I believe each and every one of my patients. Doctors that ignore or disbelieve their patients' complaints are trying to hide their incompetence and lack of clinical insight.
They ignore, or they gaslight! I've been gaslighted so many times through the span of several years when no doctor could figure out what it was making me hurt so bad! And because they had no clue, they told me it was all in my head! God finally hooked me up with the smartest man I ever knew... He had 8 doctorates and was board certified in 5 of them! That means he was 8 times the doctor as any onee of those who told me it was all in my head! He had planned to go back for a mathematical doctorate when I was going to him, but he was 67 years old, stooped over with back pain and had a lot of trouble walking, and a fire broke out at his house. His lungs were badly damaged. He was recovering for the better part of 2 years. He lost his clinic and all his employees but his head nurse, who, oddly enough, came to work in my office as a nurse recruiter. I went right back to that doctor when he began seeing patients again in one of the rooms of a skin care clinic that was run by a younger doctor whom he mentored (for greater work than skin care). My doctor only lasted about 6 months before he died of complications of smoke inhalation. But not before giving me, and my daughter our final diagnoses... he knew when he first met me that I had fibromyalgia and chronic fatigue syndrome, and through the years I had him, he ruled out all the diseases that I could have had but one, so, by process of elimination, his diagnosis was psoriatic arthritis. I immediately went to a rheumatologist, but she couldn't find any inflammation markers in my blood... but 5 years later, there it was! My daughter had hypothyroidism, but the pills weren't helping her, and she felt like crap, too! She was seeing the best children's endocrinologist, but he had no further answers, and was planning on doing a thyroidectomy on her. Thank God I took her to my dr, who diagnosed her almost immediately with Hashimos disease, another autoimmune disease, and if her endocrinologist had cut out her thyroid, the disease would have attacked other things in her body! With Hashimotos, she needs more than just her TSH (Thyroid Stimulating Hormone) checked, she needs something else checked too... She has always taken care of it herself, being an adult when Hashimtos was diagnosed. Today, she tells drs what tests to run, and what the results mean, and how to treat her. The really sad thing is that most doctors think that my doctor was a crazy, trying to help people with supplements, when he was the nicest, smartest man who was head and shoulders above all of them! But he's not the only super smart and nice dr God has gotten me to.... There have been 4! 2 have died, and I'm worried about my wonderful internist GP, but my pain specialist, who I think has his PhD in palliative care, is the only one I've ever met that never treated alll of his patients like junkies just because some were, he just got rid of them and continued to be a nice, compassionate man who wants to believe the best of us, but still has us pee in cups, just in case! I have never broken my contract with him and never will!
Computers have really created this in doctors. Insurance companies pay for the design of the medical software used today. If doctors and health systems want access to insurance money they use the programs. If the doctors and health systems want protection from litigation they use the software. The patient left the practice two decades ago and Obama Care implemented this take over by giving insurance companies total power over the cash flow of the medical industry. Notice how the doctors trying to operate outside the insurance system disappeared after Obama Care? The Insurance lawfare lawyers shutdown or "scared straight any Doctor fighting back. Remember the Doctor's speaking out during Covid and what happened to them!!!
@@AtTheBarn I think there's some truth to that because Obama use to be a lawyer for the insurance industry and he is the one that signed the Tort reform bill which essentially blocks patients from suing doctors for malpractice and people with medical degrees have been murdering people and getting away with it ever since and the insurance companies love it
Yeah, got to LOVE the US healthcare system where you are required to convince the drs to give you the medical tests to prove you aren't a liar wanting disability, medication, an excuse for work or aren't having mental difficulties. I went to numerous drs with a list of over 32 symptoms and was told I needed to just exercise more. Found one dr that only took cash, no insurance and found out I had a thyroid issue, developed gluten and egg allergies, had an inflamed chronic gall bladder and another health condition that required surgery to save my kidney and colon. Medication, lifestyle and two surgeries that MULTIPLE drs over 2 years missed. When you have to convince a dr to run tests because the dr is going to get paid regardless of how well you do...dunno, sounds like systemic issue in the US. I was lucky to be able to afford a "boutique" dr and my health is great now but not everyone can do that.
@@JustTheTruth-Please I'm not as sick as most people and I can't go to various doctors for treatment anyhow. If the local doctor can't do anything for me and they will send me to a ton of specialists all over, then it means I won't get treated because I really can't go to so many places with a limping leg.
@@solangelalebron1348 Yeah, this country is about able bodied people working for businesses to make money for the C suite. I am so sorry you have to experience that. Hugs to you, friend.
Well I've heard people from Canada complaining because they have cancer and they can't get screening and they have to go on waiting list for 2 to 3 years to get things done
@@spoonypoon7998 "Heard from people", well, that sure does cancel out my using statistics and historical data, doesn't it? And how many kids in Canada did you hear about dying because their insulin cost was obscenely high so they ration it? And how many people in ANY other developed world go bankrupt as we do in the US? Check your facts, not your gossip. The US allows politicians to be purchased by big companies so they allow insurance companies, hospitals, pharma companies to all bleed us dry because both the big companies and the politicians (who get the BEST healthcare plans and an onsite dr/pharmacy at their workplace, both funded by taxpayers!) get rich from it. Don't come for me with Canada and UK gossip.
Yes…….yes…….i get this all the time……I also get chronic fatigue and there are days my joints feel like I was thrown down the stairs……..but feeling dizzy almost like your fainting……..god bless our health care workers who are really advocating for their patients and seeing the truth and helping us we are suffering and struggling
Thank you for this. Within a week after getting my 2nd Covid shot I started falling backwards several times a day. I put 2 and 2 together and refused any more shots. It took 6 months but I no longer suffer from vertigo.
@@Music2Desire I had two vaccines and then my blood pressure went up so high the doctor wanted to put me on medicine, which I refused. It took 18 months for it to come back to normal. No more covid vaccines for me.
I had all those symptoms and went to a Naturopath. I was on multiple meds for gout, arthritis. IBS, ulcerative colitis, leaky gut syndrome, etc.... The naturopath diagnosed I was intolerant to eating potato's. I am now med/pill free. My MD doctor of thirty years told me naturopaths are quacks even though I explained to him "BUT I AN FEELING BETTER."
I was on 13 pills/day high blood pressure on top of it and injecting me with poison 5 years ago; removed 1 crucial thing from my life: stress. Retired, moved in the sticks and enjoy the wild. 0 pills today.
Thanks for sharing David. I’m with you 100%. Look into how the Rockefellers (John D) destroyed natural medicine that had worked for 1000’s of years, replacing it with his allopathic western medicine of today - dependent on pharmaceuticals to treat symptoms and not the underlying condition. 😮 That’s why the doctor couldn’t figure your issues out…not trained to. Yes $ gets you power and control. It’s interesting history but will make you hate globalists…as they should be. 😊 He also screwed the educational system in the US. 🤦 The more you know!
I was diagnosed with POTS in 2020 and Orthostatic Hypotension as well a while after. Likely not COVID-related but rather triggered by pregnancy and Ehlers-Danlos Syndrome. It’s been an adjustment. You don’t really stop grieving but it gets better. Salt, water, compression stockings, and meds don’t always help as much as they’re said to. If you suspect POTS, log your blood pressure and heart rate in a notebook for a couple weeks before you go in and give it to them. Avoid a huge list of symptoms and mountains of papers right off the bat. With the way doctors think it can overwhelm them easily and make you look anxious. Ask questions and, sad to say but… sometimes getting a doc to think something is their idea is the only way to get them on board. Drop clues without jumping to conclusions or outright saying it. Also, nurse practitioners are usually better at listening and collaborating
This is so true because I was diagnosed with anxiety lol I should’ve written down my bp like you said. And yes, my nurse listened to me way more that the Dr did.
Same thing happened to whole generation after flu. Some, got some miracle medicine from japan - like my granny (it took months to get it, but…) and now she is 102, while rest of her family (grandad, mom of gra y…they all perished on different things caused by hearth failure - enlenagrment, hearth attack, holes….).
Take a notebook with your questions and symptoms. Don't let them cut you off or dismiss you. Check off each question and symptoms. The "good" doctors will see you're serious and will take you serious if you do. I'm a 100% Disabled Veteran because until my wife sarted bringing a notebook with symptoms with date and times did they realize I had 24 hours to get surgery before permanent nerve damage but that was 6 month too late.
I shouldn’t be that hard for a woman to get help. Experienced the brush off before finally finding what was wrong…pancreatic cancer and a heart attack. Doctors need to believe patients when they say something is wrong.
@ There really isn’t any evidence whatsoever.Youre just a liberal looking to be a victim.All the women I’m around are either WELL taken care of or have jobs that pay more than the men around them so you can never persuade me if that nonsense yall keep trying to spread
@@wcwright44Unfortunately there will be an increase in polio, measles and other infectious diseases due to RFK influence on policy. Wait til these people lose their health insurance when Trump repeals the AFC, and he will this time around, and they can’t get insurance due to existing conditions.
I am 67 years old. Back in 1979 I got mononucleosis. Anyone that's ever had that know that that is a pain in the butt to have and it can take up to 6 months to get over it. And that virus never leaves your body it just goes dormant. So let's jump to 2021, I caught covid pneumonia in February and I spent the month in the hospital. But I was never able to get rid of the fatigue that you get with it. But last year I went and found the doctor and he had a CAT scan right on me and a blood test run on me. He did not find anything particular in the CAT scan, but he called me and asked me have you ever had mononucleosis? And I told him yeah back in 1979. And he said well it looks like covid has reactivated that virus. He says you're not contagious it's just that the switch got turned on again and nobody knows if that switch will ever go off or not. So I'm stuck with this fatigue 24 hours a day 7 days a week and I'm just about 4 years into it. He told me there's nothing you can take for it and there is no cure for it. Unless somebody comes up with a way to get rid of that virus that causes mono.
It took me 17 years to get diagnosed with MS instead of anxiety. The medical gaslighting is ridiculous and it’s costing people their lives. I’m fully disabled now, because I didn’t get started on drugs early enough.
The sad part is that it maybe caused by herpes viruses left untreated. Carnivore diet will help. Dr. Terry's protocol got her out of bed and back to living a good life. Don't give up.
Thank you for bringing awareness to this! My 15 year old son recently was diagnosed and it’s been rough for him adjusting to this new normal. He has his ups and downs throughout the day.
I have had an issue like this, I’m a electrician/mechanic, every time I’m under a piece of equipment or automobile on my back and I roll or move around, I get very nauseous and dizzy to the point of throwing up, never had this problem before I had COVID!
I had this same problem for a while. Not to the point of getting nauseous, but felt dizzy when I turned my head, looked up or down. Definitely didn’t trust myself on a ladder. 72 hr heart monitoring didn’t show anything abnormal. Fortunately it slowly went away.
I was diagnosed with pots three weeks ago. My md team thinks it’s because of having a severe case of Covid. Best suggestion is lay down and put your feet above your head. It’s hard because I can have an episode at anytime. I had one at petco two days ago when I was looking at frontline for our cats. I wish other like me get the right diagnosis and treatment.
Compression socks don’t seem to help. I wear them everyday day. I’m open to all suggestions, please. The only way we can learn truly through helping each others. General online education only goes so far. My doctor just parrots normal stuff socks and salt.
yes! POTS has been around however, it sounds like there's an increase in that diagnosis related to heart conditions with the uptick in covid and I can totally see why that is. Kind of scary to think the damage covid has the potential to do to damage the heart.
You might want to look at grabbing some Benfotiamine to assist with a thiamine deficiency. I'm guessing you might have had one since childhood. It seems to potentially run in families who don't pass along dietary habits that are high in thiamine and could also be passing along a reward seeking mood disorder like ADHD and or Autism. If you love sweets or intermittent fast or drink caffeine or have had chronic stress, you might want to check out what a thiamine deficiency is and what the indicators are that deplete it.
@@Nuggetsoffudge I actually take that, even though that has been ruled out for me. I can’t tolerate meat or high amounts of dairy, so I’m careful to supplement all the B vitamins and such. But thanks for the tip.
Pots can be caused by various things, viral injury, which causes automatic nervous system disorder. But not to be confused with pots caused by a traumatic brain injury. Is was first called soldier’s heart, then later efforts syndrome. Pots can be severe, they are not mentioning this, as gastrointestinal issues such as gastroparisis can occur with development of SIBO. You cannot exercise or condition yourself out of POTS. It’s more than dizziness, often your blood vessels are damaged and are not constricting to aid out your heart upon standing. Make sure you know what type of pots you have. She was correct no pots patient will ever pass a tilt table test. (Correctly done with isoproterenol)
That is the best description I've ever read. People sometimes don't understand that you cannot exercise it away. It can cause disability. I've heard of people committing suicide because it's so frustrating and disruptive to people's lives. I've had it for years and I also have the digestive conditions you mentioned. It's tough to deal with.
Autonomic nervous system. Meaning the the part of the nervous system that makes decisions for the body unconsciously. Many parts of the body are affected. When it goes sideways it is very difficult to navigate. This is POTS. I have this now for over 50 years. See a good doctor that understands this condition. Salt, water, protein, mild exercise on floor to begin and with progress move to more if capable without crashing, sleep, know your limitations, take supplements to keep you immune system strong, and medicines to ameliorate symptoms. Most important people will not understand what you are going through, so protect yourself. It’s your body and your experience is real not anxiety. Good luck to everyone who lives with this! ❤
@@Kris-ib8sn I was two points from the 30bpm sustained increase, but I was on a beta blocker that I cant get off of because i have prolonged qt. I was dismissed completely many many symptoms of dysautononomia including very labile extreme blood pressure flucuations. I was hung up on when I was begging the neurologist to please listen to me. She gaslit me said it's anxiety. Tech also noted all my symptoms during TTT (hot flash, tremors, dizziness, ect) and saw and noted moderate blood pooling in my feet. I was told this was all normalby neuro. My blood pressure was also very labile during the TTT.
@@mrsjamessmom9044LMAO!!!!!😂 Those are the kind of things the potter's house will make you do. Like the guy running around the church this Sunday like a crazed lunatic and nobody stopped him. That's like an insane asylum.
I had a bit of the vertigo after the iron infusion, but I am fine. I need three more months till I stop taking the Integra Plus, the iron medicine for the low iron. I hope my iron will go back to normal soon
I think I have this. My sports watch keeps giving me abnormal heart rate alerts even though I'm an athlete. I'll get most of those alerts when I'm not working out. I've had to quit running again because of the symptoms. I'm worried about a heart attack. I also feel lightheaded and dizzy from time to time. I haven't been myself since catching COVID in Oct. 2019.
Same. Caught covid spring 2020. Long covid until 2024; just started last 4-5 months feeling more normal. Rare POTS & PEM lately. I’m so thankful to finally feel more normal. Lost stamina but I can slowly build back.
i was getting like a a-fib--ekgs and everything else checked out ok--i had 3 bouts of covid--no vaxx--finally one doc told me i might have a viral bug running rampant and it will go away eventually,viral infection in the heart--took 6 months--but it still hanging around but barely--the worst was the joint pain coming and going-joint pain 90 percent gone--a friend's daughter gave me a big part of it 18 months ago--and it will take probably another 6 months to go away--some people call it long covid but who knows? not even the doctors...
Same, I've run many marathons b4 covid, then i started having the same issues seen a cardiologist abnormal heart rythem besided that they found nothing. I take b complex magnesium, and turmeric helped. Also, ice or heat the back of my head helps a lot
I just got diagnosed with this a couple months ago. It's more annoying than anything. You have to be careful when getting up, wear compression socks, drink A LOT of water, increase salt intake.
@@krissnov9072 …and stop getting experimental immunotherapies if one does not have a legitimate condition that makes them susceptible to a bad outcome from the bio weapon.
I just took some cold medicine, and nausea medicine, when I got it last December. I was able to improve within a week as opposed to several weeks or months. I also didn't receive the vaccine or anything from Pfizer. I threw the Pfizer medicine in the trash soon as I seen it in my prescription bag.
I was doubted and not believed for years by almost everyone, until I finally ended up at the Cleveland Clinic. I was diagnosed with Hyperadrenergic POTS in 2016 by my Neurologist Dr. Wilson. This disease is a nightmare that I would not wish on anybody. It is a sister disease to MS as well. Many POTS patients go on to develop MS and many MS Patients also have POTS. Thankfully people are finally starting to become aware.
I have MS. POTS was my first symptom over 20 years ago. I had a bunch of tests run, but no problems were found. Instead they offered an SSRI. 🤬 At least they ran a bunch of tests before offering that. Now they would just offer SSRIs or some kind of gas lighting. Back then (early 2000s) I ended up self-diagnosing POTS and treated myself by switching to only drinking water & the appropriate amount (gave up juice or soda) and use sea salt. Prior I did not use salt in cooking or eating at all. Additionally, over time I started using electrolytes in all of my water. No flavor just electrolytes. I haven't suffered from POTS for years. Still developed MS though. POTS seems to be related to a lot of auto immune disorders, not just MS. It is also very common in EDS patients as well. I suspect hEDS or hypermobility syndrome. Definite connective tissue problems. Totally sucks. I've been able to avoid COVID thus far. But I likely won't be able to forever.
@AndreaCrisp Oh wow, I''m so sorry about everything you have gone through 🥺💖 I have hEDS as well, and I'm having more and more orthopedic problems from that, the combination of the two diseases is really awful. Thank you for taking the time to reply, I hope that you can continue to avoid covid and that you are able to find treatment and relief of symptoms for your MS ❤️ Stay strong my friend
How the hell you can recommend gatored to drink? Here is the list of ingredients"Water, Sugar, Dextrose, Citric Acid, Natural Flavor, Salt, Sodium Citrate, Monopotassium Phosphate, Gum Arabic, Sucrose Acetate, Isobutyrate, Glycerol Ester of Rosin, Yellow 6." Do you need electrolites,drink coconut water!
I’m really surprised that doctors and sports professionals recommend using Gatorade. They must get kickbacks because it’s not good because of the additives and sugar. Coconut water is good and also apple cider vinegar with honey in water is better.
Gatorade's formula has changed quite a bit since it was first developed by a biochemist working with the U of Florida football team. It moved away from electrolyte replacement ingredients to sugar and flavoring. Some folks like me find it nauseating, its just too strong. A little salt and a little salt substitute (potassium) mixed in plain water and I'm good.
Every person who I personally know who have had it ‘not pots’ but the preventive shot have been ill more than once! Those who haven’t had the treatment have not gotten ill. Sorry for the vague description, but that’s where we are today!
@@Adam-gm5tm same here; everyone I know has been ill a few times after "prevention", as well as developed other issues, vs those who haven't partaken of "prevention" and have never gotten ill or have been ill just once.
There are many medications which can deplete your blood sodium levels as well! Which can be much more prevalent in the elderly. I believe anti-depressants are a big one for sodium depletion. Most (if not all) anti-depressants are derived from anti-histamines also, which can sometimes cause delirium, or dementia-like symptoms. It's also difficult to stay hydrated when you're older. I've heard that adding a few granules of celtic or himalayan salt can drastically increase the body's ability to actually absorb water and keep you hydrated. Chronic dehydration can lead to kidney issues. However, too much salt intake can cause swelling of extremities, and all sorts of other potentially serious issues. It's all about balance!
My older daughter caught Covid in 2021, and she developed symptoms of POTS afterwards. She wasn’t diagnosed until 2023, and that was after a prolonged battle to find doctors who would even _listen_ to her, much less do the testing that ultimately confirmed it! She’s now on medication that will (hopefully) control the symptoms, and she’s determined to live as normal a life as possible-she was very athletic before this all started, and she refuses to let having POTS slow her down!
Can I give some advice? I've had this for 20 years. Fighting against it and pushing herself will make things worse. It's more helpful to listen to her body and slow down when the symptoms hit. A lot of people cannot do that because of family or work obligations. Exercise helps but not the kind of Exercise that most people do. See a physical therapist, reduce stress, avoid caffeine, check all her meds to see if they have side effect of low BP, be sure not to get dehydrated especially when she has diarrhea, meditation, gentle yoga ( not the kind where you get up and down. But Seated on the floor or in chair. Acceptance is key to getting better.
My daughter had Ehlers Danlos Syndrome and chiari malformation, which are genetic conditions. She suffered with POTS as well. She passed away in 2016. I have started having symptoms of POTS as well. I have a connective tissue disease and a couple of autoimmune conditions. I hope the doctor is ruling out the connective tissue connection on these patients and well as post covid.
@@SideB1984 Oh thank you. I love finding other zebras! I hope you are getting the care you need and deserve. Much love back to you and your. I miss her every day but I try to educate people when possible with her story and now mine. Both diagnoses were scary and nobody really knew anything about either. I found people who knew more than doctors did at the time so I help newbies navigate and how to advocate for yourself or a loved one.
@@couch-m5j You know that is the one comorbidity of EDS that my girl didn't suffer with, my niece however has crazy mast cells with her type of EDS. It's crazy all that cones with an EDS diagnosis. (gentle hug)
@@mrsjamessmom9044 Very nice to meet you, and thanks so much for the advocacy efforts, a beautiful way to honor your daughter. Were you just diagnosed as well? I got support for the immune deficiency with infusions finally at 36 but not a lot of help from cardiology or neurology with POTS, and they looked the other way with TIAs and myocarditis from vax injury. PCP is caring and fights for me. Endocrinology helps with adrenals but doesn't understand my HPA axis issues well enough. Pain mgmt is hard since they won't learn about the med processing issues we have, learning how to help myself more on YT than drs or PTs. And therapists and DO drs like to blame us! "Just heal yourself and your tissues will heal." I had a time with SSA getting SSDI, and my employer was terrible, still retaliating through their long term disability carrier any way they can. I started filing board complaints now when I am gaslit. Truly hanging in there best I can! 💜
I am seeing a lot of comments pertaining to gaslighting so please note this: Multiple sclerosis (MS) and postural orthostatic tachycardia syndrome (POTS) are both conditions that can cause orthostatic intolerance, fatigue, and anxiety, and are more common in women between the ages of 20 and 50. POTS is more prevalent in people with MS than in people with orthostatic intolerance but no neurological illness. POTS can develop years before an MS diagnosis, or as part of the autonomic dysfunction associated with MS.
I have it since kindergarten. I'm 58 now. Got my diagnosis in 1999. Have been on meds since. I am blessed to have Dr. Blair Grubb from University of Toledo Hospital in Toledo. He has written textbook on the subject. I encourage anyone suffering to seek him out or any healthcare professional. Pots is part of a larger disorder called dysautonomia.
@too-girly propranolol and methylphenidate. I will eventually be getting a pacemaker. But the meds have worked well and I will do that as last resort. I have resting heart rate in 20's the methylphenidate increases it and the propranolol increases the strength of heart contractions, or push of blood out to body
If using salt, please use a fully mineralized product like Celtic Salt or Baja Gold. Also, you may want to hear Barbara O 'Niells' suggestion on how to use/injest the salt in the mouth before drinking water throughout the day. Of course, only follow your healthcare providers directions.
Just putting this out there, some of the "healthier" varieties of salt have shown to have larger amounts of heavy metals like lead, cadmium, arsenic and mercury. Obviously more testing needs to be done and from different sources but I'd recommend staying away from the brands you just mentioned in the meantime
Love Celtic salt it does not give me chest pains like Morton’s table salt at all. I also put a pinch under my tongue and drink a lot of Good water throughout the day! O’Neill is the TRUTH! No doubt about her❤❤❤❤
FINALLY! Many “post viral illnesses” can cause POTS, not just COVID. I’ve had POTS since 1991 after a wicked bout of Epstein Barr Virus. Years later I had to figure it out on my own since NO conventional MD’s had a clue & told me it was all in my head. 🙄 I also had to pay for years of functional medicine care which cost a fortune.
@ It likely helped keep the viral load down. But what helped the most was fixing my gut health & improving sleep. I still have some ‘post exertion malaise’ - meaning I have a bad reaction to moderate/intense exercise. Like I’m literally allergic to it…ha. I’m fine w low impact exercise but anything more intense WILL trigger flares (that can last for weeks). But I’m also battling histamine/DAO issues which can cause similar symptoms.
Kaiser Oregon refuses to diagnose me. I ended up with a rare Takotsubo heart attack in the emergency room because they didn’t take my dehydration seriously.
funny how people can have "long COVID" but mention you haven't felt right since the vaccine and you get shut down by doctors. I'm so fed up with the medical industrial complex. My pain is NOT in my head. Doctors get paid regardless if they help people get well and that needs to stop.
We're just addicts in their mind.. 7 million out of 10 million pain patients have had our pain meds ripped away from us. The overdoses skyrocketed in 2016 because that when the mandatory cut off started, sending patients to the streets to get poisoned instead of treated like a patient by their doctors.
I haven’t had the vaccine and still have issues. So to blame vaccines for things while ignoring the illness itself is just wrong. There can be many causes.
I'm vaxxed to the hilt and never had a reaction.But that's just me. I know several people who had such bad reactions to the vaccine that they decided not to get any more. Doctors need to listen because not everyone reacts the same way. I hope you find the care you need.
Yes, the ubiquitous "they" must be held accountable, for everything. Bad teeth, inflation, lack of affordable healthcare, lack of good paying jobs, lack of housing, poor education, racial injustice, homelessness, superficial values, everything we hate.
I feel seen! Diagnosed with Pots after developing symptoms literally the week after i tested positive in 2021. Have never had these issues in my life until i got covid.
Did you both get the Jab though? Just curious....my whole Family got Rona in the 2nd wave of it and we still didn't get the jab. I know multiple people who got the jab and they seemed to get covid more....we only all had it once. I'm not anti vax just anti NEW untested unproven vax.
And I would agree that our friends that got the vac and boosters came down with Covid quite a few times. Our family has had it twice. Once in 2020 and one more time in 2023.
I have been feeling dizzy for so many years, one minute I’m fine and other I need to lay down, feel unconscious, I have neck pain for so many years. I had trouble explaining to my doctor. All my blood test reports come good.
Most of the people suffering, especially from long Covid are the ones who decided against vaccines. They were the ones who knew better than anyone. 45 tried to convince people that Covid only attacked people he didn't like - you know, Dems. Yet the highest death rate was among Trumpers. 3 out of every 4 deaths were of males. The demographic most opposed to seeking medical help.
Yes, blame the thing that actually caused the problem. Not the thing that you wish had caused the problem so that you had proof that you weren’t a fool
@ Never exposed to Covid? How about other viruses. It’s not specifically tied to Covid. And most people have had a couple of dozen vaccines over their lifetime. Are you or are you just pretending it’s one of the three different types of Covid vaccines?
Thankfully with Covid, POTS is getting more attention. It’s amazing that more people have POTS than have MS but a lot of doctors and people have never heard of POTS.
IV had it since 1970 only just discovered the name for it thru a young friend with medical problems. IV just live with it cause by accident nerve damage in foot. The vagus vein cuts out heart stops U faint heart slowly starts pumping again.
I had pre-existing POTS, which got worse after I got Covid. Only mild leg exercise was called for due to other health issues, and as usual for POTS standing and slow walking exacerbates tachycardia symptoms. Medication didn’t work. Now I need a wheelchair to go to medical appointments. Anyway, POTS is an example of how even a short acute Covid infection can leave you with serious lifelong symptoms. The cardiology test referred to is a Tilt Table Test, which is very expensive and may not be available to everyone. An alternative is an in-office test that primary care providers can offer, called the NASA Lean Test, which has been validated in a small study for Long Covid as well as other patients. The Bateman Horne Center has information in their article “Why the 10-Minute NASA Lean Test?”
Why is a Tilt Table Test so expensive where you live? It's a simple and short procedure. Shouldn't even cost a few hundred bucks, including the personnel, incl. everything.
@ have you ever had one? A few hundred dollar IS expensive. In Seattle, it required two visits with a cardiologist, pre and post, plus a procedure with a technician and a room full of expensive equipment. I don’t recall the cost as I had it 20 years ago, but most definitely not cheap. A NASA Lean test costs only what you pay for one non-cardiologist doctor’s appointment and equipment required is a blood pressure gauge and finger pulse gauge.
@@roxyiconoclast Yeah, I had one. In Europe. Didn't pay a cent, for we are all insured by law here, but was done quick and easy. Compared to many other things they ask money for in the USA a few hundred dollars is crazy cheap there. That system is broken so badly.
@ yes, it is crazy over here! Long ago I stayed more than a week in hospital as a student in France and paid nothing. 😊 In the US, serious hospital stays frequently bankrupt people. Since I didn’t recall the charges for my TT, I googled and found this 2009 post on a dysautonomia chat board: “I can give you exactly what it cost me and i have BCBS [large health insurance company]. $2698.00 for test. $1888.60 hospital charge. $686.00 to read it. less ins[urance] my actual charges equal-$2105.54” Yikes.
pots can be caused by an injection, but it is mostly caused by a viral infection, such as covid. why are people so stuck on “is it the shot?”! it’s been known to be caused by viruses for ages.
Most people get a high heart rate. Mine plummeted to in the high 30s resting. I’m an extremely active person so it’s always been a bit lower around 50. I can say mine was not from the vaccine. When it happens to you it is easy to pinpoint when it started and mine started after I was infected with covid. Florinef was the only thing that helped. And she’s right! You need to advocate for yourself. It took fighting my way all the way up to chair of cardiology before I got any help.
Told I had anxiety for past 4 years, constant congestion and tired. Stopped taking meds, and replaced with Shunghite water and Celtic salt. No more congestion, no more tired.
I've had a fitbit since 2017 and have always had a sorta fast heartrate and low blood pressure, but after covid infections it can feel worse than usual for about 3+ months after. I've never been on a tilt table but i remember my heart was racing when i was doing very light yard work in april 2020. Then i had to go inside and sit down, and i was only 29 then. Its gotten a bit better but i always will probably have to stay well hydrated, get healthy sources of salts and Not stand up too fast if i was sitting down low, near or on the ground.
@@patrickcoughlin-qj9uk I do all the time. I don't listen to tv "experts" or the government. I eat tons of animal foods and animal fats. Can count on one hand how many times I've been sick in the last 15 years. No doctors. No meds. No jabs. During the "pandemic" I never wore a mask, never distanced, never got sick or jabbed, while everyone else around me got sick and jabbed all the time, while wearing masks and distancing. I must be doing something right😁
I had spells months after I first got COVID, I would get warm and everything would go black for a few seconds, luckily it went away after about 6 months but it was scary because it would happen while driving
I had POTS after Lyme disease, luckily it went away within 18 months. I also have EDS and as a kid I had MCAS, which are related to POTS. It was terrible though, I had flares all day long, I could hardly move and going up and down the stairs was awful. My house became so messy because I couldn’t bend over to pick things up
Iv had PVC'S for along time but never had Tachycardia before I had Covid in Dec 2019 sine then Iv been in the hospital I think 4-5 times with it, I just have not been the same since Covid in many areas like memory for 1,dizziness, headachs, Tach, no energy, etc
No vaccines here but two rounds of Covid. All these symptoms since last round. Grey Celtic salt, bleu salts, electrolytes and compression socks. And yesterday got prescribed a cpap because my o2 drops to the low 70s over night and heart rate drops below 30.
I will call bs on you not taking a shot for covid. It's funny how many are on this comment section saying they never took and shot for covid. Bull shit.
I was diagnosed after the "pandemic started" with POTS, however, I didn't get covid for the first time until many years afterwards. I actually have another condition that POTS commonly co occurs with. That is why I wear a smart watch these days. It helps me know when my heart rate is off.
Such a thing work for you? I get ill within a minute. When I am unlucky, I might feel I'm dying for minutes. When I'm lucky I start to vomit sooner and pee myself completely and that works as a reset button. In most cases I feel totally drained and ill for just one day. In super bad cases this lasts for two days. But since I've had it so often, I also know what might trigger it. For me, I of course have to be careful with getting down and up, but Also I have to keep myself very well hydrated. Don't know if anybody else has that too. My mouth gets totally dry as sort of a warning sign (even if I already drank a liter of water and milk that day). When I drink another full glass of water, I can stave off an upcoming POTS attack most of the time, when I also stop doing what I am doing. When I return to doing what I am doing, the POTS will come later on anyway. I've had it for almost 13 years now, starting with Lyme Disease. Took me a while to figure out what I can do, be it ever so little and only sometimes. Oh, and I cannot handle the atmosphere in many shops! Makes me ill real fast. There's where I had it the very first time. What condition do you have, that commonly co occurs with POTS?
This is exactly what is happening to me after long COVID. It took two years for me to get referred to a long COVID clinic and there I had to advocate for myself that it was POTS. My visible arm band is the only way I got diagnosed.
@@gregg5958 it’s an arm band you wear it records your heart rate. Pots is a condition where your blood pools in your legs and so your heart beats faster to overcompensate leading to fainting, falling, blacking out, etc. most doctors will call female patients “anxious” instead of investigating and the wearable arm band that records my heart rate (visible arm band) was showing that when I sat up or went to the bathroom or anything my heart rate would go up 30+ or 40 sometimes 50-60+ beats a minute from lying down which is abnormal. If anything else is confusing I’d love to answer!
@@Tf03 Ah okay…it was the “visible” name that was confusing me and making it sound like you had some sort of visible banding showing on skin. Now I understand!! Thank you! 🙏
I've had a heart murmur (floppy/leaky valves), skipping heartbeats, low blood pressure and bradycardia (slow heartbeat) all of my life. I ran track and field in high school and was in the US Army for 21 years. I have never been on meds. Just eat healthy and exercise. Do a lot of stretching too, otherwise you'll have all kinds of joint problems when you hit retirement age. I'm 59 and doin' just fine.
So Daniel, what on earth are you bragging about. One time having Covid or Lyme Disease the 'wrong' way, and nothing of your 'accomplishments' stand! How does someone, as IQ impaired as you, survive the military this long? Or is it just your total lack of integrity?
Of course you’re wondering that. And if somebody actually gave you a study that showed it had nothing to do with the vaccine you wouldn’t believe it. Because you want to believe that you were smart and everyone else was stupid.
For sure it's not you, keeping peace. POTS is often a symptom, that occurs after a person got a viral or bacterial infection. People with Long-Covid have it. People with chronic Lyme Disease have it. One could rather name such conditions 'Post-Infection Syndrome'. Those patients also have a long and wide range of other symptoms in common.
Anyone with POTS should look into thiamine deficiency. If it makes sense then I would literally run to grab some Benfotiamine, magnesium bisglycinate, B12 and a B Complex vitamin. If you have an irritated stomach lining with SIBO type symptoms I would be adding some zinc as well. Definitely ask for some lab tests but B1 (thiamine) isn't easily diagnosed as a deficiency.
I've had the same problems for a few years. My Dr. Was no help. It was ChatGPT that suggested adding electrolytes to my water, and eating more bananas, watermelon, and oranges. I still feel lightheaded in the morning but the electrolyte powder has really helped.
They ALWAYS blame it on anxiety!!!! This medical gas lighting is ridiculous!!!!!
Yes medical degreed people are cowards wilfully dismissing patient concerns, signs and symptoms. Getting paid to do LITERALLY nothing
@no_country_for_real_men Why do you think many engineering students drop out and switch to medicine? They are dumb!
Watch a video on TH-cam called covid survivors explain dysautonomia and listen to what they say regarding this comment
Yessssss
Doctors will even tell people who have cancer that their symptoms are "just stress" or anxiety and then they discover they have a tumor
I believe each and every one of my patients.
Doctors that ignore or disbelieve their patients' complaints are trying to hide their incompetence and lack of clinical insight.
Insight yes. What else could be a factor here?
one thing they are not hiding is how lazy they are. Getting paid to do LITERALLY nothing
They ignore, or they gaslight! I've been gaslighted so many times through the span of several years when no doctor could figure out what it was making me hurt so bad! And because they had no clue, they told me it was all in my head! God finally hooked me up with the smartest man I ever knew... He had 8 doctorates and was board certified in 5 of them! That means he was 8 times the doctor as any onee of those who told me it was all in my head! He had planned to go back for a mathematical doctorate when I was going to him, but he was 67 years old, stooped over with back pain and had a lot of trouble walking, and a fire broke out at his house. His lungs were badly damaged. He was recovering for the better part of 2 years. He lost his clinic and all his employees but his head nurse, who, oddly enough, came to work in my office as a nurse recruiter. I went right back to that doctor when he began seeing patients again in one of the rooms of a skin care clinic that was run by a younger doctor whom he mentored (for greater work than skin care). My doctor only lasted about 6 months before he died of complications of smoke inhalation. But not before giving me, and my daughter our final diagnoses... he knew when he first met me that I had fibromyalgia and chronic fatigue syndrome, and through the years I had him, he ruled out all the diseases that I could have had but one, so, by process of elimination, his diagnosis was psoriatic arthritis. I immediately went to a rheumatologist, but she couldn't find any inflammation markers in my blood... but 5 years later, there it was! My daughter had hypothyroidism, but the pills weren't helping her, and she felt like crap, too! She was seeing the best children's endocrinologist, but he had no further answers, and was planning on doing a thyroidectomy on her. Thank God I took her to my dr, who diagnosed her almost immediately with Hashimos disease, another autoimmune disease, and if her endocrinologist had cut out her thyroid, the disease would have attacked other things in her body! With Hashimotos, she needs more than just her TSH (Thyroid Stimulating Hormone) checked, she needs something else checked too... She has always taken care of it herself, being an adult when Hashimtos was diagnosed. Today, she tells drs what tests to run, and what the results mean, and how to treat her.
The really sad thing is that most doctors think that my doctor was a crazy, trying to help people with supplements, when he was the nicest, smartest man who was head and shoulders above all of them! But he's not the only super smart and nice dr God has gotten me to.... There have been 4! 2 have died, and I'm worried about my wonderful internist GP, but my pain specialist, who I think has his PhD in palliative care, is the only one I've ever met that never treated alll of his patients like junkies just because some were, he just got rid of them and continued to be a nice, compassionate man who wants to believe the best of us, but still has us pee in cups, just in case! I have never broken my contract with him and never will!
Computers have really created this in doctors. Insurance companies pay for the design of the medical software used today. If doctors and health systems want access to insurance money they use the programs. If the doctors and health systems want protection from litigation they use the software. The patient left the practice two decades ago and Obama Care implemented this take over by giving insurance companies total power over the cash flow of the medical industry. Notice how the doctors trying to operate outside the insurance system disappeared after Obama Care? The Insurance lawfare lawyers shutdown or "scared straight any Doctor fighting back. Remember the Doctor's speaking out during Covid and what happened to them!!!
@@AtTheBarn I think there's some truth to that because Obama use to be a lawyer for the insurance industry and he is the one that signed the Tort reform bill which essentially blocks patients from suing doctors for malpractice and people with medical degrees have been murdering people and getting away with it ever since and the insurance companies love it
We need doctors to actually listen to their patients. People have lost faith in doctors and the media.
Eastern medicine is the only way to go. Western medicine are a bunch drug dealers and butchers
Yes and what is the next natural step when people loose any use for something???
Yeah, got to LOVE the US healthcare system where you are required to convince the drs to give you the medical tests to prove you aren't a liar wanting disability, medication, an excuse for work or aren't having mental difficulties. I went to numerous drs with a list of over 32 symptoms and was told I needed to just exercise more. Found one dr that only took cash, no insurance and found out I had a thyroid issue, developed gluten and egg allergies, had an inflamed chronic gall bladder and another health condition that required surgery to save my kidney and colon. Medication, lifestyle and two surgeries that MULTIPLE drs over 2 years missed. When you have to convince a dr to run tests because the dr is going to get paid regardless of how well you do...dunno, sounds like systemic issue in the US. I was lucky to be able to afford a "boutique" dr and my health is great now but not everyone can do that.
@@JustTheTruth-Please I'm not as sick as most people and I can't go to various doctors for treatment anyhow. If the local doctor can't do anything for me and they will send me to a ton of specialists all over, then it means I won't get treated because I really can't go to so many places with a limping leg.
@@solangelalebron1348 Yeah, this country is about able bodied people working for businesses to make money for the C suite. I am so sorry you have to experience that. Hugs to you, friend.
I agree and POTS does disable people. It's so unpredictable.
Well I've heard people from Canada complaining because they have cancer and they can't get screening and they have to go on waiting list for 2 to 3 years to get things done
@@spoonypoon7998 "Heard from people", well, that sure does cancel out my using statistics and historical data, doesn't it? And how many kids in Canada did you hear about dying because their insulin cost was obscenely high so they ration it? And how many people in ANY other developed world go bankrupt as we do in the US? Check your facts, not your gossip. The US allows politicians to be purchased by big companies so they allow insurance companies, hospitals, pharma companies to all bleed us dry because both the big companies and the politicians (who get the BEST healthcare plans and an onsite dr/pharmacy at their workplace, both funded by taxpayers!) get rich from it. Don't come for me with Canada and UK gossip.
Yes…….yes…….i get this all the time……I also get chronic fatigue and there are days my joints feel like I was thrown down the stairs……..but feeling dizzy almost like your fainting……..god bless our health care workers who are really advocating for their patients and seeing the truth and helping us we are suffering and struggling
Thank you for this. Within a week after getting my 2nd Covid shot I started falling backwards several times a day. I put 2 and 2 together and refused any more shots. It took 6 months but I no longer suffer from vertigo.
Someone needs to be held accountable for everything COVID related. We were lied to for years.
Grow up
@ Your comment makes no sense.
trump
Do you mean from vax?
Was amazing
Wonder how many of these patients had the vaccine.
BOOM. The sound of that OTHER shoe dropping.
I wonder how many of these patients didn’t have the vaccine
Probably most of them. "Long COVID" and all that bs
@@Music2Desire I had two vaccines and then my blood pressure went up so high the doctor wanted to put me on medicine, which I refused. It took 18 months for it to come back to normal. No more covid vaccines for me.
@@librarynan4610 I was vaccinated 3 times. Absolutely no side effects.
Never trust these Evil people with your health
I had all those symptoms and went to a Naturopath. I was on multiple meds for gout, arthritis. IBS, ulcerative colitis, leaky gut syndrome, etc.... The naturopath diagnosed I was intolerant to eating potato's. I am now med/pill free. My MD doctor of thirty years told me naturopaths are quacks even though I explained to him "BUT I AN FEELING BETTER."
I was on 13 pills/day high blood pressure on top of it and injecting me with poison 5 years ago; removed 1 crucial thing from my life: stress. Retired, moved in the sticks and enjoy the wild. 0 pills today.
Thanks for sharing David.
I’m with you 100%.
Look into how the Rockefellers (John D) destroyed natural medicine that had worked for 1000’s of years, replacing it with his allopathic western medicine of today - dependent on pharmaceuticals to treat symptoms and not the underlying condition. 😮
That’s why the doctor couldn’t figure your issues out…not trained to.
Yes $ gets you power and control. It’s interesting history but will make you hate globalists…as they should be. 😊
He also screwed the educational system in the US. 🤦
The more you know!
Every doctor was a naturopath until Rockefeller started funding medical
Schools in the 1920’s and beyond to use drugs.
Hope you all having a good day today?
Thats awesome! Have several friends who swear by them! Glad your off the pharmaceutical’s
I was diagnosed with POTS in 2020 and Orthostatic Hypotension as well a while after. Likely not COVID-related but rather triggered by pregnancy and Ehlers-Danlos Syndrome. It’s been an adjustment. You don’t really stop grieving but it gets better. Salt, water, compression stockings, and meds don’t always help as much as they’re said to.
If you suspect POTS, log your blood pressure and heart rate in a notebook for a couple weeks before you go in and give it to them. Avoid a huge list of symptoms and mountains of papers right off the bat. With the way doctors think it can overwhelm them easily and make you look anxious. Ask questions and, sad to say but… sometimes getting a doc to think something is their idea is the only way to get them on board. Drop clues without jumping to conclusions or outright saying it. Also, nurse practitioners are usually better at listening and collaborating
This is so true because I was diagnosed with anxiety lol I should’ve written down my bp like you said. And yes, my nurse listened to me way more that the Dr did.
Same thing happened to whole generation after flu. Some, got some miracle medicine from japan - like my granny (it took months to get it, but…) and now she is 102, while rest of her family (grandad, mom of gra y…they all perished on different things caused by hearth failure - enlenagrment, hearth attack, holes….).
@@nightmaresturningoftendejavuewhat is the medicine?
It is also a side effect from multiple injection injuries.
Stop vaxxing sht head
Take a notebook with your questions and symptoms. Don't let them cut you off or dismiss you. Check off each question and symptoms. The "good" doctors will see you're serious and will take you serious if you do. I'm a 100% Disabled Veteran because until my wife sarted bringing a notebook with symptoms with date and times did they realize I had 24 hours to get surgery before permanent nerve damage but that was 6 month too late.
I shouldn’t be that hard for a woman to get help. Experienced the brush off before finally finding what was wrong…pancreatic cancer and a heart attack. Doctors need to believe patients when they say something is wrong.
Yes.Because America is still SOOO against women right?😂Men deal with the same thing.Get over it
@@James-f1h7h Yes, I think there is ample evidence that men in America still hang on to privilege over women.
@ There really isn’t any evidence whatsoever.Youre just a liberal looking to be a victim.All the women I’m around are either WELL taken care of or have jobs that pay more than the men around them so you can never persuade me if that nonsense yall keep trying to spread
@ Na really there isn’t any
More issues continue with Covid. Welcome to the new patients of this generation. Business is booming for Drs.
Big time
Better tha been diagnosed with polio or TB…such strange conspiracy theories about doctors.
@@wcwright44Unfortunately there will be an increase in polio, measles and other infectious diseases due to RFK influence on policy. Wait til these people lose their health insurance when Trump repeals the AFC, and he will this time around, and they can’t get insurance due to existing conditions.
@@wcwright44 Read Book. Rockefeller Medicine Men:Medicine and Capitalism in America. By E. Richard Brown
Are you denying people the right to make a living?
I am 67 years old. Back in 1979 I got mononucleosis. Anyone that's ever had that know that that is a pain in the butt to have and it can take up to 6 months to get over it. And that virus never leaves your body it just goes dormant. So let's jump to 2021, I caught covid pneumonia in February and I spent the month in the hospital. But I was never able to get rid of the fatigue that you get with it. But last year I went and found the doctor and he had a CAT scan right on me and a blood test run on me. He did not find anything particular in the CAT scan, but he called me and asked me have you ever had mononucleosis? And I told him yeah back in 1979. And he said well it looks like covid has reactivated that virus. He says you're not contagious it's just that the switch got turned on again and nobody knows if that switch will ever go off or not. So I'm stuck with this fatigue 24 hours a day 7 days a week and I'm just about 4 years into it. He told me there's nothing you can take for it and there is no cure for it. Unless somebody comes up with a way to get rid of that virus that causes mono.
It took me 17 years to get diagnosed with MS instead of anxiety. The medical gaslighting is ridiculous and it’s costing people their lives. I’m fully disabled now, because I didn’t get started on drugs early enough.
So sorry to read that. Indeed, the medical gaslighting is insane and it should be a crime!
im sorry
The sad part is that it maybe caused by herpes viruses left untreated. Carnivore diet will help. Dr. Terry's protocol got her out of bed and back to living a good life. Don't give up.
@@melissaseago536 Stop pushing your faulty agenda. This is also a form of abuse and ridiculous.
Thank you for bringing awareness to this! My 15 year old son recently was diagnosed and it’s been rough for him adjusting to this new normal. He has his ups and downs throughout the day.
I have had an issue like this, I’m a electrician/mechanic, every time I’m under a piece of equipment or automobile on my back and I roll or move around, I get very nauseous and dizzy to the point of throwing up, never had this problem before I had COVID!
I had this same problem for a while. Not to the point of getting nauseous, but felt dizzy when I turned my head, looked up or down. Definitely didn’t trust myself on a ladder. 72 hr heart monitoring didn’t show anything abnormal. Fortunately it slowly went away.
I was diagnosed with pots three weeks ago. My md team thinks it’s because of having a severe case of Covid. Best suggestion is lay down and put your feet above your head. It’s hard because I can have an episode at anytime. I had one at petco two days ago when I was looking at frontline for our cats. I wish other like me get the right diagnosis and treatment.
Compression socks work pretty well too.
My spirit doesn't even want to raise my leg not even a little bit. So I won't. I'll just wait for the pots to overcome me watching the potters house.
@@mrsjamessmom9044Not even a little bit do I want to wear compression socks.
Compression socks don’t seem to help. I wear them everyday day. I’m open to all suggestions, please. The only way we can learn truly through helping each others. General online education only goes so far. My doctor just parrots normal stuff socks and salt.
@@solangelalebron1348 Maybe a message that frontline & like products actually poison our pets.
POTS has been around for years. I’ve had it since childhood and I’m 60 years old. Tall, thin teenagers are particularly susceptible.
yes! POTS has been around however, it sounds like there's an increase in that diagnosis related to heart conditions with the uptick in covid and I can totally see why that is. Kind of scary to think the damage covid has the potential to do to damage the heart.
You might want to look at grabbing some Benfotiamine to assist with a thiamine deficiency. I'm guessing you might have had one since childhood. It seems to potentially run in families who don't pass along dietary habits that are high in thiamine and could also be passing along a reward seeking mood disorder like ADHD and or Autism. If you love sweets or intermittent fast or drink caffeine or have had chronic stress, you might want to check out what a thiamine deficiency is and what the indicators are that deplete it.
@@Nuggetsoffudge I actually take that, even though that has been ruled out for me. I can’t tolerate meat or high amounts of dairy, so I’m careful to supplement all the B vitamins and such. But thanks for the tip.
Almost 70 years old. Had POTS my entire life. I am a short, petite woman I was never a tall thin teenager. stop with that.
@ I said they were “particularly susceptible,” not that they were the only ones to develop POTS.
Pots can be caused by various things, viral injury, which causes automatic nervous system disorder. But not to be confused with pots caused by a traumatic brain injury. Is was first called soldier’s heart, then later efforts syndrome. Pots can be severe, they are not mentioning this, as gastrointestinal issues such as gastroparisis can occur with development of SIBO. You cannot exercise or condition yourself out of POTS. It’s more than dizziness, often your blood vessels are damaged and are not constricting to aid out your heart upon standing. Make sure you know what type of pots you have. She was correct no pots patient will ever pass a tilt table test. (Correctly done with isoproterenol)
That is the best description I've ever read. People sometimes don't understand that you cannot exercise it away. It can cause disability. I've heard of people committing suicide because it's so frustrating and disruptive to people's lives. I've had it for years and I also have the digestive conditions you mentioned. It's tough to deal with.
Autonomic nervous system. Meaning the the part of the nervous system that makes decisions for the body unconsciously. Many parts of the body are affected. When it goes sideways it is very difficult to navigate. This is POTS.
I have this now for over 50 years. See a good doctor that understands this condition. Salt, water, protein, mild exercise on floor to begin and with progress move to more if capable without crashing, sleep, know your limitations, take supplements to keep you immune system strong, and medicines to ameliorate symptoms. Most important people will not understand what you are going through, so protect yourself. It’s your body and your experience is real not anxiety. Good luck to everyone who lives with this! ❤
But patients with other forms of Dysautomia may pass the tilt table. It's too easy to think all Dysautomia is POTS.
@@breathoflifeacres939Between the GI symptoms and the erratic heart rate and BP, it's very disturbing.
@@Kris-ib8sn I was two points from the 30bpm sustained increase, but I was on a beta blocker that I cant get off of because i have prolonged qt. I was dismissed completely many many symptoms of dysautononomia including very labile extreme blood pressure flucuations. I was hung up on when I was begging the neurologist to please listen to me. She gaslit me said it's anxiety. Tech also noted all my symptoms during TTT (hot flash, tremors, dizziness, ect) and saw and noted moderate blood pooling in my feet. I was told this was all normalby neuro. My blood pressure was also very labile during the TTT.
The pots sucks hard. The vertigo was the worst.
I just started having symptoms. I slid down a wall to keep from falling, Scary.
@@mrsjamessmom9044LMAO!!!!!😂 Those are the kind of things the potter's house will make you do. Like the guy running around the church this Sunday like a crazed lunatic and nobody stopped him. That's like an insane asylum.
I had a bit of the vertigo after the iron infusion, but I am fine. I need three more months till I stop taking the Integra Plus, the iron medicine for the low iron. I hope my iron will go back to normal soon
@@solangelalebron1348Wtf is funny you ignorant mfer!
I think I have this. My sports watch keeps giving me abnormal heart rate alerts even though I'm an athlete. I'll get most of those alerts when I'm not working out. I've had to quit running again because of the symptoms. I'm worried about a heart attack. I also feel lightheaded and dizzy from time to time. I haven't been myself since catching COVID in Oct. 2019.
Get it checked out please.
Yep get it checked out. Could be having TIAs. Former Ironman triathlete living on disability now.
Same. Caught covid spring 2020. Long covid until 2024; just started last 4-5 months feeling more normal. Rare POTS & PEM lately. I’m so thankful to finally feel more normal. Lost stamina but I can slowly build back.
i was getting like a a-fib--ekgs and everything else checked out ok--i had 3 bouts of covid--no vaxx--finally one doc told me i might have a viral bug running rampant and it will go away eventually,viral infection in the heart--took 6 months--but it still hanging around but barely--the worst was the joint pain coming and going-joint pain 90 percent gone--a friend's daughter gave me a big part of it 18 months ago--and it will take probably another 6 months to go away--some people call it long covid but who knows? not even the doctors...
Same, I've run many marathons b4 covid, then i started having the same issues seen a cardiologist abnormal heart rythem besided that they found nothing. I take b complex magnesium, and turmeric helped. Also, ice or heat the back of my head helps a lot
postural orthostatic tachycardia syndrome
Thank you. Now I don't have to look it up. I didn't know what pots was.
I just got diagnosed with this a couple months ago. It's more annoying than anything. You have to be careful when getting up, wear compression socks, drink A LOT of water, increase salt intake.
@@krissnov9072 …and stop getting experimental immunotherapies if one does not have a legitimate condition that makes them susceptible to a bad outcome from the bio weapon.
I just took some cold medicine, and nausea medicine, when I got it last December. I was able to improve within a week as opposed to several weeks or months.
I also didn't receive the vaccine or anything from Pfizer. I threw the Pfizer medicine in the trash soon as I seen it in my prescription bag.
I was doubted and not believed for years by almost everyone, until I finally ended up at the Cleveland Clinic. I was diagnosed with Hyperadrenergic POTS in 2016 by my Neurologist Dr. Wilson. This disease is a nightmare that I would not wish on anybody. It is a sister disease to MS as well. Many POTS patients go on to develop MS and many MS Patients also have POTS. Thankfully people are finally starting to become aware.
I have MS. POTS was my first symptom over 20 years ago. I had a bunch of tests run, but no problems were found. Instead they offered an SSRI. 🤬 At least they ran a bunch of tests before offering that. Now they would just offer SSRIs or some kind of gas lighting.
Back then (early 2000s) I ended up self-diagnosing POTS and treated myself by switching to only drinking water & the appropriate amount (gave up juice or soda) and use sea salt. Prior I did not use salt in cooking or eating at all.
Additionally, over time I started using electrolytes in all of my water. No flavor just electrolytes. I haven't suffered from POTS for years. Still developed MS though.
POTS seems to be related to a lot of auto immune disorders, not just MS. It is also very common in EDS patients as well. I suspect hEDS or hypermobility syndrome. Definite connective tissue problems. Totally sucks. I've been able to avoid COVID thus far. But I likely won't be able to forever.
@AndreaCrisp Oh wow, I''m so sorry about everything you have gone through 🥺💖 I have hEDS as well, and I'm having more and more orthopedic problems from that, the combination of the two diseases is really awful. Thank you for taking the time to reply, I hope that you can continue to avoid covid and that you are able to find treatment and relief of symptoms for your MS ❤️ Stay strong my friend
How the hell you can recommend gatored to drink? Here is the list of ingredients"Water, Sugar, Dextrose, Citric Acid, Natural Flavor, Salt, Sodium Citrate, Monopotassium Phosphate, Gum Arabic, Sucrose Acetate, Isobutyrate, Glycerol Ester of Rosin, Yellow 6." Do you need electrolites,drink coconut water!
She needs the sodium to help keep her blood volume up. She knows what she needs and her doctor advised. Don't presume to know better.
Too-girly Ha ha Gatorade is healthy right? Maybe some coca cola and McDonald's for recovery 😂😂😂
I’m really surprised that doctors and sports professionals recommend using Gatorade. They must get kickbacks because it’s not good because of the additives and sugar. Coconut water is good and also apple cider vinegar with honey in water is better.
Gatorade's formula has changed quite a bit since it was first developed by a biochemist working with the U of Florida football team. It moved away from electrolyte replacement ingredients to sugar and flavoring. Some folks like me find it nauseating, its just too strong. A little salt and a little salt substitute (potassium) mixed in plain water and I'm good.
@@Mick698Iced Tea 😂
And did they get the 💉? Mhmm
Safe. And effective.
Crimes against humanity
@@xstorm_8_shadowx Nuremberg Code 2.0
Fauci should be in prison for treason and crimes against humanity
No one ever said the virus was safe or effective.
Even for pregnant women!!
I have POTS. I am a member of a support group. Many members had their onset after Vaxx or boosters. It's debilitating to many of us.
Every person who I personally know who have had it ‘not pots’ but the preventive shot have been ill more than once!
Those who haven’t had the treatment have not gotten ill.
Sorry for the vague description, but that’s where we are today!
Good thing for the vaccine 😂 you probably had covid after anyway.
I would suggest reading Doctor A.r.d.i.s’s book…no periods in the name. Don’t want to trigger anything🙄
@@Adam-gm5tm same here; everyone I know has been ill a few times after "prevention", as well as developed other issues, vs those who haven't partaken of "prevention" and have never gotten ill or have been ill just once.
Oh no I dont have POTs I am just an older woman being paranoid, I just need to take care of myself better. 🤨
There are many medications which can deplete your blood sodium levels as well! Which can be much more prevalent in the elderly. I believe anti-depressants are a big one for sodium depletion. Most (if not all) anti-depressants are derived from anti-histamines also, which can sometimes cause delirium, or dementia-like symptoms.
It's also difficult to stay hydrated when you're older. I've heard that adding a few granules of celtic or himalayan salt can drastically increase the body's ability to actually absorb water and keep you hydrated. Chronic dehydration can lead to kidney issues. However, too much salt intake can cause swelling of extremities, and all sorts of other potentially serious issues. It's all about balance!
My older daughter caught Covid in 2021, and she developed symptoms of POTS afterwards. She wasn’t diagnosed until 2023, and that was after a prolonged battle to find doctors who would even _listen_ to her, much less do the testing that ultimately confirmed it! She’s now on medication that will (hopefully) control the symptoms, and she’s determined to live as normal a life as possible-she was very athletic before this all started, and she refuses to let having POTS slow her down!
Hmm what medication has she gotten for it. Were using socks and physical therapy.
Oh my goodness - this sounds like my daughter 😢
Can I give some advice? I've had this for 20 years. Fighting against it and pushing herself will make things worse. It's more helpful to listen to her body and slow down when the symptoms hit. A lot of people cannot do that because of family or work obligations. Exercise helps but not the kind of Exercise that most people do. See a physical therapist, reduce stress, avoid caffeine, check all her meds to see if they have side effect of low BP, be sure not to get dehydrated especially when she has diarrhea, meditation, gentle yoga ( not the kind where you get up and down. But Seated on the floor or in chair. Acceptance is key to getting better.
Vaxxed?
Vaxxed and boosted! Unfortunately, many of her coworkers at the restaurant where she was a server were not.
Have any cases of POTS been diagnosed in un-vaxxed adults or children?
Nope
My wife is unvaxxed and has terrible Pots after Covid. Days of being bed bound due to dizziness and fainting
@@benlawson4640 Bot
@@benlawson4640 Lies
@benlawson4640 Pics or it didn't happen
My daughter had Ehlers Danlos Syndrome and chiari malformation, which are genetic conditions. She suffered with POTS as well. She passed away in 2016. I have started having symptoms of POTS as well. I have a connective tissue disease and a couple of autoimmune conditions. I hope the doctor is ruling out the connective tissue connection on these patients and well as post covid.
Hello from a fellow zebra! Lots of love for you, your daughter’s legacy. ❤
MCAS
@@SideB1984 Oh thank you. I love finding other zebras! I hope you are getting the care you need and deserve. Much love back to you and your. I miss her every day but I try to educate people when possible with her story and now mine. Both diagnoses were scary and nobody really knew anything about either. I found people who knew more than doctors did at the time so I help newbies navigate and how to advocate for yourself or a loved one.
@@couch-m5j You know that is the one comorbidity of EDS that my girl didn't suffer with, my niece however has crazy mast cells with her type of EDS. It's crazy all that cones with an EDS diagnosis. (gentle hug)
@@mrsjamessmom9044 Very nice to meet you, and thanks so much for the advocacy efforts, a beautiful way to honor your daughter. Were you just diagnosed as well? I got support for the immune deficiency with infusions finally at 36 but not a lot of help from cardiology or neurology with POTS, and they looked the other way with TIAs and myocarditis from vax injury. PCP is caring and fights for me. Endocrinology helps with adrenals but doesn't understand my HPA axis issues well enough. Pain mgmt is hard since they won't learn about the med processing issues we have, learning how to help myself more on YT than drs or PTs. And therapists and DO drs like to blame us! "Just heal yourself and your tissues will heal." I had a time with SSA getting SSDI, and my employer was terrible, still retaliating through their long term disability carrier any way they can. I started filing board complaints now when I am gaslit. Truly hanging in there best I can! 💜
I am seeing a lot of comments pertaining to gaslighting so please note this: Multiple sclerosis (MS) and postural orthostatic tachycardia syndrome (POTS) are both conditions that can cause orthostatic intolerance, fatigue, and anxiety, and are more common in women between the ages of 20 and 50. POTS is more prevalent in people with MS than in people with orthostatic intolerance but no neurological illness. POTS can develop years before an MS diagnosis, or as part of the autonomic dysfunction associated with MS.
YES - freaking dizziness is a drag.
When U faint with pots your heart actually stops so yeah it's a fkg drag ding dong
I suffer from this but was told it was vertigo. Sent me on my way & no medicine. Its horrible
You can develop POTS after numerous diseases. I developed POTS after being diagnosed with lyme disease after severe fatigue for two years.
Same... they still continue to ignore lyme and call us crazy
Yep, also got POTS after chronic Lyme Disease!
I have it since kindergarten. I'm 58 now. Got my diagnosis in 1999. Have been on meds since. I am blessed to have Dr. Blair Grubb from University of Toledo Hospital in Toledo. He has written textbook on the subject. I encourage anyone suffering to seek him out or any healthcare professional. Pots is part of a larger disorder called dysautonomia.
Agreed. What meds do you take?
@too-girly propranolol and methylphenidate. I will eventually be getting a pacemaker. But the meds have worked well and I will do that as last resort. I have resting heart rate in 20's the methylphenidate increases it and the propranolol increases the strength of heart contractions, or push of blood out to body
how do you get your doctor to test for this? i have a lot of POTS symptoms and the doctors just keep checking my blood sugar and thyroid
You need a tilt-table test from a cardiologist.
If using salt, please use a fully mineralized product like Celtic Salt or Baja Gold. Also, you may want to hear Barbara O 'Niells' suggestion on how to use/injest the salt in the mouth before drinking water throughout the day. Of course, only follow your healthcare providers directions.
Just putting this out there, some of the "healthier" varieties of salt have shown to have larger amounts of heavy metals like lead, cadmium, arsenic and mercury. Obviously more testing needs to be done and from different sources but I'd recommend staying away from the brands you just mentioned in the meantime
Love Celtic salt it does not give me chest pains like Morton’s table salt at all. I also put a pinch under my tongue and drink a lot of Good water throughout the day! O’Neill is the TRUTH! No doubt about her❤❤❤❤
Redmonds is a good 1.
That's what my Dr says. She drinks water with salt in it everyday.
The jab! The gift that keeps on giving.
Not the vaccination! The disease itself !
Definitely Maga there!
@beckysartor definitely not a goofy leftist liberal 🙄
@Kelly-yx9tn I'm definitely not a rude, bully maga.
FINALLY! Many “post viral illnesses” can cause POTS, not just COVID. I’ve had POTS since 1991 after a wicked bout of Epstein Barr Virus. Years later I had to figure it out on my own since NO conventional MD’s had a clue & told me it was all in my head. 🙄 I also had to pay for years of functional medicine care which cost a fortune.
Try lysine
@ so true, I’ve been taking lysine for years now.
@@wendylpa did that help ?
@ It likely helped keep the viral load down. But what helped the most was fixing my gut health & improving sleep. I still have some ‘post exertion malaise’ - meaning I have a bad reaction to moderate/intense exercise. Like I’m literally allergic to it…ha. I’m fine w low impact exercise but anything more intense WILL trigger flares (that can last for weeks). But I’m also battling histamine/DAO issues which can cause similar symptoms.
@wendylpa hmm. I have been doing the carnivore diet for the past 2 years .. helped a lot with my gut .
Was it the Rona or the ouchie???
Kaiser Oregon refuses to diagnose me. I ended up with a rare Takotsubo heart attack in the emergency room because they didn’t take my dehydration seriously.
Is this a disorder thats popped up after being vaccination?
Report clearly says she had Covid.
It's been around long before COVID or the vaccinations
@@trildia lot of people had Covid and still took the arm ticket.
@ I don’t believe that for a minute. I see research to the contrary you need to dig deeper.
funny how people can have "long COVID" but mention you haven't felt right since the vaccine and you get shut down by doctors. I'm so fed up with the medical industrial complex. My pain is NOT in my head. Doctors get paid regardless if they help people get well and that needs to stop.
We're just addicts in their mind.. 7 million out of 10 million pain patients have had our pain meds ripped away from us. The overdoses skyrocketed in 2016 because that when the mandatory cut off started, sending patients to the streets to get poisoned instead of treated like a patient by their doctors.
Try black seed oil,serrapeptese, nattokinase and NAC. Research it yourself
I haven’t had the vaccine and still have issues. So to blame vaccines for things while ignoring the illness itself is just wrong. There can be many causes.
I'm vaxxed to the hilt and never had a reaction.But that's just me. I know several people who had such bad reactions to the vaccine that they decided not to get any more. Doctors need to listen because not everyone reacts the same way. I hope you find the care you need.
@gregg5958 I'm sure you have had the covid vaccine.
In fact I would bet on it.
We were given junk and now we’re suffering.
People need to be held accountable.
I wasn't given junk because I didn't go get the vaccine.
I'm not suffering anything.
Yes, the ubiquitous "they" must be held accountable, for everything.
Bad teeth, inflation, lack of affordable healthcare, lack of good paying jobs, lack of housing, poor education, racial injustice, homelessness, superficial values, everything we hate.
I bet betty is fun at parties…
What junk were you given, how are you suffering, and who's fault is it that you're suffering?
I developed CRVO, but regained my sight 5 weeks later.
I feel seen! Diagnosed with Pots after developing symptoms literally the week after i tested positive in 2021. Have never had these issues in my life until i got covid.
I had Covid and have gotten lightheaded passed out. I get high blood pressure. And positional BP problems
I’ve had Covid twice. I see spots more than ever now and irregular heartbeats
As part of the Ehlers Danlos community maybe we will finally get more attention.
Yes. We need Celtic, Himalayan pink, or Sea Salt 🧂 with minerals NOT 🧂
One of my children and I both developed POTS after having Covid.
Did you both get the Jab though? Just curious....my whole Family got Rona in the 2nd wave of it and we still didn't get the jab. I know multiple people who got the jab and they seemed to get covid more....we only all had it once. I'm not anti vax just anti NEW untested unproven vax.
@@waynesmith6325 Nope. We got Covid in 2020, before the vaccine was even available.
And I would agree that our friends that got the vac and boosters came down with Covid quite a few times. Our family has had it twice. Once in 2020 and one more time in 2023.
I have been feeling dizzy for so many years, one minute I’m fine and other I need to lay down, feel unconscious, I have neck pain for so many years. I had trouble explaining to my doctor. All my blood test reports come good.
I have had POTS for many years. I feel so sorry for Covid patients who get thus. Its so disruptive in soneones life.😢
Yeah blame COVID and not the vaccine..........
Most of the people suffering, especially from long Covid are the ones who decided against vaccines. They were the ones who knew better than anyone.
45 tried to convince people that Covid only attacked people he didn't like - you know, Dems. Yet the highest death rate was among Trumpers.
3 out of every 4 deaths were of males. The demographic most opposed to seeking medical help.
But seriously how in the hell would you even know? Please enlighten us with your profound wisdom🙂👍
Yes, blame the thing that actually caused the problem. Not the thing that you wish had caused the problem so that you had proof that you weren’t a fool
My daughter developed severe Pots after the second vaccine, she had never had Covid.
@
Never exposed to Covid?
How about other viruses. It’s not specifically tied to Covid.
And most people have had a couple of dozen vaccines over their lifetime. Are you or are you just pretending it’s one of the three different types of Covid vaccines?
Thankfully with Covid, POTS is getting more attention. It’s amazing that more people have POTS than have MS but a lot of doctors and people have never heard of POTS.
IV had it since 1970 only just discovered the name for it thru a young friend with medical problems. IV just live with it cause by accident nerve damage in foot.
The vagus vein cuts out heart stops U faint heart slowly starts pumping again.
Ive had issues since the 6th grade too. I feels like it has gotten worse since i had covid!
I had pre-existing POTS, which got worse after I got Covid. Only mild leg exercise was called for due to other health issues, and as usual for POTS standing and slow walking exacerbates tachycardia symptoms. Medication didn’t work. Now I need a wheelchair to go to medical appointments. Anyway, POTS is an example of how even a short acute Covid infection can leave you with serious lifelong symptoms.
The cardiology test referred to is a Tilt Table Test, which is very expensive and may not be available to everyone. An alternative is an in-office test that primary care providers can offer, called the NASA Lean Test, which has been validated in a small study for Long Covid as well as other patients. The Bateman Horne Center has information in their article “Why the 10-Minute NASA Lean Test?”
Why is a Tilt Table Test so expensive where you live? It's a simple and short procedure. Shouldn't even cost a few hundred bucks, including the personnel, incl. everything.
@ have you ever had one? A few hundred dollar IS expensive. In Seattle, it required two visits with a cardiologist, pre and post, plus a procedure with a technician and a room full of expensive equipment. I don’t recall the cost as I had it 20 years ago, but most definitely not cheap. A NASA Lean test costs only what you pay for one non-cardiologist doctor’s appointment and equipment required is a blood pressure gauge and finger pulse gauge.
@@roxyiconoclast Yeah, I had one. In Europe. Didn't pay a cent, for we are all insured by law here, but was done quick and easy.
Compared to many other things they ask money for in the USA a few hundred dollars is crazy cheap there. That system is broken so badly.
@ yes, it is crazy over here! Long ago I stayed more than a week in hospital as a student in France and paid nothing. 😊 In the US, serious hospital stays frequently bankrupt people.
Since I didn’t recall the charges for my TT, I googled and found this 2009 post on a dysautonomia chat board: “I can give you exactly what it cost me and i have BCBS [large health insurance company]. $2698.00 for test. $1888.60 hospital charge. $686.00 to read it. less ins[urance] my actual charges equal-$2105.54” Yikes.
Is this from the jab?
No my son and I ended up with permanent vertigo after having COVID.
Yes it is
Spike proteins have multiple symptoms?
pots can be caused by an injection, but it is mostly caused by a viral infection, such as covid. why are people so stuck on “is it the shot?”! it’s been known to be caused by viruses for ages.
Indeed!
Unless you're one of the millions in America without insurance, then you're screwed.
How many of those people took the jabb?
Most people get a high heart rate. Mine plummeted to in the high 30s resting. I’m an extremely active person so it’s always been a bit lower around 50. I can say mine was not from the vaccine. When it happens to you it is easy to pinpoint when it started and mine started after I was infected with covid. Florinef was the only thing that helped. And she’s right! You need to advocate for yourself. It took fighting my way all the way up to chair of cardiology before I got any help.
After I had COVID my blood pressure went crazy.
My mother had covid in 2021 now she has myasthenia gravis a neuro muscular diease😢
I have a friend who also developed myasthenia Gravis after contracting covid. She is not vaxed.
Told I had anxiety for past 4 years, constant congestion and tired. Stopped taking meds, and replaced with Shunghite water and Celtic salt. No more congestion, no more tired.
Having POTS is rather expensive.
Why. Don't cost me a cent having it.
Since the pandemic or since the vaccine?
I have been having pots for 18 years…its not fun😢 I have had crazy spells over the years
I've had a fitbit since 2017 and have always had a sorta fast heartrate and low blood pressure, but after covid infections it can feel worse than usual for about 3+ months after. I've never been on a tilt table but i remember my heart was racing when i was doing very light yard work in april 2020. Then i had to go inside and sit down, and i was only 29 then. Its gotten a bit better but i always will probably have to stay well hydrated, get healthy sources of salts and Not stand up too fast if i was sitting down low, near or on the ground.
Keep getting you covid shots. Safe and effective......
Sarcasm ?
You,think🤣
@@joenewman6494 yes I do
You.should try it some time . Lol
@@patrickcoughlin-qj9uk I do all the time. I don't listen to tv "experts" or the government. I eat tons of animal foods and animal fats. Can count on one hand how many times I've been sick in the last 15 years. No doctors. No meds. No jabs. During the "pandemic" I never wore a mask, never distanced, never got sick or jabbed, while everyone else around me got sick and jabbed all the time, while wearing masks and distancing. I must be doing something right😁
Natokinase,bromelian, tumeric for 3months minimum.
Who took shots plus boosters? I am curious if there is a correlation.
My brother did and he now has the shingles every few months. My brother in law did and now has boils that won't heal.
@ I’m so sorry to hear that. Same with a 21 yo family member… Shingles.
How many POTS patients got the shot?!?!
I had spells months after I first got COVID, I would get warm and everything would go black for a few seconds, luckily it went away after about 6 months but it was scary because it would happen while driving
It’s due to the shots, not “infection.” We’ve been seriously lied to by healthcare.
Do you know all these people had the vaccine and not the virus?
I got it from covid. No shot here.
I never had covid
And I never got any covid shots.
No, it's not. Quit spreading misinformation.
@@cyn4476
Your comment reads very familiar like the comments I read about the vaccines.
Ppl said the same thing.
I had POTS after Lyme disease, luckily it went away within 18 months. I also have EDS and as a kid I had MCAS, which are related to POTS. It was terrible though, I had flares all day long, I could hardly move and going up and down the stairs was awful. My house became so messy because I couldn’t bend over to pick things up
So they gots POTS from C19 and not the arm pokes....riiiiiiight
EXACTLY
Yep. They never ever mention vax status .
💉💉💉💉💉💉
You realize you can get POTS from having had covid, right. Covid doesn’t go away, just keeps trying to infect a new organ.
vax status should always be mentioned from this day forward on anything health related.
Iv had PVC'S for along time but never had Tachycardia before I had Covid in Dec 2019 sine then Iv been in the hospital I think 4-5 times with it, I just have not been the same since Covid in many areas like memory for 1,dizziness, headachs, Tach, no energy, etc
Me, too..................
No vaccines here but two rounds of Covid. All these symptoms since last round. Grey Celtic salt, bleu salts, electrolytes and compression socks. And yesterday got prescribed a cpap because my o2 drops to the low 70s over night and heart rate drops below 30.
That low of heart rate better get to the heart Doc asap, just saying. Wish you the best in getting better!
@@tinahunter8453 was just there yesterday. ❤️🩹 hence the cpap machine.
I will call bs on you not taking a shot for covid.
It's funny how many are on this comment section saying they never took and shot for covid.
Bull shit.
@ call bs all you want. There are some of us that just didn’t believe in the too good to be true vaccine.
@@sportgoofy1975 nope and I don't do the flu shot! Not everyone out here is a liar sir
I was diagnosed after the "pandemic started" with POTS, however, I didn't get covid for the first time until many years afterwards. I actually have another condition that POTS commonly co occurs with. That is why I wear a smart watch these days. It helps me know when my heart rate is off.
Such a thing work for you? I get ill within a minute. When I am unlucky, I might feel I'm dying for minutes. When I'm lucky I start to vomit sooner and pee myself completely and that works as a reset button. In most cases I feel totally drained and ill for just one day. In super bad cases this lasts for two days. But since I've had it so often, I also know what might trigger it. For me, I of course have to be careful with getting down and up, but Also I have to keep myself very well hydrated. Don't know if anybody else has that too. My mouth gets totally dry as sort of a warning sign (even if I already drank a liter of water and milk that day). When I drink another full glass of water, I can stave off an upcoming POTS attack most of the time, when I also stop doing what I am doing. When I return to doing what I am doing, the POTS will come later on anyway. I've had it for almost 13 years now, starting with Lyme Disease. Took me a while to figure out what I can do, be it ever so little and only sometimes. Oh, and I cannot handle the atmosphere in many shops! Makes me ill real fast. There's where I had it the very first time.
What condition do you have, that commonly co occurs with POTS?
POTS or CLOTS?
or STOPS..
Yep...
This is exactly what is happening to me after long COVID. It took two years for me to get referred to a long COVID clinic and there I had to advocate for myself that it was POTS. My visible arm band is the only way I got diagnosed.
Visible arm band? It left a mark on you?
@ it didn’t leave a mark, it helped me a bunch to get a diagnosis
@ Okay, I don’t understand the visible arm band part then.
@@gregg5958 it’s an arm band you wear it records your heart rate. Pots is a condition where your blood pools in your legs and so your heart beats faster to overcompensate leading to fainting, falling, blacking out, etc. most doctors will call female patients “anxious” instead of investigating and the wearable arm band that records my heart rate (visible arm band) was showing that when I sat up or went to the bathroom or anything my heart rate would go up 30+ or 40 sometimes 50-60+ beats a minute from lying down which is abnormal. If anything else is confusing I’d love to answer!
@@Tf03 Ah okay…it was the “visible” name that was confusing me and making it sound like you had some sort of visible banding showing on skin. Now I understand!! Thank you! 🙏
Are they vaxxed?
Not to be confused with Vertigo. Excess salt will set off vertigo... like a horror story.....
Ones have developed it after getting vaxxed as well.
Cause your cousin's girlfriend's mom's brother saw it on the internet, it must be true.
I've had a heart murmur (floppy/leaky valves), skipping heartbeats, low blood pressure and bradycardia (slow heartbeat) all of my life. I ran track and field in high school and was in the US Army for 21 years. I have never been on meds. Just eat healthy and exercise. Do a lot of stretching too, otherwise you'll have all kinds of joint problems when you hit retirement age. I'm 59 and doin' just fine.
So Daniel, what on earth are you bragging about. One time having Covid or Lyme Disease the 'wrong' way, and nothing of your 'accomplishments' stand! How does someone, as IQ impaired as you, survive the military this long? Or is it just your total lack of integrity?
Just wondering if they all got the jab.
No..They had Covid. The doctor said it. It's one of the symptoms of long Covid. My 33 year old had it after having Covid after not being vaccinated
Of course you’re wondering that. And if somebody actually gave you a study that showed it had nothing to do with the vaccine you wouldn’t believe it. Because you want to believe that you were smart and everyone else was stupid.
From COVID or the COVID vaccine?
How many had the arm ticket?
Important coverage. Thank you.
Shocker (said with sarcasm), gee I wonder why countless people are experiencing such weird symptoms.
For sure it's not you, keeping peace.
POTS is often a symptom, that occurs after a person got a viral or bacterial infection. People with Long-Covid have it. People with chronic Lyme Disease have it. One could rather name such conditions 'Post-Infection Syndrome'. Those patients also have a long and wide range of other symptoms in common.
I got mine after a viral illness, a stomach bug, in late 2019 :/
My sister had covid. Had cancer. Died. I had cancer and then cancers.
Anyone with POTS should look into thiamine deficiency. If it makes sense then I would literally run to grab some Benfotiamine, magnesium bisglycinate, B12 and a B Complex vitamin. If you have an irritated stomach lining with SIBO type symptoms I would be adding some zinc as well. Definitely ask for some lab tests but B1 (thiamine) isn't easily diagnosed as a deficiency.
I take all lf those supplements for other reasons and it doesn’t help my POTS.
Pots may be due to many deficiencies. Stay informed!
I've had the same problems for a few years. My Dr. Was no help. It was ChatGPT that suggested adding electrolytes to my water, and eating more bananas, watermelon, and oranges. I still feel lightheaded in the morning but the electrolyte powder has really helped.