I’m was diagnosed about 3/4 years ago. My first Oncologist was horrible. She gave me the wrong chemo that put me in the hospital weekly so we researched and found an amazing man named Mihir Raval, MD, out of Albany NY medical center. This man literally saved my life. He changed all my treatment around and after a year i was back to work full time. Now I still catch infections easily so you gotta avoid people the best you can and of course wash your hands etc. But just because a doctor has a degree it doesn’t mean he or she know what they’re doing and if they don’t even care about you. If they get annoyed at any questions you have then stand up and say I’m going to find a doctor who listens and cares about me and never go back! It’s your life! If my family members never intervened to say this lady doctor is literally killing you I have no doubt I would be dead today. So stand up for your rights. Do research on the best oncologist in your area with lots of raving reviews! And get on a good treatment plan and luckily with this disease there is a mile long of treatments and get back to living. And keep Jesus close by because he’s the real cure! 🙏👍😊
Thank you so much for sharing your wonderful, inspiring story! I was diagnosed with MM in January 2020. I live in Korea and thanfully had a friend whose uncle was a doctor who got me into a great hospital with a wonderful oncologist who was familiar with Multiple Myeloma. I was in total renal failure and the emergency dialysis brought me back from the brink. I'm currently in remission after some ups and downs with chemo side effect issues, but your story gives me hope. Thanks, again for helping me remain optimistic despite my fear. You are truly an inspiration. Best wishes for your continued health and happiness!
Thank you so much for sharing your story. My mother was diagnosed with multiple myeloma in February 2021 and we’re getting ready for her transplant. Hearing your story gives me so much hope.
So appreciated.. 🙏 The timing. My family member just stated velcade 2 weeks ago .. Ty for being in that trial 007 ~ Warrior . Surviving strong to give hope to so many. ( & ty , ty ,Catherine. the patron saints of MM at Dana Farber )
Thank you both for sharing your remarkable story and personal story. I am a 75 years old Vietnam Vet who for the heck of it went to my local VA Hospital and requested a MGUS test. A few days ago I found out I was positive for the M protein in both my blood and Urine. Your story has been both heart broken and inspirational to me. My wife and I have now been plague with the C word; but you advice to not be overwhelmed and having us stay in the middle is a God sent. ♥️you both for sharing your remarkable story and remember James Bond: Live and let the cancer die
My Fiancee 54 yrs old, Filipino, was diagnosed a month ago with MM...he had taken Velcade two weeks already.....Truly appreciate your testimony that gives us so much HOPE...god bless you
I can't imagine getting two and three second and third opinions and actually going with them. The first doctor should be experienced enough to know what to do
Thank you so much for sharing your journey. My husband was given this diagnosis about a year ago. Just started Treatment about 8 weeks ago. We don’t know how long this journey will be, but my husband is in a lot of pain. His Father also had this, but it was late in the game when he was diagnosed. He lasted about 6 weeks, after diagnosis. We also have been told, it is NOT HEREDITARY ?
I've been diagnosed with MM and have a 17p deletion. Im 55 and an I was combat trained airborne infantry medic. I was extremely fit and healthy so I thought... Had stem cell transplant and non my eighth cycle of chemo. (RVD-D) on max amount of everything.
My brother in law was treated for MM 29 years ago. After intensive treatment he went in remission for 27 years! Unfortunately it came back almost 2 years ago. Had weekly chemo for about a year, protein went down for 6 months. Unfortunately it went up again and he just started (weekly) chemo again 3 days ago. Yesterday he felt so sick. How long does it take for the chemo to show results?
if your back has no damage, go swimming, do so weights use the proteins to build up muscle, get long walks up the hills. y bck has damage because of driving,but fro two years i was fine, i found that calisthenics stretching, swimming ws the key, of course foods are important, but 2 months ago i re-started driving and my back got bad, drugs are a trying new trying with side ugly effects, follow your intuition , exercise the way i told including abdomen work outs
I’m was diagnosed about 3/4 years ago. My first Oncologist was horrible. She gave me the wrong chemo that put me in the hospital weekly so we researched and found an amazing man named Mihir Raval, MD, out of Albany NY medical center. This man literally saved my life. He changed all my treatment around and after a year i was back to work full time. Now I still catch infections easily so you gotta avoid people the best you can and of course wash your hands etc. But just because a doctor has a degree it doesn’t mean he or she know what they’re doing and if they don’t even care about you. If they get annoyed at any questions you have then stand up and say I’m going to find a doctor who listens and cares about me and never go back! It’s your life! If my family members never intervened to say this lady doctor is literally killing you I have no doubt I would be dead today. So stand up for your rights. Do research on the best oncologist in your area with lots of raving reviews! And get on a good treatment plan and luckily with this disease there is a mile long of treatments and get back to living. And keep Jesus close by because he’s the real cure! 🙏👍😊
Thank you so much for sharing your wonderful, inspiring story! I was diagnosed with MM in January 2020. I live in Korea and thanfully had a friend whose uncle was a doctor who got me into a great hospital with a wonderful oncologist who was familiar with Multiple Myeloma. I was in total renal failure and the emergency dialysis brought me back from the brink. I'm currently in remission after some ups and downs with chemo side effect issues, but your story gives me hope. Thanks, again for helping me remain optimistic despite my fear. You are truly an inspiration. Best wishes for your continued health and happiness!
Incredible story! May God continue to bless you and your beautiful wife!
Thank you so much for sharing your story. My mother was diagnosed with multiple myeloma in February 2021 and we’re getting ready for her transplant. Hearing your story gives me so much hope.
My mother as well. She just had her stem cell transplant 6 days ago. I hope your mother is doing well 💖
Thanks for sharing your story. It is a must watch for anyone dealing w multiple myeloma. 💕☺️
So appreciated.. 🙏
The timing. My family member just stated velcade 2 weeks ago ..
Ty for being in that trial
007 ~ Warrior .
Surviving strong to give hope to so many.
( & ty , ty ,Catherine.
the patron saints of MM at Dana Farber )
Wow 29 years. You are amazing 💗
Thank you both, what an amazingly inspiring, humoristic in all it´s darkness story. You seem to be lovely people, i wish you many more years together
Thank you both for sharing your remarkable story and personal story.
I am a 75 years old Vietnam Vet who for the heck of it went to my local VA Hospital and requested a MGUS test. A few days ago I found out I was positive for the M protein in both my blood and Urine.
Your story has been both heart broken and inspirational to me.
My wife and I have now been plague with the C word; but you advice to not be overwhelmed and having us stay in the middle is a God sent. ♥️you both for sharing your remarkable story and remember James Bond: Live and let the cancer die
Thank you for sharing your inspirational story. Good luck with everything 🍀
Thank you, thank you, thank you....54, and diagnosed 9 months ago. Stem cell transplant due next month. You have given me such great hope...xx
How did your transplant go? I hope you're well
My Fiancee 54 yrs old, Filipino, was diagnosed a month ago with MM...he had taken Velcade two weeks already.....Truly appreciate your testimony that gives us so much HOPE...god bless you
How are you now Dear
Thank you for sharing your story from Canada.
This guy is my hero
luv this thank you both...
I can't imagine getting two and three second and third opinions and actually going with them. The first doctor should be experienced enough to know what to do
Thank you so much for sharing your journey. My husband was given this diagnosis about a year ago. Just started Treatment about 8 weeks ago. We don’t know how long this journey will be, but my husband is in a lot of pain. His Father also had this, but it was late in the game when he was diagnosed. He lasted about 6 weeks, after diagnosis. We also have been told, it is NOT HEREDITARY ?
MM isn’t hereditary however a family history puts you at a much greater risk. I can’t see the difference between the two??
I've been diagnosed with MM and have a 17p deletion. Im 55 and an I was combat trained airborne infantry medic. I was extremely fit and healthy so I thought... Had stem cell transplant and non my eighth cycle of chemo. (RVD-D) on max amount of everything.
My brother in law was treated for MM 29 years ago. After intensive treatment he went in remission for 27 years! Unfortunately it came back almost 2 years ago. Had weekly chemo for about a year, protein went down for 6 months. Unfortunately it went up again and he just started (weekly) chemo again 3 days ago. Yesterday he felt so sick. How long does it take for the chemo to show results?
what kind of treatment did he have? and at what age?
Age
if your back has no damage, go swimming, do so weights use the proteins to build up muscle, get long walks up the hills. y bck has damage because of driving,but fro two years i was fine, i found that calisthenics stretching, swimming ws the key, of course foods are important, but 2 months ago i re-started driving and my back got bad, drugs are a trying new trying with side ugly effects, follow your intuition , exercise the way i told including abdomen work outs
Do you get sedated each time you get a biopsy? Those are extremely painful!
❤❤❤❤❤😊