Narcolepsy - proteins like you’ve never seen them before
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- เผยแพร่เมื่อ 27 ส.ค. 2024
- We know that almost all parts of our brain are somehow involved in our sleep, but there is one peptide that is key: orexin. If orexin-producing cells die, and the switch mechanism between sleep and wakefulness is disabled, it will lead to the disease narcolepsy. Here, the part of the brain involved in narcolepsy is explored using 3D imaging. We can see how the cell projections have gone from the hypothalamus all the way down to the lower brainstem and work closely with the locus coeruleus neurons (red).
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This was more of an ad for the human atlas project than talking about narcolepsy
Sooo, you guys going to be able to fix me? I’ve got narcolepsy with cataplexy and I hate it. Need a human brain to test?? Take mine.
You are not alone friend ❤
Consider a carnivore diet
@@MichiganThumb did that alleviate your symptoms?
@@clean_rene we are finding that our daughter is very sensitive to food. Does she still have narcolepsy and cataplexy…yes. But, she is almost 30 and has free will. I can’t make her go full on carnivore. Sugar is horrible for her.
@@MichiganThumb oh ok. I'm just curious to see if I should try that. but thanks
I really hope we truly understand these sleep issues in the next ten years.
I have mild apnea and my doctor also believes I have narcolepsy despite a negative latency test. But I am so tired during the day I can't function...yet if I get the opportunity to nap, I can't because my mind races too much, but I can't do anything because I am so sleepy. I've fallen asleep at the wheel no less than 30 times for brief moments but don't have cataplexy. My hallucinations are rare but they will happen for a straight week in order for me to fall asleep then goes away for two weeks. I have stages of sleep paralysis that come for a few days then disappear for a while. No one can seem to figure it out and I just wish there were scientific sleep studies near me I could volunteer for. I seem to be some weird outlier and no doc really knows what to do
Sleep latency test is hard because it's a controlled environment and typically "milder" cases get missed.
But it's not really like, "you don't have it," it's inconclusive.
They like to do the latency test after the night sleep test too because sleep deprivation even to a slight extent can cause lots of the same symptoms
I would bet you have insomnia as well or maybe if you don't have narcolepsy maybe the sleep apnea and some other factors put you at a higher risk for sleep deprivation?
I really wish I could tell you something to help you but I go through the EXACT same thing. Don’t know why. I damn near died from falling asleep at the wheel MULTIPLE times. Only thing I can tell you that may make you feel better is I go through the same thing.
I feel you. Feel like I understand more than my dr.
cataplexy does not manifest in everyibe with narcolepsy, around a fifth do not
I am in a similar state, although I have Sleep Apnea at the lower end of the "severe" band. I've been on CPAP 3 years now and I'm still as tired as when I started using it. I get Sleep Paralysis about once a week now. It was much worse before the CPAP. But I also get auditory hallucinations when I first drop off, and also sometimes shortly before falling asleep. I control things by napping most days. I have extensive autoimmune disease - arthritis, chronic migraine, something wrong with my liver, psoriasis, lichen sclerosis. My blood pressure is still bad and getting worse, despite CPAP. Recently done MSLT and didn't really get enough sleep the night before, but they let me do it anyway. Really bad HOT room, noisy etc. Slept 3 /5 naps, and went in REM really fast on one of them. But I'm 49, I seem to also be some weird inbetween thing.
Very informative from a medical perspective. Thank you
Really Cool video. Keep it up
Does it there is no treatment to narcolepsy?
Is there no solution?please recommend some medicine to get relief from this hell disease!
Xyrem works wonders very hard to get a prescription tho
@@ren4898 I was on it for a while crazy high cost.
@ren4898 Xyrem is addictive even tho experts say it isn't. It's difficult to get-off and not the wonder drug it everyone was hoping for. It's not the answer long-term
modafinil
fixing the gut is crutial, liver, ect
@stellaancimer7595 - don't give advice to people
@@addiecoelman1996 I will always give advice that has pure intentions, and some facts..
All the best
@@stellaancimer8505 fixing the gut won't affect narcolepsy. Giving advice is not a 3 word statement. You're implying that fixing the gut solves many health issues. If you were trained or honest you would certainly be far better at giving advice.
@@addiecoelman1996 I can just say, learn something about microbiome, and gut healt, it is not something I figure it out...and yes it has huge impact on narcolepsy, I am the one with that diagnose, and with leaky gut, so once again microbiome interesting stuff;)
@@addiecoelman1996you are quiet misinformed and extremely ignorant to not think twice about it when you have not one but 2 people telling you that you are wrong! Do your research and understand not just the physical anatomy but the neuroscience and the connection called the brain guy axis!
Music is super annoying & distracting
Ok