Life with Ehlers Danlos Syndrome: Savannahs special package.

[@annacooper1299]

I would love to see what you got for Savannah and what life is like for the whole family post surgery

[@UniquelyZebras]

Ok I'll definitely plan for those vlogs

[@IziGryffindor]

True

[@chronicallyalyssa6829]

I would love to see how you prep for her surgery. I will likely be getting a surgical tube soon too. We are talking to my doctor about it on Friday

[@UniquelyZebras]

Are you getting the surgery?

[@IziGryffindor]

BTW I love her hair

[@UniquelyZebras]

Thanks it has faded so much.

[@IziGryffindor]

Hey Savannah is the same age as me

[@IziGryffindor]

I’m also an EDS warrior myself

[@UniquelyZebras]

That is awesome. Y'all should become pen pals. Our PO Box is in the description if you want to write her.

[@IziGryffindor]

Uniquely Zebras cool

[@IziGryffindor]

Hey guys how is she

[@UniquelyZebras]

She is doing good. She wasnt feeling her best this morning but seems to be doing better later today.