Emelia Quezada's Story of Wilson Disease

Emilia Quezada felt that her life was just beginning. She was living in Mexico City and started an exciting job working for Red Bull while studying for a degree in Italian. The first sign that something was wrong, was a tremor in her hand. She experienced a number of devastating wrong diagnoses before finally getting diagnosed with Wilson disease. She was relieved to have the right diagnosis, worked hard to regain all that she lost with medication and therapy, but then struggled to find an available treatment that worked. A doctor wrongly told her to stop taking her medication and her health deteriorated. She's fighting her way back again to good health and credits her determination, positive attitude and an amazing support network of friends and family. Here is her story.

[@lindabelamsel]

I feel relief now that i know that there are people out there with a normal liver and WD at the same time.

[@SaintsArise]

Thankyou for sharing your story, I am in process of diagnosis now and things are very progressed with Discovery of numerous other rare conditions as well. My faith and relationship with the Lord Jesus Christ is my lifeline and he holds my life in his hands. I pray for healing, peace and that you will know joy regardless of how challenging things can be. You are loved and have great purpose in life, wonderful creative gifts also. beautiful to see your resilient spirit shine through, Blessings to you in your journey we can do all things through Christ who gives us strength.

[@ravinderkaur4402]

Hi, I would like to know how is Gluzin as a tablet, instead of Depencillamine

[@annemariemt5681]

specialist back then would consider people with this illness crazy and psycho and some people involved in law and psychology still do and ostrazize the poor people with this rare disease if only they knew how much energy it takes to barely survive with this they wouldn't have those prejudice

[@annemariemt5681]

i have the all the physical symptoms since a kid from anemia,peeling,liver pain,sclerosis,parkinson episode,high copper, I mean I strive to live with it I took many test in hospital and eye doctors to confirmed even sent result to the mayo hospital all professionnal said It looks like I have the disease yet they didn't sent me a physical paper confirmation yet I must check with the professionals in the domain more since in quebec right now they are only good at giving psych med that kills people... I was ignoring the symptoms for alittle while and even laughing at times I brush near death but it's how I coped in feeling hopeless since the system is only pushing people down