Treatment Brings Hope to Children Facing Spinal Muscular Atrophy, a Disabling, Often Fatal Disease

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  • เผยแพร่เมื่อ 27 ธ.ค. 2024

ความคิดเห็น • 27

  • @pruineylee415
    @pruineylee415 5 ปีที่แล้ว +6

    It’s a miracle drug, but the miracle does not happened in all SMA families yet.

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 ปีที่แล้ว +3

    If we need to make sure we can send the baby's analyzes to everyone.

  • @oldstudentlungtszin4495
    @oldstudentlungtszin4495 2 ปีที่แล้ว +6

    Their first daughter suffer from sma type 1 and that means the healthy parents have one disease-causing gene respectively. According to genetics, their next child will have 25% to suffer from sma type 1 again. I cannot understand why the parents ignore the risk of giving a birth to a ill baby

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 ปีที่แล้ว +5

    We live in Armenia ... we have a request if we can help with an organization where our little one suffers from this disease SMA type 1

  • @sabahattinkalya927
    @sabahattinkalya927 3 ปีที่แล้ว +2

    ALLAH YAR VE YARDIMCINIZ OLSUN

  • @irfansaeed8479
    @irfansaeed8479 4 ปีที่แล้ว +3

    My child is ten years and he has that disease. He can't walk on his own but he can perform all other activities as normal. Any treatment to improve the condition or to eliminate it at this age.

  • @kindergartenteacherglad7311
    @kindergartenteacherglad7311 3 ปีที่แล้ว +1

    Amenerrasulû bi ma ûnzile ileyhi mir rabbihi vel mû’minun, kûllûn amene billahi ve melaiketihi ve kûtûbihi ve rusûlih, la nûferriku beyne ehadim mir rusûlih, ve kalu semi’na ve eta’na gufraneke rabbena ve ileykel masir (2/285)
    La yûkellifûllahu nefsen illa vûs’aha, leha ma kesebet ve aleyha mektesebet, rabbena la tûahizna in nesina ev ahta’na, rabbena ve la tahmil aleyna isran kema hameltehu alellezine min kâblinâ, rabbena ve la tuhammilna ma la takate lena bih, va’fû anna, vağfir lena, verhamna, ente mevlane fensurna alel kavmil kafirin (2/286)

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 ปีที่แล้ว +3

    he is still 2 months ... if you can help with something that is getting worse day by day ... There is no such organization in Armenia ... there is no cure for this disease in Armenia

  • @mohammadabiruddin6194
    @mohammadabiruddin6194 4 ปีที่แล้ว +3

    Please help duchcne mascular dystrophy patient of i India Treatment

  • @NikithaBai-z3x
    @NikithaBai-z3x 10 หลายเดือนก่อน +1

    I am suffering from spinal masqular astrophi plz help me to qure my health condition

    • @VirendraKumar-i2y1h
      @VirendraKumar-i2y1h 29 วันที่ผ่านมา +1

      I help this disease

    • @NikithaBai-z3x
      @NikithaBai-z3x 29 วันที่ผ่านมา

      @VirendraKumar-i2y1h how you will help sir

  • @Islamicvideomakkah88
    @Islamicvideomakkah88 4 ปีที่แล้ว +1

    Please help me my son age eight months please please

  • @hulm
    @hulm 3 ปีที่แล้ว +1

    up up up

  • @samjhanarayamajhi1691
    @samjhanarayamajhi1691 4 ปีที่แล้ว +1

    Plz help nepali baby siyona shrestha she’s suffering from same disease we need help for treatment plz plz help 😭😭😭😭🙏🙏🙏🙏🙏🙏🙏🙏🙏

  • @DianaKazimiera-
    @DianaKazimiera- 2 ปีที่แล้ว

    ❤️🕊️

  • @AudreyAsh420
    @AudreyAsh420 ปีที่แล้ว

    What went through their mind to continue having children after they passed down SMA to the first daughter.. now their son has to live a life a misery because they were too irresponsible

  • @scallawagon713
    @scallawagon713 3 ปีที่แล้ว +1

    These parents taking chances with their children’s lives. Tsk!