Celebrating 5 Years of EDS ECHO

In a world where rare and complex diseases often struggle to find a voice, the EDS ECHO program stands as a beacon of success. As we celebrate its 5th anniversary, we reflect on a journey that began in April 2019, transforming education and care for Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) globally.
EDS ECHO was established to address the need for specialized knowledge and care strategies for often misunderstood EDS and HSD conditions. Using the Project ECHO® model’s “all teach, all learn” philosophy, it aims to move knowledge, not people, creating a scalable impact on health. This model fosters collaboration, empowering healthcare professionals to enhance their skills while maintaining patient care responsibility.
Starting with two hubs at Indiana University Health, Indianapolis, USA, and The Royal Society of Medicine, London, UK, EDS ECHO expanded globally, attracting healthcare professionals from all disciplines. Through case-based discussions and sharing of the latest knowledge, EDS ECHO has fostered a rich learning environment, encouraging professional growth, networking, and collaboration.
From its inception, EDS ECHO broke new ground as the first Rare Disease ECHO, the first to offer ECHO Events, and the first to offer an Advocacy ECHO, laying the foundation for a global educational movement. Over five transformative years, the program has provided 847 CME (Continuing Medical Education) credits, demonstrating its commitment to continuous education and professional development. Learn more about this transformative educational program: www.ehlers-dan...

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Can someone send someone to train people in EKHUFT please.