ฝัง
- เผยแพร่เมื่อ 15 ส.ค. 2020
- There are numerous people in the world with extraordinarily rare body parts. Coming up are some incredible people.
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I feel so bad for the people suffering through these things, but it makes me happy to see them grow and learn not to care about things that are hard
I'm going to stop at Victoria..its truly a heartwarming story...
Yea, it is
Yea, it is
Yea... she looks like something but can’t put my finger on it
Can plastic surgey be valid for her
Did you really have to ruin this comment wow.
I was born with congenital hydrocephalus , and my head is bigger than average. A few people teased me about it in high school, but I got the last laugh when I told a bully that I was as smarter than him because I had room for a bigger brain. :)
Winner winner chicken fuckin dinner right there.
OP - total respect to you.
Bro you look like megamind, he's cool so no problem
I appreciate the sensitivity and compassion you displayed here, some people would be snarking or make fun of these extrordinary people. I was inspired by all of them, and hope they are all finding happy and fulfilling lives.
😂😂😂
Bring back the intro with the mascot yelling Amazing. That would be amazing!
Aah I see what you did
nah
ive even forgotten about it
@10NJ BYTES I agree
No that intro sucks
I think that its really sad that a lot of these people are quite poor and have little money to pay for treatments :(
😞😞😞😞😞😟😟😟😟😟
Daniel Clasen I definitely agree with you. I wonder, though...would we have ever heard of these people or their conditions if they DID have money for medical treatments? I mean, if you have enough money, it tends to make any issue go away, so to speak. Know what I mean?
@@susanrobinson910 He/She said "a lot of them" not "all of them" why do you think all these people in the video are poor? Some of them have a balanced economy. And this video isn't about poor people who are suffering from rare disorders. It's about all the rare conditions which affected human bodies from outside and the ones who have this disease around the world in recent times.
@@susanrobinson910 actually no I have NF. Sure life would be better if i made more money. But is doesn't change that there is no cure for neurofibromatosis or disabilities that came with it.
But I suppose I am blessed to have a government job making more than 50k less than 55k.....but that will change soon for the worse because of OT Being emergency only now
Me who lives in Canada:
I have myotonic muscular dystrophy, and one of the side effects exclusive to me is that one leg is more muscular then the other. It became less obvious after loosing 112 pounds.
7:55 man oh man! He will surely become the future hulk and protect the world
😅😅
Some of these are honestly sad I couldn't even imagine being completely normal then watching yourself change over time slowly and not being able to do a single thing about it.
Ikr?! Like that very last guy.. slowly getting covered in painful bumps or tumors literally from head to toe? ! Ugh.. I’d wanna just die :/
Offing yourself sadly is the best option
I Have Mad Respect For People Who Have Some Of These Issues It Must Be Hard To Live With The Defects They Have Or Were Born With
Yeah I can agree
Pray you avoid such things. Pray hard. Not even joking, the day you think "that would never happen to me" is probably when you should worry.
😭😭😭🙏🙏🙏
You Don’t Need To Type Like This You Can Just Capitalize The First Word Of A Sentence
@@delibhj5099 Yeah Well I Dont Care And Didnt Ask
As someone with neurofibromatosis it’s nice seeing information being spread about it
Sorry for your condition
Bummer is such an understatement. I wish there was a treatment, if not a cure (fancy a doctor or pharmaceutical company in this day and age considering curing anything...)
I'm so sorry man
I know im kinda late , but be proud of yourself , be proud that you are different . :) I hope you have a great life and to meet great people in life . ❤️
I had a good friend who developed neurofibromatosis. It started when he was 19. He was a good man and we had a lot of fun together. He lived hard and fast and did not hide himself from anyone.
I can barely stand watching but feel mesmerized…
And I was thinking that my pimples are the biggest problem of my life.
Shit yeah, me too
Teenager.
It's all good, I get what you're saying... I have the NF1 form of Neurofibromatosis, and believe me when I say tht there are times I wish I could use a cream, ointment to make it go away Lol.. However, there are some pimples/acne cases tht can be so extreme and risky to one's health too..
I'll never complain about my body again
That’s called pUbErTy
This teach us not to complain so much about everything! As we see in this video, some people have it worse! Be happy with what you have!
It's ok to complain if you're unhappy. Just don't feel like you have the worst luck ever because you don't.
@@anacom4238 ya
Right! perspective is everything. Gotta be thankful and appreciate what you have (and what you don't have) and not put so much focus on all the things you don't like all the time.
Bro in 12:46 i like when slamet points the middle finger in his head
Tbh, they are all beautiful people its just that some people doesn't understand their beauty
They are still living their life not caring about looks and all so i think they deserve really better
It's Victoria's chin not her jaw that looks strange, but she's doing good by advocating for facial deformities.
Yea
Look like some guy (not racist)
It affects her jaw your chin is the bottom of your jaw....
@@kolio4917 I've heard of most of the people in this video. Victoria featured in a series called 'The Face'. Her surname was Lucas back then. She says (and I agree with her), that people like herself should not be pressured into having plastic surgery, simply to 'look right' to others.
@@ritagilmore6723 .......ummmm cool?? I dont know why you have commented this to me??
When I watch these videos I feel so bad for these people but extremely happy to see that some of these people don't let these destroy them as they still live their lives with purpose
You don't need to feel bad for us, but we get it... and thanks
Only very strong souls choose these very tough kind of lives.
@@perpetualbystander4516 someone once told me that they admired my strength to deal with my birth condition (Neurofibromatosis)... but, I never looked at it that way, now you state something similar... thank you for that, it's appreciated....
@@dklaray @Sri Patrice May your strength always be there for you, making you cope with whatever your condition throws at you. 🙏 When you pass over to the other side, you'll fully understand why you chose this life, 'cause then you'll be able to see the big picture, the entirety of your divine plan. ❤️❤️❤️
I have Neurofibromas, but the only non-cancerous tumor is on my scalp
They all are still Beautiful the way they are.
An inspiration to not focus on our looks the way we do. And not to make others feel bad for the way they look. God Bless them all.
9 view . 14 comments . 10 likes . 1 minute. Yup , TH-cam is still high .
XD
@The Queen OfQueens i think I'm not properly understanding u , but I think you're trying to say that some ppl comment many times . I checked and found only 2 cases of ppl commenting twice , which means comment count can actually be 13 but its 14 so.....
@The Queen OfQueens now I get u . I was just saying what it showed. If only we had option to add screenshot next to comment....
You were the tenth like and view, and people can write multiple comments
@The Queen OfQueens
Bruh bear ya by a mile🔥
Victoria is an inspiration. She's truly embraced who she is and is leading a happy life
I saw her on TV a few years ago.
Geggity Geggity Geggity Geggity goo
@@randomstuffidc EH?🦑🦑🦑🦑🦑🦑
“No two are exactly alike”
Twins: am I a joke to you?
Haha
😅😅
I lost my job due to the pandemic so I made a TH-cam channel. Wish me luck guys!!!🙏❤️🙏
I subscribed🙏
Stop self promoting u created it before pandemic
What a beautiful soul that first woman is. You go girl!
Yeah, she seems so sweet
@@WinnieCao249 I actually feel bad for all the people because I have a birth mark that i was born with but I'm finally rid of it
This video made me so sad I honestly cried. God bless all these people, my heart aches for them all.. i Really do wish I could help them all. I'll pray for you all! 🙏🏼🥺💕
This breaks my heart to see. I am guilty of feeling sorry for myself and getting caught up in my head and depression when the truth is I still have so much to be thankful for. I lose sight of that from time to time but it could always be worse. My heart goes out to all of them. ❤❤❤❤❤❤❤❤❤
3:55 for just ONE MOMENT, I thought she was going to play mini-piano with her eyes.
That would hurt tho
I thought the saaame
XDDDDDDDDDDDD HOW THE HELL WOULD THAT BE POSSIBLE🤣🤣🤣🤣🤣🤣🤣🤣🤣 *ITS STILL FUNNY IF SHE CAN*
imagine goodman being your teacher and you didnt do your homework
Death stare intensifies
Lol
I had a sub once that look liked her...
Oh god
@@DaxAxeOffical .
The first 1 I loved it it just shows that u can love yourself and be happy without feeling bad about yourself
Respect people no matter what they look like
@@Rodger962.cbecause we're all human and we all should be treated the way we treat ourselves.
I wish I could pop my eyes out while putting in my contacts
Money earned from this video should go to the people with these conditions They are the ones suffering after all. (Just Say'n)
Facts
Yes it should be
Then you find out that this video was demonetized. TH-cam says "Because reasons!" and that was that.
@@adamgray1753 Yeah the way YouBoob is heading lately
I didn't mean all income raised go to the people who suffer these terrible conditions, tho something would be nice as for that reason if nothing else. :)
6:18 killed me lol
Ok this is no hate but you can’t tell me this doesn’t look like a resident evil thing 11:12
I miss the old intro....... Amazing!
The new intro is... something. Not the same as the older one, but still something.
It took me a solid 30 seconds of debating to determine if I was ready for this video
God bless all these people, and this channel
It's amazing how these people have such insane conditions and still live a long time
I was a member of the Circus of Horrors for 4 seasons and worked along side Gary Turner aka Gary Stretch. He's such a LOVELY man!! Glad he got a mention on here!
Were you a performer or an employee
@@ChristopherHill-nt9ir performer
Whoever reading this comment may there Parents live more than a 100 years?💜😊 amen
One is already dead, and sometimes I wish the other was, so I have that going...
Tristan Simpson same.
Ok thxs
All these people are awesome
My Mum has NF and only had a few of the tumors removed but she lives everyday thankful that her case isn’t bad and I hate that people always look at her like she’s a monster when she’s actually one of the kindest people. I hope people learn NF isn’t a bad thing everyone is beautiful the way they are and shouldn’t have to be afraid to wear certain events things or go outside because of how they look
I'm seeing my neurologist on May 3rd. I wonder if he'll prescribe me the new meds that came of for NF. Mek inhibitor
What makes people beautiful is what the differences are
These people have the most beautiful differences of there life 😊❤
Random fact:
The northern leopard frog swallows its prey using its eyes - it uses them to help push food down its throat by retracting them into its head.
R/tihi
Another random fact insects that lived million years ago where huge and that's because the oxygen level from the past was much higher than today or we would have had a giant carnivorous dragon fly that can rip off your head
Actually, majority of frog species do this. I'm sure there are a few species in the Pipidae family that don't do it coz of their small eyes, but all of Rhacophprinae, Ranidae, Ceratophrynae, Pyxycephalinae, Hylidae I'm sure do it.
THANKSIHATEIT
So it's throat is connected to its head?
Who thinks Victoria looks amazing the way she is?
1:17 he sounded like a rapper during "bowling ball" 😂
12:54 his finger 😅
I don't care how they look they are still beautiful❤️
🥰🥰
giggity
I agree
Biggest Chad!
Virtue signalling
The appearance is something superficial the person behind the appearance is something truly spectacular
I think all of these guys should be in a cartoons come to life movie. They would all make so much money and give people good exposure to their conditions and appearances. They could become inspirations to others like them and I think it'd be well accepted.
3:53 when you realise you have homework due next day
lol
😅😅😁
I have Elhers too! It doesn’t effect my skin but I can dislocate my joints and I’m super bendy. Shame about the pain, but it a fun party trick 😂
Cool
I'll bet men love the bendy part lol.
I have severe EDS. Just be careful doing the party tricks too often as the trauma to the joints adds up over time and can equal pain in the future.😕 Its crazy how vast the severity range with EDS is. Which can make getting people and even doctors to understand how one person may suffer little to no pain &/or disability yet another may experience extreme pain &/or disability with the same condition at roughly the same age. 😕
My pain isn’t just from performing party tricks although I’ll admit enjoying freaking my friends out when I was really young. And the extra flexibility made gymnastics & dance very easy.
I’m 37 and have been disabled due to severe 24/7 pain since age 32. I can’t sit upright (like u need to for office work) for more than 30-40min, stand in one place for more than 10-20min or stay on my feet walking around for more than 20-30min without extreme pain in my knees, hips, pelvis & lower back.😕 Which sucks as I was a Paramedic for several years and loved it. When my pain began limiting me in that job I went to school to become a nurse since you don’t have to do as much lifting & working at weird angles. But I was only able to work for 3yrs before I was unable to do that job as well. I’m trying to finish my Masters in Psychology as there are jobs in that field I can do from home. At least now with technology there are more & more jobs available which can be done completely online at home. And COVID-19 has pushed many companies to make many more jobs fully online as well. Which at least offers hope to those of us unable to work traditional jobs due to disability.
I was looking for the EDSer comments 😊 it’s so cool to see recognition of our illness, even if it’s in a video of people with weird body parts. We need more awareness. I wish he’d have pronounced it properly, but you can’t have everything 🤷♀️
oh cool i have eds to!!!
I can’t breathe just by looking at 6:50
I feel so bad for those people
They deserve more🙂🙂
10:46
So thats what a Left 4 Dead 2 Smoker looks like in real life.
Ah, a fellow Left 4 Dead player
Frr
@@Stongg You are not alone.
9:43 roblox girls 2016-2018
2016-2023
2016-2024
God bless these people
This man's voice is so good it makes me soooooooooo tired... This guy should start a asmr channel
Makes me sleepy too lol my eyes r super heavy rn actually as I just now finished the vid lol
@@katybug6572 does this channel make you sleepy or are you like everyone else that washes this at a ungodly hour
Thank you for including the info about the charity Changing Faces. I have connective tissue disease but unlike ELS which is shown as loose skin here with the circus guy, my CTD is tight skin and connective tissue. It affects your ability to smile and how people perceive you. 😊
I also have EDS like Gary in the video. What is the name of your CTD? I would like to learn more about it. There isn’t really a treatment for EDS…. Is there anything they can do for you? Even if it’s just able to ease some symptoms so you can smile 💕
Ps. My step brother has Cerebral Palsy so he is too tight all over and my EDS makes me way too loose all over. I always joked if you combined our conditions we would make 2 perfect children as they would cancel each other out. Obviously that isn’t possible but if your CTD is also genetic who knows maybe in the future they could combine our DNA mutations and it actually cancel each other out and at least improve the severity of symptoms if not doing even more. Idk if that’s even remotely possible but it would be pretty freaking awesome!!
Sending lots of love and zebra hugs your way! 💜🥰🦓🥰💜
These poor people.
Puts one’s own superficial (appearance) concerns to shame.
Thanks god...I feel blessed to have a Normal body I used to cry for pimples but now no more
So basically you are one of the Characters from Family Guy if you have Cherubism.
Yay go Garry!! I love seeing all the awareness he brings to EDS! I personally have Hypermobility and Vascular Ehlers Danlos Syndrome!! #ZebraStrong #EDSwarrior 💜🦓💜
What's with all the zebras though?!
@@spacedanceretefira7237 it’s from the phrase they teach in medical school…. “When you hear hoofbeats think horses not zebras!” …… meaning to look for the common causes for the symptoms and not the rare conditions as those are highly unlikely to be your culprit. But…. You have people like me who have the rare “zebra” conditions. Due to my genetic condition Hypermobility and Vascular Ehlers Danlos Syndrome is a zebra condition so our awareness ribbon is zebra print….. if you want to know more about what a zebra condition in the medical community is about I have a video about it posted on my channel 💜🦓💜
Ps. They mention zebra conditions very frequently on the TV show “House”. 😉
I can smell about 10X the normal human smell. It comes as a blessing, and a curse… but i do also enjoy it, no real damage or side effects in the 12 years since I acquired it, but I also enjoy it, I want to travel the world, and to see places from Istanbul to Tokyo and Wellington, and I enjoy playing gmod, Minecraft, and have a fake belly button, I also have a paralyzed vocal cord, and can not see out of one eye. Love from Arizona to your country or state!
I'm glad somebody's being happy.
Neurofribomatosis is definatily not painless, while it is not always as bad as the cases listed, it can stil cause discomfort and mild pains. Most people with this condition can live fairly normal lives though
13:01 TRYPOPHOBIA ALERT!
Imagine having trypophobia with that...
3:34 god is playing Gmod right now
From this video I can say
I love my body how it is .
Ahahhaha
Same here
I used to be worry about looks after seeing this video I LOVE myself
Omg Victoria i love how she loves her looks!
i know this is mean as hell but
Left 4 Dead 2
5:26 The Boomer
6:35 The Witch
7:46 The Tank
10:45 The Smoker
The Last of us
12:12 The Clicker
That last man, oh bless him, he was suffering and in pain. Why hasn't a surgeon in the US or here in the UK offered to help him? It's terrible for these poor people. My heart really aches for them. Especially the last two men.
I think I found Joe's sister
-family guy reference
LMAO but also shame on you, lol.
HEY 🅱️ETER SAY HELLO TO MY SISTER
Haha
Rude
Anthony Bruh Simply pointing out when someone’s being rude to another person based on their appearances if you think only boomers do that I can’t imagine you when you’re 50
I didn't know things like that . I feel bad for the people that have to deal with that .Life can be hard sometimes . But that kind of burden can make life impossible . God bless them all .
i have EDS(ehlers dandlos syndrome) and scoliosis, i get many join dislocations a day and have back pain most of the time but i enjoy life and can still do most things besides anything involving heavy lifting
12:47 I have seen a person with that condition when I going to school with train. I saw people distancing from him and he sat alone, I don't know why? Then the next month I saw him again, people still avoid him.. but I dont. And I don't think he recognised me. But I felt bad for him.
If you see them again all alone maybe sit next to him and be friendly? Maybe they won't feel alone.
@@egsselent_ellis3493 I would like to sit with him, but I have a problem to talk with strangers especially someone who is an adult and I don't know how to start conversations, it's hard for me to talk and it would be awkward (Forgive me for bad grammar)
@Shainet Kanaya, I don't know who he is, but he's probably far from being alone.. Most of us with Neurofibromatosis (NF1,NF2, etc.) lead full lives tht are filled with friends, & romantic relationships just like those without it.. but, it's beautiful tht you have a heart such as you do
I want the confidence that the first women has 😭
(6:43) She doesn't have a hour glass figure she has a wine glass figure 😧😲
11:55 this man literally has eyeholes
God bless the people in this video, and other people that have these conditions 🙏🏻😕
When I watch these type of videos I feel like I am in pain!
10:40 *slight differences* . proceeds to show a man with very strange face disease...
Victoria reminds me of a mix of peter griffin and perfect face squidward
I'm quite shocked you did not include any of the very few who suffer from, Epidermodysplasia verruciformis also recognized as "Tree-man syndrome". It has fascinated me from the very moment I had discovered it.
These condition directly remind me of "Joseph Merrick" the famous "Elephant Man".
Kim goodman would probably make the best Pog faces
The cherubism woman had a happy ending.
What a POWERWOMAN seriously to decline surgery AND find love. Man she's the example of power.
Some things I saw in this video hade me shivering and closing my eyes. I never knew that such uncanny conditions existed. To me it just seemed impossible.
2:26 Now they look like werewolves in fairy tales
I know is supposed to be sad but they look cool af
Congenital generalized hypertrichosis affects 2 to 3 families. Our appearances are on our DNA. I remember that the DNA of a human being is only a few base pairs of that of a primate.
I’m sorry but this dude gives me resident evil Bioweapon vibes 11:32
Not everyone in the video is suffering, they've come to accept what they've been born with. Nothing is natural/normal about what Cathy is doing.
Wow I won’t even leave my house when I get my annual cold sore
Man, these people are pretty tough ngl
Surviving literally insane body parts is def hard to survive so ye these people are extremely tough
Some ppl who moan about their looks (I used to be one) have no right to these ppl are amazing and so humble 🙏
Someone in ur town: *Has 3rd eye*
Some people in ur city: *has so much hair and 3rd eye*
my teacher when she spots me cheating at exam 3:28
I'm ded
Me too😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂
I feel really bad for them. 😢
That is mean of those people to call the little boy with big hands the devils child. Poor kid ,I hope that he was able to get the help he needs
7:46 someone used air to pump up a borderlands 3 tinks hands up
L9p