I have had ME/CFS for over ten years and have been looking after one positive case my husband, and daughter who is presumptive positive. I am a sitting duck 😞. I just started improving to a functioning level this last year. I am not allowed to leave the property to go stay somewhere else. We have been self isolating from each other but still
Thanks for the excellent presentation. Could you please provide a link to the document you created to help if we need to seek medical care? I’ve also checked your website and don’t see it there either. It’s an excellent idea and I’d really love to have a copy! Thanks for all you do!
As a practical matter what should the decision criteria be for a homebound CFS/ME patient to seek care at an emergency room? Trouble breathing? I have been sick with CFS for 24+ years. In that time I have experienced far fewer episodes of fever than when I was healthy. It’s conceivable that I could be infected with Covid-19 and not have a high fever but I am not sure that would mean that I had a mild case of illness. The thought of going to the emergency room and attempting to deal with CFS ignorant physicians when I can barely breath is very unappealing to say the least - I’d be afraid that they would not take me seriously after I told them I had CFS/ME.
I wouldn't wait that late to get medical attention..I have no special knowledge, but think if you buy a stethoscope, and check your lungs yourself for rattles - you'd notice something before you actually have trouble breathing. There's probably instructional youtube videos for how to do this.
![The Psychology of Chronic Illness: Making it Normal [Part 5: Relationships]](http://i.ytimg.com/vi/c3pKAujcx8I/mqdefault.jpg)
![The Psychology of Chronic Illness: Making it Normal [Part 5: Relationships]](/img/tr.png)
I have had ME/CFS for over ten years and have been looking after one positive case my husband, and daughter who is presumptive positive. I am a sitting duck 😞. I just started improving to a functioning level this last year. I am not allowed to leave the property to go stay somewhere else. We have been self isolating from each other but still
Thanks for the excellent presentation. Could you please provide a link to the document you created to help if we need to seek medical care? I’ve also checked your website and don’t see it there either. It’s an excellent idea and I’d really love to have a copy! Thanks for all you do!
Also where can I find a link to the handout mentioned in this video?
I was going to ask the same. I went to the Bateman Horne Center website but couldn't locate it, if it's there.
As a practical matter what should the decision criteria be for a homebound CFS/ME patient to seek care at an emergency room? Trouble breathing? I have been sick with CFS for 24+ years. In that time I have experienced far fewer episodes of fever than when I was healthy. It’s conceivable that I could be infected with Covid-19 and not have a high fever but I am not sure that would mean that I had a mild case of illness. The thought of going to the emergency room and attempting to deal with CFS ignorant physicians when I can barely breath is very unappealing to say the least - I’d be afraid that they would not take me seriously after I told them I had CFS/ME.
I wouldn't wait that late to get medical attention..I have no special knowledge, but think if you buy a stethoscope, and check your lungs yourself for rattles - you'd notice something before you actually have trouble breathing. There's probably instructional youtube videos for how to do this.
@27:00 general info
@41:00 FAQ from ME/FMers (its very basic)
@47:00 anti inflammatories
@49:00 advance directive/living will info
The handout and many other COVID-19 resources are now posted on the Bateman Horne Center website here: batemanhornecenter.org/covid19/