Beating Lymphoma with CAR T Cell Therapy: Jami's Immunotherapy Story
ฝัง
- เผยแพร่เมื่อ 7 มิ.ย. 2017
- Jami describes her 20+ year battle with cancer as a marathon. #CIM17 #PatientStories
But when standard treatment options failed ultimately to keep her advanced non-Hodgkin lymphoma at bay, she enrolled in an immunotherapy clinical trial and today is free of disease and able to look forward to the future. www.cancerresearch.org/patients.
This video is presented as part of the Cancer Research Institute 5th Annual Cancer Immunotherapy Month awareness campaign this June 2017. Help us raise awareness of the lifesaving potential of immunotherapy for all types of cancer. Let's fuel the next scientific discoveries and breakthrough treatments through learning, engagement, and storytelling. www.cancerresearch.org/june
Established in 1953, the Cancer Research Institute (CRI) is a 501(c)(3) nonprofit organization dedicated to harnessing our immune system’s power to control and potentially cure all cancers. Our mission: Save more lives by fueling the discovery and development of powerful immunotherapies for all types of cancer. To accomplish this, we rely on donor support and collaborative partnerships to fund and carry out the most innovative clinical and laboratory research around the world, support the next generation of the field’s leaders, and serve as the trusted source of information on immunotherapy for cancer patients and their caregivers. www.cancerresearch.org
My brother has been battling cancer for ten years. Now he is immnutherpy . We pray that it works for him . Ameen
With all do respect how did it go ,
just finished my CAR T Cell Therapy, still scared and feeling very vulnerable. Had to spend 14 days in patient because of the bloody virus, no visitors which was not great. Sure would be nice to develop a group for us?
Did you get the neurotoxicity side affect? I asked cuz my dad is in the hospital right now for the car T cell therapy and he got that neurotoxicity side affect and hurts to see him struggle. His on his 4th day with that side affect. I was told that it typically last 4-7 days 🙏🏽.
carolyn kooiman how you feel ?
msquarepants1 how your dad ?
Carolyn I will be starting CAR T CELL therapy in December of this year and would love to have someone to talk to that has been through it. There is a Lymphoma group on Facebook you can join, but I have found only one person who has been through it. Let me know how you are doing.
Carolyn Today is Day 47 for me, I had my treatment done at Presbyterian st Luke hospital in Denver and My team of doctors were from Colorado Blood Cancer Institute. My first PET scan showed Zero activity and got the best score that you can get. I will be getting blood tests every week here in North Colorado and monthly checkups at the Institute down in Denver. I was also told that those Genetically modified T cells can stay in you for years. I kinda think that is a plus that those T cells can fight off the BIG C several months after your initial treatment.
Thx for sharing your story. My friend has the same cancer and is in stage four. Her doctors told her it’s aggressive and the chemo has damaged her body bad so she thinks there’s no hope. But this video might change her mind. Thanks for sharing this. I’ll show her the video and institute! God bless you always!
Fantastic - what an inspiration you are!
Thank you for your life! Your story is inspiring
Thanks for watching, Beverly!
Wow
What stage did she have?
Car t cell therapy kind of destroyed my dad...is right arm and leg is stiff...and he has something wrong in his brain...😢.and the cancer came back...idk what to feel about it he is only 62yrs old...wairing to hear how long he has left...I love my father and when we talked he told me he regreted doing the car t cell therapy idk what to think
You sound like this is your first video on CAR-T therapy
Jami. How are you today?
My sister is about to do that procedure..🙏🙏🙏
How is it going? How is she doing? Thank you in advance
Whrer6 are you doing it
@@prabhulchandran1381
She passed away 2 years ago already. 😢
@@fernandosanfranciscoca9278 God bless her. I am so sorry...
How are you doing now?
I want to be cured of my cll too!
YOU WILL!
What type of lymphoma did she have ?
Hi D-Gauss. Jami has non-Hodgkin lymphoma www.cancerresearch.org/patients/immunocommunity/featured-stories/jami
How much it costs
anmol's funtime $475,000 for a single treatment, which most people can’t afford and most insurance won’t pay anything at all (absurd!). My Dad is waiting to get it; he is going through the chemo now before infusion of the T-cells. Medicare will only pay 10% of that but they’re already massively in debt from 4 years of fighting this horrible disease. Luckily hospitals accept tiny payments each month because they know most people go broke trying to survive this disease. Sad that people’s lives depend so much on money. 😔 Also, not everyone is approved for CAR t-cell treatment. It could be your last option and they could deny you. It’s a terrifying process to go through with a loved one. Waiting to find out if he was approved was as scary as waiting the first time we found out he had cancer. Anyway, that’s the price!
@@a.j.4024 my daughter is on Medicare and she done car-t and paid nothing. Trump signed a order I believe 12-2019 for Medicare insurance to use this treatment.
Hi! The cost of CAR T cell therapy treatment may vary according to an individual's circumstances. Not all insurance policies cover CAR T cell therapy. In the United States, Medicare covers CAR T cell therapies. For financial resources, visit www.cancerresearch.org/patients/free-resources-support-answers/helpful-links