MYASTHENIA GRAVIS | My Story & Living with an Autoimmune condition - Diagnosed in 2006.
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- เผยแพร่เมื่อ 4 ส.ค. 2024
- Hi Lovelies,
This is my story of my journey with an auto immune condition called Myasthenia Gravis.
Disclaimer: If you have an autoimmune condition, please consult with an MD, Naturopath or your Neurologist before taking on any of advice. Everyone's condition is different and can affect each of us in different ways, this is what has worked for me and being a qualified health coach, I am able to help promote a healthier way of living.
Love & light to you all,
Mia xo
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Hello my loves, hoping this video makes you re-think some of the choices you are making in your life when it comes to your health & to always want the very best for yourself. Remember no matter how hard it seems right now through weakness comes strength. x
This is very heartfelt. Thank you from across the seas.
Sheryl Walton, MG pt.
Pleasant good evening i am suffering from myestiniagravis for 1yr and 6months and have a weakness in my right hand what could about that.
I was 53 a super active person i run daily 3.5 kls until i was diagnosed with MG. It took them 6 months to find out...I had to stop running suicide never came into my mind. Intead i studied my illness have regular check up follow my adult neurologist and i replaced my running with yoga. I am happier now and feels great. Never allow ur illness put u down. Always remember GOD IS BIGGER THAN UR ILLNESS ❤
But God gave you the illness.
Hi Mia,
I found your honest , heartfelt share in your life journey with MG inspiring and very comforting.
I’m a 78 year old, just diagnosed with ocular MG last week. Im currently sorting out some strong emotions of self pity, anger and a deep sense of loss. I fully realise my need for a significant lifestyle change,at mind set and body health levels.Being in the health industry myself for more than 50 years, makes me more acutely aware of the changes and challenges I will have to face.
Seeing your video post makes me feel, I’m not so alone in my forthcoming challenges.
Thanks again ❤. E.
I was diagnosed with OMG in May 2023, 17 years after i kept having double vision. I am 35 now. Never knew about this disease or if my diplopia was even a symptom of MG. Had 5 cycles of Plasmapheresis done after which i had Thymectomy done. Been 2.5 months now since the surgery. Been asked to continue with Pyridostigmine as my symptoms like diplopia and muscle weakness are still there. Hoping and praying that it will all get better with time 😊.
Thanks so much for the video. I’ll need to focus more on my diet and overall wellbeing besides the medication. Stay healthy 😇
Thank you for sharing your story. I was diagnosed with mg a couple of months ago and am struggling with side effects on the standard medications (mestinon and steroids). I am headed to a naturopathic functional doctor next for advice on minimizing/managing the underlying autoimmune issue. I am in the phase where I feel awful and tired all the time, and the medicines make me sick, so it’s hard to keep a positive outlook. I am more hopeful now, knowing that you made it through this. Your story is so inspiring. Thank you so much for sharing.
Thank you for your beautiful message & I am so glad you are more hopeful. I hope by now your symptoms are improving & you have more energy. My naturopath gave me my life back & I believe anything is possible is you just have a little faith and patience with yourself. Sending you lots of love & light your way 🙏🏻
Talk to your neurologist and make plans for a thymectomy as soon as possible. Because the risks I declined Plasmapheresis. Diagnosed MG March 2020. In pandemic time surgery cancelled two times, finally was done april 2021. Today Octuber 2022 Still in remission, medications free. Diet high in proteins. Eat all in modetation. Back to normal life.🙏🏼
Well done. Would add that really strong emotions of either sadness or joy can trigger relapse , helps to clear the day after to allow rest rather than literally fall over. Hope everyone is through covid ok as that is hard to clear with MG.
You have accomplished so much. You are an inspiration to all of us MGs. Thank you for sharing your journey!
Thank you beautiful, I hope you are doing well & wishing you lots of blessings ❤
I just break down having this MG!! I’m so depressed !!
Chin up girl. Through weakness we find strength. Sending love & light your way 🙏🏻
I’ve been recently diagnosed and I’m having a hard time wrapping my head around it 😢
No worries pl contact me
God i love you. Glad you overcame adversity 🙏🏽🙏🏽🙏🏽
This is a very inspiring and informative video. I have mg too since 2017.
Hope you are doing well Pia. Sending you lots of positive vibes your way 🌺
Great video. Thank you
Thank you for sharing! I'm not yet diagnosed. Byt my doctor suspects i have MG. It's helpful hearing other people's story!
I hope all goes well with the Dr hun.
Please call9766337985, i also MG before 10 days
Tha k you so much you give me hope. I am going to make a apt for a natruopaths Dr's asap
I too have mg generalize for 8 month already it is very though for me
I hope all goes well hun and best of luck with everything.
Hello. I was just diagnosed with Myasthenia Gravis, MS and Crohn's disease. I found out I have MG last week. I had ulcerative colitis since 1999 and it recently turned into Crohn's. My body is a mess. I just started Mestinon and Prednisone and it's harsh. It makes me sick. I need to follow in your footsteps and guidance. Thank you so much
Thk for info I too have MG generalize for 8 month
It can be very tough, but keep your mind strong through everything and we are all here to support each other =)
Darrell Pickett I hope you are doing a lot better now Darrell. Sending love & light your way 🙏🏻
You should consider surgery to remove your thymus gland. I struggled for 5 years with it and doctor did not want me to have the surgery so i changed doctors he immediately schedule the surgery. I came home on the second day and rested at home for a week. Over the next few months most of my symptoms are gone. Before the surgery i had went into a crises 5 times now i feel a lot better and stronger
Hi Wilson, I had this surgery done & happy to say I can eat food now like a normal person & talk without slurring my speech. It was well worth it. Wishing you the very best on your journey 🙏🏻
Does the surgery really work?
It worked for me. Not sure about other people. I was able to talk and eat again so i was happy with that result.
Hello dear 💓glad to find and read your comment
I had my Thymectomy 10 days ago .. feeling that is working .. feeling better than before surgery 🙏🙏🙏🙏
@@miarivel
Hello Mia loved your videos 💕thank you so much !
You are an inspiration
I had my Thymectomy 10 days ago
A few of symptoms are gone ! I’m hoping and working for full remission
Mostly ocular Mg and some chewing issues
My Thymectomy was robotic 4 small cuts on the right side
Fasting and having a clean diet is very important!💓✨💕💫✨🙏sending you love and light
Hi I have MG from long time ago I’d happy from your story I would like to be touch with you for more experience in our daily life thank you
I’ve been diagnosed with myasthenia Gravis my eyes swallowing but my muscles in my legs are so painful also I’ve got fibromyalgia and disease vertebrae in my back also Asthma Arthritis in both hips so exercise is limited but they have only put me in steroids but when you was diagnosed how long did it take for your operation to take your thymus gland out was it swollen plz get bk kind regards Donna
I find your story almost the same thing with mine .mine started 2006..but am still on medication.cos anytime I stop even for 2 days .iwent back to relapse..n it was not easy at all.
I will like to know what food you are taking that help you to stop the medication please.tnak you very much
Hi Maryam, I will make a video on this really soon as this is a topic I am so passionate about. Subscribe to my channel if you haven't already to keep an eye out for this video. I will also do another video on Myasthenia Q&A style. Sending you lots of love x
I was just recently diagnosed with MG and I really get dizzy after taking my medication in the morning..... still suffering from diplopia and I don't know how to handle this...
I was diagnosed MG 3 years back..diplopia come and go..regular medications can help..im 35..
Ptosis and diplopia are my symptoms..taking pyridostigmine..
I am on Mestinon
Have you tried meditation? When my body is shaking & my eyes feel heavy, I stop & meditate for a while & focus on my breathing & how I am feeling. I get anxiety & panic attacks when my symptoms are too much for me to handle but know that you are not alone. Stay strong & focus on your recovery. Sending lots of love & light your way 🙏🏻
@@roseykatjinamunene7058 did u take. Medication with food?
I've had MG since 2001. Every symptom started the second I gave birth. Droopy eyelids, trouble eating, swallowing my own saliva, brushing my hair, slur speech, walking, smiling, laughing etc.. It took doctors 6 months to diagnose me with MG. I seen doctor after doctor untill I seen an eye doctor and he was the one that said "go back to your doctor and tell them to check you for MG" and yup sure enough. I was an outside patient with plasmapheresis, was put on mestinon & steroids. Long story short I had a thymectomy in 2003 while I was about 3 months pregnant. They said I would lose my baby, my son was born strong and healthy. Surgery helped, I went into remission. I don't take medicine for years now. Even though I've been good and in remission since 2003 doctors says it is possible it can return. Hopeful it never does. 🙏
Stress & anxiety is not good can trigger MG. Also when I get nervous, scared or tooo excited it can trigger it as well.