CANCER UPDATE: The Hospital Made A Mistake..

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  • เผยแพร่เมื่อ 12 ธ.ค. 2024

ความคิดเห็น • 1K

  • @marshmallow1000
    @marshmallow1000 3 ปีที่แล้ว +498

    Never ever feel bad about sticking up for yourself, you have to be your own advocate when it comes to your health.

  • @LG-qh7jq
    @LG-qh7jq 3 ปีที่แล้ว +238

    Send them an email informing them that these administrative mistakes are causing you severe emotional distress and this has been affecting your mental well-being. Do not worry about being a 'Karen', this is your health, your life, and if you feel you aren't getting what you need, you have every right to speak up.

    • @sarahsidney1988
      @sarahsidney1988 3 ปีที่แล้ว +16

      Agreed. An email is a good idea. The chances are higher that your complaint is forwarded than if you just mention smth one time to one person.
      As a patient the hospital has an obligation to look after your health. You are also their client/customer and as a business they should not be making these kind of mistakes.

    • @heidi1651
      @heidi1651 3 ปีที่แล้ว +10

      Having a social worker on your cancer care team can also help a lot to advocate and keep the rest of the team connected for you.

  • @Thelordsrain
    @Thelordsrain 3 ปีที่แล้ว +314

    You’re allowed to be mad, and angry and annoyed at the incompetence and lack of communication. And you still look beautiful Romee. Love to you from Australia x

    • @mereej8924
      @mereej8924 3 ปีที่แล้ว

      Same dear Romee, love from NZ xx

    • @lilyloveslife2737
      @lilyloveslife2737 3 ปีที่แล้ว

      Hi from Australia here also.....🖐

  • @tracyrhymer6639
    @tracyrhymer6639 3 ปีที่แล้ว +43

    Never be afraid to call. The first time they didn’t call you, you should have called them. They are not the ones going through this or dealing with the stress. Take your care into your own hands, nobody cares about your health as much as you.

  • @Its_just_lor
    @Its_just_lor 3 ปีที่แล้ว +340

    I’m so sorry you are going through this You are not being a “Karen”. You need to advocate for yourself. You need a “care” team at the hospital. I’m sorry they are being uncommunicative.

    • @irishpm01
      @irishpm01 3 ปีที่แล้ว

      I am so sorry - when my children were little I would be a raging beast. Now that it is me dealing with dr issues it is exhausting

    • @dreamdivine256
      @dreamdivine256 3 ปีที่แล้ว +4

      Oh for fuk sake give up on the Karen crap..it’s so over now.

    • @Its_just_lor
      @Its_just_lor 3 ปีที่แล้ว

      @@dreamdivine256 That is really mean. Romee said it in the video - and it is heartwarming to see all of us tell her that is not the case. She is also in the Netherlands and they may have a different perception. Be supportive.

    • @dreamdivine256
      @dreamdivine256 3 ปีที่แล้ว +4

      @@Its_just_lor umm no I wasn’t being mean..I’d never b mean to her or actually anyone who didn’t deserve it..I’m just so over people making out all Karen’s r mean..it’s kinda degrading....I only wish Romee all the best n pray for her to b cancer free.

    • @alicet5123
      @alicet5123 3 ปีที่แล้ว +1

      Karen has been made into a term to stop women from complaining.

  • @artvelcro
    @artvelcro 3 ปีที่แล้ว +36

    I was in the medical profession for 42 years. The fastest results is to go straight to the top ( hospital administration ), with a written (certified) letter that someone has to sign for , with your detailed events leading up to your letter. In my opinion, that usually gets the fastest results cause administrator don't want the bad press. Bad press=fewer patients=less $$$.

    • @kx8031
      @kx8031 3 ปีที่แล้ว +1

      Or they need to do their jobs. Some jobs needs to be exposed and from their management needs to revamp their polices and customer service.

  • @ejwis1
    @ejwis1 3 ปีที่แล้ว +65

    My husband has Crohn’s disease. I’ve had to stick up for him so many times as we go to the hospital. My advice to you is this don’t be afraid of being aggressive stick up for yourself because they won’t.

  • @pb5640
    @pb5640 3 ปีที่แล้ว +60

    Call the administrator of the hospital and lodge a complaint you’re not being unreasonable!

  • @reneerunyan3583
    @reneerunyan3583 3 ปีที่แล้ว +104

    Raise hell, the least they can do for you is take care of you and manage the details of your treatment.

  • @julieannemichelle
    @julieannemichelle 3 ปีที่แล้ว +84

    I agree, you shouldn’t have to go through this. It’s so unfair.

  • @jackienaiditch7965
    @jackienaiditch7965 3 ปีที่แล้ว +10

    i felt my blood pressure rising, just hearing about what the hospital put you through! You absolutely shouldn't have to deal with all that in addition to the cancer. It's shameful. Also, I hope someone gave you a good explanation about that huge change in plans (from a PET scan to more chemo). That's a very big deal, and you deserve some answers. You're entitled to vent, be angry, sad, whatever. I sure would be, and I'm a hell of a lot older than you. I was blown over by the kindness of strangers, sending you those cards and gifts. It gives me hope for humanity, as we all are going through our own version of these difficult times.

  • @nancyjackson8886
    @nancyjackson8886 3 ปีที่แล้ว +17

    As a nurse stories like this drives me crazy. No patient should have to go through that. She’s right, her life is difficult enough she shouldn’t have to go through this kind of stress. My heart really goes out to her.

    • @jillbecker8651
      @jillbecker8651 3 ปีที่แล้ว +1

      I so agree Nancy...another retired nurse...

    • @cathycrochet7767
      @cathycrochet7767 3 ปีที่แล้ว +2

      I'm a patient and sometimes certain hospital systems are continually failing us as patients, like she said, she is not the only one who struggles extra because of the poor communication. Thanks to good nurses who help us through.

    • @dont_harsh_my_mellow
      @dont_harsh_my_mellow 3 ปีที่แล้ว

      I agree. I'm a patient. I had to beg and almost cry over the phone for people to take me seriously. I'm always dismissed as anxiety. But you don't know if something is actually wrong with you or not without testing. I went to ER with neck pain one time. Doc and nurses said it was anxiety. Forced me to take lorazepam. Scan comes back...turns out it's a sprain or pulled muscle. Wow.

  • @adriennecolantonio8628
    @adriennecolantonio8628 3 ปีที่แล้ว +388

    I’m so sorry. You should not have to be your own advocate on top of trying to heal. Be the Karen.....this is a health issue....not a Starbucks order. You’ve been more than accommodating. Hell, I’ll call for you and I’m in NY. Did they give you a reason why the sudden change in protocol? You deserve an answer.

    • @Jgutin1
      @Jgutin1 3 ปีที่แล้ว +10

      If i spoke Dutch I would call from Texas!

    • @teremertz
      @teremertz 3 ปีที่แล้ว +3

      Same from Arizona. I don’t know if they treat all of their cancer patients like this, or if it is due to her young age; perhaps there is a cultural disconnect? This makes me very, very annoyed.

    • @kaiadavis100
      @kaiadavis100 3 ปีที่แล้ว +7

      I was wondering the same. Going from expecting a PET scan to now having two additional months of chemo..? Huge change of plans. I hope she received some answers from the doctor!!

    • @tvdsje
      @tvdsje 3 ปีที่แล้ว +2

      @@teremertz no, it's because our hospitals are on the border of being overrun by corona patients. Doctors and nurses are much relocated to corona and unfortunately this is part of the result. Many patients (even cancer patients) have had their treatment delayed...

    • @spirittouchrecords2785
      @spirittouchrecords2785 3 ปีที่แล้ว +1

      why in hell is nobody talking here about GERSON THERAPY?

  • @Conceptcreator
    @Conceptcreator 3 ปีที่แล้ว +110

    honestly, I think anyone would be pissed. It had to be annoying, even more so when it is a serious matter like this!

    • @chupkar1
      @chupkar1 3 ปีที่แล้ว +1

      I agree 🙏🏾

  • @HunterTalksWeather
    @HunterTalksWeather 3 ปีที่แล้ว +17

    Romee, i understand how you feel with hospital miscommunication, While i personally aren't going through any medical conditions. My father passed in 2018, and what we were told then really effected the whole experience in a way that i'll never forget. On March 31st my dad went to urgent care due to issues breathing, They did some scans and came back and said that he has been diagnosed with lung cancer, and that he needed to be transferred to the hospital that same night, i got a phone call from my mom saying that he'd been diagnosed with cancer and i couldn't contain myself. I started bawling and bawling, While i was crying my eyes out she handed the phone over to my dad where he said "hunter, you know that i'll be alright, these doctors know what their doing, your coming to the hospital and your gonna see me and everything is going to be alright" I said "Alright dad, i'll see you when we get there". My mom had told me to pack some clothes while she was headed home to get us, We took showers and got ready, She was hoping to get home before they transferred him to the hospital. My dad being my dad tried talking them out of taking him then and was hoping they'd let him stay until we got there. He called my mom and told her they were transferring him now. So, when my mom got home we drove to the hospital and he'd beat us before we got there. As we walked onto the floor we listened to maybe hear him talking, we heard him cough and immediately knew where he was. I walked into his room and gave him the biggest hug i've ever given him. After that it was around 12:00 Midnight on Apr 1st. I remember telling my dad "i wish this was an april fools joke" But it clearly wasn't. On the morning of the 1st, we learned that he didn't have cancer and that the other hospital misread the scans, And we were told that he'd only need IV antibiotics for about 2 days and that he'd be on his way out. 2 days go by and he's still in the hospital. The doctor ordered a tissue graft? to grab tissue from his lungs to make sure there wasn't any cancer in there. When he came back from that he was tired, slept most of the time.. didn't really eat much and was restless alot. On the night of Apr. 4rd we went home and took shower's got cleaned up and planned on heading back to the hospital first thing in the morning. As we were 4 miles from the hospital we got a call from my dad, and he sounded congested, nervous, freaking out saying "You need to come get me out of here" "I cant breath help me!" "hurry please!!!" he was acting this way due to a lack of oxygen and choking on his own blood because of the tissue removal they did a day prior. When we walked into his room, he was sitting on the side of his bed, with his IV pulled out. Blood all over the floor, The emergency call light blinking, and noone in sight. After trying to calm him down it just kept getting worst. a nurse from the ICU came in a shoved a suction tube down his nose to try to pull all the old blood out of his throat and lungs, He obviously reacted horrible to that and due to that they had to put him to sleep with some drugs (that i'm not sure of the name) The nurse said that he was going to the ICU with her. So, we started packing out stuff to move to the ICU with him. I've never been through so much stress in my life at this point. After my dad sat in the ICU asleep for a few hours. he woke up and my older brother came in and they ate a birthday cake from my older brother's daughters birthday. That night everything was going great and the ICU nurse said that he might be able to go back to a normal room. So, with us feeling fairly confident that he'd be alright under the care of the ICU staff and nurses, we decided to go home because we had been at the hospital for 3 days without showers. So, we go home get showers get a bite to eat and go to bed. We get a call at 12 midnight saying that he had tried to get out of bed and fell on the floor, and we were told that he layed in the floor for.......... 30 MINUTES, without oxygen... 30 FUCKING MINUTES. and someone SOMEHOW didn't hear the machine alarms going off, or the fall at all. So, we headed back up there as soon as we got that call and sure enough they put him on the ventilator. we stayed awake waiting to hear something from the doctor about what the hell happend, and where to go from here. The doctor said that they wanted to try to stop the bleeding that occurred due to the past biopsy's. They took him back and came out about 30-45 minutes later and found nothing, said that everything "looked okay" and was hoping the bleeding would stop. Well, it did for alittle while, but after a day we noticed a bright blood look coming up his vent tube, and we knew that it wasn't old blood due to it being a light color. So, they wanted to go in 1 more time to try to fix everything. At 4:45PM on April 13th they called him back. We went into the cafeteria and i tried to eat something, i had eaten a subway sub and headed back up to his room to see if they'd heard anything. They said they hadn't, and i was still hungry so i decided to go back and grab another sub, i went back to the ICU and when i walked into his room my mom was at the door and said "he's not going to make it"... And i cannot express the shear... shock... disbelief... feeling that the world is crumbling beneath you feeling i've ever had. Trying to hold on composure long enough to say my final goodbye's to my dad who had been my best friend forever, he started teaching my how to work on things when i was 4 years old, he started teaching me how to make fires, teaching me how to cut the grass, weedwack and all the essentials that you need to know in life, and no matter what words i'd used in that moment, it would've never put all that he's given me into the proper light. the moments when they were unhooking the vent, essentially his lifeline, there's a feeling that comes with that, that is so.... crazy? indescribable? its just a feeling that you only have 2 times in your life. on one hand i was happy that he wouldn't be suffering anymore, but on the other hand the thought of never being able to talk to him again really started to set in. I tried my best to not cry around him before he passed. But, it was the hardest thing i've had todo. Then he took his final breaths and that was it.... if you read the whole thing, thank you to the bottom of my heart. It felt good to be able to explain this story, even if noone sees it. It's nice to get some of the anger from the event off my chest. Thank you!

    • @jahanmq5959
      @jahanmq5959 3 ปีที่แล้ว +1

      May your beautiful father rest in peace. ♥️♥️♥️
      I hope you are doing well.
      May god bless you 🌹🌹!

    • @HunterTalksWeather
      @HunterTalksWeather 3 ปีที่แล้ว +1

      @@jahanmq5959 Thank you so much! Its gotten alittle better, but it'll never be the same without him around the house.

    • @jahanmq5959
      @jahanmq5959 3 ปีที่แล้ว

      @@HunterTalksWeather :( ofcourse especially when he was such a great model for you! I have learned fo appreciate my parents and I see them as my angels! They are looking after me so well even though I known they are sad deep inside for what I got diagnosed with (cancer) at such a young age (27).
      So I cant imagine not having my angels around in the house. I believe when we all die we will re-unite with our families. Although you might not believe, I really hope that what I believe in is true. As there are too many people suffering, there must some sorr of heaven for us humans.
      Anyways.. sorry for blabbing on.. I really wish you a long life filled with happiness :). You will get married and create your own family and pass down everything your dad taught you. And one more thing, you yourself is 50% your dad (in terms if genetics/DNA) sooooo in a scientific or factual way he is still in the house with you love.

    • @nancybeveridgetaylor3256
      @nancybeveridgetaylor3256 3 ปีที่แล้ว

      I read through your whole post. Thank you for sharing your experiences. I am a retired health care worker. I was a Hospice case manager for years. The treatment that your father and your family endured was utterly unacceptable. I am so sorry for the trauma that all of you experienced. Bless you. If you feel that you want to, your local Hospice (if you live near one) usually have post loss grief counseling and support groups that can be really helpful for processing grief and some have counseling that directly deal with traumatic and sudden and unexpected death as well. A lot of Hospices offer those services at no or very low cost. ❤

    • @HunterTalksWeather
      @HunterTalksWeather 3 ปีที่แล้ว +1

      @@nancybeveridgetaylor3256 Thank you so much, for taking the time to read this. We had looked into counseling but hadn't went as far as doing it. Looking back id say it was one thing we needed. But, while we're not completely healed. And quite frankly I don't think I ever will be. I certainly feel better than I did 3 years ago. Thank you for your kind words, it means so much!

  • @kkyles605
    @kkyles605 3 ปีที่แล้ว +2

    Romee, I am going through cancer treatments myself, so I know that communication with your health care professionals is VERY important. You have every right to be annoyed and to be unhappy. It's all such a rollercoaster! Hugs!

  • @ninahorn
    @ninahorn 3 ปีที่แล้ว +107

    I haven’t watched the whole video yet as it’s only been up for a minute but Romee you are totally rocking that wig!

  • @gailwright4326
    @gailwright4326 3 ปีที่แล้ว +2

    Your English is perfect. You are so patient. You look absolutely beautiful. Sorry you are going through this.

  • @timmcvicker5775
    @timmcvicker5775 3 ปีที่แล้ว +45

    Unfortunately, this seems to be a universal problem.

  • @emaiser
    @emaiser 3 ปีที่แล้ว +13

    Unfortunately, that’s a universal issue. I had to be my mom’s advocate when she had breast cancer. I was a only a teenager and it was infuriating to deal with her medical team but I’m glad she didn’t have to stress about anything and she could focus on herself

  • @maria_tsamadou
    @maria_tsamadou 3 ปีที่แล้ว +3

    girl you were on my recommended , I my self suffering from cancer for the last 4 yrs , you are allowed to have these feelings but remember, take a minute to breathe and then back to fight this with smile even if you don't feel it . You will remember all these as a bad dream soon . Sending lots of good vibes to you from Greece

  • @kellyparaski4262
    @kellyparaski4262 3 ปีที่แล้ว +1

    Ugh so awful the horrible communication I’ve been dealing with similar circumstances lately & I feel your frustration but literally I love watching you, you’re so strong and just amazing!!!!! I know you got this and sucks you have to do two more months but it’ll pass and pray you get good results w your pet scan!!!

  • @erikak8187
    @erikak8187 3 ปีที่แล้ว +3

    I don’t know how you do it. School and treatment at the same time. I wouldn’t be able to handle school. You really are a warrior and resziliant, and a fighter. Beyond inspirational.

  • @colli016
    @colli016 3 ปีที่แล้ว +2

    GIRL! If anyone is allowed to be angry becaue of circumstances they can't control its you! Plus, wow, the fact that you are carrying on with your thesis and internship throughout all of this- WHAT?! You absolute STAR! Thank you for sharing a vulnerable side of yourself yet again, you are brilliant! 💕

  • @katiesfarmhouse
    @katiesfarmhouse 3 ปีที่แล้ว +21

    I'm beginning to think this whole "Karen" thing is just another weapon to use against women....You were in no way aggressive or unpleasant. Just assertive- 100% appropriate. Your truly so pretty, so lovely, & so brave. I'm an old lady, & I can assure you that this will all be behind you before too long & you'll be even stronger & sweeter!

  • @babiesbytheshore7816
    @babiesbytheshore7816 3 ปีที่แล้ว +4

    Been there.... it puts soooo much stress on a patient when they wait to hear from their doctor or anyone in that department with an update. So sorry you are dealing with this... keep calling them abs get an answer .. you deserve a response.

    • @jahanmq5959
      @jahanmq5959 3 ปีที่แล้ว

      Me too, i am traumatised when I think about how the hospital inwent to treated me.

  • @llgraffman
    @llgraffman 3 ปีที่แล้ว +3

    Hi Romee! I've been following your journey for a little while and first and foremost I want to celebrate you and your strength through all the things you have faced on your treatment journey. Patients like you are the reason why I loved working in a hematology/oncology office for three years. I am currently in nursing school and want to be an oncology nurse when I get my RN! Your resiliency, as well as so many of the young Hodgkin's patients I have gotten to know over the years, inspires me so much. I know people throw the word "inspirational" a lot at people experiencing cancer - but I assure you it's not a cliche, it's the truth.
    Now, onto the scheduling component - I am SO frustrated for your sake. I don't know how it works in the Netherlands, but in the US we have dedicated schedulers and care coordinators that work alongside nursing staff and doctors/providers to create a patient's treatment schedule. Unfortunately, as there are so many moving parts in the puzzle of cancer treatment, sometimes less organized offices can miss things and screw up a schedule, which totally sucks. Or, you just may have gotten the wrong nurse or scheduler at the time who may not be the best workers (there are definitely nurses you want to have on your team, and others that may make way more mistakes or are less hard-working).
    My advice to you - am not sure if there is a patient advocacy department in your hospital (we have them in the US) but I would call them and tell them all the times the hospital screwed up your schedule or did not communicate properly. Just because they are oncologists, or nurses, does not mean they are infallible and always do things correctly for the patient. It should NOT be your responsibility to do this whatsoever. Hopefully, by you voicing your frustrations and calling them, and holding them accountable, this won't happen in the future. Either for you, or any future patients who may have a similar experience you have.
    I am thinking of you, sending good vibes, and hope this second course of chemo shows some response.
    LauraLee

  • @brianagarcia2472
    @brianagarcia2472 3 ปีที่แล้ว +1

    You’re absolutely right that you don’t need this stress and justified in your frustration. I am a cancer survivor and am now in nursing school to try and change things like this. You’re doing everything you need to do to take care of yourself and that is nothing to feel guilty for. You are so strong and resilient.

  • @joudialhomsi5647
    @joudialhomsi5647 3 ปีที่แล้ว +42

    I'm praying for u young lady

  • @Kaynine3
    @Kaynine3 3 ปีที่แล้ว

    You are so sweet. What a gentle and kind soul you have. I pray you find the strength you need and that God heals you. My heart breaks for the stress and suffering you are going thru. Bless you.

  • @GCAT01Living
    @GCAT01Living 3 ปีที่แล้ว +3

    Girl! Look at everything people sent you! I hope you can feel the love that's all around you from people all over the world. We're right there behind you and beside you!

  • @barbc.3093
    @barbc.3093 3 ปีที่แล้ว +130

    I'm a medically retired Oncology RN. This is NOT acceptable treatment to you, especially when your health depends on your PET scan results!

  • @lolaglm
    @lolaglm 3 ปีที่แล้ว +17

    I literally was admiring how beautiful you are when you said that you didn't look good it made me so sad. You are beautiful please never doubt of that

    • @signsfrombeyond4863
      @signsfrombeyond4863 3 ปีที่แล้ว

      I know! That's exactly what I was thinking. I always notice how she has a perfect nose and beautiful complexion. It's sad how women are trained to only focus on the perceived flaws instead of all the beautiful things about ourselves.

    • @lisadavie5819
      @lisadavie5819 3 ปีที่แล้ว

      Shes naturally beautiful, one of those lucky woman who Dont need to even try. x

    • @signsfrombeyond4863
      @signsfrombeyond4863 3 ปีที่แล้ว +1

      @@lisadavie5819 It makes me cry. I hope she can get through this and have the rest of her beautiful life ahead of her.

  • @cynthiamccafferty5652
    @cynthiamccafferty5652 3 ปีที่แล้ว +5

    I Love watching you. You are so positive and absolutely adorable. Stay strong, you got this!
    Cindy- CT USA

  • @neusribasmoll
    @neusribasmoll 3 ปีที่แล้ว +16

    I wish you the best, Romee. You are so strong!

  • @lyndaalexander6582
    @lyndaalexander6582 3 ปีที่แล้ว +1

    Sweet Romee! Please know that you have sooo many people who are praying for you every day. I live in Florida. Stay as strong as you can- you got this!! Sending love, hugs, and prayers. 💕💕🙏🏻🙏🏻🙏🏻

  • @tasharae215
    @tasharae215 3 ปีที่แล้ว +10

    girl don't ever ever worry about being like this to the doctors. this is your life they are jepordizing. you do what you need to do! Love from Louisiana

    • @lambulance
      @lambulance 3 ปีที่แล้ว +1

      This is a sweet comment and I fully agree. Hello from Seattle! :)

  • @kx8031
    @kx8031 3 ปีที่แล้ว +2

    I love listening to you speak in your native language. You speak English so well. I love your nail color as well. Keep advocating for yourself. Sorry you have to go through this.

  • @goranadzino5723
    @goranadzino5723 3 ปีที่แล้ว +9

    You became so dear to my heart! Love from Bosnia..

  • @margaretflood-elahwal5861
    @margaretflood-elahwal5861 3 ปีที่แล้ว

    This young lady is really awesome. She’s really an intelligent inspiring person , one who is a warrior. Praying for the best possible outcome. Hang in there , Romee, we are all rooting for you and know you will beat it!

  • @marieel3225
    @marieel3225 3 ปีที่แล้ว +33

    Romee, my boyfriend had a rare type of lymphoma and he is officially cancer free and in remission today. Wanted to share to inspire you to keep fighting. It is possible

    • @christyb7455
      @christyb7455 3 ปีที่แล้ว

      Congratulations!!❤🥳

    • @marieel3225
      @marieel3225 3 ปีที่แล้ว +4

      @@christyb7455 thank you! I have never had better news in my entire life. He is only 27

    • @kimstone4914
      @kimstone4914 3 ปีที่แล้ว

      ❤❤❤

    • @christyb7455
      @christyb7455 3 ปีที่แล้ว +1

      @@marieel3225 You're so welcome!! He's so young, I wish you and him both a long happy life❤

    • @jahanmq5959
      @jahanmq5959 3 ปีที่แล้ว +2

      A big congratulations!! I am 27 as well, about to donmy 3rd chemo!! So I have hope! Thankyou so much for sharing!! ♥️♥️♥️♥️

  • @victoriaannmiddleton318
    @victoriaannmiddleton318 3 ปีที่แล้ว +1

    So many people all around the world are praying for you. Sending lots of love. You are strong and special!

  • @loraleepooley3669
    @loraleepooley3669 3 ปีที่แล้ว +4

    I’m so sorry they’re putting you through this! I hope the communication with the hospital improves. Love and prayers to you💕

  • @davesdog100
    @davesdog100 3 ปีที่แล้ว

    Have to say how strong you came over on this video. I do hope the hospital will now keep you informed on what will happen and when with your treatment.
    Loved that cute wink to camera and that sweet giggle. Look forward to your next post. Stay strong and safe. Hugs from the UK.x

  • @Lilybet1316
    @Lilybet1316 3 ปีที่แล้ว +12

    That’s awful to make you worry and feel confused on top of dealing with Covid and cancer and everything. We support you and you are NOT overreacting you deserve better care! 💪🏻

  • @kathrynhall7021
    @kathrynhall7021 3 ปีที่แล้ว

    You have every right to be upset!!!
    Thank you for sharing your feelings with us. Let your Dr. know how this poor communication from "them" affects you. We LOVE you🥰🙏

  • @bcabmac
    @bcabmac 3 ปีที่แล้ว +3

    You GOT to be after them!! Don't feel guilty. This is your life and letting things go can be devastating and cause suffinf for you. I'm praying for you.

  • @catherineseiler7407
    @catherineseiler7407 3 ปีที่แล้ว +2

    God Bless you, your so sweet and beautiful. The swelling will go away, don’t cry. I wish you the best. Keep on pushing.

  • @gigglesandhugs5690
    @gigglesandhugs5690 3 ปีที่แล้ว +62

    you are correct this is not the time to have the extra stress. However with medical stuff you have to be your own advocate and this is the time to be a "karen" this is your life and your decisions not theirs. You are a client paying for a service and deserve to be heard.

  • @sherihedgecock4618
    @sherihedgecock4618 3 ปีที่แล้ว +2

    I can feel for you. Half my family has died from cancer and i have had three kinds of cancer. No chemo, just surgeoy to save my life. My prayers are with you. Sleep and do distracting events. It does help. Also drink lots and lots of water.

  • @woodchuck8017
    @woodchuck8017 3 ปีที่แล้ว +145

    Romee, you're not a Karen. You're just trying to take care of yourself.

    • @alquinn8576
      @alquinn8576 3 ปีที่แล้ว +2

      +1, it's not being a Karen when it's life-saving treatment on the line

  • @dianadundidit5343
    @dianadundidit5343 3 ปีที่แล้ว +1

    Praying for you Romee! You are so brave!

  • @cherieknopf8536
    @cherieknopf8536 3 ปีที่แล้ว +5

    Don’t feel bad being your own advocate. You’re doing exactly what you should do and hopefully things will turn around with them being more responsive to you.

  • @Dysfuctional101
    @Dysfuctional101 3 ปีที่แล้ว +2

    That's really unacceptable from the hospital. I'm sorry.
    The same thing happened to my friend. She waited weeks for a call.
    I understand your frustration.
    You were right to call them! Your health is the most important thing, NEVER let anybody leave you in the dark.
    You're a great woman. ☘

    • @zaynabdaniyal4316
      @zaynabdaniyal4316 3 ปีที่แล้ว +1

      Expecially with what she is going through too! Not the same but I had to wait 8 months (uk) just for an abdominal scan, only to have to wait 4 Months for the results to be told they were normal after all. I was angry and frustrated at that, so I can't even imagine how she must be feeling with what she's going through! It's completely unacceptable and she had every right to be angry

  • @sahanaraghuram3275
    @sahanaraghuram3275 3 ปีที่แล้ว +23

    Hi Romee! So sorry to read this happened to you. Take care ❤

  • @tuesdayd9276
    @tuesdayd9276 3 ปีที่แล้ว

    Hi from KY. I think you are so kind and caring. I'm sorry you are going through that crap with the hospital. I watch all your videos. Sending you warm thoughts. You got this! Keep on moving forward!

  • @ineshadr9070
    @ineshadr9070 3 ปีที่แล้ว +5

    That really sucks! When I was going through my treatment (in Belgium) , I get a list with all the upcoming treatments for 2 months. I can imaging how stressfull it is that you don't get any look into what is gonna happen next. Really shame on that hospital, they doing it totally the wrong way. Don't let them shove you off! Btw, Romee, your hair looks very nice on you.

  • @Ucan_Entertainment
    @Ucan_Entertainment 3 ปีที่แล้ว

    Hello....I stumbled across your videos. Very inspiring. You show great strength.

  • @sch728
    @sch728 3 ปีที่แล้ว +24

    That’s so inconsiderate. Doctor’s offices and hospitals should be the most compassionate, considerate and prompt people. I enjoy your videos. You have such a great attitude and perseverance about you. I hope there next couple of months goes by quickly and your next pet scan comes out clean. Hang in there! ❤️

  • @paulinecreevy7383
    @paulinecreevy7383 3 ปีที่แล้ว

    You are being so strong and it’s disgusting the lack of communication when going through such a tuff time and this is your body!!! Keep strong you are such a beautiful girl and keep positive sending much love xx

  • @arosewillbloom
    @arosewillbloom 3 ปีที่แล้ว +40

    I'm sorry girl. That's so not professional for a hospital to do. You still look beautiful by the way!!

  • @Susancshell
    @Susancshell 3 ปีที่แล้ว +2

    Im so sorry sweetie. You are beautiful. Unfortunately this is how cancer treatment goes... lots of waiting, no communication, no answers. My son and I have both undergone cancer treatment in the last 2 years. It sucks and you have every right to be upset, angry and frustrated. Do something special for yourself and reach out to your friends and family for support. Sending good thoughts, prayers and hugs!

  • @shradhabatra1158
    @shradhabatra1158 3 ปีที่แล้ว +15

    You're the strongest person I have come across! And everysingle day I think about you and when you don't upload I feel concerned! But you're so so positive. I really wish I could give you a very tight hug and tell you it will be okay soon. You're so so strong that I know you'll get through and we're with you standing there to support you
    Love you so much from Indiaaa❤
    Stay strong and we'll get through thissss very sooooon💚💚💚

    • @CarilynnSuzanne
      @CarilynnSuzanne 3 ปีที่แล้ว +1

      Such a beautiful and warm message! 🌸🌷🌺

  • @assi4433
    @assi4433 3 ปีที่แล้ว +1

    Hi precious you are definitely not a Karen I'm in Scotland and my husband had bloods done last October to check all is well after having bladder cancer and bladder removal still waiting on results and due full scan in march but we dont see it happening makes us so angry we know covid is really bad but its people's lifes they are playing with so you shout as loud as you can and stay your positive beautiful self always in our thoughts

  • @rheamehra9728
    @rheamehra9728 3 ปีที่แล้ว +3

    hey, I live in the netherlands... this has happened to me so many times. it caused me so so much distress I can't even tell you. Please speak up, especially as a dutch person, please stand up for us! I feel so sorry for you girl

  • @loritheriault9517
    @loritheriault9517 3 ปีที่แล้ว

    You are a beautiful person inside and out ! Please advocate for yourself ! You deserve the best treatment and be able to rely on your healthcare providers to be there for you !

  • @Dreamer-by4nk
    @Dreamer-by4nk 3 ปีที่แล้ว +10

    Call the doctor. Get the home phone and call. Shame on them. And don’t feel bad. Go girl!

  • @clanaaa
    @clanaaa 3 ปีที่แล้ว

    You absolutely did the right thing, Romee. You have to be your own strongest advocate, especially when it comes to your health.
    I am speaking from experience. Wishing you recovery 😘

  • @commonsense354
    @commonsense354 3 ปีที่แล้ว +5

    I'm so sorry you have this stress on top of everything else. You are not a 'Karen'. You are a human being who has every right to be kept up to date about your care. I hope communication will be better for you going forward! Praying for you🙏

  • @jasminelee1234
    @jasminelee1234 3 ปีที่แล้ว +1

    You are still so sweet and polite when mad. 💕 You have a right to be angry. Hope they sort it out soon!!

  • @Doesntmatter20
    @Doesntmatter20 3 ปีที่แล้ว +25

    I think that this is unacceptable ... I do have a lot of patience: especially with doctors and all but this is just stressful!

  • @stillkicking
    @stillkicking 3 ปีที่แล้ว

    Romee you are in my prayers.....you are so brave and an inspiration to many of us.♥️

  • @KayaMarissa
    @KayaMarissa 3 ปีที่แล้ว +4

    wow, you're so strong Romee. keep your head up, everything will be ok. better times are ahead

  • @dabailey1000
    @dabailey1000 3 ปีที่แล้ว

    You are such a beautiful brave woman. Your patience and composure is amazing. Hang in there girl, you got this ❤️

  • @marogers01
    @marogers01 3 ปีที่แล้ว +5

    I’ve been through this with a couple of family members, and advocating for yourself sadly is a full-time job. One thing that might help is if you can designate a friend or family member as a medical fiduciary who can make calls regarding your treatment on your behalf. (I’m in the United States, but hopefully you have something similar where you are.)

  • @jillcoe4695
    @jillcoe4695 3 ปีที่แล้ว

    I've love your wigs. You are allowed to be frustrated, disappointed and angry. Your positive attitude is amazing. Lots of love and prayers from California.

  • @conor7187
    @conor7187 3 ปีที่แล้ว +109

    "I don't want to be a Karen" 😂
    Trust me, this isn't a Karen type of concern. You're completely right

    • @Goateduzi
      @Goateduzi 3 ปีที่แล้ว

      Big facts. Lol she’s funny for thinking she was going to be a Karen tho.

  • @alishaolivas
    @alishaolivas 3 ปีที่แล้ว

    Never feel bad about advocating for yourself. This is your journey and you deserve to be in the know about everything. Wishing you the best. I just had my 5 year scan and and still cancer free. I was diagnosed with Hodgkin’s lymphoma when I was 18. In now 25 and have a beautiful baby ❤️

  • @jessicadavey1607
    @jessicadavey1607 3 ปีที่แล้ว +5

    There is no excuse for the failings you have had in your care. I hope you get some answers soon. Make a formal complaint also because this isn't like they left a full stop off in a letter, this is literally concerning your life! Sending you love x

  • @emmanuelking9988
    @emmanuelking9988 3 หลายเดือนก่อน

    As a cancer patient myself, I've gone through this and can relate to your situation 100%, unfortunately. Thanks for posting your experience, in a way it's comforting to know we are not alone in this struggle.

  • @irenetaylor3228
    @irenetaylor3228 3 ปีที่แล้ว +5

    Romee your such a champ you so much remind me of my wonderful niece, she is not doing well right now but still fighting. God bless.

    • @jahanmq5959
      @jahanmq5959 3 ปีที่แล้ว

      God bless indeed.

  • @cchicaloo
    @cchicaloo 3 ปีที่แล้ว +2

    Im so sorry they make you feel like you‘re a no one. You’re a priority and please never be afraid of reminding those people of it. I love you

  • @kairek5039
    @kairek5039 3 ปีที่แล้ว +6

    Unfortunately have had a few occasions when doctors have made a 'mistake' or forgotten things here in the NL as well. I don't know whether it's because they're overworked but it never happened in my own country. I'm a very patient and understanding person but have learned to be much more pushy and aggressive in this country (I do love it here though). Sorry you're going through this, hope you get the care that you deserve!

    • @fashonlover857
      @fashonlover857 3 ปีที่แล้ว +1

      Me too, my experience with doctors in NL has been terrible (sadly), so i understand as well

  • @marie-andreebourgeois3335
    @marie-andreebourgeois3335 3 ปีที่แล้ว +1

    YOU GOT THIS ROMEE!! We‘re here to listen and support you during your best and worst time ❤️

  • @colleenrichardson5339
    @colleenrichardson5339 3 ปีที่แล้ว +6

    Never feel bad for standing up for yourself, baby girl 🤍🤍🤍

  • @kaylacote5376
    @kaylacote5376 3 ปีที่แล้ว

    Your frustration is ABSOLUTELY justified. You are most definitely not in the wrong. I’m so sorry you had to deal with this. Much love 💗

  • @oskarshamn67
    @oskarshamn67 3 ปีที่แล้ว +12

    You are right to be mad at the hospital who cannot give you the answers they promised!
    And you look great in that wig!

  • @joankelly8544
    @joankelly8544 3 ปีที่แล้ว +1

    Absolutely heartbroken for this young woman going through the worse time in her young life and no support emotionally from doctors no call backs nothing disgusting love from Ireland

  • @herbertgoldstein1156
    @herbertgoldstein1156 3 ปีที่แล้ว +5

    I would recommend to really do pressure on the Hospital and if they dont communicate with you, then change the Hospital if possible. Oh and i would also consider to maybe get somebody to help you with all the appointment stuff, treatment plan etc. So you dont have all this stress and you know that there is somebody taking care of it. Stress is really bad and can worsen the health condition of a person especially when the person is allready sick so its no shame when you get help in this sense! I wish you all the best!

  • @darondatoole7439
    @darondatoole7439 3 ปีที่แล้ว

    You have the right to be mad!!! Be kind to yourself. It is perfectly okay to not be super PERFECT. In fact throw perfect out of the door. Authenticity is an exceptional quality. You need it in these times. Many many hugs.

  • @cathyl.......
    @cathyl....... 3 ปีที่แล้ว +1

    Sorry you have to go through such torment. You have a right to know what's going on. Sounds like such a nightmare. Continue praying for you. Hugs and vent as much as you need to. Your very brave.

  • @cynthialudford42
    @cynthialudford42 3 ปีที่แล้ว +4

    Girl. My 80 year old father is having the same issue with his oncologist. He’s had to wait in excess of two weeks for pet scan and biopsy results. You have to be tough and advocate for yourself. Do not lose your resolve. You have rights too!

  • @lifenparadise
    @lifenparadise 3 ปีที่แล้ว +1

    Hey boo ❤🙏🏽 Praying for you still

  • @ilonahiemstra1147
    @ilonahiemstra1147 3 ปีที่แล้ว +3

    Hoi Romee. Ik ben zelf verpleegkundige dus ik weet hoe dingen gaan en ik snap dat dit soort dingen kunnen gebeuren. Maar je moet dit echt met je arts bespreken, aangeven wat er gebeurd is en hoeveel last je hiervan gehad hebt. Je zegt dat je geen Karen wil zijn en dat de wereld niet om jou draait, maar Romee, jouw wereld draait wel hierom! Het is te belangrijk! In een tijd waarin alles al zo onzeker is is goede communicatie en waar mogelijk duidelijkheid verschaffen zo vreselijk belangrijk! Dus zie je zelf niet als Karen maar kom voor jezelf op waar nodig (al hoop ik dat dit niet meer nodig is!) en bespreek dit ook na met je dokter. Wat je zegt, je hebt al meer dan genoeg om je zorgen en druk over te maken en dit heb je echt niet nodig! Heel veel sterkte en zet m op!!

  • @user-mu9yp3yl6d
    @user-mu9yp3yl6d 3 ปีที่แล้ว

    You are your own best advocate. Never feel bad for calling or asking questions.

  • @janicemichaloski3319
    @janicemichaloski3319 3 ปีที่แล้ว +3

    Hi there I'm sorry you are dealing with all of that hang in there girl I'm wishing you well❤️

  • @sparkleclap
    @sparkleclap 3 ปีที่แล้ว

    I am so sorry about all of this and the poor communication. You look so beautiful and flawless!! Wishing you the best of luck!

  • @iprefersteve
    @iprefersteve 3 ปีที่แล้ว +3

    I’m so sorry, Romi. Don’t feel bad. You’re not even close to being a Karen. You have a very kind heart, and you also have every reason to be upset. I hope things smooth out for you soon. You don’t need the added stress. ♥️

  • @delishea7502
    @delishea7502 3 ปีที่แล้ว +1

    I was blessed enough to have family that helped me and a mama bear that called on my behalf when I was at your stage. Now I can do those things. I just wish you had that and you’re really strong because you still doing school and etc. I had to stop working and put things on hold.

  • @saharm2246
    @saharm2246 3 ปีที่แล้ว +3

    Hang in there little angel! Wishing you the best