Long Hauler Message to the ME/CFS & FM Community

Lisa O'Brien, Utah Long Haulers group founder, shares her messages of gratitude with the ME/CFS and FM community.
May 12, 2021, Bateman Horne Center's ME/CFS and FM Awareness Day event: "Messages of Hope"

[@lokee7]

Thank you Lisa, from a 25 year "long-hauler". I'm sorry my generation failed you. I'm encouraged that your generation will save the next one.

[@plantagominor722]

Thank you Lisa, and thank you Bateman Horne for continuing to share information and stories.

[@IExpectedBSJustNotThisMuchBS]

Lisa's experience with the medical community is quite common. Many of us end up with medical PTSD.

[@littleangelsphoto]

Thank you for sharing your message Lisa. Thank you for being such a great advocate for those of us who are too sick to do it for ourselves. You are an angel for all your work bringing attention to these post viral illnesses.

[@kaiam.a160]

Okay well I'm crying, thank you!

[@paulmoore6175]

Sorry you have to go through this but thank you for speaking so well on our behalf I have had symptoms since 1993 but I'm encouraged that information is now being recognised among the medical community. Be gentle, be strong

[@hypernorm4802]

Thank you sooo much for this solidarity ✊

[@cheryl8493]

I have fibromyalgia and chronic fatigue syndrome, chronic pain every day and I was having this very this very thought that people were coming down with Covid that they were going to come down with fibromyalgia and chronic fatigue, I just had a feeling! The symptoms sounded so much like what I go through every day without the illness of Covid. I feel so bad that all of you are suffering like this the way that I suffer every day with terrible terrible pain and fatigue we just don’t deserve it but who does, right? I pray you all recover some how! Maybe now, since there’s going to be a lot more people with Fibromyalgia, that they’ll be forced to do more research and come up with a cure or at least a medication that will help us feel better!

[@sylviacruz753]

I cut this article out of 3 months old news paper magazine about 3 months ago to share with neuropsychologist about what the CFS, ME, FM, ADD, EFD, OCD, etc.. Community has been suffering decades before covid.. 62 years my lifetime, yes medical PTSD to add to existing PTSD..

[@MsKell35]

Bless you lisa 🙏🏽