Your dealing with this great! Thank you for helping to educate us on this ALS. Truly sorry that you have to go through this amigo. Right now I'm just a poor college student when I'm able to I'd love to donate to you & I pray that the study goes good for you! Praying your health gets better soon or that your symptoms subside
Hello. I’m very sorry about your diagnosis! My brother in law and grandmother have both got ALS. I’m now getting muscle twitches all over my body. Can I ask what you first noticed? I’m getting them all over but they do stop it’s only certain days that it happens.
Hi Russell, fight man... I’ve been just diagnosed two weeks ago. My face twitches started 3 months ago, but then stopped. When you say at the beginning it was 2017 ? or after you were diagnosed in 2019 ? I’m trying to imagine how it will be my progress
@@johanndeleon6161 I am sorry you've been dealt this s***** hand. It is really hard to tell how your progression will happen. I am in so many groups on Facebook and people progress at such different paces. Yes I first had twitching 3 years ago December 2017.
Read the gospel of peace. It suggests the true diet for humans. It's also mentions a person who couldn't walk gets cured by prayer and fasting when the devil is cast out.
Nice video Russell thank you for sharing your journey with ALS.
You're great Russell...wish you all the best...
The way you are bringing awareness is amazing..is twitching of your left shoulder same intense since the start...wish u all the strength..
My arms used to be much bigger so I feel like the twitching used to be more predominant. However the consistency is the same
Your dealing with this great! Thank you for helping to educate us on this ALS. Truly sorry that you have to go through this amigo. Right now I'm just a poor college student when I'm able to I'd love to donate to you & I pray that the study goes good for you! Praying your health gets better soon or that your symptoms subside
Thank you! Just greatful your still part of my life.
@@TheDanguruss
Good luck with the trial.
Wow buddy I am grateful to see those muscle fasciculations cause I've only heard about them I've never actually seen them😢
Praying and pulling for you Russ. Hoping these new methods of stem cells can cure this disease. My grandpa, Aunt and now my cousin got als.
I would like to be part of this trial as well.
Hello. I’m very sorry about your diagnosis! My brother in law and grandmother have both got ALS. I’m now getting muscle twitches all over my body. Can I ask what you first noticed? I’m getting them all over but they do stop it’s only certain days that it happens.
How are you now?
You are a warrior , how long did it take from the fasciculations to the first emg?
He committed suicide
@@OhMasters. rip
Do you ever get fasciculations on your head and face? God bless you man!
In the beginning. My eye lid and lip
Hi Russell, fight man... I’ve been just diagnosed two weeks ago. My face twitches started 3 months ago, but then stopped. When you say at the beginning it was 2017 ? or after you were diagnosed in 2019 ? I’m trying to imagine how it will be my progress
@@johanndeleon6161 I am sorry you've been dealt this s***** hand. It is really hard to tell how your progression will happen. I am in so many groups on Facebook and people progress at such different paces. Yes I first had twitching 3 years ago December 2017.
And I’m worried about my twitching. That looks horrible.
I've been twitching 10 months now.
But those fasciculations are just insane.
How are you doing now?
He is alive ??
How do I get in touch with u my brother.
He’s passed
He passed
How do the twitches make you feel?
They kind of make me feel like they come from internally. They do They do get worse The more anxiety I have
Does your twitching stops on moving the twitching limb??thanks
No the twitching never stops
@@TheDanguruss thanks
Read the gospel of peace. It suggests the true diet for humans. It's also mentions a person who couldn't walk gets cured by prayer and fasting when the devil is cast out.
I’m having spasms and twitching and I’m only 17
What does your doctor say?
It's bfs. Go on enjoy ur life.
Also carnivore bro. Only fatty meat. I can’t stress this enough.
What was the cause of the disease that manifested in you? What kind of life did you lead?
Don't know what cause it. I didn't do anything different than anyone else. I work IT job and went to gym.
bmaa present naturally in seafood. Lou Gehrig ate exotic seafood which gave him als.