Hey, I just got diagnosed with CML in December . I just started this drug. I was going to start filming my journey. Maybe we should all and start a little community on TH-cam. I'm going to subscribe.
Hi. Hope all is going well with you. I've been living with cml since 97 or so. I've been on Sprycel for at least 6 or more yrs now. I took myself off of it for like 3 weeks once (would not recommend). Just felt like I needed a break. I can't lie I felt great as well. Didn't even realize how good I could feel without sprycel until I took that break. So I get it when you said, you got used to your new normal. It's just one of those things you have to experience to understand.
Hi sorry for being so late to respond. I haven’t had any stomach issues at all. Now I do have (every once in a while) slight constipation. Sometimes slight diarrhea. Very manageable though.
Oh I forgot to mention. I take my dose of sprycel just before bed also. That way if I do get an upset stomach, or anything like that. I just sleep through it.
Don't be shocked if you have trouble with it at first. I've been on it since November 2018. The side effects are now starting to get better. I still have joint and bone pain from time to time. You'll do fine just give it some time.
I want it medicines .how can I purchase .I am from India. but I am so poor I can't purchase medicine please give me some information for this. how can I purchased this medicine
I came off because my platelet levels were lower than normal. But after 8 days I went back on. I like you got colds and had the flu. I was sick once a month. My heart rate was really high for hours after I took the pills too. This time it's just my legs that get swollen. A little joint pain but nothing really bad. Keep up updated
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Hey, I just got diagnosed with CML in December . I just started this drug. I was going to start filming my journey. Maybe we should all and start a little community on TH-cam. I'm going to subscribe.
Hi. Hope all is going well with you. I've been living with cml since 97 or so. I've been on Sprycel for at least 6 or more yrs now. I took myself off of it for like 3 weeks once (would not recommend). Just felt like I needed a break. I can't lie I felt great as well. Didn't even realize how good I could feel without sprycel until I took that break. So I get it when you said, you got used to your new normal. It's just one of those things you have to experience to understand.
Hello I have a question how do you feel you stomach ? Like uncomfortable?
Hi sorry for being so late to respond. I haven’t had any stomach issues at all. Now I do have (every once in a while) slight constipation. Sometimes slight diarrhea. Very manageable though.
Oh I forgot to mention. I take my dose of sprycel just before bed also. That way if I do get an upset stomach, or anything like that. I just sleep through it.
I'm about to start this med so thanks you much for your videos!
Good luck! I hope you do well with them
Don't be shocked if you have trouble with it at first. I've been on it since November 2018. The side effects are now starting to get better. I still have joint and bone pain from time to time. You'll do fine just give it some time.
You ever get the "sweet syndrome?"
Since 2017, when I was diagnosed, I’ve been on Tasigna. Been under the number for 4 years with few side effects.
I want it medicines .how can I purchase .I am from India. but I am so poor I can't purchase medicine please give me some information for this. how can I purchased this medicine
Do you use any special cream for the rash on your skin ?
Oh shit I just commented on your second video.
I came off because my platelet levels were lower than normal. But after 8 days I went back on. I like you got colds and had the flu. I was sick once a month. My heart rate was really high for hours after I took the pills too. This time it's just my legs that get swollen. A little joint pain but nothing really bad. Keep up updated
Are you still taking sprycl?
But I want to quit it bad. Just the eating part pisses me off.
I am taking dasatinib 100 mg from 20 days I am suffering with huge stamock acid can u give me any information
Dangerous chemotherapy drug.
Based on what you are saying that??