My MRKH

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  • เผยแพร่เมื่อ 23 ธ.ค. 2024

ความคิดเห็น • 23

  • @celestarimble3463
    @celestarimble3463 5 ปีที่แล้ว +4

    You're so brave! Hearing other woman’s journeys with MRHK syndrome always brings a tear to my eye as I know a lot of the pain it can cause. But also brings joy to my heart as with every journey that is shared it let other woman know that they are not alone in this. And that you can do it and get though it!!As there is a light at the end of the tunnel !! A close friend of mine found out at 18 that she had MRHK, type 2. This turned her world upside down. It’s been a long journey with its ups and downs for her so far. I'm just doing my best to support..They're planning to move down the surrogacy route abroad.. Much love ❤ and thank you for sharing your story!

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      celesta rimble best of luck to your friend as she explores that !! Thank you for watching and for your kind words!

  • @sofierask4625
    @sofierask4625 6 ปีที่แล้ว +3

    So proud of you!!! Love, one of your mrkh sisters

  • @lauraharding8449
    @lauraharding8449 5 ปีที่แล้ว +2

    Heyyy! I'm not normally someone to comment on videos but I have been watching so many of these videos in the past few months. Thank you so much for sharing your story!! I am currently 19 from Australia and about 3 months ago I found out that I have MRKH. I am also an athlete so when I was growing up I went to the doctors about not having my period yet and all of them even the sports doctors were like, "don't worry, its just because you are really active". I always knew something was wrong/different and I don't know why but I always felt that way. When I was diagnosed they explained the options of dilation and surgery/ the combination of both. At the moment I am so undecided as to which way to go as I have a very short vaginal canal but they are still saying to just go to a particular physiotherapist to do dilation because the surgical option is always really hard. Btw sorry if this is tmi ahahahaha. But hearing your story I am really interested in the options you were given. Like was the best option for you surgery? and i have also seen so many different ways of doing it as well. Sorry to ramble ahahaha but I was really inspired by your story and really intrigued.

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      Hey girl, sorry I didn’t see this sooner. But I really wasn’t given much of an option, my vaginal canal wasn’t deep enough to only do Dilation?? (I think)

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      Hey girl, sorry I didn’t see this sooner. But I really wasn’t given much of an option, my vaginal canal wasn’t deep enough to only do Dilation?? (I think)

  • @jyothisingh8603
    @jyothisingh8603 4 ปีที่แล้ว +3

    My name is jyothi i suffered a lot due to this problem. To tackle this problem u r parents have to be educated if not it's very horrible to face the society and live a life.

    • @inditeck6028
      @inditeck6028 9 หลายเดือนก่อน

      Jyoti r u looking life partner?

  • @janebrizo5728
    @janebrizo5728 5 ปีที่แล้ว +1

    I feel really really bad having this condition. Just found about it last month.

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      If you need any support I know some groups I can connect you with!

    • @janebrizo5728
      @janebrizo5728 5 ปีที่แล้ว

      @@daniellebrown5068 Thank you. I appreciate it. But I dont feel like doing some medication, cause it wont do anything.

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      Jane Brizo no not medicine just a group of girls who can talk to each other and relate. There is a Facebook group if you are interested.

    • @janebrizo5728
      @janebrizo5728 5 ปีที่แล้ว +1

      @@daniellebrown5068 woahh? Really??? It will be nice to know people that I can talk and relate with.

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      Jane Brizo what’s your Facebook name?

  • @gourchalaasma54
    @gourchalaasma54 ปีที่แล้ว

    they are a treatment for thes syndrome by reconstructive the utrus and vigina canal can you be a mom after thes operatiin

  • @yolandaarmstrong7997
    @yolandaarmstrong7997 5 ปีที่แล้ว

    You are not alone BABY.

    • @celestarimble3463
      @celestarimble3463 5 ปีที่แล้ว

      My MRKH friend and me are almost past the tears..She's moving on with her life. She's been doing the dilation process for about 5!! years on and off. She's 8cm on the largest dilator now. The doctor told she should be done in 6-18 months if she uses it twice a day for 15 minutes....obviously it's taken her a lot longer. Since she found out about MRKH, she has good and bad days. I know she would love to hear anybody's stories and connect with you all...But is currenty having a tough moment..Anyway it's so great to know that you're not alone in this!!

    • @daniellebrown5068
      @daniellebrown5068  5 ปีที่แล้ว

      Please feel free to have her reach out to me!! I know a large group of girls who are all connected on Facebook and we always post encouraging and relatable things for each other!!

  • @aswathys6047
    @aswathys6047 3 ปีที่แล้ว

    I have a mrkh im from indian

    • @inditeck6028
      @inditeck6028 9 หลายเดือนก่อน

      Ru looking life partner?