Parkinson's, DBS and Me - Episode 1: The Pier

In the first episode of our DBS and Me series, Jo shares the shock of her Parkinson’s diagnosis and the impact of her symptoms. Deep brain stimulation could change her life.
It’s not a cure, but Jo feels like it’s all she’s got. #DBSandMe
To find out more about DBS and Me, visit www.parkinsons.org.uk/informa....
This is Jo’s story. We know Parkinson's affects everyone differently. If you have questions or need support, get in touch with us on 0808 800 0303 or [e-mail].

[@EveTweedy]

Dear Jo, I just want to thank you soooo very much for sharing your experience beginning to new beginning with me. I have found it incredibly helpful and comforting!!! I sure hope that one day I too qualify for this life changing surgery. To have some sort of quality of life back will be amazing. I’ve shed tears whilst watching your roadway to a better quality of life. Thank you sooo very much and you go for it girl!!!!! I can;t wait when all our sufferings will be a thing of the past!!! Is33;24 xxxx

[@FranciscoDiazYules]

Thank you very much. DBS changed my life... A big hug from Spain.

[@ivorjohnstone6453]

I had DBS over a year ago and it was very successful, the process is fine.

[@TommyStringer]

Thank you for sharing. I had DBS surgery 3 years ago after fighting PD symptoms for 14 years. I only wish I had the surgery sooner. Best of luck!

[@sylviebigger4939]

Hubby was fortunate enough to qualify for it. It was a big game changer for him. He doing well but still struggling with energy and painfull muscles.. im trying to be encouraging but hes distant ...alot in his mind

[@stephencasner531]

Good luck dbs is life changing

[@davidhughes5998]

Thanks for sharing.

[@TheLittleEconomist]

Thank you for sharing. I get dystonia in my left foot and arm. At the moment I can just about manage it with a combination of exercise and a kind of meditation where I can get the muscles to relax. My specialist believes I’m a good candidate for DBS but I am scared of the side effects damaging my speech and my ability to work.

[@kimjones4294]

Good luck& Bless you.

[@christinelavita5838]

I read dbs is done awake

[@christinemaher2537]

Many doctors do it all asleep now due to advancements in more detailed and specific MRI technology-- i.e., whereby they don't need patient feedback during surgery.