Today has been an awful day. As I was complaining about how bad my life is I came across this video. I recognized the kid from a previous PJ's video and almost burst into tears. It is not pity. This kid, half my age or maybe younger, is way stronger than me and I should learn from him. Do not indulge in self commiseration. I wish you the best Mikey, you are awesome
Hearing him scream when he was being re bandaged and cleaned...it hurts me and I've never met him so I can't imagine the pain you as his family all go through. :( I hope he's doing well.
Mike is so brave and his attitude is so positive .EB is brutal and finding a cure is essential. Pearl Jam fans understand that fund raising could put an end to needless suffering. We must believe that a cure is on the horizon.Let us pray for miracles of healing for EB.
Its the same thing of the story "The Boy whose Skin fell off" (Jonny Kennedy) he was so positive with all his pain till the end.. we shoul take a peace out of those humans...
Guardo il video e piango... Ho perso parte del mio corpo il giorno del mio quarantesimo compleanno, lintera gamba amputa e con essa demoni di dolore quotidiani ma anche ranra forza e penso e spero che un bambino come Mickey possa avere un futuro ricco di lacrime di gioia come me... La sofferenza puo essere trasformata in saggezza e consapevolezza del tutto ed emozionare positivamente anche nel dolore... Bimbo ti sono vicino con il cuore ❤
Parte meu coração, você e sua esposa fazem um belíssimo trabalho, que Deus sempre os abençoe e que as pessoas se solidarizem com essa causa nobre e ajudem! Vou ajudar compartilhando com meus amigos e, em minhas redes sociais.
+PRLJAMFAN4EVR Thank you for your interest! Please give what you can and encourage your friends and family to join in too. Share the video with this link: igfn.us/f/kfi/n
My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.
I have always wondered about a few things with this disorder..why is it classified as a skin disorder when it seems to emulate an autoimmune disorder like LUPUS or CF? Why do these children experience sepsis and amputations? I also read that stem cell treatments might be useful, but bone marrow transplants are dangerous. Is there more info online?
Today has been an awful day. As I was complaining about how bad my life is I came across this video. I recognized the kid from a previous PJ's video and almost burst into tears. It is not pity. This kid, half my age or maybe younger, is way stronger than me and I should learn from him. Do not indulge in self commiseration. I wish you the best Mikey, you are awesome
is that kid in my school
Stop answering every comment like that
HOLY SHIT HE IS IN MY SCHOOL do am seriously not joking these always on wheelchair he is really nice and my friend showed me this vid
Oh Mikey, I'm sending you sooo much love. I wish there was a way for me to take away some of your pain!
Hearing him scream when he was being re bandaged and cleaned...it hurts me and I've never met him so I can't imagine the pain you as his family all go through.
:(
I hope he's doing well.
Mikey goes to my schoom he is an amazing kid.He always brings my spirit up when he talks to me
Heartbreaking. Poor little dude. So brave - still smiling.
An amazing little boy with a beautiful spirit. You're so very brave Mikey. Yes, I'm with you buddy..👍
OMG HE GOES TO MY SCHOOL
Bless you Mike and family...I hope you discover a cure soon because your love cures others
Thanks PJ, you made me cry in front of my wife. My heart and wishes go out to all who are involved and thanks for sharing this.
Wow this made me cry......I never fracking cry....Dammit! Ok Im donating.
he is in my school
he is in my school
what a kid, so brave. My best wishes for in the research for a cure.
Amazing kid and parents
Mike is so brave and his attitude is so positive .EB is brutal and finding a cure is essential. Pearl Jam fans understand that fund raising could put an end to needless suffering. We must believe that a cure is on the horizon.Let us pray for miracles of healing for EB.
God bless you mike
Amazing boy!
How much suffering there is in this world
I admire you brave Mikey
2:41 brings instant tears to my eyes
What a legend!
Stay strong Mikey. You’re my hero
beautiful
this boy is amazing, he's so sweet and social and its a shame that he has to live with eb but despite this he's so full of life and so happy
omg, i´m in tears here.
Beautiful video, i don´t what to say. I hope they find the cure for that.
Its the same thing of the story "The Boy whose Skin fell off" (Jonny Kennedy) he was so positive with all his pain till the end.. we shoul take a peace out of those humans...
Hes the sweetest child ever I hope we can save him. this literally makes me cry
Guardo il video e piango... Ho perso parte del mio corpo il giorno del mio quarantesimo compleanno, lintera gamba amputa e con essa demoni di dolore quotidiani ma anche ranra forza e penso e spero che un bambino come Mickey possa avere un futuro ricco di lacrime di gioia come me... La sofferenza puo essere trasformata in saggezza e consapevolezza del tutto ed emozionare positivamente anche nel dolore... Bimbo ti sono vicino con il cuore ❤
brave cute little guy ... god bless you
best of wishes for him
Never had heard of EB.....amazing little dude and video....surely we can ALL help
Mikey is so inspiring and at such a young age. We're with you :D
This guy is awesome, and funny as hell! Sending strength to the parents from another parent with a not so "normal" kid. xoxo
Exemplo de vida para muitas pessoas!
Gostaria de ter poderes para livrar todas essas pessoas de tanta dor.⚘😘🇧🇷
best of wishes for all who have eb
that kid is in my school
Es un luchador
HES IN MY SCHOOL
Parte meu coração, você e sua esposa fazem um belíssimo trabalho, que Deus sempre os abençoe e que as pessoas se solidarizem com essa causa nobre e ajudem! Vou ajudar compartilhando com meus amigos e, em minhas redes sociais.
I would like to know what I can do to help raise funds for a cure?
+PRLJAMFAN4EVR Thank you for your interest! Please give what you can and encourage your friends and family to join in too. Share the video with this link: igfn.us/f/kfi/n
is there anything else I can do like help with fund raising etc.
Hearing him scream when he was being re bandaged and cleaned, makes him crazy.
Hi mikey you are a cool dude. I love you.
The fact that I'm not the only kid like that it's not fun but I keep going I'm 11 almost 12 it's hard but it's fine
Ojalá fuera la mitad de lo fuerte que es Mikey
My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.
Buen vídeo❤
I have always wondered about a few things with this disorder..why is it classified as a skin disorder when it seems to emulate an autoimmune disorder like LUPUS or CF? Why do these children experience sepsis and amputations?
I also read that stem cell treatments might be useful, but bone marrow transplants are dangerous. Is there more info online?
Pauvre amour ❤️🩹😢
Find a cure for these children, they deserve the funding, EQUAL to cancer and other fundings. My heart breaks for this little boy, help to heal him!
Per favore traducete quello che dicono per sapere queste tragedie e capire
Who has watched the story about Jon?
I was seeing they were using cord blood maybe in China I am not sure. There is a video on TH-cam that says they cured it in mice 10 years ago.
Bro life sucks ngl 😭