is able to tell when she is going to faint and can quickly get to a sitting position with her legs elevated it definitely helps, drinking water or Gatorade someyhinh that will replenish her system. Also she is the only person I know of that has been told to use Salt. So while this is always going to happen to her she knows whst to avoid, avoid strenuous activities in the hotter months, avoid you can taking long hot showers (she has fainted many times after a shower and a shower will drain her she has said its like runnning and biking in a steam room. Her face will become flush across her cheeks, across her nose and the tips of her ears will turn bright pink. She has fainted in the post office enough so that people pulled out their phones to call 911. Several good Samaritans caaught her before her head smacked against the floor. It started to occur at our church while she was talking to the pastor, what is ironic is he noticed her swaying a bit, her face getting red, and her eyes acting funny. He said are you ok, let's sit down. She was in the process of telling him. So, he was even aware of it before it happened. Carlin im glad that you keep asking the right questions. The testing in the hospital may not have given you the right answers you wanted but they did rule out epilepsy, every test done rules out something and brings you that much closer to a diagnosis. Praying for you and your family.
Glad she doing better. I love the way you guys are so sweet to each other. I know the feeling of missing your babies when you are away for a couple days.❤❤
OMG that's definitely a bouncing Bates baby boy! He's so precious and (thank the Lord) healthy. Taryn is amazing with newborns. What a talent! Ryker has changed so much in 3 weeks, thank you so much for sharing your little family with us. (including Mauis adjustment to her baby brother. I would absolutely love to see a day in the life with a newborn and maybe Mom and Dad's first date night? (When Mommy is ready of course!) Can't wait to see Jackson and Ember's wedding next week. Love y'all, much blessings. 💙
I've never commented on TH-cam until today but I felt I needed to share this with you. I've been following your story on and off for awhile and all of a sudden this video appeared on my feed. I went through something very similar (both symptoms and medical journey). It took 6 years and 12 doctors, every test imaginable and me fighting to be heard. I finally had a divine nudge to ask for a sleep test with revealed I had Narcolepsy with Cataplexy. NYU Epilepsyand Sleep Center specializes in cases like these. It was were I finally got diagnosed. It maybe a resource to look into.
My husband as well. And he doesn’t actually have typical narcolepsy - as in the sleep tests weren’t conclusive and didn’t match narcolepsy. But they tried meds that one would give someone with narcolepsy because the episodes were so much like cataplexy. And the meds have helped tremendously
Sending love and prayers Gods got this and so do you! You have such a beautiful family and both sides of your families are amazing. Your mom is beautiful too I can see where Carlin gets her beauty from. The babies are so darn cute! You're amazing parents. ❤❤
Hey guys, I totally feel you trying to solve what's causing Carlin's seizure episodes. I've been on a similar journey with my daughter. And we have learned that low blood sugar/hypoglycemia can cause seizures. There's a remarkable doctor in Houston, Tx named Gail Henry. She is both a neurologist and a chiropractor and is the only medical person of her distinction in the entire country. She's been a tremendous help to my family in getting to the source of my daughter's seizures, and very gratefully, we're working towards her healing. Prayers for you guys! :)
I’ve been following you guys since Bringing up Bates and have been keeping up with your diagnosis journey. I just went through 2 years of doctors visits trying to figure out what my episodes are. I’ve finally got a diagnosis of POTS and this could be something to ask your neurologist about!
I've been there, had symptoms for 7 years before finally getting diagnosed. I was close to stopping the search for answers but found a great internist doctor who made all the difference.
Evan you’re such a wonderful husband , you have been by Carlin’s side through all her illness with such love and patience. I’m glad she had a 5 days EEG and that for now the test seems to confirm it’s not epilepsy but sadly she didn’t have an episode wich would have been very helpful to finally find the proper diagnosis . PD:I was in the hospital for 10 months , if you are bored just for a few days imagine how that was like
Praying for you, Carlin! I don’t really understand what your doctors are thinking (since it took forever for them to schedule the 5 day EEG - they just seem a little too nonchalant), but I hope you have the best team possible on your side! ❤
But I was you and your family in his hands. We are praying for y’all. Everything’s going to be OK can’t wait to the next video. Y’all have a blessed Saturday.❤❤
Hey Carlin! I know how frustrating it can be to not have the answers you are looking for, but the beautiful thing is after all these tests they are ruling out the big stuff, which I’m sure brings a lot of comfort! I’m sure you are already doing this, but track any changes physically, mentally, emotionally that you experience and have a journal. If it is a week before your menstrual cycle it could be due to estrogen levels in the body that affects blood pressure, and like you said could be hormonal! I pray that you all find the answers you are looking for soon, and that you continue to look to Christ as your ultimate peace and comfort❤️ God will use everything you are going through and nothing is wasted! God bless!!
I was wondering if they had you do some really busy stuff. The “events” you’ve shown seem to be at family gathering or a big sale etc. (arm chair Dr here😂). Continued prayers from Texas! God’s using this in a way you may never know.❤
Carlin you look like your mom!!! That was sweet your mom and Whittney coming and seeing you!! Your kiddos are absolutely gorgeous!!! Can't wait for next video!!! Love and enjoy watching yall!!! Love you guys!!!❤
I'm so sorry you have to go through all of this. You make a great couple. You're positive attitude is heartwarming. It was nice to see your mom. I miss the family program. Continued prayers.
"I look like a monkey". LOL GF, that cracked me up! Father God, we ask You here and now to step into this situation. Carlin and Evan need Your intervention. Please give the doctors and nurses wisdom. Help them to find out what is going on here. Carlin is a young mother. Her husband (and babies) need her. They need her to be whole. So again Father, we lift Carlin up to You now, and ask that You heal her in the Name of Your Son, Jesus, Who is the Great Physician, and Who gave His life for us all. Thank You, Abba Father. Our hope is in You. Amen and amen.
Praying for good results Carlin. So sweet for your mama coming and staying with . Sweetheart I love your family so much sure miss seeing your whole family on TV . Love you guys so much. ❤❤❤
Carlin, you are a brave brave girl. I know you have your down times but you seem to cope so well and you don’t let your health stop you enjoying your husband and babies. You are a ⭐️! 💕🇦🇺
“I’ve got joy bc I’ve got Jesus” y’all two remind me of that line from that song. Things aren’t always perfect but you always have joy! The hide and seek had me laughing so hard. Lol 😂 ❤
Your videos always bring so much joy- Evan you’re hilarious! So happy Carlin can rule out epilepsy- I know that’s a relief! Prayers for continued answers and ultimately that the Lord brings healing!
I have been experiencing similar episodes randomly. My findings so far have been due to blood sugar levels and blood pressure. Purchasing a blood pressure cuff and a glucose meter could be a good idea! Amazon is a good option. When the episode hits have someone check your sugar level and blood pressure. I know how frustrating it can be to not know what is causing your body to malfunction and feel so terrible. I’m glad you’re not experiencing it as much. Continued prayers!
I agree with this! I was always a high energy person but ran on adrenaline. I had a hypoglycemia problem eventually got tachycardia where blood pressure spiked when I got up or over excited. Many migraines and I’m monitoring it now,
Evan you are so funny and sweet!! Keeping Carlin entertained in the hospital. So funny playing hide and go seek in the hospital 😂😂 . Carlin I’m glad you finally got to have the test. ❤❤
Please get tested for Neurocardiogenic Syncope. My daughter went almost 13 yrs. being undiagnosed. Her final test done was a tilt table test. She flatlined. The cardiologist diagnosed it then. She had a pacemaker put in at 20 yrs. old. No more problems. It’s a problem between brain and heart communicating. No abnormal brain or heart tests. It was the tilt table that cinched the diagnosis. She has had no more episodes, can drive, exercise, and lead a normal life. It was exacerbated at stressful times like exercise, excess heat or cold, a breakup, pain, etc.
I had this done to me but it took 3 hrs of my 2 days in the hospital. It’s a seizure disorder and I am on meds and have not had one in 7 years now. Every year is a check up. God Bless you guys. Canada Ontario
I know what you’re going through I’ve been there. I have POTS and they diagnosed my seizure disorder as pseudo seizures brought on by stress. They mimic epilepsy seizures exactly, actually earlier this year I had one in Wal Mart and stopped breathing and ended up on vent, pseudo means “fake” So some people think that means you’re faking them, but after that episode the neurologist said they are just as dangerous. Prayers for you. Also people have mentioned dysautonoma which is same as POTS. You’re having exactly my symptoms.
I have pots too among other things. I think in a video Carlin said her sister has pots. I might have heard wrong, I believe it was a while back. When they went to New Jersey because her sister was about to give birth. Either way whatsoever is going on sounds like a form of dysautonomia.
dysautonimia is not the same as POTS, POTS is a disease that's within dysautonomia, Dysautonomia is any issue relating to the autonomous nervous system. Gastroparesis for example is another type of dysautonomia.
LOL!! This video had me in stitches...Evan you're such a fun guy!! Carlin, God is in complete control of your life and that's pretty encouraging in itself. Enjoy life...sending hugs!!
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Carlin’s mom coming and staying up with her is just the sweetest thing.
Right! She's always there when a child needs her. I just love that.
She doesn't change poop diapers so she won't babysit any kid wearing diapers!
Mrs B. Is there for everybody! Super mom!
Kelly is not there for here younger kids.
@@terri9547 move on
No matter what we know that God has Carlin in his hands 🙏🏽 Sending y'all positive vibes and tons of prayers. Love y'all so much ❤
Carlins mom is always there when someone needs her! She is the best!!!
Some grandmas have to work or have too many health issues to take care of grandkids.
I had this exact thing happen to me in 2011. Did the 5 day EEG study and everything. Here I am in 2023 and just got diagnosed with POTS and PTSD. Therapy and increase of salt and change of meds helped out tons! Good luck to you!
I have pots too. And would have to agree. Does seem kinda like it can’t lie. I’m in a pots flare up too atm :
Epilepsy has that too
I mean Katie has POTS I feel like they would have checked on that since there is family history.
@@em.sea.squaredyes! And it’s so difficult to find a doctor that understands POTS. A lot of them dismiss it.
I believe it could be pots. Have relatives that have it
Im on the same boat, Ive struggled with many symptoms over 2 decades but labs/tests always look great. I finally let go and started focusing on things that were in my control...diet, lifestyle, including stress management. Diet has been lifechanging. Eliminating processed foods, eating whole foods...and for me easing it on heavy carbs (I found out i may have blood sugar issues) made a BIG difference. Sometimes we have to take matters into our own hands, and find alternative routes. May god bless your family and mental health as you manage this bump on the road. Best wishes 💕
Yes!!!!! So true!!!
Yes, could be interesting to try a whole food keto diet for a month or two to see if that helps.
I'm sorry for the frustration, but so thankful that it's not epilepsy. The thing that helps most is the positive attitude. I know it's not something you can maintain daily, but you still maintain. I know it's because of your faith, and I'm so thankful you haven't lost it! May the good Lord continue to carry you gently through this process. Our prayers are with you ❤
Ty Carlin , you're amazing. So sweet of y'all to share this personal stuff. We love y'all and we do pray for you. Gods timing. Love you guys. Mom Bates is always the best. She makes time for all her babies when they need her. Priceless!
Praying
I really love Kelly she is the sweetest person and even with 19 kids she there for them.
Carlin / Evan, You most likely already told your care providers this but if not, be sure to let them know about taking ashwagandha, which is found in both AG1 & Nutrafol that Carlin takes daily, as it’s been found to interact with seizure medication negatively. She may not have any interaction but it’s good to let them know incase there is. ♥️
Always ask a doctor or pharmacist about drug interactions with supplements.
Coming to the comments to say the same thing. Of course always include ANY medication, even OTC, to your GP and pharmacist. It’s imperative.
I have change meds for that reason. @@shirleybrewer8921
I can’t understand why Evan didn’t stay with the kids…
@@michellecameron5850 don’t need to understand it. Ain’t your kids……..
I loved Evan saying “I love you” when saying goodnight. Y’all are so sweet. I love seeing y’all and your sweet children. Layla and Zade are so cute.
Praying for Carlins healing! God knows just what this is and what you need. I pray divine appointments and that God would led you to what you need.
Happy to hear that you're not an epileptic. Nice to see that you're in such good spirits considering going through this frustrating situation. Hopefully sooner than later they will figure out what's going on and, no more seizures. So nice to see you and Evan in such good spirits going through all of this. Sending much love your way!
See you on the next one!
🤗💕
Thoughts and prayers for Carlin ❤🙏hope everything goes very well for her.
Okay Mama Bates is the best! I just watched Lawson & Tiffany’s vlog where she attended their first ultrasound, she visits Erin & Chad, and here she is coming to the hospital for Carlin’s test. With 19 kids she still finds a way to be present and active in the kids life and always provides the greatest advice. Bless Mama Bates!
LUV these 2 Precious people. Prayers for results.❤️🙏🙏🙏
You're right Evan. My phone went off at 11:18 pacific time. It was early. Blessings to both of you. A stressful situation, I'm sure. Especially with young children at home. You guys are doing so great. An inspiration to all. Prayers.
So thankful it is not epilepsy. Praying you will both get the answers soon. God bless you and your beautiful family!!!! You guys brighten my Saturdays!!!! I love y’all!!!! 🙏🙏🙏🙏♥️♥️♥️♥️
Okay, we need a video of Evan singing! He is so good in that goofy clip! You’re such a trooper Carlin! Hang in there! Prayers and blessings your way ❤
Having a chronic illness or autoimmune disease is exhausting, and we adapt & get used to it. Sad to say! Sending hope & comfort to you, Carlin! You got this momma!
I 100% agree with your comments. My issue is that unless I’m having a bad day and using my crutches or electric wheelchair I look like any other fit and well person. People can’t see my MS or my stoma/urostomy equipment attached to my stomach hidden under my clothing. Fatigue also has to be high up on my the symptoms as it doesn’t allow you to go out of the house, even get out of bed some days let alone socialising. I have lost so many friends since I got sick as I have to cancel things at short notice if I wake up and can’t move my body due to extreme pain. Chronic illness etc sucks and takes away almost all of your quality of life. I’m wishing you all of the best and that things will get better for you. Xx
Rule out
Graves
Hoshimotos
Please
I got epilepsy and hoshimotos 😢
I continue to pray for you Carlin.. for complete deliverance and healing from these episodes as God wills. My husband and I are in full time ministry in NC. We hope to visit your church next Sunday evening. Prayers for all of your family.🙏
That was so sweet of Mrs. Bates to come stay at the hospital with ya'll, especially till 4:00 am. Prayers for Carlin that they can eventually find out what's wrong. Ya'll had me cracking up at the end about the room being cleaned 😂!! I would have read it the same way Evan.
Prayers for yall, and getting the right answers to whatever it is. Mama B is the best, everyone needs a mama B in their life. ❤&🙏
I pray that you find answers to your health issues and that you can move forward with your life.
It was strange that America and Russia did their Emergency alert test on the same day, same time?
Glad that you're progressing in a positive light-no seizures, prayers 🙏 , love ❤️ and peace to guys and your families, I really enjoy the children 😊.
So proud of you guys- that must have been a tough 5 days, but you always manage to keep your spirits up. So happy that something else got crossed off the list and praying for more answers. Love The Stew Crew Saturday mornings!!🙏😘
I am so happy that Epilepsy has been ruled out for you Carlin. I can’t remember if POTS and/or Dysautonomia has been ruled out for you also. Evan you have a beautiful voice! I remember doing the 5 day EEG with my son at 2 years old and 4 years old. Keeping him entertained was tough! It is quite the boring hospital stay for sure!
Prayers that Carlin gets some answers. I too have Epilepic episodes with no “diagnosis”(be 5 yrs. in Dec since started), and told its “all in my head”, and stress. But I know there’s something but have come to accept whatever it is and just continue to try to live my my life, just know now what not to do(that can cause a episode), Carlin just keep enjoying your family and your life, and don’t let whatever it is take control. God Bless you!!
I'm so happy it's probably not epilepsy!!! I'm praying for it to be healed!! 🙏 Zade was so sweet and laying as always!!!
Next time anyone has to be in the hospital…send Evan for entertainment 😂..Evan’s future gig!
😂soooo true!!! 😂😂😂
What a great team the two of you are❣Hugs & Love to both of you.
Praying for you Carlin! I thought it was so special that Momma B stayed with you! Love Y’all! Love and Prayers Always
Great news Carlin. I do understand your frustration. I'm going through the same type of deal. I've had two biopsies(thinking I have cancer), but nothing shows. Im just living life with happiness and not dwell on what could or might be!
Vaccinated for covid?
There is still a large group (the control) who never took the injections.
Everyone else is in the long-term trial group
Thanks so much for the update. I completely understand the frustration but one more think you check off. Continuing to pray for you all
Still praying for you Carlin. Your Mom was so sweet to come and stay until 4am!
Evan your an amazing man, helping Carlin making the best of Im sure this 5. Day experience wasnt the greatest
27:02 I’ve been fainting since Jan 2022 and finally received a diagnosis or Dysautonomia. I think it would be beneficial for you to look that up and see if you have symptoms of that. I’ve had a lot of the tests you’ve had, and it took me changing cardiologists in order to finally get that diagnosis. Good luck!
Do you also have EDS?
Mold can trigger attacks
I also have this along with many other rare diseases. I was wishing today if someone had asked Carlin about this or if she is or was oddly flexible. I feel like with doctors it’s the luck of the draw if you’re going to get a good one that wants to really look into it and help you.
Evan you are such a strong support for Carlin. You are both very fortunate to have each other . Well done Carlin that can’t have been easy for you. 5 days is a long time. 🍀🍀🍀🌻🌻🌻🌻🌻🌻
Your a miracle already, keep the prays going up Carlin, we all are praying for you, xo 😇❤🙏
Can't wait to see the new vlog and hope you guys have a great Saturday afternoon and evening with the kids and hope everything goes smoothly according to the doctors and nurses and praying for Carlin and hope the testing goes well.🙏💖
I’ve lost a lot of trust in medicine over the last few years. Praying for you, Carlin. 🙏🏼😔
💯; except it has been 28 yrs for me.
Same here!
Me too
Thanks for sharing
Me too. The medical field is not what it used to be. It went downhill after 2020
Prayers for strength and eventual answers! So sweet of Mama B. She's the best!
As someone who took 17 years for a correct diagnosis. I am praying so hard for you Carlin. I understand i’m sitting here on the edge of my seat wanting you to have a seizure so bad so you can get answers. I know that feeling prayers and love to your family ❤
Carlin you are so brave I'm praying for you I can't imagine what you are going through but one thing I know God's got you and you are loved and prayed for blessings to you and your precious family we love y'all❤❤❤❤
Praying for you and your family Carlin. Just remember God is still the best doctor and prayer is still the best medicine. 🙏🙏🙏 ❤❤❤ Love you Carlin and family!!
My Sons five day seizure study, finally got him the diagnosis of his seizure types, what parts of the brain they were coming from and he is successfully treated with the right seizure meds now. His seizure activity is from a Brain injury he sustained at birth, but it took until he was eighteen years old, to get the meds right. Probably because he was growing, and has other health and developmental things going on.
I had seizure like issues for a couple years, that turned out to be Narcolepsy. Once treated, problem near perfectly solved. So many things can cause seizure looking episodes and seizures. So glad you are getting to the bottom of your health battle. 🙏🙏🙏
My heart goes out to you and the kids I know. This is hard on everybody, but my prayers are with you. And the doctors to find out why you're having seizures. God will give the doctors the answers and you😊
Thank you for sharing your video! Prayers that you will get answers with the other tests! God bless you all! ❤️🙏
Praying that you guys get an answer soon. Thanks for taking us along to the hospital with ya! God bless all of ya and keep on being so sweet ❤
I have to agree that it could be POTS. I’ve thought this from the beginning! My daughter has it and her symptoms are and have been exactly like Carlins! Continued prayers for you both! 🙏🏼❤️
I love MAMA B! She is so supportive! Always there.
Praying you get answers
You r so kind to share all this because u r helping others who r going through medical problems, u both r an inspiration. ❤❤
Gosh, I feel your frustrations. Hopefully you'll get answers eventually. So much love ❤
Kelly Jo is the sweetest Mom ever !! Love the entire family. Carlin and her family are precious and always put a smile on my face. Thank you so much for shariñg your lives. My prayers are with you, Carlin, and I know that God has you in His hands.
Appreciate the update. That would be so rough to be stuck there for 5 days. You made it look easy.
Aww Carlin you really are amazing, coping with all that with such a good natured attitude; and Evan you are such a wonderful husband, giving your wife this support and comfort right along side her!
Feel better Carlin Evan is the best helping you.
Loved the episode. Thanks for taking us along for it all. Continued prayers for you both.
It's so cute to see how Kelly is always showing up when Carlin isn't doing good.❤️ And also how supportive Evan is during all of this!! U guys are an amazing family!!!
Neurologist here 🙋🏻♀️ from the moment I started following your story, it’s sounded like classic PNEA (psychogenic seizures). Pursue therapy, PT, ask your neurologist about it (they can follow you for it) and stop testing and move on
I agree with your assessment and hope she will pursue therapy and discuss with her neurologist.
I thought the same thing. My sister started having psuedo-seizures that started about 2 hours after she was in a head-on car accident. We really thought she was having real seizures, but extensive testing showed they were not! They lasted for well over a year and happened when she was stressed or tired.
This makes me wonder what kind of abuse she has experienced. We keep seeing criminals being discovered from these extremely religious families like the Duggar’s and Ruby Franke… makes me wonder about Carlin’s family. You never know what goes on behind closed doors.
@jackielowrey3032
One her sisters has pots
Awww I cried when kellie Jo came in. I love yall but I miss the whole Bates family show. I pray that they find out why you are having episodes and you can get better soon. We love yall
My mom had the Tilt Table Test a few years ago, it was to trigger a response in her body in a controlled environment. Ever other test she went through was deemed "normal". So she was thinking the same thing would happen "Nothing" would show. They strap you to a table and slowly tilt the table up until your pretty much standing, mom started talking and within a very short time was a mid sentence and she fainted. She didn't have POTS, she was diagnosed with when most people stand up we have valves in the legs to help shuttle blood back to the rest off the body - in my mom's case the valves dont full close meaning she has lack of blood supply getting back to the heart and resy of the the body. I dont live with her but I'm glad that she is able to tell when she is going to faint and can quickly get to a sitting position with her legs elevated it definitely helps, drinking water or Gatorade someyhinh that will replenish her system. Also she is the only person I know of that has been told to use Salt. So while this is always going to happen to her she knows whst to avoid, avoid strenuous activities in the hotter months, avoid you can taking long hot showers (she has fainted many times after a shower and a shower will drain her she has said its like runnning and biking in a steam room. Her face will become flush across her cheeks, across her nose and the tips of her ears will turn bright pink. She has fainted in the post office enough so that people pulled out their phones to call 911. Several good Samaritans caaught her before her head smacked against the floor.
It started to occur at our church while she was talking to the pastor, what is ironic is he noticed her swaying a bit, her face getting red, and her eyes acting funny. He said are you ok, let's sit down. She was in the process of telling him. So, he was even aware of it before it happened. Carlin im glad that you keep asking the right questions. The testing in the hospital may not have given you the right answers you wanted but they did rule out epilepsy, every test done rules out something and brings you that much closer to a diagnosis. Praying for you and your family.
Increased water and salt intake is a common advice in these situations, my daughter was just diagnosed with hEDS
Glad she doing better. I love the way you guys are so sweet to each other. I know the feeling of missing your babies when you are away for a couple days.❤❤
OMG that's definitely a bouncing Bates baby boy! He's so precious and (thank the Lord) healthy. Taryn is amazing with newborns.
What a talent! Ryker has changed so much in 3 weeks, thank you so much for sharing your little family with us. (including Mauis adjustment to her baby brother. I would absolutely love to see a day in the life with a newborn and maybe Mom and Dad's first date night? (When Mommy is ready of course!) Can't wait to see Jackson and Ember's wedding next week. Love y'all, much blessings. 💙
Love ya'll! So happy you are on the path to getting answers. Also, I love Evan's "camera incognito" moment in the beginning lol
I've never commented on TH-cam until today but I felt I needed to share this with you. I've been following your story on and off for awhile and all of a sudden this video appeared on my feed. I went through something very similar (both symptoms and medical journey). It took 6 years and 12 doctors, every test imaginable and me fighting to be heard. I finally had a divine nudge to ask for a sleep test with revealed I had Narcolepsy with Cataplexy.
NYU Epilepsyand Sleep Center specializes in cases like these. It was were I finally got diagnosed. It maybe a resource to look into.
Narcolepsy never crossed my mind. Interesting. Glad you finally got a diagnosis.
Agree - check for narcolepsy with cataplexy
My husband as well. And he doesn’t actually have typical narcolepsy - as in the sleep tests weren’t conclusive and didn’t match narcolepsy. But they tried meds that one would give someone with narcolepsy because the episodes were so much like cataplexy. And the meds have helped tremendously
Sending love and prayers Gods got this and so do you! You have such a beautiful family and both sides of your families are amazing. Your mom is beautiful too I can see where Carlin gets her beauty from. The babies are so darn cute! You're amazing parents. ❤❤
Hey guys, I totally feel you trying to solve what's causing Carlin's seizure episodes. I've been on a similar journey with my daughter. And we have learned that low blood sugar/hypoglycemia can cause seizures. There's a remarkable doctor in Houston, Tx named Gail Henry. She is both a neurologist and a chiropractor and is the only medical person of her distinction in the entire country. She's been a tremendous help to my family in getting to the source of my daughter's seizures, and very gratefully, we're working towards her healing. Prayers for you guys! :)
I’ve been following you guys since Bringing up Bates and have been keeping up with your diagnosis journey. I just went through 2 years of doctors visits trying to figure out what my episodes are. I’ve finally got a diagnosis of POTS and this could be something to ask your neurologist about!
I've been there, had symptoms for 7 years before finally getting diagnosed.
I was close to stopping the search for answers but found a great internist doctor who made all the difference.
Evan you’re such a wonderful husband , you have been by Carlin’s side through all her illness with such love and patience. I’m glad she had a 5 days EEG and that for now the test seems to confirm it’s not epilepsy but sadly she didn’t have an episode wich would have been very helpful to finally find the proper diagnosis .
PD:I was in the hospital for 10 months , if you are bored just for a few days imagine how that was like
I am so sorry beautiful . May Christ be with you♥
@@bezagebremedhine5102 Thank you so much !!! so sweet of you
Evan is the sweetest ever, always making Carlin laugh and singing to her. Love it 💜🙏🏼 continued prayers
Praying for you, Carlin! I don’t really understand what your doctors are thinking (since it took forever for them to schedule the 5 day EEG - they just seem a little too nonchalant), but I hope you have the best team possible on your side! ❤
Um, they do have other patients that need these tests done too.
It seems most neurological type doctors stay packed.
They only right
When seizures
Are going on
Praying for you Carlin!! Carlin and Evan are so funny, even in a hospital. They always get me laughing
But I was you and your family in his hands. We are praying for y’all. Everything’s going to be OK can’t wait to the next video. Y’all have a blessed Saturday.❤❤
Continued hugs and prayers for Carlin!!
Thanks for the update! Continued prayers Carlin. I'm sure it's still frustrating.
You’ve got that behind you!!
Continued prayers!❤
Hey Carlin! I know how frustrating it can be to not have the answers you are looking for, but the beautiful thing is after all these tests they are ruling out the big stuff, which I’m sure brings a lot of comfort! I’m sure you are already doing this, but track any changes physically, mentally, emotionally that you experience and have a journal. If it is a week before your menstrual cycle it could be due to estrogen levels in the body that affects blood pressure, and like you said could be hormonal! I pray that you all find the answers you are looking for soon, and that you continue to look to Christ as your ultimate peace and comfort❤️ God will use everything you are going through and nothing is wasted! God bless!!
I was wondering if they had you do some really busy stuff. The “events” you’ve shown seem to be at family gathering or a big sale etc. (arm chair Dr here😂). Continued prayers from Texas! God’s using this in a way you may never know.❤
You both are in my prayers! May God find the right doctor to find out what is going on and praying that the doctor’s can figure out a diagnosis!❤😊🤗
Carlin you look like your mom!!! That was sweet your mom and Whittney coming and seeing you!! Your kiddos are absolutely gorgeous!!! Can't wait for next video!!! Love and enjoy watching yall!!! Love you guys!!!❤
Praying for you to get answers to your health problems. Love you guys ❤
I'm so sorry you have to go through all of this. You make a great couple. You're positive attitude is heartwarming. It was nice to see your mom. I miss the family program. Continued prayers.
Sending prayers Carlin! At least they're ruling out the big stuff! 🙏💕🙏
Mama B is the BEST!!! Y'all are blessed to have such supportive families. ❤
"I look like a monkey". LOL GF, that cracked me up! Father God, we ask You here and now to step into this situation. Carlin and Evan need Your intervention. Please give the doctors and nurses wisdom. Help them to find out what is going on here. Carlin is a young mother. Her husband (and babies) need her. They need her to be whole. So again Father, we lift Carlin up to You now, and ask that You heal her in the Name of Your Son, Jesus, Who is the Great Physician, and Who gave His life for us all. Thank You, Abba Father. Our hope is in You. Amen and amen.
So glad you two are partners in everything!!
Praying for you, love your family!!! 🙏❤️
Praying for good results Carlin. So sweet for your mama coming and staying with . Sweetheart I love your family so much sure miss seeing your whole family on TV . Love you guys so much. ❤❤❤
Praying for you Carlin! Love y’all’s videos!
Carlin, you are a brave brave girl. I know you have your down times but you seem to cope so well and you don’t let your health stop you enjoying your husband and babies. You are a ⭐️! 💕🇦🇺
“I’ve got joy bc I’ve got Jesus” y’all two remind me of that line from that song. Things aren’t always perfect but you always have joy! The hide and seek had me laughing so hard. Lol 😂 ❤
I love Saturday stew crew day!😊
Your videos always bring so much joy- Evan you’re hilarious! So happy Carlin can rule out epilepsy- I know that’s a relief! Prayers for continued answers and ultimately that the Lord brings healing!
I have been experiencing similar episodes randomly. My findings so far have been due to blood sugar levels and blood pressure. Purchasing a blood pressure cuff and a glucose meter could be a good idea! Amazon is a good option. When the episode hits have someone check your sugar level and blood pressure. I know how frustrating it can be to not know what is causing your body to malfunction and feel so terrible. I’m glad you’re not experiencing it as much. Continued prayers!
I agree with this! I was always a high energy person but ran on adrenaline. I had a hypoglycemia problem eventually got tachycardia where blood pressure spiked when I got up or over excited. Many migraines and I’m monitoring it now,
@@Sunnydreamer1470
Get checked for Graves
Low blood sugar and blood pressure.
Evan you are so funny and sweet!! Keeping Carlin entertained in the hospital. So funny playing hide and go seek in the hospital 😂😂 . Carlin I’m glad you finally got to have the test. ❤❤
My prayers are with you carlin❤❤❤your kids are adorable ❤
Please get tested for Neurocardiogenic Syncope. My daughter went almost 13 yrs. being undiagnosed. Her final test done was a tilt table test. She flatlined. The cardiologist diagnosed it then. She had a pacemaker put in at 20 yrs. old. No more problems. It’s a problem between brain and heart communicating. No abnormal brain or heart tests. It was the tilt table that cinched the diagnosis. She has had no more episodes, can drive, exercise, and lead a normal life. It was exacerbated at stressful times like exercise, excess heat or cold, a breakup, pain, etc.
I had the same and failed that test, but my outcome was vasodepressor syncope and hemiplegic migraines. Tilt table test really was scary
I have Epileptic seizures and none epileptic seizures…both brought on by stress ….
Prayers for you and health and happiness xx xx
Both are yes I got both
😂 Evan definitely makes a hospital 🏥 stay soo much more fun than normal. Praying 🙏 for you, Carlin, for answers and healing.
I had this done to me but it took 3 hrs of my 2 days in the hospital. It’s a seizure disorder and I am on meds and have not had one in 7 years now. Every year is a check up. God Bless you guys. Canada Ontario
I know what you’re going through I’ve been there. I have POTS and they diagnosed my seizure disorder as pseudo seizures brought on by stress. They mimic epilepsy seizures exactly, actually earlier this year I had one in Wal Mart and stopped breathing and ended up on vent, pseudo means “fake” So some people think that means you’re faking them, but after that episode the neurologist said they are just as dangerous. Prayers for you. Also people have mentioned dysautonoma which is same as POTS. You’re having exactly my symptoms.
I have always thought it’s POTS!
Same! Fellow POTS patient who was initially diagnosed with epilepsy.
I comment asking them have they looked into POTS also!
I have pots too among other things. I think in a video Carlin said her sister has pots. I might have heard wrong, I believe it was a while back. When they went to New Jersey because her sister was about to give birth. Either way whatsoever is going on sounds like a form of dysautonomia.
dysautonimia is not the same as POTS, POTS is a disease that's within dysautonomia, Dysautonomia is any issue relating to the autonomous nervous system. Gastroparesis for example is another type of dysautonomia.
LOL!! This video had me in stitches...Evan you're such a fun guy!! Carlin, God is in complete control of your life and that's pretty encouraging in itself. Enjoy life...sending hugs!!