How Long Will It Take To Recover From CIDP/GBS?
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- เผยแพร่เมื่อ 10 ก.ย. 2024
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Diagnosed with GBS this past December. Have been recovering since January, I think. So, about 6 months now. Feel way better than I did 6 months ago. I can run again. I have returned to jiu jitsu and can roll for 30-45 minutes and feel pretty good. Still have a lot of sensory issues and sometimes misplace my feet. It's weird. Keep strong, folks. Scary stuff.
I'm glad to hear you're back to normal!
@@NoEggCraig Hi Craig! I didn't expect to get a response from you. Thank you for the well wishes. I'd say I'm 90%+ back to normal. Still some weakness in feet and hands. I still struggle to play my guitar. But I'm hopeful that will come back soon. Either way, I'm thankful for where I am now. Your videos have really been helpful to me. When I was struggling emotionally with all this you helped give me hope. Thank you, Sir! You have, and are, doing a good thing here.
My case progressed for 9 months until I had a diagnosis and started treatment. I’m on my 23rd month of recovery. I can move.. not at 100% but my illness got worse before there was any recovery for the first 5 months, I still get sore feet but it doesn’t last long. Stay strong!! It gets to your mind too when you feel like there’s no progress.. 1mm a day
Absolutely, little by little, I'm glad to hear that you're recovering though!
I got hit with this last year at the age of 36 in october 2017. I was blessed to get up in two weeks, because of so so many prays. When i left the hositpal the right side of my face was still num, as well my right arm could not lift it to my face has well has dragging my right leg but i was walking a little with a walker. Now i have use of everything just from time to time my low back starts to hurt and also effect my walking when it acting up. Over all were blessed to still be alive.
It takes time but you'll get better!
I have GBS for 10 months now and it is better,but its kind of spreading through.First it attacked my legs,and thats how I first ended up in the hospital.It spreded till my knees,my arms, whole back,my shoulders,and my chin muscles.Its starting to spread up my knees and hips now.I'm a bit scared but I hope it won't spread through my whole body.A doctor told me I will have to do surgery for my hips if it spreads through my whole hips and it does scare me.Thanks for the story/video!I hope you recovered!
arul kartik I can't reply directly to your comment because of your google+ settings, but I personally went through I believe 7 IVIG treatments in the span of roughly 6 weeks before I started to notice a difference, but everybody is different, and generally speaking the longer between onset of symptoms and actual treatment, the longer it will take for treatment to start working. I have experienced numbness, tingling, weakness and sensitivity to pain. I don't see why you can't be sexually active! But ask your doctor just to be sure. Make sure you get enough sleep to recover, stay positive and surround yourself with positive people, drink lots of water, and be consistent with your physical therapy. But what has helped me the most besides medical treatment was actually going vegan. I am now medication free because of veganism and have actually been improving even faster since going vegan. My neurologist is always shocked at my recovery whenever I see her, and she just tells me to keep doing what I'm doing because it's working! If you're interested I already have quite a few what I eat in a day videos on my channel as well as many recipe videos. Give them a watch and let me know if you have any more questions!
Craig my brother's wife has CIDP and I think you could give us pointers as how to better fight this. We are doing most of what you stated in your videos but are unsure of certain treatments. My brother has face book and we will try and contact you via that media. I think after a short conversation with you we would be able to better combat this better than what we are doing now. We have already modified her diet and she gets IVIG's along with prednisone. It has been slow progress and it seem like we hit a brick wall. Thanks for all your videos and all the best.
Thanks for getting in touch with me and yeah Facebook is definitely the best way to get in touch with me and ask me specific questions.
No Egg Craig. Dear sir, My brother wife has been diagnosed with gbs after doing NCV test by neurologist.dhe got treated with 5 IVIG treatment for 5days and she come back to home with improvement and started slightly walking with support but almost a month passed she felt weakness and lesser improvement and a bit reversed lesser movements of walking and in hands. We also hire after that physiotherapist for exercises daily. This one grade decrease in movements even getting good improvements started after IVIG treatment cause concern for us.Hoevever she experienced chest infection not very high as due to cold weather and winter season during that period. However she is recovering very slowly.Neurologist puts her on steroids and other medications.This type of reverse improvement can be due to chest infection or it can be a part of healing process of gbs. Also MRI reports of brain and spine done before IVIG treatment done was normal.pl. confirm this is to concern or not? and whether we should do what we are doing as normal for gbs treatment
No Egg Craig I also have GBS and I am tryna figure something out can you tell me how tall you are
GBS is still Hell even after 4yrs post Diagnosis.. Last week after Constantly saying too Neurologist things are wrong with me.. Now MNN diagnosis so back to IVIG after this Coronavirus has disappeared from us. This Syndrome effects us all individually, get as much information as possible 🙏👍
Feel better Kevin, I'm rootin for ya!
I was suffering from GBS and it started when i was 23years old now i am 27 . most of doctor say it was GBS.
my problem is under knee, there is no movement in my foot and finger. seems it look like paralysis but i can walk so i cant believe it was paralais. i have a problem when i walk i can't stand properly, in this sitituation what kind of excercise is helpful for me and what kind of diet i use . please give me some sugestion,
Thank you..
Hey Vijay, I would suggest looking up a whole food vegan diet and just work out the muscles that are most effected by atrophy.
Ramailo Tv can you please tell me how tall you are I’m tryna figure something out I have GBS to and currently in rehab.
Colors Nepal mr Nepal you might ask for an mri u might have an old injury and u have no pain but rule out the possibility of a pinch nerve by the nucleus of your disk,I have that problem mri reveal a herniated disc,and is robing me of electric current so that’s why is hard to get stronger and recover I’m a dude n been recovering for 5yrs from GBS.
You give me such hope. Thank you x
Idiake Emma , no, my son was diagnosed with cipd this week. I read on the net some very disturbing and scary stuff, then came to youtube and had a look and found Craigs videos.
Im totally amazed and in awe of him. My son is still processing whats happened but is also relieved at seeing his videos and grateful.
How about you?
Nice video, encouraging to hear, I hope I can recover the same as you. I really think my diet brought some of this on.
It probably brought on most of it, as did mine, but the only thing you can do now is change it for a better future!
Marty Lemons can you please tell me how tall you are I’m tryna figure something out I have GBS too and currently in rehab.
I have been recovering since 1978. Still have severe sensitivity to pain, weak muscles from mid chest down. Bladder and bowel control issues. I have scoliosis as well. Now I have spinal stenosis, bulge disc at L-5 S-1 very painful and makes sitting, walking, standing, lying down difficult and painful. Wishing you the best with your recovery.
Thanks, wishing you the best too, James!
James Lastrapes can you please tell me how tall you are I’m tryna figure something out I have GBS to and currently in rehab.
I've been recovering for 5 months now and had a relapse about 2 months ago. I haven't really felt like the ivig has done much but I've only had two rounds. Currently I'm able to walk with a walker and I feel like I'm getting stronger every day.
It took me I think 7 rounds for it to start working so just be patient, it will most likely work, if not though there a bunch of different types of medications that can help
@@NoEggCraig I'm getting stronger with therapy but the numbness and tingling hasn't got any better. Gabapentin is the only thing that dulls the numbness and tingling.
I must say it is very inspiring too see you got better. Thanks for uploading this video. Can you please tell me how much does the gbs medical treatment cost?
my cousin was diagnosed GBS in 2001 and still suffering from it after 4 sessions of IVIG and 2 plasmaphersis. Still on vent after respiratory theraphy failed.
Nice to hear! I think i have got Cidp, so it is very calming to hear your words😊 i will go to the hospital soon and try to find out what i have.
Best of luck to ya!
@@NoEggCraig so how are you feeling today? Do you feel the same as you did before you got cidp when you get your medication?
Hey there. How many MG did you start on with prednisone and was it based on your weight. Also, after how long did you start seeing results? Were you on IVIG and prednisone at same time? I think in one of your videos I believe you said you were.
depaulguy1984 60mg. it wasn't based on weight as far as I know. I was on pred and IVIG at the same time so it was hard to tell exactly when the Prednisone started kicking in.
BattlingCIDP I was on IVIG for 6 weeks and no response. I just started on prednisone since 4 days ago. I am on vegan diet. I am not bad like you got. I just have weakness in legs and some on fingers. Getting kind of desperate :/
depaulguy1984 You'll get there, it's just a matter of time.
Do you still get ivigtreatment and if so how often? I'm in the process of finding out how often I have to get treatment. (Cidp since last July)
Nope, I used to get it weekly, then once every 2 weeks, then 3, then 4 until I went every 6 weeks and then my neurologist decided that I didn't need it anymore and I've been medication free for almost 9 months now and I'm still improving every single day because of lifestyle changes, mainly by going vegan.
Janet de Vent can you please tell me how tall you are I’m tryna figure something out I have GBS to and currently in rehab.
Hi I'm just recently suffered with CIDP from 05 August 2022. Now after 2 months I'm feeling little better. So can I get my health back again same like before it was ?
It depends how bad it got, I'm not 100% recovered, but even still I competed in a my first triathlon last summer and can squat, deadlift and bench over my bodyweight and I also climbed a mountain all by myself 2 years ago! And back in 2012 I was using either a wheelchair or forearm crutches to get around! So long answer is yes, it's possible, or if you have some permanent nerve damage like me it's still not the end of the world 🤷♂️
@@NoEggCraig Thanks Brother. I'm trying all efforts to get back my health again like I was before CIDP. And you done great work/exercises to get your fitness. That's I appreciate.
Are you on Instagram or Facebook?
I want to see your videos that how you start your recovery journey.
Yeah I'm No Egg Craig on fb and instagram
Hello sir I'm also GBS AIDP patient I had GBS Jan 26 2021 in my case legs hands effected sir till now 6 months completed im walking with walker how much time to take recovery sir approximately ? Is it possible live before GBS life style sir again ?
Hi brother. Now how much you get your fitness level?
Means improvement after 1.6 half year
Yay
An encouraging account. You do have youth on your side though.. :)
Yeah something I'm really grateful for
@@NoEggCraig Nonetheless I salute your spirit and fighting to stay in shape. Well doe!
You're absolutely correct. I am still recovering from CIDP since September 2016 and continuing feel better. So there is no such thing like only two years recovering.
@Andrianus Thomas th-cam.com/video/_PCmh6W-3YM/w-d-xo.html
That type of electric stimulation.
@Andrianus Thomas Have you receive my long description?
can cidp patient drink alcohol???
Sharath vijayakumar I'm not 100% sure, but I've heard that it can cause relapses so I personally don't want to risk it so I don't drink.
thank u...
. ivig has any side effects
How many months needed to recover fully ppz reply
It's been over 6 years for me and I feel like I'm still recovering
@@NoEggCraig it seems 2months are over for me and I am walking independent but jogging and running still I can't do . Get well soon bro
You'll get there, you're a lot further along than I was after 2 months!