Hi, happy for your improvements. May I ask what “feeling” you had in your stomach? Why do you still have muscle weakness? I imagine having bloods drawn as much as you do is stressful. Thanks for sharing your journey, keep us posted.
So I had a lack of sensation in my skin, rather like I do in my finger. I had this slightly down my legs and feet too. That appears to have improved. However, I am still unable to "roll" my stomach because my stomach muscles are a little like a brick wall and don't seem to want to respond well to my signals to move. Bloods is fine - just three small vials for all those tests. Easier in Russia as they turn on your neck like a tap since the catheter goes directly into your jugular!
Thank you for the videos, really informing. Going for HSCT shortly so this is so helpful.
I'm so glad they are useful. When and where are you going?
Hi, happy for your improvements. May I ask what “feeling” you had in your stomach? Why do you still have muscle weakness? I imagine having bloods drawn as much as you do is stressful. Thanks for sharing your journey, keep us posted.
So I had a lack of sensation in my skin, rather like I do in my finger. I had this slightly down my legs and feet too. That appears to have improved. However, I am still unable to "roll" my stomach because my stomach muscles are a little like a brick wall and don't seem to want to respond well to my signals to move.
Bloods is fine - just three small vials for all those tests. Easier in Russia as they turn on your neck like a tap since the catheter goes directly into your jugular!