Spastic Cerebral Palsy Surgical and Rehabilitation Treatment | Journee’s Story

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  • เผยแพร่เมื่อ 2 พ.ย. 2024

ความคิดเห็น • 71

  • @lordblader4505
    @lordblader4505 3 ปีที่แล้ว +22

    I live in Jamaica, with my 12 age old son, one of three boys that was diagnosed with cerebral palsy CP. I had exhausted all the resources in my country and I am looking for a human form of divine intervention that will give my son the best help possible.

  • @gutsfield3504
    @gutsfield3504 3 ปีที่แล้ว +8

    I had virtually identical rehabilitation and surgical interventions starting in 1964 age 2. My condition (complex spastic quadriplegia) had iatrogenic causation post- birth. Despite achieving an almost normal gait, physiotherapy averaging four hours a day for 52 years, intractable pain and post impairment syndrome left me wheelchair dependent. Pain control during and after two childhood surgeries was not even considered by healthcare workers despite my screaming. Children with CP grow to be adults. I was wrong in assuming PT, etc.would spare me the physical and mental trauma... and the huge hit to my bank account. Unless the Cerebral palsy patient is a millionaire, and has few comorbidities, it can leave a sufferer in bankruptcy. Cerebral palsy is as destructive as any disease in existence. The intractable pain, the post trauma impairment syndrome, and the wheelchair could have been prevented if health care "professionals" had been competent from birth to adulthood. Hopefully, the child presented in the documentary will be treated compassionately throughout life.

  • @gwenwilliams1954
    @gwenwilliams1954 3 ปีที่แล้ว +8

    She is beautiful and amazingly strong and blessed.

  • @sahabatbintangsembilan
    @sahabatbintangsembilan 3 ปีที่แล้ว +3

    Give inspiration 👍

  • @madelyndennis371
    @madelyndennis371 4 ปีที่แล้ว +2

    Kenny Krieger working with Johns Hopkins is fantastic they did wonderful things for me

  • @PraveenSrJ01
    @PraveenSrJ01 2 ปีที่แล้ว +2

    My younger brother who is 29 years old has cerebral palsy and migraines. He had right spastic cerebral palsy. He got physical therapy when he was 3 years old

    • @shiningstar1608
      @shiningstar1608 2 ปีที่แล้ว

      Proven Sriram what about your son now?

    • @PraveenSrJ01
      @PraveenSrJ01 2 ปีที่แล้ว

      @@shiningstar1608 I don’t have any children 👦 nor am I married to be bluntly honest with you

    • @shiningstar1608
      @shiningstar1608 2 ปีที่แล้ว +1

      @@PraveenSrJ01 oh sorry I want to asked about your brother....please don't mind

    • @DimanaSirenHead
      @DimanaSirenHead ปีที่แล้ว +1

      Can he walk like normal person ? My son diagnosed by doctor that he is CEREBRAL PALSY spastic .. he is 4 years .. still can not walk .. 😢

    • @PraveenSrJ01
      @PraveenSrJ01 ปีที่แล้ว

      @@DimanaSirenHead he is 31 years old and cannot walk like a normal person. He walks at about 0.9 to a maximum speed of 1.2 mph with a walker or a cane 🦯

  • @emmarose4234
    @emmarose4234 3 ปีที่แล้ว +6

    Journee is adorable! 💕

  • @A.M.A-Attarch
    @A.M.A-Attarch 4 ปีที่แล้ว +13

    i'm 14 and i have this hope there will someday be a cure

    • @A.M.A-Attarch
      @A.M.A-Attarch 3 ปีที่แล้ว

      @@satan2182 the doctor said in-between 1 and 2. If i train and lose weight again I'm closer to 1, but if i don't do that (like now) my level is 2.

    • @DinaAwd
      @DinaAwd 3 ปีที่แล้ว +1

      No cure there brain damage.we can only prevent it

    • @arny625
      @arny625 2 ปีที่แล้ว

      @@satan2182 girl what-

    • @satan2182
      @satan2182 2 ปีที่แล้ว

      @@arny625 LMAO I WAS LIKE 13 HERE😭😭THANKS FOR REMINDING ME TO DELETE THESE

    • @arny625
      @arny625 2 ปีที่แล้ว

      @@satan2182 LMAO

  • @Smithrod12
    @Smithrod12 4 ปีที่แล้ว +6

    I have a 9month old baby girl that was diagnosed with cerebral palsy
    Please any help you can give

    • @maryhughton2572
      @maryhughton2572 4 ปีที่แล้ว +1

      roda ojo Get her up and standing.....bearing weight... as soon as possible. Work with her constantly. I was really relaxed with my daughter because she went through so much...26 weekend, but I regret it.

    • @tropicapahpel9667
      @tropicapahpel9667 4 ปีที่แล้ว +1

      Therapy!!!! Therapy helps.

    • @physiotherapistsushmeet7648
      @physiotherapistsushmeet7648 3 ปีที่แล้ว

      You can contact me for free consultation and online therapy :) dm for further inquiries on my Instagram page paediatric_movement_

    • @jeff7764
      @jeff7764 3 ปีที่แล้ว

      Get her moving and keep her busy. Best advice I know of. My nephew has pretty severe CP

    • @arny625
      @arny625 2 ปีที่แล้ว

      @@tropicapahpel9667 not always

  • @growingwithpodrey6744
    @growingwithpodrey6744 ปีที่แล้ว

    Will this work for quadriplegics

    • @JohnsHopkinsMedicine
      @JohnsHopkinsMedicine  ปีที่แล้ว +1

      For questions around medical advice, we suggest talking to a doctor or healthcare professional.

  • @MommaBao
    @MommaBao ปีที่แล้ว

    Alyssa is in the video. She is an amazing PT

  • @murtazalaghari3122
    @murtazalaghari3122 ปีที่แล้ว +1

    My son has been suffering same issue please help me jam from Pakistan

    • @ahadalam7218
      @ahadalam7218 6 หลายเดือนก่อน

      Bhai apka beta sahi howa mera beta bhi 15 months ka hai apne kis ko dikhaya

  • @yogtherapyshobhasoni6637
    @yogtherapyshobhasoni6637 5 ปีที่แล้ว +4

    Main yoga therapist hun aur aur in hi Tarah Ke bacchon ka ilaj Yog dwara Karti Hoon

    • @AttiaVlogs
      @AttiaVlogs 4 ปีที่แล้ว

      Ap kaha se ho kis country se? Reply me

  • @arny625
    @arny625 2 ปีที่แล้ว

    Why did my doctors do surgery than ignore me no physical therapy at all

  • @manobaloch1166
    @manobaloch1166 3 ปีที่แล้ว +1

    Plzzzz help me my child is seven year old and she is c p child plzzzzz help me plzzz

    • @JohnsHopkinsMedicine
      @JohnsHopkinsMedicine  3 ปีที่แล้ว +2

      Hi, Please reach out to inquire about a new appointment by calling 855-695-4872. Please note, many of our offices are reaching out to patients to reschedule appointments as video visits; this will depend on visit type and currently, these are only available for existing patients. Please call the above number to learn more about what options may be available for your specific situation. You can see more on our patient and visitor guidelines at www.hopkinsmedicine.org/coronavirus/index.html#patient-visitor-alerts

  • @jeannieves6275
    @jeannieves6275 2 ปีที่แล้ว +1

    Adorable 🥰

  • @Fidem-y1h
    @Fidem-y1h 4 ปีที่แล้ว +1

    😭😭😭 The girl is so pretty. What a sad story

  • @Guitartutorialsandcovers
    @Guitartutorialsandcovers ปีที่แล้ว +2

    bro's from ohio

  • @CpMotherWorld
    @CpMotherWorld ปีที่แล้ว +1

    ❤❤❤❤

  • @yogtherapyshobhasoni6637
    @yogtherapyshobhasoni6637 5 ปีที่แล้ว +2

    Sir Meri therapy Thodi Si different hai par main UN bacchon ke liye bhi kuch karna chahti Hoon

    • @ibrahimurwa2896
      @ibrahimurwa2896 4 ปีที่แล้ว

      Meri beti ko b bohat c problems ha kindly ap mujy koi yoga batain

    • @AttiaVlogs
      @AttiaVlogs 4 ปีที่แล้ว

      Ibrahim Urwa ap kaha se ho sis.. Mera baby b cp chaild hai. Reply me

    • @AttiaVlogs
      @AttiaVlogs 4 ปีที่แล้ว

      Varsha Srivastava apka baby kitny Year ka hai?

    • @AttiaVlogs
      @AttiaVlogs 4 ปีที่แล้ว

      Varsha Srivastava mera beta 3 sal ka hai.. Mai threpy krwa ri hn Mai Pakistan se hn

    • @AttiaVlogs
      @AttiaVlogs 4 ปีที่แล้ว

      Varsha Srivastava dear kia kia activities kr leta ap ka beta or ap kia treatment krwa ri ho. Mery channel pr mery bety ki video hai. Ap b dikhao apny baby ki pic

  • @gitanjalipuri3824
    @gitanjalipuri3824 2 ปีที่แล้ว +1

    Anusha 475A

  • @dr.rahulbharat8210
    @dr.rahulbharat8210 4 ปีที่แล้ว

    Nice 👍👍

  • @venusuragan2286
    @venusuragan2286 5 หลายเดือนก่อน

    ⛷️🛼

  • @lucindawinehouse2002
    @lucindawinehouse2002 4 ปีที่แล้ว +3

    I have Cerebral Palsy and I hate it

    • @A.M.A-Attarch
      @A.M.A-Attarch 4 ปีที่แล้ว +2

      same

    • @gutsfield3504
      @gutsfield3504 3 ปีที่แล้ว

      Same

    • @satan2182
      @satan2182 3 ปีที่แล้ว

      Hopefully there will be a cure one day

    • @lucindawinehouse2002
      @lucindawinehouse2002 3 ปีที่แล้ว +1

      @@satan2182 What I hate most about it is the physiotherapy

    • @PraveenSrJ01
      @PraveenSrJ01 2 ปีที่แล้ว

      My younger brother has cerebral palsy and migraines and I have high functioning autism

  • @majormajor7925
    @majormajor7925 3 ปีที่แล้ว

    Ah aadyathey doctor malayali aayirikum ley