Mobility aids with Ehlers-Danlos syndrome

Today I’ll be discussing the mobility aids that I’ve been using this year. I use a cane, Walker, and a wheelchair. I wear ankle braces, I have to use a shower chair. Never be ashamed by what you need to use to keep your body safe.
#ehlersdanlossyndrome
#chronicillness #mobility #canes #walker #wheelchair 

[@caivail4614]

Thank you for the ramble :) I’m going through a similar journey with EDS progression at 35 and having a lot of icky shame/embarrassment/feeling like a burden stuff. It helps to hear from someone else that’s going through it too and has dealt with that negative self talk in a healthy way.

[@bee1411]

Thanks for this, I’m 25 and my EDS has been progressing in severity since I was 14 years old. However in the last few months my wrists have begun subluxing on a daily basis, and so I’ve had to switch from my cane to a walker. It’s been a journey of shame, pride, excitement, and doom/hopelessness all at the same time.

[@godzgirl371]

I wish you the best of luck on your journey. I also wish that you do not feel shame and having to use mobility aids. I have a cane, I have a walker, I have a wheelchair. It’s a part of my life now and those that are around me have excepted it.

[@charitybennett1566]

I feel the same way about all of this

[@lilypettinato1282]

Thank you for your video. You helped me feel better. I gave in and used a wheelchair for a family outing today. It helped. I'm still dealing with getting out into the world after 2yrs of being ill. I'm 40 with 2 kids. It's hard to give into mobility aids but I have places to get to!! #sarcoidosis #POTS #hypermobility

[@godzgirl371]

You’re welcome! It is so hard.
You do have places to get to! I’m glad this video help you!

[@kareemxo3]

Thank you for this. I have chronic pain (no diagnosis yet, though my rheum said I had hyper mobility, positive ana as well as other symptoms) and I am 19 years old. I get judged harshly for sleeping so much and being unemployed, I get ashamed for even thinking about mobility aids but the pain is increasing in severity.

[@godzgirl371]

I’m sorry to hear this. It’s very hard, knowing that you need assistance with walking. It’s very hard to deal with knowing that you have pain every day. Don’t ever feel ashamed for needing help. Do what’s best for you. You’re so young.