The start of your video scared me! I immediately thought you were announcing that YOU now have cancer (my immediate thought after that was “oh, that’s why he shaved his head). I was so relieved to realize you were not talking about yourself, but at the same time, sad you were talking about a friend who now has cancer. I will send healing vibes to your friend and pray for their remission. 💗
I feel as if I am hearing myself. I was also born with a neurological condition. Forty-two years later, my life was as wonderful as possible when total darkness came. Optic neuritis was my first symptom of MS. Then I was fired, etc. And precise/blunt doctors, hopes for possible alternative diagnosis, etc. Now, nineteen more years have passed. After yet another sleepless night, the physical pain is less severe, and I'm just browsing reviews of wheelchairs. When a friend of mine was diagnosed with cancer last year, I wished him: "May we live as long as possible and be as healthy as possible at the time of death." If he had MS, I would wish him the lowest possible EDSS score just before we stop believing in God - and either vanish forever after a meaningful life or meet Him behind the veil and start to know Him (I would be happy to discuss a few details from my life - as for know, I can only ask question when looking at the dark ceiling). :) Anyway, there are tons of things beyond our control, but hopefully, they will not destroy our inner selves before our brains finally stop to work.
I'm 69 years old have have struggled with a similar degenerative neurological disease too. The good news is that it primarily only effects the lower part of my body. It is a tough trail.
Steve, i have to say, this video hit me like a sucker punch. Every way you described the beginning of your journey is how mine started. From the goofy simple neurologist to so much else. What really hit me was your faith journey, i was raised and always was spiritual yet in my teens got too interested in all the other things in life, then one day years later after marriage and 2 kids, there went my walking. Once i finally got an mri it was clear, MS. I have been fighting it with my faith and excellent diet and i am telling my family every day for years now that i will walk again! Best part is that im the happiest ive ever been in my life and yet all those friends i had have mostly vanished as i believe they cant handle my situation, however maybe they weren't who i thought? Either way, im going nowhere but up from here. I will be praying also for your friends recovery 🙏🏻 I pray she stays focused on those who support her. One day maybe we can all get together and share our stories of recovery 😊❤❤
The start of your video scared me! I immediately thought you were announcing that YOU now have cancer (my immediate thought after that was “oh, that’s why he shaved his head). I was so relieved to realize you were not talking about yourself, but at the same time, sad you were talking about a friend who now has cancer. I will send healing vibes to your friend and pray for their remission. 💗
I know, I was worried about giving that impression. No, it was my friend. Just good ole MS for me!
I feel as if I am hearing myself. I was also born with a neurological condition. Forty-two years later, my life was as wonderful as possible when total darkness came. Optic neuritis was my first symptom of MS. Then I was fired, etc. And precise/blunt doctors, hopes for possible alternative diagnosis, etc. Now, nineteen more years have passed. After yet another sleepless night, the physical pain is less severe, and I'm just browsing reviews of wheelchairs.
When a friend of mine was diagnosed with cancer last year, I wished him: "May we live as long as possible and be as healthy as possible at the time of death." If he had MS, I would wish him the lowest possible EDSS score just before we stop believing in God - and either vanish forever after a meaningful life or meet Him behind the veil and start to know Him (I would be happy to discuss a few details from my life - as for know, I can only ask question when looking at the dark ceiling). :) Anyway, there are tons of things beyond our control, but hopefully, they will not destroy our inner selves before our brains finally stop to work.
I'm 69 years old have have struggled with a similar degenerative neurological disease too. The good news is that it primarily only effects the lower part of my body. It is a tough trail.
Steve, i have to say, this video hit me like a sucker punch. Every way you described the beginning of your journey is how mine started. From the goofy simple neurologist to so much else. What really hit me was your faith journey, i was raised and always was spiritual yet in my teens got too interested in all the other things in life, then one day years later after marriage and 2 kids, there went my walking. Once i finally got an mri it was clear, MS.
I have been fighting it with my faith and excellent diet and i am telling my family every day for years now that i will walk again!
Best part is that im the happiest ive ever been in my life and yet all those friends i had have mostly vanished as i believe they cant handle my situation, however maybe they weren't who i thought?
Either way, im going nowhere but up from here.
I will be praying also for your friends recovery 🙏🏻
I pray she stays focused on those who support her.
One day maybe we can all get together and share our stories of recovery 😊❤❤
This comment meant a lot, thank you!
Thank you for sharing your experience in such a beautiful way.
I hope recovery is possible; both my mom and I suffer
There is. 💙 Just wait and see...