MY CELIAC DISEASE STORY: diagnosis, going gluten free, & life now | Lucia Cordaro
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- เผยแพร่เมื่อ 28 มิ.ย. 2024
- sharing my entire journey with celiac disease (ceoliac disease)! i was diagnosed with celiac disease in 2009 when i was 11 years old. & i wanted to share my story to help others who have celiac disease or were recently diagnosed. when i was 11, i didn't know anyone else that had celiac disease and i know i would have loved seeing a video like this online :) i talk about my symptoms leading up to diagnosis, discuss what it was like transitioning to a gluten free diet in middle school, my journey being gluten free in high school & college, what life is like now with celiac disease, and my struggles having a 100% gluten free diet.
PLEASE NOTE: i am not a medical professional. i am only relaying my personal experience, so please talk to your doctor if you have any health questions or concerns.
health is a vulnerable subject, so i kindly ask that you respect my journey and support everyone who opens up in the comments too ♥
timestamps:
intro 0:00
disclaimers 1:07
what is celiac disease 3:08
my diagnosis 3:35
adjusting to my new normal in middle school 6:02
high school journey 8:35
college journey 10:12
life now as an adult 14:13
cross contamination struggles 17:15
other current struggles 21:19
thank you 22:57
links:
gluten free educational books: www.amazon.com/shop/lucia.cor...
my toaster: amzn.to/3DtUakf
fav gluten free bread: amzn.to/3WvIJPF
Don't forget to subscribe for a new vid every sunday & wednesday ! ☞ th-cam.com/users/LuciaCordar...
♥Instagram: @lucia.cordaroo
♥TikTok: @lucia.cordaro
business: luciacordarobusiness@gmail.com
gluten free trader joe's haul: • gluten free TRADER JOE...
gluten free what i eat in a week: • what i eat in a week !...
other chicago vlogs: • chicago vlogs
shop my amazon storefront: www.amazon.com/shop/lucia.cor...
shop my revolve favs:
www.revolve.com/r/MyFavorite....
shop my LTK: www.shopltk.com/explore/Lucia...
*IF YOU'RE READING THIS* comment where you are in your celiac journey!
business: luciacordarobusiness@gmail.com
Music:
www.bensound.com
ftc: this video is not sponsored !
#celiacdisease #glutenfree
hi ! I’m Lucia, and I’m a 23 year old living in chicago & working a 9-5 in marketing.
I share my life navigating my early twenties, eating gluten free, and trying to become the best version of myself.
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where are you on your celiac journey?
Umm bad eating gluten and gluten free stuff.
Edit my endo doesn't want my blood sugar to be high but celiac disease stuff has a lot of carbs so either deal with me having high blood sugars or normal blood sugars with gluten stuff then.
I was officially diagnosed almost 20 years ago. I responded immediately to the strict GF diet. Symptoms disappeared immediately never to return. I have been blessed with excellent health since. That being said had I been aware of the fact that my symptoms 10-20 years before my diagnosis could have been Celiac and all I had to do was go strict GF at that point then I would have done so and if my health improved never looked back. I cannot get back those years of suffering caused by missed diagnosis. Done correctly I support self diagnosis 100%. Why continue to suffer needlessly for years waiting for an official diagnosis that may or may not occur. I may be in the minority but I think getting yourself healed as soon as possible is the most important thing. I appreciate those who insist on going with the complete diagnosing process but in the end it means the same for all of us and that is a lifelong GF diet. Best of luck to you.
Great vid, thanks for sharing!
I was opposite end of the scale & was diagnosed 18 months ago at 47,, although can identify back when i was about 7 when it started. Top marks to your parents for pursuing as hard as they did to try and make your life as best they could for you. I've since had my Daughter test positive and unfortunately, my Granddaughter as well.
After what i put up with my whole life, behavioral issues, constant mouth ulcers, Brain fog and just generally unwell, i feel 40% better than i ever have and am soo glad they will not have to through the rest of their lives with what i endured.
Another plus is being able to help people with Auto immune diseases and get them to check out the links Gluten is causing so many of these issues.
Again thanks for sharing and wish you the best!
EDIT: Funny you mentioned about the Doritos, I hated most cake growing up but loved Pavlova, just a shame i didnt pick up on Bread, pasta and rest of the traps lol
So interesting!! I got diagnosed almost 2 years ago. I’m about to graduate college and move to a new town so I’m super nervous to relearn the area with food/grocery shopping!! But your video was so helpful!
I’m so glad this was helpful!! U got this !
Just diagnosed a couple weeks ago. Thanks for sharing your story!
happy to! and best of luck!
I appreciate this video so much. I was diagnosed with Celiac in March of 2022 at 47 years old after my endocrinologist suspected celiac. I also have Hashimoto’s thyroiditis. I had about a six month stretch where I had extreme ankle pain and I was always exhausted. I would fall asleep immediately after work and still wake up tired the next day. My endocrinologist ran a reverse t3 blood test which showed that my body was not absorbing my thyroid medications. That with the ankle pain made her suspicious. She ran the celiac lab. It was positive. The GI doc did the biopsy which confirmed the celiac diagnosis. I did not have typical symptoms so the fact that my Dr. Was suspicious blows my mind. I was diagnosed so easily when so many people go years without a Dr listening to them. Having to switch my diet at 47 has been rough, but I did it. Since I was able to cut gluten out, I recently stopped eating added sugar too. Why not at this point. But the good news is that I am thriving on a gluten free diet. My ankles don’t hurt and my thyroid labs are good.
So glad you are feeling better and that you got a diagnosis!!
Its a small world! When you said you grew up in Shreveport I screamed! Im in Shreveport now.
Omggg no way haha
Interesting!! I’m more gluten intolerant but I know all about celiac and have had some friends who are. I think it’s important to share this because so many people think it’s some fad diet but for many of us (especially celiacs) it’s literally not a matter of preference but of life and death😂 ❤
Literally!! So important for people to know !
This was really interesting to here as someone who does not have Celiac’s!! Thanks for sharing.
glad it was informative! thanks for watching
I do not have celiac disease or that is what I have been told, but I am gluten intolerant for sure. Also, I have Hashimoto's Thyroid disease. I am sure I had many years of symptoms related to my gluten allergy or intolerance. I ended up diagnosing myself after I talked with someone who had celiac and realized
I was having similar issues. I stopped eating gluten immediately and
3-4 days later, I had significant positive changes. I then educated myself and changed my diet. As you know, symptoms come and go, so I just dealt with whatever came along. Next visit to an MD and blood work and referral to GI doc revealed no celiac which I was grateful for, but I have maintained gluten free lifestyle and reading labels since then. Thank you for sharing. I am sure there are many people who will appreciate your commentary. I enjoy all of your posts even as a lady old enough to be your Grandma👵! Take care and keep the videos coming!
I’m glad that’s helpful you! Thanks for your support ❤❤
Thank you so much for posting this! I have my blood test for celiac disease tomorrow morning after a year of extreme GI distress. I am incredibly nervous for the test itself but watching videos like this has helped so much in calming my nerves and making me feel better about the possibility of a positive result and future endoscopy. ❤
sending you many good thoughts!!! you got this no matter what the outcome is, i hope you figure out what's been going on and always here for any celiac questions/support!
Blood tests don't always reveal if you have celiac. My blood test was negative and my endoscopy sample was positive.
Ahh! I have celiacs :) love that you’re sharing your journey love ❤
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If you hadn’t sorted this out so young you could’ve gone on to squire more fun diseases like Ms, ankylosing spondylitis… Crohn’s lol !!! So happy for u ♥️
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Wow, do you have a LA accent? I understand growing up in LA with celiac was harder. I eat gluten free sometimes but not always.
Nope I grew out of my southern accent when I went to college! It was never that strong either since I did theatre
I was diagnosed with celiac wen i was 1. I don't know if is an intentional thing, but there are some kind of bags to prevent cross contamination. You can put the bread inside and sare the toaster, sandwich maker,... and you can use it multiple times. I use Celi&Go. I case someone wants to try it.
Oh that’s so cool!! Never heard of those. Thanks!!
Did you ever try those gluten free hot pockets from aldi before they were discontinued ? Those were my favorite dude , so good.
No I never did!!
Celiac Disease and MTHFR
I am in the process of being diagnosed. I tested positive for igg but not iga because I basically have no iga in my body. I am waiting for more testing for inflammation, a CT and colonoscopy/endoscopy in the coming weeks. My biggest fear right now is not knowing if it could be more than just celiac. I really wish my parents had cared enough to test me much earlier. Who knows what damage 30 years of eating gluten has caused.
i'm so sorry! i hope they figure it out soon! so many people are diagnosed later in life-- it'll be ok sending you love!
I was diagnosed at age 55. Almost 75 now. Health last 20 years perfect on GF diet. Don't think anything permanent occurred because of 55 years consuming gluten. Hope this helps.
i’ve been eating it for 3 years with celiac and now switching cuz it’s making my hair thin out
Every restaurant you go to has significant glten in the air. How do you deal with that?
lol i think the air is ok!
I have celiac disease
in this together!
Not the 6 day disclaimer….
Speaking of cross contamination, I can only imagine you are getting cross contaminated with a shared toaster even though you don't use the same side. Crumbs be a flying!
Thanks for sharing your journey!
hmm interesting! i feel pretty comfy with it but that's a good point