NPH: When the Shunt No Longer Works

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  • เผยแพร่เมื่อ 7 ม.ค. 2025

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  • @gailwhidden2051
    @gailwhidden2051 7 ปีที่แล้ว +22

    I found these lectures fascinating & informative. I did NOT realize that there were so many of us out there...

  • @maribelsky4
    @maribelsky4 2 ปีที่แล้ว +6

    Excellent listening and reading others' comments. At age 70 in 2021, I had my 3rd brain surgery. This one to have a VP SHUNT installed. The day after surgery, I was a new person. Despite foot neuropathy, my walking and talking improved. My incontinence also slowed down, although it might be back now. One of the best outcomes is that my memory has returned. I can remember entire paragraphs in conversations. As for subdural hematomas, I had a bad one in 2020, with a drain implanted for 7 days until the blood was gone. Before, I could only say the word "I ". The day after drain implantation, I was able to speak again, as well as pass all tests of the hospital staff. I was allowed to walk around the hospital floor without accompaniment, using my "Upwalker".
    When it comes to my brain, I always want to know more. 1st neurosurgery, 2019 for meningioma behind my left eye against optic nerve. I am fairly blind in that eye. Thank you.

  • @davidanderson1074
    @davidanderson1074 7 วันที่ผ่านมา

    Excellent presentation!

  • @martintipper5800
    @martintipper5800 8 หลายเดือนก่อน +2

    My shunt, 1991!!! Getting ready for my first revision. The headaches, blurred vision and all the other symptoms that come with shunt malfunction, needs to go away.

  • @Jevababy25
    @Jevababy25 2 ปีที่แล้ว +6

    My dad goes into hospital next week to be tested. We are hoping it is hydrocephalus because there’s hope to improve his condition

  • @Zxouf873
    @Zxouf873 4 ปีที่แล้ว +8

    Great great speech thanks 👍

  • @user-ws1bx
    @user-ws1bx 3 หลายเดือนก่อน

    Great commentary

  • @gmhyska1188
    @gmhyska1188 4 ปีที่แล้ว +6

    I'm a little frustrated... I had a shunt placed when I was TWENTY! I'm now 37- pediatric or elderly patient concerns are not super helpful to me. It's so great to know that there are enough people with Hydrocephalus to warrant conferences and an association, but where are people in my age range????

    • @kerrystaffa4335
      @kerrystaffa4335 3 ปีที่แล้ว +3

      Gotta ask those doctors running NPH conference. Best of luck

    • @melanieconyers4616
      @melanieconyers4616 3 ปีที่แล้ว +2

      Like you, I also have late onset hydrocephalus. Had a VP shunt 2years ago. Would have also liked more info on this topic

    • @sheikhmuzamkamran9571
      @sheikhmuzamkamran9571 3 ปีที่แล้ว

      Yes

    • @donnahouston9126
      @donnahouston9126 ปีที่แล้ว +1

      I had my shunt placed in 1973. At birth.
      I am chasing a review as my shunt will be 50 years old.
      I got missed from childhood to adulthood.
      Shunt malfunctioned again in 2017.
      Discharged again.
      Back to GP again, on waiting list for neurology AGAIN

  • @pamelajenkins568
    @pamelajenkins568 3 ปีที่แล้ว +6

    I have a v.p shunt. It’s been in my head since I was a baby. But now I’m 38 years old

    • @barraqaalim7459
      @barraqaalim7459 3 ปีที่แล้ว

      I recommend you to Dr Okolo herbal medicine formula who can help cure you completely from this disease

    • @kerrystaffa4335
      @kerrystaffa4335 3 ปีที่แล้ว +1

      Will you have to change your shunt?

    • @Yash46597
      @Yash46597 3 ปีที่แล้ว

      Which herbal medicine

    • @barraqaalim7459
      @barraqaalim7459 3 ปีที่แล้ว

      @@Yash46597 just contact him on this email drokolosolutioncenter@gmail.com

    • @adamspringer2442
      @adamspringer2442 3 ปีที่แล้ว +1

      @@barraqaalim7459 ARE YOU SERIOUSLY TRYING TO TELL PEOPLE A FORMULA CAN CURE HYDROCEPHALUS?!!! YOU ARE GIVING PEOPLE FALSE HOPE AND POSSIBLY MAKING THIER CONDITION WORSE! I have hydrocephalus! I know what helps! It's called surgery, management, and JESUS! 🤬🖕

  • @nimraakram8921
    @nimraakram8921 4 ปีที่แล้ว +4

    Plz find the treatment instead of shunt surgery

  • @adammfanning3654
    @adammfanning3654 หลายเดือนก่อน

    Blood brain barrier - is there an increase in brain infections with a shunt in the belly?

  • @rodgerkieffer6151
    @rodgerkieffer6151 9 หลายเดือนก่อน +1

    Thank you very much

  • @jenniferbledsoe4311
    @jenniferbledsoe4311 3 ปีที่แล้ว +1

    Is there any way to get in touch with this doctor? I have an unusual long history of hydrocephalus not normal pressure hydrocephalus but it is complicated it would be very beneficial to me to talk to him I think considering that I have been running into some serious brick walls

  • @moorejazznow
    @moorejazznow 5 ปีที่แล้ว +4

    Thanks for this information. My husband, age 72 has NPH, he will be going in next week for his 3rd placement, started in belly, moved then 4 months later to atrium, now is is not working at all so that is why he goes back in to find out what malfunction is next week. He was diagnosed April 2018, it is now April 2019.

    • @TwasSoBrillig
      @TwasSoBrillig 5 ปีที่แล้ว +1

      Hello, would you say that it was worth going through with the initial procedure? Did you see marked improvement?

    • @moorejazznow
      @moorejazznow 5 ปีที่แล้ว +1

      Initially I saw an improvement to his old self after 1st shunt placement, However, after about 3 weeks it was back to pre shunt symptoms. the second one, hardly any improvement. Yesterday we had 3rd one done, the neurosurgeon did find a slice that did not allow proper drainage .in the shunt that she cut off and fixed. He was fine after he immediate placement in observation, however, after about 15 minutes he appeared really confused. We ended up spending the night in the hospital. I am hoping all this confusion may be result of anesthesia, he can go along for a few hours fine, and suddenly gets very irritable. So now we just wait and see the results after surgery healing. I was so hopeful that this would be the answer that so many people have found after the shunt. It is still a wait and see for me. @@TwasSoBrillig

    • @TwasSoBrillig
      @TwasSoBrillig 5 ปีที่แล้ว

      @@moorejazznow Thank you so much for your reply. I have never read about these obstacles.

    • @youbgyoubg8716
      @youbgyoubg8716 5 ปีที่แล้ว +2

      He is blessed to have you reading and researching and standing by him god bless you both you are a great women to be his eyes and ears my husband is mine I wish u a speedy recovery and nothing but peace

    • @kerrystaffa4335
      @kerrystaffa4335 3 ปีที่แล้ว

      Why can they have this problem fixed? Shunts ?

  • @bethweitz7309
    @bethweitz7309 4 ปีที่แล้ว +4

    You don't like to replace the shunt? BUT, what happens when the child grows(ages) and shunt gets shorter?

  • @ashadmccloud5734
    @ashadmccloud5734 4 ปีที่แล้ว +4

    I've been sleeping way to much and been having headache could that be a warning signs that the shunt is not working

    • @dennisbobker260
      @dennisbobker260 3 ปีที่แล้ว +1

      Great video. Really answered many questions. I need to find a doctor with experience.

    • @kerrystaffa4335
      @kerrystaffa4335 3 ปีที่แล้ว +1

      Ask the doctor, that put in the shunt.sometimes you gotta get tuff,it's your life..

  • @gloriacastro3159
    @gloriacastro3159 8 หลายเดือนก่อน +1

    I'm sorry my name is Gloria Castro I live in Corpus Christi it hurts the tightness in my head I don't know what to do anymore someone please help me

    • @susanedghill6597
      @susanedghill6597 4 หลายเดือนก่อน

      𝑯𝒔𝒗𝒆 𝒕𝒉𝒆𝒚 𝒄𝒉𝒆𝒄𝒌𝒆𝒅 𝒚𝒐𝒖𝒓 𝒔𝒉𝒖𝒏𝒕 𝒔𝒆𝒕𝒕𝒊𝒏𝒈𝒔. 𝑯𝒂𝒅 𝒕𝒐 𝒂𝒅𝒋𝒖𝒔𝒕 𝒎𝒊𝒏𝒆 𝒘𝒉𝒆𝒏 𝒊 𝑾𝒂𝒔 𝒉𝒂𝒗𝒊𝒏𝒈 𝒉𝒆𝒂𝒅𝒂𝒄𝒉𝒆𝒔

  • @grahamwood156
    @grahamwood156 ปีที่แล้ว

    I’ve had a shut from 38 I’m now 66 still working till 55 I’m a bit lost now .

  • @MrPenguinsfan66
    @MrPenguinsfan66 4 ปีที่แล้ว +1

    My autistic, non verbal son just had a shunt installed after an incident with only vomiting the sign of increased pressure. Is anyone making or having trials of a incorporated pressure monitor to give signs of failure?

  • @veenay.r.3275
    @veenay.r.3275 2 ปีที่แล้ว

    Sir my daughter is haveing vp shunt we are in bangalore now it is overdrainage pressure is 140

  • @drycounty77
    @drycounty77 4 ปีที่แล้ว +2

    Anyone who got better wihout a shunt? My mom can’t go through the operation because of age and other medical complications...
    We are thinking about osteopath....

    • @moseyoung4573
      @moseyoung4573 4 ปีที่แล้ว +1

      sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like HIV/AIDS HERPES CANCER DIABETES Alzheimer NPH ETC

    • @adamspringer2442
      @adamspringer2442 3 ปีที่แล้ว +1

      @@moseyoung4573 stop trying to push your bullshit. This is hydrocephalus. Not something that can be cured by a formula!

    • @khaldancarlos9859
      @khaldancarlos9859 2 ปีที่แล้ว

      @@moseyoung4573 SHUT UP MAN

  • @susanedghill6597
    @susanedghill6597 4 หลายเดือนก่อน

    I was having headaches and had to have an adjustment about a year ago. I’ve only had the shunt for two years and now my memo𝑹𝒚 gone my short term memory .