4 Cardinal Signs of Lewy Body Dementia
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- Alzheimer's disease & dementia expert, Dr. William A. Van Horn, explains what is Lewy Body Dementia, the 4 cardinal features of LBD, and what you can do to maximize quality of life for your family and your loved one suffering with LBD .
Don't give up on your family member with Lewy Body Dementia because some doctor says there is nothing else we can do. There are many things you can do to dramatically improve the quality of life for your loved one who has LBD.
With proper medication, your loved one with LBD should sleep all night, wake up fresh in the morning, experience pleasure, and their behavior is under control enough that they can have a wonderful relationship with you.
To learn more about how you and your loved ones can win the war with Lewy Body Dementia, please go to:
www.Alzheimers...
If you would like to connect with other people going through a similar situation, please join our Facebook group at:
/ alzheimersmd
Please understand that there is hope at every stage of the war. If you have questions that you need help with, please reach out to us at:
alzhelp@alzheimersmd.org
My 78-y-o husband has LBD. This was the best description of how're is doing. He is in a great memory care, sleeps all nights, eats very well, is socializing with other residents. I visit him every afternoon. He is the love of my life. I have become an actress as I go along with his hallucinations.
Hope you're doing well and hopefully he is too! My dad just got diagnosed yesterday. I admire your strength
Bless you.
My husband has had Lewy Body going on 8 years now it is very hard on me to take care of him on 74 and have hip problems and other joint problems trying to keep him at home as long as I can it is very hard on everybody with Lewy Body especially the ones that has Lewy Body is very hard because they don't understand my husband talks to people all the time his Imaginary Friends and he smiles and laughs with him very sad but I'm happy that he talks to someone somebody even though they're not there
So sweet wish he and u a long happy journey together
They said that Robin Williams had this and there was nothing that could be done, he was actually mis diagnosed with Parkinson's disease and Robin Williams said that he thought he had dementia and or alzheimers disease and that's why he died. After the autopsy was released they said it was so bad that he should not have been doing as good as he was and its not reversible and that they couldn't have done much for him, its sad cause he was the funniest man in my opinion if I was down he always made me laugh and still does, he was a great drama actor too he could make u laugh and cry at same time and I was honored that I had the opportunity to be able to watch his great adventures on screen and in comedy improv. RIP Robin Williams funniest man ever
My mom passed from Lewey Body. Its a hard thing to watch. The hallucinations were so real to her. She would tell me one of my sisters came and cleaned her house. They hadnt. But she sounded believable. I believed her til I was talking to my sister and mentioned it. In the beginning, its easy to miss.
Sad to say he did not pass away from LBD.
It’s sad whoever has it. Humor or fame doesn’t make it any more or less sad.
@@Gramsofboys Robin Williams apparently did die from the symptoms of LB dementia. He had horrific hallucinations that caused him to end his life.
No drugs or alcohol were found in his toxicology reports.
My mom died from this they kept trying for Parkinson meds always made her worse is it a genetic thing??
My mother passed from LBD with Parkinson's in January 2018. She started exhibiting signs in the Fall of 2015. She would call and tell me that she cooked dinner for my grandma and father, both passed years prior. She wouldn't sleep in her bed because there was a man there and she wouldn't eat because there was a man laying behind the pillows on her couch and she didn't want to cook with him there. I tried staying with her so she could live at home but it was becoming too difficult to handle her so I had her put in a memory care unit of a local rehab center in January 2016. Saddest thing to watch her mind and body deteriorate like that
My mom has this. Completely out of her mind. Hope she passes soon. She's hateful.
I’m so sorry you have had to go through this.
Hope ur healing ❤️🩹 and she was lucky to have u around till the end of
My mom is in a nursing home with Lewy Body. I’m trying to get her into another facility because all they were doing is sedating her to not have to deal with her. I’ve since contacted an Ombudsman to investigate and contacted an attorney. This is truly the worst experience I’ve ever had in life.
I'm sorry you're having such a difficult time and hope the people you've contacted are helpful to you. Best wishes.
@@traceya9615 thank you and yes things have gotten much better!
The intermittent lucid days confuse people. My 60yo husband is In Hospital right now. Was being treated for depressive bi-polar,but two psychiatrists say his reaction to anti-psychotic meds (which elevated CK blood levels) along with essential tremor, gait issues, delirium, paranoia, lower cognitive functioning all are indicating LBD. He has declined last 5 years. I hope a firm dx can be made so I can know what resources are available to aid him. The lucid days led our kids to believe I was making up how bad Dad really was getting.
Very informative but still simple for the lay person.
What a hopeful optimistic kind attitude you have given to patients and their loved ones.
Absolutely the best video I’ve watched on this subject and many others for that matter
My mom just passed away 2 days ago from what I believe is Lewy Body Dementia for the past 5 years (had all the markers - docs kept saying it was delirium from a UTI and polymyalgia but the medication didn't do anything after a month). She also had colon cancer and although she did have a successful surgery 6 weeks ago, her health declined even more rapidly immediately following. Her doc's refused to test her for anything else. She was the most incredible woman and matriarch of our huge family. 💔
I’m sorry.
My father had it. He always haucinated pleasant things.
My dad was on Tramadol for 5 years and we suspect this caused his LBD. His hallucinations and delusions are awful. He sees people (alive and dead) all day, everyday. He got violent with my mom and he is now in a nursing home. He sleeps about 14 hours a day and just wants to come home.
These jabs for elderly such for pneumonia, shingles, the current one, etc are also problems that need investigation. Say no.
@@rosyc9250There's recent research that shows adult vaccines are neuroprotective. I'll post a link
When I turned 40 I noticed all these symptoms come on over the space of a year. Still waiting to hear from a neurologist.
Is someone helping you with your appts?
This is what my mum has recently been diagnosed with. I'm her only support and nok.
Hi..I have nit been able to do this myself, but DO look after yourself, please...it is not going to get better, but harder...be kind to yourself and forgive yourelf on the difficult days. ❤
Good talk
My husband with Parkinson's was diagnosed with LBD this last January. He's bed ridden. He cannot walk anymore. I have him at home and will care for him as best as I can. Is true what you say. Everyday is different or even the day can be different. Some days he's very calm. Some days he sleeps and some days he's very agitated. It depends on his hallucinations. The good thing is that (with meds) he sleeps all night and eats well. I just wish I can help him more when his hallucinations make him anxious and agitated.
I take L-tyrosine and benfatomine to improve dopamine production and choline to aid acetylcholine .
As we age and our digestion declines we don't absorb nutrients as well as we used to and can become deficient.
"there are many things you can do" where? how? I can't even get someone to give me scans. I'm too young...
My loved one has 3 of the 4 symptoms you describe. She doesn't have hallucinations.
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
Thank you 🙏🏻❤️. I have LBD and Amnesia spells (yes true legit amnesia). No Doctor, Specialist, online groups, have heard of this 💔. Have you seen or heard of anything such as this,?
My mother always did say, I had a head full of Cotton.
My Dad always said, I have a head of concrete. I am so hardheaded. LOL!
How do you avoid getting it!? I don’t have symptoms but both my parents just passed away from it. They were in their 80s. Is Lewey body hereditary??🥺
80s is good innings
My mother has so much meds already...whats one more
What are the medications?
Fascinanting?
Oh I wish you could help my family member. We seem to be surrounded by doctors who just shrug their shoulders and say “It’s too hard.” Their solution is to hit our beloved family member with heavy sedatives when he becomes aggressive or violent. It is terrible to see him declining whilst in nursing “care” which is not care at all. Nurses are so afraid of him that they just leave him to try to bathe and toilet himself - which is impossible for him now. Please, please find a way to communicate your solutions with medical and nursing staff. From Australia.
Do you know if this medication is available in the UK, dear relative is bedbound for over a year with LBD,in a care home, he has days of sleeping and cannot be woken ,is this usual with LBD ,thank you
If he's in a nursing home they will have him doped up so he doesn't keep them awake at night. Sad but true I'm afraid. Thought about putting our mum in one till we found out that is what they do. Keep them drugged up so they don't have to deal with them. I'm sorry if this sounds blunt and it is but it's how aged care and doctors work in these situations. They just don't have the staff for 24/7 care. They should....but they don't.
Maybe at the very beginning, if you are lucky enough to have a doctor who recognizes it but after a while I can't agree with the doctor.
Amen to that. I was very disappointed that our GP's didn't pick up on what I learned later what were very obvious symptoms of LBD.
Well idk. Sounds a bit overly optimistic of an overview on LBD in my opinion based on our experience
If I have 3 of the 4 what does that mean?
My father has LBD, we have had to remove all the knives in the house, he keeps threatning to kill my mother. He wants to burn the house down, he put the electric kettle on the electric cooker and nearly did burn the house down. He keeps trying to escape out the house saying we are keeping him prisoner. This all happens at night time usually. Can anyone tell me what medication helps ?
You really should consider placing your father in a care facility. Good ones do exist. At this point he is a danger to himself, your mother and your family.
How far is 23 out of 30 in the progressive line.
Zero advice here very wasteful of time and hope
I hope Joe Biden is watching this the man needs help
Nonsense. He has done a great deal for our country--economy, employment, Ukraine. We couldn't have asked for better.
R the drugs affordable to the average middle class or poverty level? Probably not!
3:12 "Can we stop the disease?"
"- No, this isn't the goal."
But this exactly should be the goal in the future.
Where did you go to medical school?
I worked in a care home with dementia sufferers... God bless the the people who care for them in their own homes.
@@justdoitforgood7170 the worst of alll...????
@@justdoitforgood7170 Thanks for clarification. Your home care is big service, I wish you well.
Yeah...it's a lot of work....
I am dying each day so that my dementia relative stay alive each day.
We care for my< Mum since five years. We go through all ups and downs. And like the doctor on the video says LBD is very inpredictable from day to day. But after five years it is doing down the hill now. And it is very sad and heartbreaking. I do hope, that research will accelerate to alleviate this suffering.
Last summer my dear cousin and I were camping. I knew something was really wrong. She had very bad tremors and gait problems. A big Dr. Google, self-diagnoser, she chalked it up to dehydration, not eating enough protein etc. She told me that her deceased mother had visited her and vehemently insisted that she was not asleep and dreaming during - that her mother was really there in her room. She also exhibited numerous irrational paranoid episodes. She was convinced a woman at a rest stop was planning to murder her; she was fearful of anyone who walked near our campsite. Six months later she was diagnosed with Parkinson’s. She is taking medication and learning to cope with that. I now realize she also has Lewey Body, but she’s not talking about it.
I have been diagnosed with the opening stages of both Lewy body and Parkinsons. Thank you for this video.
Wishing you all the best. Get the best doctors you can. I have read that LBD is also combined (or can) with an irritable colon. The proteins are not broken down and migrate to the brain. Please have that checked. My mom has LBD. I wish I had known a lot earlier. Love from Germany!
Said a prayer for you and will continue. I hope you are doing okay @@redbarberry
My dad was diagnosed with Lewy Body Dementia in 2017. We did the best we could helping to make his life as normal as possible.
ABSOLUTE BEST explanation on TH-cam !!! Thank you thank you
I was diagnosed at 48 through a syn 1 biopsy and some kind of brain scan. I am 50. This country sucks for helping us.
Mydad passed away at:abge87.he use to tell me he could see me standing over his s bed....iwas in college and not in his home at all.he have t nasty said things.....beer helped as stupid as that seemed..he use to wake up just fone but by evening it got differenicult.my family said he was gone but I didn't see that daily
..he kept falling.passed away super bowl Sunday at home in his sleep.im sorry I just hadto share.he went peacefully I'm grateful
Thank you for your understanding as I feel my husband got another hole in his boat last evening. Still sleeping this Glorious beautiful morning. Praying he wakes up in a better mood this day. Everyday is a new day for us...
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
Everyday...you don't know what mood...or what personality you going to have to deal with.
Caring for my mother is the toughest thing I have ever done...not physically, but emotionally. Best of luck and lots of patience for all caregivers. I am mother's sole carer and have no support system. I would love to just go out and have a peaceful meal...on my own. ALL carers: After doing this for a loved one everything else will be easy. Blessings to you all ❤
Helpful information. Please make a video mentioning the various medications that can be used to help someone with LBD. This is almost impossible to find online and most doctors don't seem to know either.
I agree my husband died of it and was not properly diagnosed til the end. So sad
Yes! Regular medical staff have so little knowledge or understanding of how to support patients with LBD.
I work in memory care and everyone with this and parkinson's go very fast..
It's beyond sad
I do as well yet have had the opposite experience of seeing those w/this form of dementia thrive more & have better quality of lives. I seem to work best with memory care residents that have this form of dementia for some reason & be able to reach them the best.
You raced thru the 4 steps so quickly. Why do that if the purpose of your videos is to educate us? Luckily i can watch this over and over. And you gave the clearest and most precise explanations and examples. I have been diagnosed with LBD and believe that the meds prescribed by my team of doctors has brought me back to near normal. Thanks!
He did an excellent presentation imo. Thank you Doctor 👍🏼🧠
And exactly why didn’t he mention not even 1 type of wonderful medication?
He does in another video - th-cam.com/video/Gy6EDFWoo8Q/w-d-xo.html
My wife was diagnosed with what they said was Alzheimer's in late 2018 at the age of 54. After caring for her 24/7 for the last 5 1/2 years, she had deteriorated to the point of not sleeping (sundowning) for up to 46 hours at a time ( hallucinating, poor gate and balance, agitation, in and out of reality). She was behaviorally getting more agitated and resistant to me helping her. I had her admitted to a psychiatric hospital two weeks ago. They said she was misdiagnosed and that she has Lewy Body dementia, not Alzheimer's . The medication they gave my wife before the hospital to help with agitation and aggression was causing her great harm. She went in the hospital walking and somewhat talking. Within 4 days, she couldn't walk, barely talk and when she did, it was incoherent. I was told she has less than 6 months to live and that she needed a memory care facility to meet her needs. She has declined so fast that it is difficult to watch. My poor honey. Not to mention how my heart breaks for our 4 children. I find myself praying for God to take her home quickly to be with Him in paradise. What a heart breaking disease. I'm overwhelmed with grief. 😓
My goodness Papa. This is heartbreaking. I cannot imagine your pain. I will be praying for a peaceful transition and that GOD walks you and your family by the hand every single step of the way. I just went to the living room and gave my wife the biggest hug. May the LORD fill you with peace, understanding, acceptance and patience abundantly. GOD bless you brother.
@@peter-peter5929 Thank you for your kind and loving response. How I wish I wouldn't have taken one moment for granted of being with her. She is such a blessing to me. God bless you too Peter. 🙏
I am SO sorry, friend! My mother had a fall and due to a speech deficit which she did not have prior to the fall was diagnosed with dementia. I was told that she also has ovarian cancer. She, btw, is 83 years old. Was told they found a mass and antigen tests proved positive for O.C. "Get her into hospice or take her home. Med.Aid does not pay for frail care.." During the 3 weeks in hospital she became a shell...I was told she had "2 to 3 weeks" to live. Brought her home and all of a sudden she started eating without prompting. Yes, there is memory loss and she has not 4:04 been ambulatory since the fall. I will not dispute a diagnosis of dementia, but I do not believe she has cancer. Ovarian cancer is pretty painful. I would also like to know what kind of dementia. No neurological tests were done. I believe she probably had a stroke, which led to the fall which led to her being admitted into hospital and affected her mobility. It is now almost 5 months later and though there is definitive cognitive deficit, she is much improved.
@@magdafrazer7092 my heart goes out to you. Dementia is a very horrible disease that slowly takes our loved ones away. I heard one person describe it as "the long goodbye", which seems pretty fitting. I hope you can find God's peace during your trial and that he feels you with an unspeakable joy. The comfort I get from my trial is knowing that my wife Loves Jesus. I believe that she is saved. God bless you
I am sorry that you and your wife are dealing with this. I am she isn't suffering. Ive gone through it with my mother so yyes it is difficult for children but very glad you have 4 children and you can all be there for eachother. Sending any comfort and peace.
My aunt was diagnosed with Lewy body Dementia and she completely cannot walk, talk, eat, literally cannot do anything. It was a rapid decline within just one month of the diagnosis! She went from completely normal to a vegetable. It’s incredibly terrible to have to witness everyday, especially knowing there is nothing you can do to help.
Wow. 😥
Lewy Body Dementia is actually a parkinsonism disease and that means a fast moving disease. Lewy Body Dementia causes Lewy Bodies in the brain not Amyloid plaque. Amyloid plaque builds up in Alzheimer's disease. The man in a white coat is not a doctor but a fraud. My husband's brain autopsy was done by the Mayo Clinic in South Florida, through CurePSP foundation on neurodegenerative brain diseases. Lewy Body Dementia is a completely separate illness from Alzheimer's disease and a totally different kind of dementia.
My wife has started to show signs. She didn’t know she was married to me. She has no appetite, losing balance but not falling, lots of body pain that she never had before; is this part of it too? Gets worse at night and talks about people in the bedroom or in the yard that are not there.
@@225rip
My husband is at the same point. The all-over body pain is bad for him so tomorrow they are trying Gabapentin.
All very well but how the hell do I get the patient to the doctor in the first place when they think there is nothing wrong with them, that is my current stumbling block!
No one talking about Biden??
They're in denial or just wilfully ignorant. Still a tough way to go.
Thanks for offering me some hope of a semi-normal life!
I had some great times with him during his illness.
Thanks so much for your compassion and caring self! Wish there were more doctors like yourself!😇💕👍🏼 Lots of Love Bobbi 😇🙏🏼
Thank you, Dr. Van Horn. My father is 84 and has been diagnosed with this. He lives far away from me and on my last visit he was having hallucinations. The following day he seemed much better; however, I know his condition will worsen over time.
When a doctor says ‘there’s nothing else we can do’ that’s my cue to get another opinion and even a third. My sister was misdiagnosed and the medication almost killed her. Excellent talk- thank you.
My mom almost died with the wrong meds too. It hurt so bad. Doctors these days suck.
Sadly my mom takes rivastigmine, olanzipine and seroquel, carbidopa levodopa and trazodone for sleep. We removed the olanzipine but she regressed terribly (sleepless nights, horrid hallucinations). I don’t know what else we can do. She is a far cry from being in a position to be taken out for dinner. She can hardly stand up straight or get off the couch and was only diagnosed in July 2020.
All doctors do is prescribe medications. Try getting her off them and see how it goes. I took my mother off Ativan and guess what. No more night hallucinations. Look at the side effects of those pills. Don't give up and don't let the doctor just write out a script. She's your mother. Not his. No pill is going to cure Dementia. Try some other things like Melatonin at night. Good luck. Oh and I used to be on Seroquel. Best thing I did was throw then down the toilet.
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
@@barearmz2794 I gave mom several capsules of Ashawaghanda that you can get at a health food store, melatonin and Institol which is a b vitamin before bed. It worked! In a bit of sugar free ice cream... finally she slept!
@@barearmz2794
You were lucky. My mother was so out of control that at times I had to lock myself in a room to be safe. The med they prescribed (not Ativan, but I can’t remember what) was the only way I could be safe.
So sad. With my Mum it's the same. It's a very cruel disease. It's like aging in a time lapse and suddenly becoming completely helpless mentally and physically. Blessings to your family.
God bless you Dr for helping these families.
This video has me understand this disease so much better. Thank you.
Helped me understand.
I think my coworker has this currently. If you don’t understand , it appears as if the person is lazy. He steals my work/clients (or tries to), gets my orders wrong, and then needs help with his own. I thought he was being lazy trying to do as little actual work as possible but from watching this, it appears he’s desperately trying to manage the disease and his dignity; understandable if he feels anxiety over explaining what he’s suffering from. He gets anxiety in the middle of helping a customer and I have to help him, and at other times as well. He walks with shuffled feet and forward-ish with his body also.
Some people are strange. I mean, who would put a thumbs down on any hope for someone and their family caregivers to have some sort of normalcy.
I put a thumbs down on the woman who said the Dr. Was making up things.
We all hope for hope. We need it to keep going. His dementia was a terrible time but there are moments that are precious.
Thank you great information. I pray that more research can go into these horrible diseases and soon they can have a cure. it’s heartbreaking watching a loved one slowing die it’s to painful God Bless
Yes,thank u for youre optimissam ,it means a lot for me right now.My mom was diagnosed a month ago,she is ok,so far.
You’re an awesome positive and kind doctor! Thank u
Says a lot for your health system if your doctors aren't doing everything they can. They're all great at writing out prescriptions though. And most of those prescriptions have side effects like delusions and hallucinations to name a few. Don't make your loved ones worse. Check the side effects of these "medications".
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
Thank you for the info! Hard to find anything on Lewy body anywhere. Its like no one wants to talk about it.
What is the life expectancy for someone with this disease?
5-7 years, on average, after diagnosis.
That is correct. My mother was diagnosed w/Alzheimers, by a neurologist, back in 2018. But. Because of my own research, and the fact that extreme hallucinations, were not a common symptom of Alzheimers, her gait issues, extreme change in personality, ie, anger, profanity, hitting, spitting, kicking, moments of clarity, I knew it was more likely LBD that she suffered from. She passed almost 2 months ago, exactly 5 years after.
My mother had Lewey Body dementia, and she passed away in what appeared to be terror. I don't know what I woud do if I got it; I surely could not live in that condition. Thank you for the informative video.
I think my dad has this. A year ago he was showing cognitive decline. He declined rapidly in the past four months and is now showing signs of parkinsons. I read that if the parkinsons signs show up a year after the cognitive decline it is usually Lewy Bodies dementia.
How common is it to be misdiagnosed with Parkinson’s disease? I think doctors need to be more education between the differences. I’ve had a handful of patients who were diagnosed Parkinsons and ended up at the end stages of LBD. Is it possible to have both, or is it rare?
Thank you. What a wonderful MD you seem to be!
Dr Van Horn , I"m sure you have seen the TH-cam Channel A charming Abode if not go watch It's amazing and sad what this wife deals with but yet he has a sense of humor about his LBD he admits he is mean sometimes but does'nt know why
Interesting that you mention medication‘s. My mother had this and the ONLY time she did have hallucinations was when she was on Ativan. I had to fight like the devil to keep her off that stuff.
Thank you! for giving hope...God bless you!
This describes my husband completely. Thank you for this video. He was diagnosed with Lewy Body Dementia three years ago. In the last couple of weeks he has really gone downhill, sleeps most of the time. I'm looking for a doctor where we moved to do I can replace his previous doctor. Much respect.
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
Look up Geoff Karchner. There could be a link on this page somewhere. I know it's about 10 years old but he doesn't seem to be one of these quacks that like to write out prescriptions all day. Sometimes less is more. I know this to be true because I took my mother off Ativan and the night visitors stopped coming. If your husband is sleeping a lot, check his meds. Like I said, sometimes less is more. Good luck chelle.
The man is a fraud. My husband died of Lewy Body Dementia. Find a movement disorder neurologist who is honest with you----and that takes good care of your husband by making time to advise and help your care of him. Don't fall for this man who puts a white coat on and lies to you.
Things must have progressed quite a bit since 2015 when my daddy suffered so very much and died from this horrific disease.
So sorry to hear that Sandra
My mom had Alzheimer’s and she got it very young in her 60s it was not pretty had to be with her till the day she died the day she took her last breath
I have a dear uncle who passed a few years ago and I've always suspected he had LBD. He developed Parkinson's and then dementia and went downhill fast in his early 70s. What I'd like to know is: does the Parkinson's show up before the dementia or the reverse? Do they always occur together?
As Kenneth pointed out:
• Clinically, dementia with Lewy bodies is distinguished from Parkinson disease dementia through the “1-year rule” according to the latest consensus criteria (McKeith et al 2017), where dementia with Lewy bodies has onset of dementia within, or prior to, 1 year from the onset of Parkinson disease, and Parkinson disease dementia is characterized by dementia occurring greater than 1 year after a diagnosis of established Parkinson disease.
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
@@alzheimersmd5092 My uncle developed PD and then literally a year afterward developed dementia. He got worse and worse within the next year and passed. His sister (my aunt) also has PD but is seemingly fine otherwise, no dementia. My aunt has had PD for several years now and it seems to be mild at this point so we're all hopeful she will live comfortably for a long time yet. She's 77. Thank you for replying, Doc...I think you answered my question well.
My mother had Lewy Body dementia and he’s described the symptoms to a tee. She had all of these things and it’s horrible.
It sure is!
Dr. William A. Van Horn differentiates LBD as in between Alzheimer & Parkinson's, whereas another doctor on youtube classifies these differently. This doctor says that Alzheimer forms one group, while Parkinson's + LBD form another. And then he goes on to differentiate the later two. Which one of these classifications is correct ?
I need someone this hopeful and positive.
I wish youtube would have sent your video my way a year ago while doing intensive searches on LBD. It's so sad my Mom's quality of life wasn't what could have been. We NEVER gave up, but had a neurologist that should have referred. She died a week before we could get a second opinion, mainly due to covid delays in medical buildings. We did the best we could but just like my Dad, so much was revealed after the fact despite my incessant research. Dr's who don't know should always refer. We wasted a lot of time on a ding bat... Small community didn't help. Im sure something could have been done. Well, we loved her and she felt it and acknowledged it, what else in our drastic measures could we have taken? Now I will refer others to your channel.
My situation was very similar to yours-- however in my case it was too late for my husband and for very same reasons as you mention
Could you tell us some of the medication that would be useful. Thank you for the information. Xx
Joe Biden
Dr can you share with us the types/names of medications we could pass on to our doctors, so they can do their research and hopefully provide something that will help. My friend has been advised that his wife has no medication to assist her But does not feel he is getting knowledgeable information. Thank you
Whatever he suggests look up the side effects. Doctors only get told what the pharmaceutical companies tell them. Test each one short term. My mother was on Ativan till I looked up the side effects (delusions and hallucinations) among others. I took her off them. No more night terrors. Good luck.
This may patients with dementia th-cam.com/video/akuAUvYpZ6U/w-d-xo.html
Holes in the Boat more like a floating rubber duck vs a flipping Shark Attack .If they work where are they ..Why does nobody tell anyone I am only 46 ?I feel 106 ..Shit illness only good people appear to get .
thank you for this explanation it helps realize what my mother had
I learned something tonight. Thank you.
Well shit. I just did not expect to be so young when it hit.
My husband at 66 years old (married for 38 years) took his own life June 4th. His father had it and he took care of him for 4 years. I knew he was depressed but he wouldn’t tell the doctors. I am devastated at how he hid it from me and I worked in healthcare for 25 years
My heart goes out to you. Blessings.
Is sleep disturbance also a hallmark of Lewy body?
My husband had lewy body and became like a zombie. Couldn't do anything.
I've got everything but the hallucinations and I'm only 33. Wth
What medications are currently being used? My husband has been diagnosed and anti psychotic medications made the situation worse. Can you please let me know? Thanks
So sorry, Angie! We understand how difficult that can be. Dr. Van Horn talks about the medications he uses in this video: th-cam.com/video/Gy6EDFWoo8Q/w-d-xo.html
What you do with a person that would not take the medicine
I'd rather die
Talk a bit slower and enunciate more clearly. Thanks
Ty for sharing this information so well
Excellent video. Very poignant and informative. Also provides encouraging advice for those suffering from DLB and for caregivers. Medication does help. There are also alternative treatments that can ease symptoms.
While recognizing reality, it is important to remain optimistic. There is always hope. You can still have a happy and full life with DLB. The only way you fail at this is by giving up.
What are the medications for stage 2 in LBD stage 2 for an 86 year old sedentary male.
Please slow down
My mother suffered with memory loss, falls, shaking, depression anxiety apathy and hallucinations. We got the GP to take her off Pregabalin, now no more shaking , no recent falls. Still hallucinating and memory of a goldfish but much happier. Check the medication peeps xxx