Son’s Excruciating Pain Mystery…Solved!
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- เผยแพร่เมื่อ 6 ต.ค. 2024
- The Doctors send Dianna, Dan and Casey to see Alan Gordon, executive director at The Pain Psychology Center. Alan finally gives Casey a diagnosis that seems to resonate. Check out the amazing surprises The Doctors and Alan have in store for him.
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Hopefully thats the true diagnosis. Because I was told for months and months that my pain was in my head. My gallbladder died and just kept getting worse.
AllTimeLowmuffin Same. Or, not the diagnose though. I had a severe low thyroid, where my body completely shut down from the inside. I was tired, to the point where I could sleep for days at a time. I became depressed, gained weight even though I barely ate... headache, hearloss. Like, it was crazy. After FIVE years finally a specialist came in the picture and had me tested, no other doctor would bother because of how young I was. There was 'no way' it could be my thyroid they said, even though I had EVERY possible symptom there is. So my first diagnose was depression. If I had just "taken" that and accepted it... my body would've eventually colapsed.
Plasticpinkstar yup! he's doing really well! he's my cousin :) he finished school this semester with above a 3.9 GPA and is starting his senior year
That is an incompetent doctor who obviously did not run a gall bladder test and then told you it was in your head. Alan Godon is very clear that this kid is in pain. Hes not telling him he doesn't have pain like you were told. Hes telling him that his brain is sending messages of pain (all messages come from the brain) but there is nothing physically wrong other than realizing the obsession with pain is the problem.
They actually test babies now for thyroid problems. This must have been a long time ago because age has nothing to do with thyroid. I had thyroid problems all my life and the correct test will show that. Alan Gordon is not telling this kid he doesn't have a problem. He's saying he's been checked over thorougly, and the pain is a result of oxygen deprivation to a certain area in his body. He can control that once he understands it.
My gallbladder died to. Went to the ER and they said it was constipation. I went back 5 times. On the 5th time they took an imaging device and ran it over my abdomen and it was obvious what was wrong. Why didn't they do that the first time.
I would really like to see this kid in a few months, I'm really curious to know if it's really only psychological, I know that the mind/brain is powerful but his pain looks so severe...
Can V
LucyAnn 1814 I think the same. I hope the doctors can find what's the cause, I hate the idea that they think is not real. He is suffering a lot. abd
The brain is the part of our body that creates pain to begin with. His pain is totally real but it's created by the brain thinking there is something wrong when there isn't. The brain is a powerful thing you'd be surprised.
LucyAnn 1814 Yes, Exactly. It's horrible how they do want to minimize or ignore the patient's symptoms. Like "It's only in your mind". :-/
Cyn V
It's probably related to some sort of dopamine, oxytocin, or GABA B related issues. Dopamine and oxytocin are a regular chemical in our brain, which gets flushed through our nerves throughout our body to keep us regulated. When opiate addicts come off of the drugs and go into withdrawal, they are severely lacking in both oxytocin and dopamine, which causes severe nerve pain throughout the body....
While his pain was centralized to one part of the body, his abdomen, I believe it's very similar to the nerve pain caused by the chemic deficiency associated with opiate withdrawal.
Narcolepsy is also associated with these certain chemical deficiencies.
Basically, it's similar to a narcoleptic like attack, with similarities to a panic attack, but of a much greater scale. And because he knows these attacks will happen, his mind has built up an ongoing anxiety or fear of on incoming attack, and basically prepares himself for the ongoing attack by constantly remembering the feeling of the pain of the attack.
I think, while therapy will be helpful, anti-psychotic and anti-anxiety medication will probably have to become a regular part of his life...
I had 8 months of misdiagnosis before I finally got the diagnosis of interstitial cystitis. I feel so hard for this kid. I cried.
samantha slagle same exact story
samantha slagle I had five years of misdiagnosis before my IC was finally diagnosed. That was 1987. It's 2017 and I'm still dealing with this POS condition that has caused me some real grief and the medical expenses OMG.
samantha slagle that means alot! this is my cousin , whom I love , and it was really hard to see him go through this. he is doing wonderfully!
I think its safe to say he doesn't have interstitial cystitis.
samantha slagle I was in pain everyday for 4 years before I was diagnosed properly. I really hope we don't hear fro, this kid in a few months when he's still in pain & now is even further back from an answer than he was to begin with
Whenever a doctor makes this diagnosis, they better be GOD DAMNED 100% certain that's what the problem actually is!
Sometimes the system can fail you. I had what I thought was a chronic pain disorder for five years. I had a bunch of different scans, saw specialist and everything. Turns out I had a huge kidney stone and it was just missed on the scans due to outright negligence. I wrote about my experience in more detail here. www.quora.com/Have-you-ever-been-misdiagnosed-by-your-physician/answer/Melissa-Drift Malpractice happens. That's why I wrote my comment above.
Then WHY are the nerves flipping? There's gotta be an underlying issue affecting the nerves if that's what it even did. Exploratory surgery etc great--- but why not infectious tests that cause constant pain and massive gut wrenching episodes? What I saw was a kid still in pain and seemed broken hearted in that appt etc. In my opinion there's something more to this. My gosh it burst me into tears.
herding123 I went through about 8 months of misdiagnosis and has all of the same tests and more that this kid did. I have had at this point 7 surgeries for my issue.
the problem is is that with all of the scans they couldn't see my problem. they finally saw the problem when they put a scope into my bladder and finally told me it was interstitial cystitis. I have seen almost every specialty out there, and almost a hundred doctors.
Sometimes there are physical reasons why someone is in pain. Sometimes it all has to do with the nerves of the body. your brain can tell them to freak out and be in pain, and then they are.
pain is a specialty I feel that is just a framework. we don't have the technology to flesh out all of these theories.
we can't see pain. but we can see someone who is in pain.
samantha slagle
Oh goodness so sorry you went thru all the mis-dx etc. I'm glad they finally saw it in the bladder. Have had that from Lyme Disease. I have a friend who had this similar issue and ended up being what no-one talks about: literal abdominal seizures. There's a root cause and there needs to be more research in so many fields.
Yeah a seizure in a distal limb or the torso is also very possible.
I heard that theory because I have epilepsy (completely unrelated to my interstitial cystitis). But it can be possible since he does have an element of passing out during his acute attacks.
samantha slagle
Ohhhh yes. Wow you have the Epilepsy too? I see my new Epileptolgist next month. My other friend she turns pale and vomits. They couldn't find an organ either. Epilepsy testing needs some help too Lol since 40% of even grandmal seizures are so deeply rooted in the brain that they fail to show up on the EEG graph. Crazy ha?!
I agree that a patient should always be thoroughly checked. But the diagnosis that he was given in this video is legit as they come, and more than powerful enough to cause his problems. I don't think he was disappointed, I think he was truly hopeful. Suppose a person has a panic attack (which we know is caused by emotional turmoil) and one of his symptoms is a numb throat and feeling like he can't breathe. It would be unproductive to say "screw going to psychotherapy and educating myself about the nervous system and why it causes panic attacks, I need to go to a throat specialist and look into throat surgery. There has to be a underlying cause!!" Hundreds of years ago though, a patient would have punched his doctor in the face for suggesting that his throat issues, and other panic attack symptoms were psychological in origin. Now we know better. Now we know that know many forms of of chronic pain and other mysterious symptoms are being caused by the same reasons as a panic attack. We can't just brush off this diagnosis as if it were some kind of "fake diagnosis" or diagnosis not worthy of being able to cause his symptoms. It can!
I think it's important to remember that in some cases the pain may be psychological but this is not always the case and further diagnostic tests are required. I have a facet joint dysfunction caused by hypermobility and I was told that the origin of my pain was psychological and that I had conversion disorder. This was totally incorrect! I found a pain specialist that was able to PROVE conclusively that my pain has a physical origin and now is being managed effectively via a neuromodulation unit. I do wish the best for this young man and perhaps his pain may be psychological in origin however I knew how devastating it was for me to be swept under the rug as a psych case when I do have multiple medical conditions that just aren't all that common. It took over a year to be diagnosed with chronic pain and another six months to find the cause and thankfully my family and I persevered for an answer. Sure I do push myself and stress over grades but that never caused my pain and I found it horrible to be placed in a box and denied proper pain management.
Yurie T I'm in your boat with something called interstitial cystitis. I'm almost 23, and I spend my days laying in bed in severe pain. I can't do all the things i used to do, like taking 5 hour hikes.
but I have learned how to knit, sew and crochet.
Being told that you have a mindbody syndrome does bot equal being swept under the rug. I had debilitating pelvic pain for three years. It turned out to be a mindbody syndrome. I was able to heal as soon as I realized it. Just because the cause is psychological, does not mean the final result isn't 100 percent physical and devastating. I guess all I am saying is that a mindbody syndrome diagnosis isn't just some "Oh it's no big deal, just throw him in the psych case stack". It's a legit medical diagnosis. Once the nervous system goes haywire, you are in for a nightmare.
I have Ehlers Danlos/ Hypermobility and was also told my pain was 'psycholgical'. But my joints partially dislocate, my muscles are very weak and cause pain from overuse. Luckily I found doctors who said my pain was legit and I've been treated properly.
I understand what you mean, how devastating it is, it's humiliating to be told your pain isn't 'real'. Funny how ALL people with hyper-mobility have pain. We can't all be imagining it!
I was also told I had 'conversion disorder' which was devastating, but I've now found out years later I have a neurological condition that's affecting the part of the brain that controls movement. Having that diagnosis on my records caused years of delayed diagnosis.
+leopard prints I don't what those doctors told you exactly. But in the case of this video, being told that he has a mindbody syndrome does not in anyway equal being told that his pain isn't real or legit, incase that is what you are thinking.
flipgsp Oh no, I understand the difference. I was just relating to Yurie T's comments about his/ her condition as I have the same thing.
I have a mix of 'physical' and 'psychological' symptoms that are of the same thing. For example I have PTSD seizures, and also seizures from a physical condition. Both are 'real' to me.
I can relate so much to this kid. (Be warned, my issue is a little gross.)
At the age of 8, I developed SEVERE pelvic pain. As it turns out, my bladder was contracting at about the strength of a woman's cervix during beginning stages of labor. Unfortunately the bladder isn't made to contract like that so it would rip. My bladder lining had also been destroyed and my bladder was essentially an opened wound.
Eventually I was diagnosed with a very severe case of interstitial cystitis. I was in horrible pain from ages 8 to 18. I am not being dramatic when I say I was NEVER out of pain in those ten years. Doctors were baffled. Nothing helped.
Thanks to God, a neuropain stimulator spinal implant took most of my pain away and truly saved my life. My life is SO much better and I finally feel free!
But I recognize that look on that boy's face. A part of you stops living and the only reason you keep going is because of your family. I hope he breaks free, like I did.
Carlee Anne so are you still experiencing pain today ? I'm glad you got through that !
I used to get those pains and mine stopped when I decided I would not get into another relationship. I haven't had that pain ever again
That must be so demeaning being told your illness is just plasibo and what if its not that, are they 100% certain that its a placibo im pretty sure that something similar has happened before were the doctors didn't believe them and they thought it was a placibo then wit turned out it was something way more dangerous and it was a very rare disorder
So this is a functional neurological disorder? I have been diagnosed and coming to terms with someone saying its not an actual problem or pain is an ongoing process. I'm happy he hot help when he did because I'm stuck on a waiting list for help (a long time) and a full time wheelchair user.
My husband had similar episodes throughout teens and first half of 20s. All tests came back normal...It turned out that his gut flora was permanently damaged after 10 years of testing and poking.
Interesting. I used to have pain exactly like that, and it turned out to be Sphincter of Oddi Dysfunction. I hope he was tested for that because it can cause damage to your liver and pancreas.
This is similar to what I went through.
I have an anxiety disorder and when I started high school it got so bad that I would literally feel physically sick and in pain because my body was trying to cope with the anxiety. It got so bad to the point where it would feel like someone is actually sitting on my chest or that I can't walk or I can't get out of bed,
I believe it also cause a few seizures too :/
this CANT be psychological - he's passing out, for heaven's sake !
I don't mean this to sound rude. But you are just not yet very educated on the power of mindbody syndromes yet. The cause is psychological, the symptoms are physical. Have you ever had a panic attack? All the symptoms are physical, but we know very well why panic attacks start. Emotional turmoil activates the nervous system. Have you watched the show The Sopranos? Or the movie Analyze This? The premise of both is the same. It's about a mobster who ends up in psychotherapy because he is passing out during panic attacks. Look at it this way. If a man thinks about a naked woman, he will get an erection. So the cause of the erection was "mental" (just thinking about it) but the actual erection is %100 physical. Same for liquid coming out of your eyes(tears) when you are sad. Goosebumps when you are scared. Stomach ache when you are nervous right before a presentation. The problem is most people don't think more serious pain and symptoms can happen. They can!
+flipgsp stomache ache before a presentation*
flipgsp LOL I know how that works, but I do not think it's possible for this case. if that were the case, then his brain is his worst enemy. it's basically trying to kill him.
yeah, but it's the "easiest answer" I got from doctors for 10+ years. I actually got undiagnosed Lyme disease, the pain was very real and wasn't psychological. How would these "geniuses" figure this out? they just didn't, they preferred to diagnose me with BULLSHIT fibromyalgia diagnosis instead of the real cause. I had to travel abroad to get a diagnosis and treatment. And guess what? I FUCKING STARTED TO GET BETTER! It didn't take that long before I started to feel the benefits of having the RIGHT antibiotic treatment. But hey, this was *just* psychological right. Bastards. I can't tell you the REAL psychological damage that it caused me to be treated as if I was a mental case FOR YEARS while I was losing my cognitive and physical capacities because of undiagnosed lyme disease.
It's lazy answer from a lazy stupid physician. Trust me, it took me ten fucking years to get this. Doctors don't know *everything*
This video kind of infuriates me. They're making him think it's all in his head, when it's pretty obvious that something physical is going on. Pain caused by psychological reasons are only to a point, something is going on and it's not just in his head. You guys need to do more testing on him.
They posted an update and he is doing great. The brain can cause VERY severe pain.
AGAIN it is the brain sending a signal to the part of the body that is in pain to deprive that area of oxygen. Oxygen deprivation can cause horrific pain to tissues. Once he knows what is causing his fear, he can move forward, and over and over again his cousin has stated on this thread that he is doing good.
There can be nerve entrapment and who knows what else. Psychologists will gaslight you. Make you agree it must be in your head if you don' get well. This is likely what drives many to suicide from the pain and the not being heard. Not being heard increases the fear.
I never heard a name for his diagnosis, but this story is almost identical to mine. I have Amplified Musculoskeletal Pain Syndrome. This is also known as Complex Regional Pain Syndrome or Reflex Neurovascular Disease. Most people have never heard about it and there are no 100% treatments for it. It's a condition that causes a short circuit in your nerves causing pain when there isn't any. The treatment is to push through, and there are multiple programs throughout the US, one of which I was in, which is hours upon hours of PT and OT five days a week for about three weeks. There are many factors, like genetics and gender, but the main ones are injury, illness and anxiety. I don't understand the fear part of it, except I know that when you let AMPS pain get to you, and you don't work through it, it does get worse. People have been in wheelchairs for years from this condition and then are able to walk after a week in the program. His story isn't isolated, it's mine and lots of my friends's story
Kinda funny.... when I saw the first clip about this case I said to myself "This reminds me a lot of my own stomach pain I had as a kid because of stress." It seems I wasn't too far off then. Hope he is getting better.
00Kuja00 and I bet you went from stomach pain to other pain unless you are still very young? These things don't tend to disappear until you get to the root of the problem, Trouble is, most doctors are all to quick to do surgery for $$$ and then you go from surgeon to surgeon being maimed for your pain.
No it went away more or less after I got older and started with deep breathing exercise. But my tummy is my weak spot. If I am nervous or stressed I always get some upset tummy, but not as bad as a kid.
He talked the pain away! yay!!!
Thanks for discussing this I’ve been told I have something familiar but I’ve never understood it really when the doctors and phisio have talked about it. That made a lot of sense to me thank you
I am a medical hypnotherapist and I've seen many of these cases after all other possibilities have been ruled out. It is so satisfying to see a patient find relief from excruciating pain when they had given up all hope of ever feeling good again. The mind is unbelievably powerful. Just because something is "in your mind" doesn't mean it's not real. In fact, I would argue that that which is in your mind is the most real to you.
I think at the end of the video he got the pain back but he tryed to hide it. If you look again at his face, you will notice it too.
It's really annoying how people say "it can't be psychological because (insert story here) happened to me!" Yeah it can! You haven't met this boy or studied him. This professional has. It seems to be removing the pain. Trust me, anxiety can do that sort of thing to a person, I know from first hand experience.
I love, love, LOVE that everyone in the comment section are board certified physicians!
It sounded like they ruled just about everything else out, and I'm sure he took the appropriate steps to assure the child's safety. I have lupus, degenerative arthritis, nerve disease, chronic migraines and chronic pain disorder, and I know how the mind could cripple the body. Our mind, and brain is run off of chemicals, and get those out of balance, your whole body will become out of balance.
I have the same thing in my foot it took 2 years to figure out what was wrong... Im now going to have a treatment for it. im so glad that im not the only one who has it.
I have a condition called sphincter of oddi dysfunction. It can truly only be diagnosed through an ercp. I'm 17 and it all started when I was 15, he seems to have all symptoms of it and should be tested, that's bs when they said its a mental type thing. Sphincter of oddi dysfunction is a physical thing that causes severe pain and attacks on the upper right side or on the right side. He should be tested for it if his pain continues.
I know how he feels because I had sharp pains like being stabbed in my side just like him
but then the doctors finally realized it was my apendix ( however it's spelled )
I got it removed and I feel much better today. So casey your not alone.
Ugh finally, this made me so sad i'm happy he found a way to treat this
so is it like a phantom limb sort of situation?
It's a mindbody syndrome. The brain activates the mechanisms within the body which then cause pain and other symptoms. I recommend a book called Unlearn Your Pain which talks a lot about learned neural pathways. I also recommend Dr John Sarnos books.
oh, ok .. thnx alot
Sketchy Noob yes! he is doing really well
Iv’e been reading Dr. John E. Sarno books I started with the first book and now reading his last book called “the divided mind” they are incredible books to read on this subject. Pain pain pain😬 If what I understand from his books (Dr.Sarno)is that any kind of pain goes away within a time period whether the pain has a real source or not.... so eventually even if the pain came from a real source it becomes a TMS pain after a period of time if the pain is still in the body which means it’s still in the mind.... the real pain taught the brain to regenerate its-self (pain). I’m glad he is getting help and at such a young age.... what a gift.
I mention Dr. Sarno because he is the doctor to actually introduce us to all of these concepts and so much more. I call him the Guru Doctor
I doubt very much that this cured him. This is a chronic pain from the inside. It is called fybrosis. His body is breaking down since he was a kid but finally caught up to him. His body needs nutrients not a phsyc Dr. Yes the mind can play tricks on you but not enough to create pain like this, and he passes out. Clearly he is not eating right you can see his face full of acne clear sign that he has a gut issue. Fasting can help him off the bat with digestive enzymes plus probiotics. All vitamin and minerals as well. To much to explain but I'm sure it's not what they say it is. He is still most likely getting the pains. Hope he finds healing thru nutrition and not a phsyco doc
Joe Silva any advice on clearing my acne?
Hi
Yes acne is reversible. I'll try to make it short so many things to say about it, to long to explain in biological detail but, acne is caused By digestive issues which in return causes dirty blood which then the blood releases toxins into the skin which then the dirt is released thru the skin thus causing acne. Here are a few things you can do to reduce acne. I shared this with many of my family members and friend and they got amazing results by doing it. I hope this helps you.
1) Zinc Picolinate ( 50mg a day) - best taken with 2mg of Copper chelate, important for blood sugar control as well as hormone production and balance
2) Vitamin A (20,000 iu a day) - premier skin vitamin stabilized the growth of skin cells and sebum (skin oil) producing cells too
3) Vitamin B5 (1000-200mg three times a day taking each dose with the entire B-complex) - key vitamin for skin oils and adrenal gland hormones
4) Vitamin B3 (timed release 100-300 mg daily,taking each dose take with the entire B-complex) - anti-inflammatory, improves blood sugar control
5) NAC (500-1000mg) a day - important liver support nutrient, improve hormone processing
6) Selenium Monomethionine (600mcg a day) - detoxification of old hormone
7) Glutamine (1000 mg a day) - general detoxification and anti-inflammatory properties
8) MSM (2000mg a day) - detoxification, improve hormone elimination
9) Vitamin C (5000-10,000 mg a day) - the “primal panacea”, good for everything. Involved in hormone production as well as blood sugar chemistry
10) Probiotics (80 billion units of multiple strains) - improves fat metabolism, detoxification and hormone processing
11) Vitamin E (400 iu a day) - dramatic anti-inflammatory and healing properties
12) Isolate and eliminate problem foods (dairy, grains eggs and legumes are BIG problem foods; ANY vegetable can be a trigger as well)
13) Eat lots of cruciferous vegetables (broccoli, cauliflower, Brussels sprouts, bok choy) - improves hormone processing and detoxification. Steam lightly if you have any thyroid issues
14) Reduce intake of insulin spiking foods
15) Reduce intake of ALL foods caloric intake, fasting can have a dramatic impact
16) Slow down and deepen breathing, deep diaphragmatic breathing techniques daily to improve adrenal function
17) Exfoliate and cleanse daily 2% salicylic acid toners and cleanser. Keeping excess skin oils off of the face is important. These secretions from oil glands, technically called sebum undergo chemical when they’re exposed to air that can cause inflammation and increase zittiness. Proper and regular exfoliation will assure that potential poor clogging dead skin cells are removed off of the skin surface.
18) Use Retinoic Acid cream or gel!! It is by far and away the most important topical skin product you can use. It improves all markers of skin health including hyper-pigmentation, oily skin and blemish formation. It’ll even prevent the formation of fine lines and wrinkles.
Sorry had to bring out the note book
Hope this helps main thing is stay away from sugar as much as possible concentrate on your diet intake which a KETOGENIC diet can help with that extremely. Remember for those are reading this. This is just information I researched and compiled thru out my years from Natural paths and pharmacists friends. If you have more info to add please do the more info people have the better guys. Thanks
wow! that is a lot of information thank you! I will try to give it a shot but I am really horrible at swallowing pills.
Yes lots of info, not going to get this from a dermatologist though thats for sure. Some people have hard time swallowing pills for sure like my kids so in this case you can research some powered type vitamin and mineral drinks like I did. I have my family on a reputable company called Youngevity. You can read up them yourself if you like. Here is my link that you can use to get there I'm not really a salesman I do like doing that I'm not good at it by any means, nor do I really go around advertising for myself because you can make money helping people to alternative way to remove yourself off meds. To much to say but here is a link if you'd like. JoeSilva.my90forlife.com/ there are other companies that also have powered type vitamin that you can buy online or Amazon. It's your preference some are cheap some are pricey. But for me and my family we use Youngevity for all vitamin and mineral needs.... if you can't do the pill swallowing
Joe Silva thanks!
"Can't find what's wrong with him, we gonna loose views."......"It's all in your head Casey my love." *crowd claps*
The brain can do amazing things to the body. I have dissociative seizures which are caused by psychological issues but that doesn't make them any less real, people say they look just like epileptic fits.
I remember the horrible pain I was in before I got surgery on my avascular necrosis and I still sometimes feel it.
Awww this makes me so happy!
Casey: "(Beep) the pain I'm in charge now" Me: "Yeaaaaah that's the spirit" :)
Aeryn Rivera yes! he was very relieved to have someone who finally could help! he's doing much better now!
I really hope this is the right treatment and cause. I have been told similar things regarding my pain and other symptoms when I was undiagnosed but it turns out I have a 100% physical illness nothing psychological about it. I'm really hoping this is the actual cause and they're not delaying correct treatment.
Doctors should check for infectious diseases, like Lyme, Etc And Autoimmune, etc. I hope they can find what's the cause.
And bothers me when the doctors give up, and come psychologists to say that is all "in his head", that is "not real". It flips me out.
Blessings.
Love and light.
when the kid was on set his lines seemed so staged.
SingSingSING94 that is NOT your cousin
SingSingSING94 lol just stop
SingSingSING94 you're not his cousin lmfao. Stop trying to get attention
SingSingSING94 I'm actually a college student but it's probable that you are not his cousin. Even if you were his cousin, I don't understand why you have to make that apparent over 10 times in the comments section. It is as if you are taking credit for his fame which makes it seem like you aren't his cousin. Anyway, have fun pretending you're his cousin, young lady!
SingSingSING94 so stop
When I was in fifth grade I got an attack of immense pain in my stomach. It came and went and was excruciating. Muy mom kept me home from school and at the end of the school day my pain went away my mom asked me alot of questions about things that might be stressing me. I told her my teacher took my chair away. I was already separated from the rest of class in the back in a corner. I had ADHD and talked to whoever was sitting next to me when we weren't supposed to be talking. I always tilted my chair on two legs but it the back there was no carpet and a cinderblock wall behind me. My teacher was scared of me falling backwards so he took my chair. This furthered my humiliation. On top of all the other stressors like my alcoholic dad and runaway sister this just pushed me over the edge. My mom gave my teacher hell and I got my chair bsck and even though I still sometimes suffered from severe stress that caused stomach pain it was never as bad. I also had an overactive fear center resulting in severe OCD. At that same time I had my onset of OCD although I hid it for years bc I thought it was punishment for being bad. But it wasn't until I confronted my fear of not completing rituals that my OCD went mostly in remission. But a few years ago I again suffered debilitating abdominal pain that felt kind of similar but much worse. Literally had me screaming on the floor in front of my small child. This time a cat scan revealed a ruptured ovarian cyst. So I've experienced somatic and psychosomatic pain in the abdomen. They both sucked
I’m happy for that boy
Still questioning RSD/CRPS, especially after surgeries and multiple procedures. I do hope he has the cure that he so desperately needs.
Crystal Murphy The only thing with that is he didn't have any other RSD symptoms. It could possibly be RSD CRPS .
Josie Myers Totally. However, a lack of diagnostic "positives" still makes me question. Internal RSD/CRPS is so very real and also very rare and hard to diagnose. ❤
After years of awful pain round my body similar to his no diagnosis has been made for me. I've taken every test possible and nothing. I believe it's psychological but more convincing has to be done to get my parents to act.
I feel so bad for this kid. Those tears of hope are so powerful
All of these smart people talking about how it's not psychological but I'm just here like "ouch that's even more pain than cramps"
I was told all My life that My pain is just in My head, I wanted attention, I was depressed, I was over weight, under weight until I was 28 when I was diagnosed with a true disease; Ehlers Danlos Syndrome and all the other diagnoses that follow with it.
You can see he is in pain, the psychiatrist is just making him feel that his pain is invalid. It is such a dangerous thing to say it is all in your head.
I'm trying to keep an open mind here but i have had debilitating chronic pain for many years, and doctors are always writing me off as "attention seeking, hypochondriac, exaggerating, etc" I think now that i'm an adult and i have been very persistent and consistent, that they do believe me now, however they believe that while i truly am in pain they insist its still "in my head"
i used to get so mad at that, but now i understand all pain is "in your head" if my legs are both broken, and my bones are sticking out the pain is still in the brain. The brain tells the body its in pain so yes i understand ALL pain is technically in the brain, but if that is the case, than why do they treat broken bones with painkillers, and "psychologically based pain with a pat on the back and a prescription to walk on the beach or smell some pretty little flowers....
Nothing irritates me more than when a Dr says oh go for a walk in a nature, think happy thoughts, distract yourself mentally so you wont notice the pain...uum i ALWAYS notice the pain! Nothing i do, no matter how much "fun i'm having" or what a great mood i'm in or no matter how focused i am on a project the pain does not lessen. If i'm absolutely absorbed into an intense scene of a movie, or petting a fluffy little puppy dog, or opening christmas presents, i am still aware of how much pain i'm in, and forcing myself to smile. For people who think "distraction" takes away pain or makes it less noticeable, they either don't know what they are talking about or haven't experienced this severity of pain.
aauugh ok so i should stop ranting about this, but what i'm wondering is if pain does have a mental origin than what actually fixes that!? I have done cognitive behavioural therapy and have tried coping skills and meditation and tried telling myself repeatedly that the pain is not there or that it doesn't really hurt or that it will stop (trying to fake it till i make it?) never changes anything. I don't really believe my pain is due to psychological reasons but at this point i'm willing to try anything and if every dr thinks the pain is psychological than fine i will try fixing it from that angle as well.. but after several years of exploring the "psych angle" and seeing specialists it has only gotten worse. does anyone know if there is an actual way to deal with mental pain (if that is the actual reason)
So while i am not convinced my pain is psychological in nature i am keeping an open mind and accepting the fact that it could be a possibility. However the reason i am hesitant to believe it is mental is the fact that the pain does not worsen with stress, and it does not get better when i'm happy. Nothing makes it better or worse except time. I would think psychological pain would get worse when someone is anxious or unhappy and that they would feel relief when everything is good. but that's not the case for me. I would say it feels more degenerative as it gets worse consistently through the years and every year i'm alive its that much worse. I spent 4 years on a waiting list to see a fancy pain clinic specialist who talked to me for 10. min and than said he didn't suggest surgery therefore i should just "deal with it" 4 years waiting for the same response i heard from everyone else...great.
anyway going out on a limb here but how does one go about determining or fixing psychological pain?
well sometimes the phisical pain much more easier to live with then with psichilogical pain... And we do not really know how the brain works but sometimes this is how stress showing itself...
From what I can tell, it's like being afraid to vomit, and so when you get slightly nausiated you freak out and feel really bad. Then you take deep breaths and think your way out of it and you feel better, because there wasn't anything actually wrong, but you were afraid, so you felt bad.
I would check his Gallbladder. I had similar pain and the ultrasound didn't pick my stones up because they were so small so I had to have a blood test.
I have POTS and for a long time they were staying its all in my head. Until I was put on a tilt table and finally my drs believed me when I nearly passed out with my heartrate in the 140s. So no it's not always all in the head.
Pots Is another form of tms
Who else wants to go walk up to Casey and give him a big hug ? Is it just me ?
banana queen nah
I have this but not as bad as him. Whenever I get a slight pain in my stomach, or I feel something in my throat I get nervous I'll throw up. I usually will throw up.
I have had these for years but just got diagnosed with it last year it's awful I didn't believe it that it was something psychological therapy didn't really help me at all the pain is absolutely awful and with symptoms like fever and vomiting because the pain is so bad nobody understands if your actually going through it
I hope he had an MRI with contrast because syrinxs on the spinal cord cause hovac throughout the body with pain. Syringomylia is a condition that causes severe pain and many other symptoms. The symptoms are unpredictable and can pop up in childhood, adolescence, adulthood ect.
it sounds more like a food allergy reaction. my sister is gliten intolerant but the symptoms didnt kick in until she was a pre teen/ teenager, so they really should have him tested. i went through 3 months not knowing I was pregnant and people told me that it was in my head and I wasnt really pregnant, I just wanted to be...6 months later I had my daughter. Pain like that isnt in your head.
Well if it's the nerves they should have done an MRI to see if it's something they can actually see. See I had similar issues but after seeing every specialist under the book they realized it was more than a few chronic issues that my original doctor was just saying it was all in my head. So I hope it's actually this rather than something worse for him.
"its all in your head" doctors default answer when they don't know what is wrong. he looks in real pain, I wonder if the doctor saw a video of him having a attack and if his mind would change after.
You're way out of your depth. If by "all in your head" you mean fake or imagined, then there is nothing in this video that suggests that. Not even close. They are saying the brain is responsible for activating the nervous system and other mechanisms in the body which can cause pain and other symptoms. How does that equal "all in his head"?
They are not saying his pain is fake. They are saying it is real but that his brain has created it.
While psychosomatic pain is real, so many in the medical community jump to conclusions before ruling out things like Lyme disease (which is a real, chronic, debilitating illness). I'm not convinced the pain this boy has is all in his head. It's typical of most doctors to never admit they're wrong, or they don't know the answer, so they instead tell the patients it's all in their heads. I had colon cancer and Ulcerative Colitis when I was 20. The pain was excruciating, but because I was only 20, and an openly gay man, they assumed I had damaged myself from sex, and ignored me! One even said "you probably have AIDS (I got that SOB fired!), then I got the real diagnosis...I was so pissed, I'll never trust doctors!
I had severe pain in my hip to the point where I couldn't move for hours hospitals had no idea all scans and tests came back normal my GP was clueless it got so bad I booked a physio appointment and within an hour I had a full diagnosis and a treatment plan to have intense physio weekly a year later I'm still being treated monthly but so much better . Doctors and nurses are amazing but can't memorize everything the don't have all the answers but are still fucking awesome if your doctor has no idea go to a specialist they have more knowledge on that particular are and can really help
Once I had as much pain as him and I went to the hospital and the first thing the doctor asked was if it were period cramps and I got really mad.
Alan Gordon is no joke! Read or listen to his new book... The Way Out.
Reppresed emotions can make the sympathetic nervous system go crazy it can cut oxygen supply to bladder
It seems kind of unbelievable that the intense pain (real) is psychological only, I was also thinking slipping rib syndrome (not a doc); however, the director told the boy about the construction worker in intense pain who thought the nail had gone through his foot or toes and it was in-between the toes, so I guess the mind can and does create pain with no physical cause.
so is it like a really intense anxiety attack
He looked like he was having a panic attack in the first video. I knew it!
been telling people for years they need to become a full partner with their own body. I found out how to control pain years ago and anyone can learn it.
I'd be so angry if a doctor told me this. I have ehlors danlos syndrome hypermobility and people constantly think its in my head but tbh it isn't and it causes organ damage and painful muscle and bone damage. If love to see Casey in a few months to see if it truly was all in his head
OMG IM CRYING 😱
so when the other 30 doctors he visited in another video said it's all in his head, they don't believe them. now this guy says the same and then it's "oh! OK!" if it was true then his body should automatically stop being in pain like that if he truly believes that's what it is
so they are saying the pain is real but then also psychological? I very highly doubt that it is psychological, we seem to live in a world that doctors will say anything is psychological if they don't find the cause right away which is very sad & wrong. I wish all the best for him.
Something being psychological in origin doesn't mean it's not real or any less painful. You know what else is is psychological in origin? An erection. All a man has to do is think of a naked woman and boom. It would be silly to say an erection is made up or imagined just because the brain was the thing that made it happen (the brain activated the mechanism that pumps blood into the penis). Tears are psychological in origin. You think a sad thought and liquid comes out of your eye sockets. You don't need to manually drain the liquid out. If someone scares you, the hairs stand up on your arm, and your heart starts beating fast etc. Well it's the same with pain. Ever been so nervous before a job interview or a big presentation that your stomach hurts? Exactly. All it means is that the brain activates the mechanisms which cause pain. Ever had a panic attack? Panic attacks are an array of PHYSICAL symptoms caused by PSYCHOLOGICAL turmoil. That's a fact. It doesn't make any of the symptoms not real. Millions of people go to the ER each year thinking they are having a heart attack because their chest hurts so bad. And sure enough, the majority of the time it is an anxiety symptom. By the way, they posted an update, and he is doing great.
+flipgsp You DON'T need to manually drain them out *
He should see a hypnotist
Why was he crying? He is a tough guy. I was surprised he wasn’t crying from the pain. But does anyone know why he was crying? It was so sad seeing him in pain and crying. Any answer are appreciated.
Why it cannot be an AVM located more centrally along the pain pathway impinging on the structure causing pain
This pain is NOT psychological. It is real and further tests need to be done. Doctors said my abdominal pain was in my head, turns out I have MALS (median arcuate ligament syndrome) and I am getting surgery that is going to fix it. Don't give up!
Benzley Jane1617 how did you get hat diagnosis? My sis has had constant abdominal pain for 8 years and docs can't help her 😕😕
They told me that my pain in my ankle was physiological and it's called amps but turns out I had a bunch of ligaments torn in my ankle now I'm laying in bed because I had surgery the funny part was I had swelling and bruising and she insisted it was still amps and I switched doctors turns out something really was wrong so screw that doctor
I had terrible pain like that last summer sent me to the ER couldn't find anything wrong
What does he have? I couldn't understand what the doctor said, because the dramatic music was so loud. I couldn't hear and understand him.
Idk why but it’s weird how he went to doctors outside of the show but it takes the show just to get it diagnosed
sometimes i feel burning sensations in my fingers after taking a shower. Why?
I have doctors tell me it's in your head. I have knee pain and headaches a lot and they say oh your test results are normal. They said it's just you have anxiety.
You should be checked for nutrient deficiencies and food sensitivities
This absolutely can happen. But, not always. To be honest, this video strikes a nerve with me. It isn't always psychological.
Gee what a shock, this kid is a psych patient.
I wish the music wasnt so loud.
Has he been tested for lyme disease? If he has he could have had a false negative, which very common with chronic Lyme. it's very hard to diagnose, most people are misdiagnosed or told it's all in their mind. look up the symptoms
He has a phantom appendix
I mean it's just sad to see the pain. This happened to me before in my chest. I was in deep pain that it felt like baseball's were hitting me 1 by 1 non stop. Mostly on a scale of 1 to 10 I would of rate it a 8 or 9 from 1. It's just difficult to think there is no cure for your illness but yet they say it's your mind. It really let's you down just thinking your making it up but your not. I had to deal with this pain for 4 years. And it just stopped. It's just very heartbreaking ya know.
They never said the pain was in his head (fake or imagined). They said his brain activated his nervous system. Just like your brain activates the mechanism that causes liquid to come out of your eye sockets when you're sad. You wouldn't tell a person their tears all in their head just because the brain sent the order to the body (because of sadness)
The music interrupted what he said and I didn't hear what he said to case
Maybe its heart tissue thats loose inside the heart and moves causing this. My ex had it and very similar symptoms. The only fix is open heart surgery.
get dat boi som proactive
so they just told him he was making it up
I can't believe that quack doctor. that kid did not look satisfied in his diagnosis. I feel so bad for him
inspired by starr he's my cousin and he definitely was happy with the diagnosis ! Casey struggled for years with this pain and it's alot to take in! he is doing much better now!
Dr. Alan Gordon is hardly a quack. Look up info before you make those kinds of comments. It's like because you, an uneducated person in this area, don't understand it, then the doctor must be a quack. That's quite the world of thinking my friend. It won't get you far tho.
Ye I don’t think so
I would get another doctor. I was misdiagnosed for almost 10 years and had about 8 surgeries before I was diagnosed with a awful disease. Interstitial cystitis
While I hate having it. I’m relieved I know what it is. They r telling him it’s not real it’s in his head. That’s dangerous. What if it’s real and not “in his head”?
I think it might be something he is eating-he should try lower fat foods and a all natural diet with organic meats.
You can buy even organic chemical-free bacon now!
Also some cleaning chemicals can give you bad headaches, same for some plants.
All the plug in air fresheners give me headaches and at the grocery store they had some lillies for sale and I did not see them, but started to feel dizzy and sick to my stomach.
Turns out the flowers were by the coffee section, where I was not there more than 15 seconds.
Tom Holland is that you?
wtf i just commented that i thought it may be a psychological thing on the other video before coming here omg hs
My daughter had her appendix out and was still having pain in her stomach. It turned out to be H-Pylori.
I wish I could will my pain away. I've tried many many times.
I don't say this lightly @ all, but this poor kid is so clearly suffering from the effects of severe stress; he needs an Rx for Xanax & some therapy to address his anxiety.
Set up a campaign to find a cure I want to help plz plz plz plz plz plz plz plz please plz plz
I’m no doctor but when I heard the story in the first vid I instantly thought it was this
Wait how did Casey clear up his skin?
This diagnosis feels like a , "man up and take it" type of diagnosis. okay good, he is confronting his pain and trying to fight it off, but the fact his nerves are firing and sending such massive amounts of pain into his body seems a little suspect. I hope they do further testing because this kid has real true pain caused by a real thing, but right now the doctors don't know what that is. For a long time my mother had wide spread pain in her body and the doctors blew her off, it turned out she has fibro myalgia and chronic fatigue syndrome and her pain and fatigue gets worse when stressed. Perhaps this kid has an underlying auto immune issue that stress is triggering. In any case, I hope he's doing better now.