Defying Ehlers Danlos: Swatch and talk journey

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  • เผยแพร่เมื่อ 22 ต.ค. 2024

ความคิดเห็น • 31

  • @JustNikkie_
    @JustNikkie_ 8 หลายเดือนก่อน +3

    I’m truly appreciate your openness and willingness to share your experiences. I have never heard of this condition very insightful information. Take it one day at a time and take care of self first. Thank you so much for sharing hun 🥰💙

  • @nailsbynelly29
    @nailsbynelly29 8 หลายเดือนก่อน +2

    Wow thank you for this information! I agree with Brandon! Take care of yourself first! Thank you for bringing awareness about this condition i personally have never heard of it. Im so sorry that you're constantly in pain and this is coming from someone who's in pain daily. I understand and please take care of yourself sweetheart 💗 i hope one day a cure is found or at least a better way to manage this condition. The swatches are beautiful ❤ keep shining gorgeous you're doing great ❤❤❤❤tyfs love

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Thank you so much hon, I truly appreciate your support. I'm glad I could educate about one of my conditions and you were open to learning about it. That's the first step to better management!!

  • @sondras_sparkly_sets
    @sondras_sparkly_sets 8 หลายเดือนก่อน +2

    Hello💖 this was a great video🤗 I have learned alot. I haven't heard of this before. My mom has Fibromyalgia and I have seen how much she suffers. Thank you for educating us and spreading awareness🥰🥰

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน

      Thanks for watching and learning about one of my conditions. I truly appreciate it, and I'm so sorry your mom deals with Fibro as well, it can be pretty tough at times.

  • @barbiegirlznailz222
    @barbiegirlznailz222 8 หลายเดือนก่อน +1

    Wow that's is so interesting 🤔 the polishes are gorgeous ✨️🫠✨️

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Thanks for watching!! Aren't they gorgeous?!

    • @barbiegirlznailz222
      @barbiegirlznailz222 8 หลายเดือนก่อน

      @@ptszpwr783 Totally 😉

  • @MoonLitNails
    @MoonLitNails 6 หลายเดือนก่อน +1

    Thank you so much for bringing awareness to little known conditions...education is so important ❤

    • @ptszpwr783
      @ptszpwr783  6 หลายเดือนก่อน +1

      That it is!! When Drs don't even know what to do for us.... I feel it's important we educate those around us.

    • @MoonLitNails
      @MoonLitNails 6 หลายเดือนก่อน +1

      ​@ptszpwr783 you are so right. And Dr's hate to admit they don't know...which creates all types of additional burden for patients with rare little known conditions

    • @ptszpwr783
      @ptszpwr783  6 หลายเดือนก่อน +1

      @@MoonLitNails 💯 FACTS!!!!

  • @SUGARDECLIPSENails
    @SUGARDECLIPSENails 8 หลายเดือนก่อน +1

    This was first am for most such a great informational video that I know was difficult but am proud to see u sharing to help as many as u possibly can an I believe it helps us in talking about things as well. Very well said an thought out!!! U did an amazing job babe. Keep going keep 💪 up the great work. We r rocking wit you an love u too!!! ❤️ I am one proud of how much u have already done and even though u r tired or sick u still keep pushing forward!!! ❤thank you for this video babe. ❤xoxo 😘

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน

      Thanks love!!! This video was probably even harder to do than my very first one. But it's important to me and others to share our condition and our struggles. 7-10 yes for a diagnosis that has no clear cut treatment, but only symptom management... that's too long!!! I'm sure you understand as well though. I can't thank you enough for your kind words, love and overall support!!! You're amazing as well and I'm blessed to have you in my corner.

  • @una_nail
    @una_nail 8 หลายเดือนก่อน

    Gorgeous color❤
    Thank you for sharing🥰

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Thanks for watching!!

  • @nailsbybramble
    @nailsbybramble 8 หลายเดือนก่อน +1

    Hi PtszPwr. 🤗 Hope you are doing well. Thank you for sharing. The gel polishes are beautiful. 😍❤️ So sorry you have it and other things. So sorry you deal with pain everyday. I know how you feel with that I do. Somedays are better than others. I've been trying to find out what is wrong with me since I was a teenager. No Dr around cares enough to help find out. So I've stopped trying. I just deal with the pain everyday. Yes I've been diagnosed with somethings long list. Lol. But I don't take any medication I just take one day at a time. Thank you for sharing. 💜💜💜🤗

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      It's such a shame to hear about this. I'm so sorry you deal with pain and several conditions as well. I hope you have found a balance at the very lest. If you have any questions or want to pick my brain please feel free to reach out.

    • @nailsbybramble
      @nailsbybramble 8 หลายเดือนก่อน +1

      @@ptszpwr783 Aww thank you so much sweetie. Sorry you deal with it. Thank you it's so good to have people like you that cares. 💜🤗

  • @kim_nailz_lets-shine
    @kim_nailz_lets-shine 8 หลายเดือนก่อน +1

    Okay.. that took guts to be open and to inform us as good as you did!! I definitely gonna look it up on Google bc I think I understood most of it bc I also have everyday pain with Fybromyalgie and chronic backpain and occasional migraine.. But like what you described was so much heavier with your joints and cels! So yes, please listen to your husband and family.. I also needed to learn to listen to my body even when my mind didn't want to.. Im having at the moment, actually.. 🤭😁 I'm trying a new job on my work, and it's getting a lot more to me than I want to admit bc I like it .. 🤭🫣 Thanks for bzing so open with us.. I hope you know I like your videos and I appreciate them and now with this info I even find it amazing that you can have this with you on your plate too.. Be careful but also enjoy life like we all try.. Sending you much love, strength, and appreciation.. 😘😘😘🥰🥰💙💜💙

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Thank you so much for your kind words and support!!! It's one of my joys to educate people on what I live with, it helps us to understand and relate to each other better. In so sorry you deal with chronic pain and migraine as well, I hope you find balance soon!!

  • @ZeldaMontaigneNailKorner
    @ZeldaMontaigneNailKorner 8 หลายเดือนก่อน

    😢 So sorry that you have to deal with that sweetheart hugs.. 💞 you do like your husband says and take care of yourself 🤍💗💯🧸 I'm glad you get to do nails for us. Thank you for sharing. They were beautiful 🌷🎀 ❤️

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน

      Thanks, hon, but I've adapted over the years and have learned to embrace it rather than fight against it. It's just my lot in life, you know. Make sure to take care of yourself as well!

  • @Dawnadiditnailz
    @Dawnadiditnailz 8 หลายเดือนก่อน

    I appreciate you schooling us about this God bless you❤❤

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Thanks for taking the time to learn a bit and for supporting me!

    • @Dawnadiditnailz
      @Dawnadiditnailz 8 หลายเดือนก่อน

      @@ptszpwr783 yesss honey it's all about women supporting women 💝💕💕I'm actually a women's pastor, anytime u need to talk scream cry yell cry or whatever I got you sis 💯

  • @kim_nailz_lets-shine
    @kim_nailz_lets-shine 8 หลายเดือนก่อน +1

    Hi Love.. 😘😘🥰

    • @ptszpwr783
      @ptszpwr783  8 หลายเดือนก่อน +1

      Hi hon!!

  • @MoonLitNails
    @MoonLitNails 6 หลายเดือนก่อน +1

    Love your intro!!🎉🎉🎉

    • @ptszpwr783
      @ptszpwr783  6 หลายเดือนก่อน +1

      Awww thanks!!

  • @brandonsawyer9128
    @brandonsawyer9128 8 หลายเดือนก่อน +1

    Silly technology!