I have a friend who may be able to send me some Primark undies to try. Would you be interested in my reviewing them compared to some other brands? I have since had a response from Primark, that I shall share in my next vlog. I am also off to BBC tomorrow to discuss the issue with Primark’s adaptive line. Watch this space.
I’m not surprised at all that they are not in many or all stores. Primark has a habit of only releasing their ranges in very select locations - I used to live with 6 stores in a 45min - 1hr driving distance (including several large locations) and I was lucky if 1 had been sent the releases. I have purchased a pair of accessible period knickers from a dedicated brand that used a bra strap type closure on the hips/waist. They worked very well as period underwear (and I have very heavy flow), though were a little pricey if I hadn’t bought them on sale, were easy to get on and off - but the hook and elastic loop was fiddly when I was having issues with my hands. The main problem I have with them is that because it is one size/adjustable and uses basically a bra strap it can chafe and get uncomfortable if they aren’t sitting in *just* the right spot.
I’ve just looked up the Primark bras as I need a new one and I’ve had some trouble with my usual M&S ones. Not only is my nearest shop with stock in Edinburgh (over an hour and a half away in a place which is notorious for not being easy to navigate in a wheelchair), but there aren’t any proper bra sizings! I have a small, slim ribcage but unfortunately quite large boobs, so I have no idea which (if any) of the stated sizes will fit. Do I buy S or M because of my chest size and find it doesn’t fit on the cups, or buy an XXL hoping the cups are right and find it all falls out through a chest band four sizes too big? I’m SO disappointed - this hasn’t been thought through or implemented well at all!
@@VolkletI'm exactly the same in terms of bra sizing (32G), and my immediate thought was that there was no way I'd be able to buy these because of cup sizing. I'm so disappointed to hear that they aren't even doing proper sizes. Maybe something for them to consider going forward?
That response from Melbourne Airport is unacceptable. I have worn an insulin pump for 15 years and a CGM on and off for the last 5. I have flown domestically in Australia and internationally (including to countries where English was not spoken by airport security) over a dozen times and I've never had anyone ask me to take off my devices. It's unfathomable that airport security aren't plainly aware of medical devices and what to do when they encounter them. I hope the family are well compensated.
My mom had the Dexcom continuous blood glucose monitoring system like Angus has. There is a part of the sensor that is reusable during the 90 day supply kit you take it out when you change the sensor every 10 days and put it back in the new sensor when you change it. My mom was in the hospital, and the MRI tech removed the sensor and tossed the whole, including the transmitter into the sharps container. It was part of a brand new supply, meaning her insurance wouldn't pay for another transmitter for almost another 3 months. Which meant 3 months of doing the pin prick method on my elderly, nearly blind mother who had neuropathy in her hands, ( she only had a few fingers that I could get good blood samples from). Fortunately since the hospital staff discarded it, the hospital paid for a new transmitter, but it was difficult to get a new one, lots of paperwork, going to a different pharmacy than the online company that we usually got her supplies shipped from. And most importantly of all, the hospital issued a policy change, that if the CBM sensor has to be removed, it is to be placed in a small container and given to the patient/family, NOT THROWN AWAY
Oh yes, I had an airline staff person joke about my power assist motor unit that hooks onto the back of my manual wheelchair when we explained that we had been granted an extra bag of free carryon allowance for it. The joking comment was dismissive and assumed that the power assist was little and cheap. It fell flat. We had to correct the guy that it's not funny because the chair and power assist cost more than a new car. It was offensive to have our equipment treated as a cheap off-the-shelf optional things and not as the expensive, custom-prescribed, life-changing, essential supports that we need to function at the same capacity as people without disabilities. That was Melbourne airport too.
A few years ago, when I could still walk a little, I used a scooter. I left it outside a friend’s flat and someone stole it. I have stood for Westminster once and for the Scottish Parliament twice. The Scottish Parliament has only two openly disabled members out of 129. My party has decided to aim for one in ten of our candidates to be a person with a disability. It’s a modest aim, but the real difficulty has been the shortage of applicants for the role of candidates.
i wonder if you include only physical disabilities in that, or if you include invisible disabilities, neurodivergence, or developmental/intellectual disabilities… just wondering what disability diversity and inclusion means in this instance. of course, i would assume you’d still want the candidate to be highly qualified but what level of disability would be enough for you to say you’ve reached that inclusion or representation goal? what level (if any) of disability would be too high or too low to be included or considered?
@@00zarzu00 The starting point for recognition under the Equality Act 2010 is a self-determined dysfunction of a year, after which it is permanent. A diagnosis is probably a useful adjunct, to set context. A major concern is the near total absence of real knowledge of high-functioning disability at an academic level, as most of it is based on prejudices in thee educational establishment in the 1970s, resulting in the current impasse between the community and Simon Baron-Cohen, caused by his eugenics intentions. Under the last Government, there was a proposition from Dominic Cummings (see his blog 3 Jan 2020) to recruit "weirdos and misfits" (ie the NeuroDiverse) to guide policy. This may well have been inspired by my own activity not long before, when I struck a deal overnight in a matter of strategic sensitivity which has greatly benefitted this country - what went on behind the scenes is that I already had a considerable reputation as the crisis management economist in the EU's Common Foreign and Security Policy service, and so was diagnosed with hyperperception, insofar as I'd had a heads-up from my spidey-senses six months earlier, I'd spent the next four drafting a policy paper, so when a foreign potentate asked the question at 0200, we were straight back with the answer at 0830, winning the deal by 0900. This was in full view not only of the shrinks, but also half the Cabinet! The result was the Sabisky lynching, and I'm currently watching to see if there actually is a need, or if it was simply the First Division, the Heads of the Civil Service, quiet quitting. To my mind (which is probably genius, per Craig Wright, the Head of Yale's new Genius School: my case was in his own speciality area!) we first need to define from the inside what NeuroDiversity looks like. It's been the happy hunting ground of Paracelsian Psychiatry for far too long. You'll find me on NDSA org, I was on the Gifted subreddit but left when it became clear it was being run by an AI, which was attempting to impose NT norms.
The tennis story connected strongly with me. Im an ambulatory wheelchair user and used to play wheelchair basketball. I after stopping due to injuries, i became interested by the referees so i spoke to someone at Disability Sport Northern Ireland and they got me trained as a ref. Thing was though i dont have the physical ability to run like my abled bodied ref colleagues so i began using a sports chair. After many years of saving for a chair i bought a custom rgk sports chair with referee embroidered on the backrest. Been refereeing for 16 months now and i love it. I dont know of any other wheelchair using refs Bar 1 who works for bwb.
@@Wheelsnoheelsyou might be able to find someone to make an embroidered pouch to slip over your backrest, made to measure. I’ve got personalised handlebar covers for my pram, I don’t see why a company who make those wouldn’t be able to whip up a cover for you if there isn’t already a business specifically for wheelchairs that offers this!
Another great video! I am not on the UK however I would be happy to have you as an MP for the disabled (I disabled)! Glad to see children breaking the rules of normal to be a part of the world that is there if their want it! The pump story that was sad 😥 stupid people!
Our disability representative in government essentially being the DWP minister isn’t ok. There is nobody to counteract disability benefits cuts, or disability decisions. It's the same person. Disability has been crammed into the job role and we can expect zero representation from the same person who is plunging disabled people into poverty.
I love these videos. I’m glad you wrote to Primark, and look forward to their response. I’m not surprised about the airport story but am very saddened by it. It makes me wonder if my new PICC line and fluid bags would be stopped. Not happy about increase to hate crimes either and agree it was probably targeted.
I have a line on my chest and traveled with TPN and IV fluids. If you're in the US we have TSA cares. I called ahead and wasn't given a hard time. I was brought through security different way. It took a little longer and they had to do a test on the outside of a few bags but they were really good to me. I've heard other horror stories though.
Airport security is the worst sometimes. I have the feeling some just want to prove their power and use every instance for it. Thats why I ALWAYS declare everything I carry to the airlines special cases beforehand and print out their response email. Always shut their big mouths, or their chefs do when they read the statement😂. It's such a hassel to travel with medical equipment
its quite a hassle traveling with a disability. especially as airports are so different. Shaun and I were talking about them wanting to feel the power sometimes
I got so excited at the prospect of affordable adaptive underwear. Just watched this video Gem and checked Primark’s website and I’m SO annoyed to find that NONE of my local Primark’s, even if I were to travel an hour to one would I be able to do even do a click + collect of any of the products in my size. It’s like they’ve decided these accessible items to make them look inclusive but then they’ve mad them totally inaccessible to try and actually buy. What was the point in Primark even creating these products when we can’t even buy them. It’s more than ridiculous. Do these items even exist as I feel they were just created for publicity and not to actually sell to people.
Primark was founded in 1969, in Ireland, as Penneys, and in common with most large companies, offers at least a nod towards Corporate Social Responsibility. I was personally on Sir Adrian Cadbury's team, and then worked with InBev's Comte Arnoud de Pret-Rhoose de Calesberghe, so I've seen it from the inside, as they were recognised as two of the top Corporate ethicists of their day. To get to the meat, you have to look at the Corporate area of the website, and in Primark's case, I see the predictable sustainability/FairTrade policies, but also a Diversity and Inclusion Policy which, whilst pointed at the workforce, may well be applicable to customers as well. Why not write to Lynne Walker, Director of Primark Cares, presumably at their HQ, raising these points. Marks and Spencer, for example, extend their mail-order using the existing distribution system so you can pick up from even modest local foodstores, so I don't see whynit couldn't be extended as you hope: if you don't ask, you won't get!
Disconnecting from a pump isn't that big of a deal if it can be quickly hand checked by security and given back. We have a infusion set that we can disconnect from AND depending on the pump and situation we either stop insulin completely (exercise) and/or remove the pump (showering, swimming) itself for 10-30 minutes. However, if we have to remove the infusion site, that costs money. As far as the sensor, those are meant to stay on 7-14 days depending on the sensor. They cost 60 to 100 or more euro/gbp/usd per sensor. Having to remove it at the beginning or mid life is a huge financial hit. AND if insurance does pay for them, they won't replace them. Haven't flown to australia, but I've been through tons of airports in the US and europe. The one I have the most trouble at, always, is Heathrow. One time they actually wanted to count my insulin as part of my liquid allowance (I never laughed so hard at someone as I asked for their supervisor) and another time they tried to get me to remove my sensor. I do get security in loads of airports trying to get me to take my pump off, but I ask them if they reach in their gut and remove their pancreas when they fly? If they don't, I don't have to remove my mechanical pancreas. I always give myself plenty of time and will die on this hill.
Asking to remove their pancreas is genius - I'll have to remember that one for if I ever get stopped when I'm brave enough (and unpoor enough) to fly again. Not only would I be flying for the first time as a wheelchair user, but also with injectable medication for adrenal failure. Fun and games are almost guaranteed.
@@CharityAngelSpectrum I've only been T1D for a little over 4 years now but I learned very quickly if I don't stick up for myself, nobody else will. We have so much important and costly medicines and equipment on us that it's worth the inconvenience of myself and security to make sure it all gets through safe. Just remember when you go through, you have the right not to have to put yourself or equipment in peril. You also have the right to be treated with dignity and that's worth a fuss.
@PageMonster I prefer handicapped because if I try hard, I can push myself into doing somethings. To me, being disabled shows some folks that they can't do anything. It 6 of one and a half of dozen of the other. People can use what terminology that they prefer.
I thought it very interesting that when I was in a manual wheelchair, I was often ignored by store clerks. However, when I had to move to using a mobility scooter I got excellent service. Now that I use a power wheelchair, I get service somewhere in between.
not surprised re: primark wear as this is quite similar to the situation faced by plus size women and tall women - extended sizes are sometimes advertised but often listed as “not sold in stores” or “online only” or are somehow special order as opposed to actually being included in their stock and accessible for everyday purchase.
The pump story really upset me. Being a diabetic type 2 myself. This should not have happened in this day and age. Having worked as a Police officer I know how bad these cameras can be. But am shocked that only his car was targeted.
I reported a disanility hate crime. I had all the times needed to check the CCTV. They spotted her but couldnt get her details from her oyster pass. It went in as a hate crime initially. However when they filed the crime they downgraded it to minor crime so isnt recorded in the stats you quoted. I am shaking with rage right now. I thought I had got over it but guess not
Yeah, it's so common. It makes me made because ableds are the gatekeepers... They should not get to draw the line on what is and isn't a hate crime against disabled folks.
That's so ridiculous. They look nothing alike, and the teacher, even if they weren't your actual teacher, should have been made aware of any disabled student so that issue could have been avoided.
Airport security does not make us safer. It is simply a matter of control. I have a cousin who was required to remove a CAM boot from a broken foot and walk through the metal detector.
Gem, the Australian TV show, 'A Current Affair', is to proper TV news, what 'News Of The World' and 'The Sun' were to British print journalism. What the security firm at Melbourne airport did, is not acceptable. That the airport, but not the security firm, issued the non-apology, shows how the matter is being treated. Treat it solely as an airport PR incident, smother it with lies and spin, into a non-story, in the unholy name of 'National Security'. It seems that Primark hasn't read the safety warnings from CPAP manufacturer ResMed, about magnetic fastenings. ResMed uses magnetic fastenings on certain models of CPAP face masks. Prior to Christmas 2023, warning and recall notices were sent out from CPAP device distributors, warning of the magnets possibly interfering with implanted and/or worn medical devices, including insulin pumps. The warning notices were being sent out at the request of ResMed. Primark are using magnetic fasteners on their disabled underwear. Why am I thinking Primark may well wind up having to pull stock, do a recall, and put up warnings about the magnetic fasteners, in branches which currently have stock?
@@Wheelsnoheels I learned of the issue and recall, as I was diagnosed with sleep apnoea in 2018. The hospital issued ResMed mask I used was one of the models impacted by this issue. When I moved from the hospital issued set up, to equipment I own outright, I bought a Phillips Respironics mask which has no magnets, and is easier to put on, than the ResMed mask.
Another great video! With the "advancement of terroristic tech", terrorists have used medical equipment to make lives miserable for others. So, unfortunately, we will be scrutinized even if we have documentation for our medical needs. I am also a type 1 diabetic, along with my other disabilities, and I have come to expect to be pulled aside for confirming medical documents and such. but for this little boy and his parents being accosted with security like that is unacceptable. That poor little guy. There is a time to be wary and a time for common sense to kick in and believe what is in front of you. The other airport didn't have any issues with it, why did these knotheads think otherwise?
I think that’s appalling that uk no longer has a person dedicated to those with disabilities. Bundling different things together gives less time to dedicate to any one thing.
The primark thing is unfortunately so predictable for them. Whenever they advertise something that people (very understandably in this case) get excited about, they never make enough stock or distribute it among every store. It’s just extra frustrating this time as it’s excited us on an accessibility standpoint, only to disappoint. I’m still holding out hope for getting a couple of pairs of underwear!
well lets hope we can change things , I'm trying to give them the benefit of the doubt and hope that they will listen to the consumers and roll them out into more stores , we can only hope our voice s can make a change ,thx for commenting
The Primark undies look good but how strong are those magnets? If you move wrong, will it come undone? The bras don't look particularly supportive, especially if you need a larger size. They may be ok for wearing to bed but not every day wear. I think I'd prefer to have kam snaps fastenings than magnets.
glad to see the adaptive underwear - however for those of use with pacemakers, implanted defibrillators, some pumps and stim devices - we need velcro, not magnets.
There is a story in Canada about a man with cerebral palsy who had to drag himself down the airplane aisle because staff would not bring his wheel chair down the aisle
😳 omg on the first one sadly NOT the first time Iv heard a story like this. I heard this sort of story (or similar) about someone end of 2023. Makes me soooo angry. No one should have to remove life saving equipment. For F sake airport security- Train your staff. Give staff leaflets behind their desks on what to do when there are people with life saving equipment attached to them.
And the guy who has his car broken into. The thieves knew there was a security camera blindspot if they parked in the way. How many others have had their vehicles broken into or damaged in that spot?
I have type two diabetes, so managing it is not as complicated as those that have type one. I feel bad for the kid. Having your prosthetic stolen sucks. This is why I would recommend at least carrying crutches as a backup. Of course, if you are a double amputee, a wheelchair is better.
I have never heard of Primark. I am from Texas, I often wondered if there was underwear made for disability people. I know on some of my major flareup days it hurts just to stand. I often wish I didn’t have to stand to long in the bathroom to pull up my pants. I often wonder what it’s like for those who can’t stand at all. I hope you do get ahold of the underwear and show us how it works. As well as to show us in the US where or how to get them,
Unfortunately it does NOT surprise me. Primark have always been that certain things are only available in selective stores. So many times Iv wanted things from their Harry potter or Disney range and not been able to get certain things. I know it’s not the same type of product but it’s sadly the way primark run. However it’s even more disgusting that you cannot get it sent to your local store for click and collect. Other store as would atleast get things sent from one store to another for you to collect but not primark.
It wasn't an airline or the airport itself, either. In Australia, airport security, despite being under the auspices of the Department of Home Affairs, is supplied by independent, third party, security firms. The airports are managed by finance and investment corporations. So, of course the security firm that gets the contract, is the lowest bidder. And as a direct consequence, you get unthinking, poorly trained, thugs, operating the security theatre designed to make it look as if the government is keeping the terrorists and criminals at bay.
I have a friend who may be able to send me some Primark undies to try. Would you be interested in my reviewing them compared to some other brands?
I have since had a response from Primark, that I shall share in my next vlog. I am also off to BBC tomorrow to discuss the issue with Primark’s adaptive line. Watch this space.
I didn't see the adaptive undies on Primarks website for the USA yet .
This is amazing that you are getting to talk to the BBC about this issue . I would love to see you try them
I’m not surprised at all that they are not in many or all stores. Primark has a habit of only releasing their ranges in very select locations - I used to live with 6 stores in a 45min - 1hr driving distance (including several large locations) and I was lucky if 1 had been sent the releases.
I have purchased a pair of accessible period knickers from a dedicated brand that used a bra strap type closure on the hips/waist. They worked very well as period underwear (and I have very heavy flow), though were a little pricey if I hadn’t bought them on sale, were easy to get on and off - but the hook and elastic loop was fiddly when I was having issues with my hands. The main problem I have with them is that because it is one size/adjustable and uses basically a bra strap it can chafe and get uncomfortable if they aren’t sitting in *just* the right spot.
I’ve just looked up the Primark bras as I need a new one and I’ve had some trouble with my usual M&S ones.
Not only is my nearest shop with stock in Edinburgh (over an hour and a half away in a place which is notorious for not being easy to navigate in a wheelchair), but there aren’t any proper bra sizings!
I have a small, slim ribcage but unfortunately quite large boobs, so I have no idea which (if any) of the stated sizes will fit. Do I buy S or M because of my chest size and find it doesn’t fit on the cups, or buy an XXL hoping the cups are right and find it all falls out through a chest band four sizes too big?
I’m SO disappointed - this hasn’t been thought through or implemented well at all!
@@VolkletI'm exactly the same in terms of bra sizing (32G), and my immediate thought was that there was no way I'd be able to buy these because of cup sizing. I'm so disappointed to hear that they aren't even doing proper sizes. Maybe something for them to consider going forward?
That response from Melbourne Airport is unacceptable. I have worn an insulin pump for 15 years and a CGM on and off for the last 5. I have flown domestically in Australia and internationally (including to countries where English was not spoken by airport security) over a dozen times and I've never had anyone ask me to take off my devices. It's unfathomable that airport security aren't plainly aware of medical devices and what to do when they encounter them. I hope the family are well compensated.
My mom had the Dexcom continuous blood glucose monitoring system like Angus has. There is a part of the sensor that is reusable during the 90 day supply kit you take it out when you change the sensor every 10 days and put it back in the new sensor when you change it. My mom was in the hospital, and the MRI tech removed the sensor and tossed the whole, including the transmitter into the sharps container. It was part of a brand new supply, meaning her insurance wouldn't pay for another transmitter for almost another 3 months. Which meant 3 months of doing the pin prick method on my elderly, nearly blind mother who had neuropathy in her hands, ( she only had a few fingers that I could get good blood samples from). Fortunately since the hospital staff discarded it, the hospital paid for a new transmitter, but it was difficult to get a new one, lots of paperwork, going to a different pharmacy than the online company that we usually got her supplies shipped from. And most importantly of all, the hospital issued a policy change, that if the CBM sensor has to be removed, it is to be placed in a small container and given to the patient/family, NOT THROWN AWAY
My goodness me your poor mom. Im so sorry that happened. It's a hassle you don't need.
OMG I'm so glad they retrained people... The hospital of all places 🤦♀️😭🤦♀️ I'm sure that was a headache and painful for her😢
"dissability news" should be a segment of every news channel
hahaha ,, one day maybe
That would be amazing!! 🍓
i wish people understood how necessary and expensive disabilities are, and getting a parking spot is in no way a jut compensation to the disabled.
Oh yes, I had an airline staff person joke about my power assist motor unit that hooks onto the back of my manual wheelchair when we explained that we had been granted an extra bag of free carryon allowance for it. The joking comment was dismissive and assumed that the power assist was little and cheap. It fell flat. We had to correct the guy that it's not funny because the chair and power assist cost more than a new car. It was offensive to have our equipment treated as a cheap off-the-shelf optional things and not as the expensive, custom-prescribed, life-changing, essential supports that we need to function at the same capacity as people without disabilities. That was Melbourne airport too.
it is so true the average person doesn't realise how much this stuff costs ,the for your comment@@lupeyloops246
A few years ago, when I could still walk a little, I used a scooter. I left it outside a friend’s flat and someone stole it.
I have stood for Westminster once and for the Scottish Parliament twice. The Scottish Parliament has only two openly disabled members out of 129. My party has decided to aim for one in ten of our candidates to be a person with a disability. It’s a modest aim, but the real difficulty has been the shortage of applicants for the role of candidates.
i wonder if you include only physical disabilities in that, or if you include invisible disabilities, neurodivergence, or developmental/intellectual disabilities… just wondering what disability diversity and inclusion means in this instance. of course, i would assume you’d still want the candidate to be highly qualified but what level of disability would be enough for you to say you’ve reached that inclusion or representation goal? what level (if any) of disability would be too high or too low to be included or considered?
@@00zarzu00 The starting point for recognition under the Equality Act 2010 is a self-determined dysfunction of a year, after which it is permanent. A diagnosis is probably a useful adjunct, to set context. A major concern is the near total absence of real knowledge of high-functioning disability at an academic level, as most of it is based on prejudices in thee educational establishment in the 1970s, resulting in the current impasse between the community and Simon Baron-Cohen, caused by his eugenics intentions.
Under the last Government, there was a proposition from Dominic Cummings (see his blog 3 Jan 2020) to recruit "weirdos and misfits" (ie the NeuroDiverse) to guide policy. This may well have been inspired by my own activity not long before, when I struck a deal overnight in a matter of strategic sensitivity which has greatly benefitted this country - what went on behind the scenes is that I already had a considerable reputation as the crisis management economist in the EU's Common Foreign and Security Policy service, and so was diagnosed with hyperperception, insofar as I'd had a heads-up from my spidey-senses six months earlier, I'd spent the next four drafting a policy paper, so when a foreign potentate asked the question at 0200, we were straight back with the answer at 0830, winning the deal by 0900. This was in full view not only of the shrinks, but also half the Cabinet! The result was the Sabisky lynching, and I'm currently watching to see if there actually is a need, or if it was simply the First Division, the Heads of the Civil Service, quiet quitting.
To my mind (which is probably genius, per Craig Wright, the Head of Yale's new Genius School: my case was in his own speciality area!) we first need to define from the inside what NeuroDiversity looks like. It's been the happy hunting ground of Paracelsian Psychiatry for far too long. You'll find me on NDSA org, I was on the Gifted subreddit but left when it became clear it was being run by an AI, which was attempting to impose NT norms.
The tennis story connected strongly with me. Im an ambulatory wheelchair user and used to play wheelchair basketball. I after stopping due to injuries, i became interested by the referees so i spoke to someone at Disability Sport Northern Ireland and they got me trained as a ref. Thing was though i dont have the physical ability to run like my abled bodied ref colleagues so i began using a sports chair. After many years of saving for a chair i bought a custom rgk sports chair with referee embroidered on the backrest. Been refereeing for 16 months now and i love it. I dont know of any other wheelchair using refs Bar 1 who works for bwb.
Oh wow that's so cool. where did you get your back rest embodied? id love to have a custom back rest.
@@Wheelsnoheelsyou might be able to find someone to make an embroidered pouch to slip over your backrest, made to measure. I’ve got personalised handlebar covers for my pram, I don’t see why a company who make those wouldn’t be able to whip up a cover for you if there isn’t already a business specifically for wheelchairs that offers this!
That's so cool!!!
Prothesis can be very expensive and I hope the Mark's weren't damaged by the thieves
I hope not too. As far as I'm aware it was all ok....
That ball equipment is a great idea, really handy for dog parents.
I always love these videos! I listen to BBC's Access All, so the more disability news I can get the better haha
Yay. I’ve just been at rye BBC filming with access all. You’ll hear me there soon! 🎀
Another great video! I am not on the UK however I would be happy to have you as an MP for the disabled (I disabled)! Glad to see children breaking the rules of normal to be a part of the world that is there if their want it! The pump story that was sad 😥 stupid people!
thank you for that comment ,and yes it is really great when you see the young kids breaking boundaries and stereo types
I like the title and using seams.. that’s really clever.
Our disability representative in government essentially being the DWP minister isn’t ok. There is nobody to counteract disability benefits cuts, or disability decisions. It's the same person. Disability has been crammed into the job role and we can expect zero representation from the same person who is plunging disabled people into poverty.
Another great episode. Thank you Gem!
I love these videos. I’m glad you wrote to Primark, and look forward to their response. I’m not surprised about the airport story but am very saddened by it. It makes me wonder if my new PICC line and fluid bags would be stopped. Not happy about increase to hate crimes either and agree it was probably targeted.
I have a line on my chest and traveled with TPN and IV fluids. If you're in the US we have TSA cares. I called ahead and wasn't given a hard time. I was brought through security different way. It took a little longer and they had to do a test on the outside of a few bags but they were really good to me. I've heard other horror stories though.
I hope the Melbourne airport is compensating the disabled people that are giving their labor and time to explain accessibility needs.
Airport security is the worst sometimes. I have the feeling some just want to prove their power and use every instance for it. Thats why I ALWAYS declare everything I carry to the airlines special cases beforehand and print out their response email. Always shut their big mouths, or their chefs do when they read the statement😂.
It's such a hassel to travel with medical equipment
its quite a hassle traveling with a disability. especially as airports are so different. Shaun and I were talking about them wanting to feel the power sometimes
Very interesting disability news this time Gem, kudos to the young lady in Spain joining parliament there 🙌🏻
I hope you found the video informative. thanks for watching
I got so excited at the prospect of affordable adaptive underwear. Just watched this video Gem and checked Primark’s website and I’m SO annoyed to find that NONE of my local Primark’s, even if I were to travel an hour to one would I be able to do even do a click + collect of any of the products in my size. It’s like they’ve decided these accessible items to make them look inclusive but then they’ve mad them totally inaccessible to try and actually buy. What was the point in Primark even creating these products when we can’t even buy them. It’s more than ridiculous. Do these items even exist as I feel they were just created for publicity and not to actually sell to people.
Primark was founded in 1969, in Ireland, as Penneys, and in common with most large companies, offers at least a nod towards Corporate Social Responsibility. I was personally on Sir Adrian Cadbury's team, and then worked with InBev's Comte Arnoud de Pret-Rhoose de Calesberghe, so I've seen it from the inside, as they were recognised as two of the top Corporate ethicists of their day. To get to the meat, you have to look at the Corporate area of the website, and in Primark's case, I see the predictable sustainability/FairTrade policies, but also a Diversity and Inclusion Policy which, whilst pointed at the workforce, may well be applicable to customers as well. Why not write to Lynne Walker, Director of Primark Cares, presumably at their HQ, raising these points. Marks and Spencer, for example, extend their mail-order using the existing distribution system so you can pick up from even modest local foodstores, so I don't see whynit couldn't be extended as you hope: if you don't ask, you won't get!
Disconnecting from a pump isn't that big of a deal if it can be quickly hand checked by security and given back. We have a infusion set that we can disconnect from AND depending on the pump and situation we either stop insulin completely (exercise) and/or remove the pump (showering, swimming) itself for 10-30 minutes. However, if we have to remove the infusion site, that costs money. As far as the sensor, those are meant to stay on 7-14 days depending on the sensor. They cost 60 to 100 or more euro/gbp/usd per sensor. Having to remove it at the beginning or mid life is a huge financial hit. AND if insurance does pay for them, they won't replace them.
Haven't flown to australia, but I've been through tons of airports in the US and europe. The one I have the most trouble at, always, is Heathrow. One time they actually wanted to count my insulin as part of my liquid allowance (I never laughed so hard at someone as I asked for their supervisor) and another time they tried to get me to remove my sensor. I do get security in loads of airports trying to get me to take my pump off, but I ask them if they reach in their gut and remove their pancreas when they fly? If they don't, I don't have to remove my mechanical pancreas. I always give myself plenty of time and will die on this hill.
Asking to remove their pancreas is genius - I'll have to remember that one for if I ever get stopped when I'm brave enough (and unpoor enough) to fly again. Not only would I be flying for the first time as a wheelchair user, but also with injectable medication for adrenal failure. Fun and games are almost guaranteed.
@@CharityAngelSpectrum I've only been T1D for a little over 4 years now but I learned very quickly if I don't stick up for myself, nobody else will. We have so much important and costly medicines and equipment on us that it's worth the inconvenience of myself and security to make sure it all gets through safe.
Just remember when you go through, you have the right not to have to put yourself or equipment in peril. You also have the right to be treated with dignity and that's worth a fuss.
We handicapped ♿️ people are humans also. Remember stores we are buyers and voters also. In USA 🇺🇸
👏🏼
Disabled.
@PageMonster I prefer handicapped because if I try hard, I can push myself into doing somethings. To me, being disabled shows some folks that they can't do anything. It 6 of one and a half of dozen of the other. People can use what terminology that they prefer.
I thought it very interesting that when I was in a manual wheelchair, I was often ignored by store clerks. However, when I had to move to using a mobility scooter I got excellent service. Now that I use a power wheelchair, I get service somewhere in between.
not surprised re: primark wear as this is quite similar to the situation faced by plus size women and tall women - extended sizes are sometimes advertised but often listed as “not sold in stores” or “online only” or are somehow special order as opposed to actually being included in their stock and accessible for everyday purchase.
The pump story really upset me. Being a diabetic type 2 myself. This should not have happened in this day and age. Having worked as a Police officer I know how bad these cameras can be. But am shocked that only his car was targeted.
your right none of this should be happening in this day and age, thx for commenting
I’m surprised to hear about Aberdeen airport as we have an excellent record of medical travel.
I reported a disanility hate crime. I had all the times needed to check the CCTV. They spotted her but couldnt get her details from her oyster pass. It went in as a hate crime initially. However when they filed the crime they downgraded it to minor crime so isnt recorded in the stats you quoted. I am shaking with rage right now. I thought I had got over it but guess not
oh goodness im so sorry to hear that and the lasting effect its had on
Yeah, it's so common. It makes me made because ableds are the gatekeepers... They should not get to draw the line on what is and isn't a hate crime against disabled folks.
I am now newly medically disabled myself from acute spinal stenosis
That's outrageous.
I had a teacher that once forced me to take my hearing aid out thinking it was a AirPod 😡😠🤬😤
That’s so bad. I’m so sorry that happened to you. Did you take it further?
That's so ridiculous. They look nothing alike, and the teacher, even if they weren't your actual teacher, should have been made aware of any disabled student so that issue could have been avoided.
From which medical school did that teacher graduate?
I'm the same with sports haha😂 no coordination for it but i enjoy watching others especially other disabled folks.
OMG, love the dopamine boost of a creator I love liking my comments 🍓🍓
Airport security does not make us safer. It is simply a matter of control. I have a cousin who was required to remove a CAM boot from a broken foot and walk through the metal detector.
I get so frustrated with the airline. It's disgusting and disappointing. I'm Australian and I'm ashamed that our country does stuff like this
Gem, the Australian TV show, 'A Current Affair', is to proper TV news, what 'News Of The World' and 'The Sun' were to British print journalism.
What the security firm at Melbourne airport did, is not acceptable. That the airport, but not the security firm, issued the non-apology, shows how the matter is being treated. Treat it solely as an airport PR incident, smother it with lies and spin, into a non-story, in the unholy name of 'National Security'.
It seems that Primark hasn't read the safety warnings from CPAP manufacturer ResMed, about magnetic fastenings. ResMed uses magnetic fastenings on certain models of CPAP face masks. Prior to Christmas 2023, warning and recall notices were sent out from CPAP device distributors, warning of the magnets possibly interfering with implanted and/or worn medical devices, including insulin pumps. The warning notices were being sent out at the request of ResMed. Primark are using magnetic fasteners on their disabled underwear.
Why am I thinking Primark may well wind up having to pull stock, do a recall, and put up warnings about the magnetic fasteners, in branches which currently have stock?
Ooo that's interesting , we will have to watch this space
@@Wheelsnoheels I learned of the issue and recall, as I was diagnosed with sleep apnoea in 2018. The hospital issued ResMed mask I used was one of the models impacted by this issue. When I moved from the hospital issued set up, to equipment I own outright, I bought a Phillips Respironics mask which has no magnets, and is easier to put on, than the ResMed mask.
Another great video! With the "advancement of terroristic tech", terrorists have used medical equipment to make lives miserable for others. So, unfortunately, we will be scrutinized even if we have documentation for our medical needs. I am also a type 1 diabetic, along with my other disabilities, and I have come to expect to be pulled aside for confirming medical documents and such. but for this little boy and his parents being accosted with security like that is unacceptable. That poor little guy. There is a time to be wary and a time for common sense to kick in and believe what is in front of you. The other airport didn't have any issues with it, why did these knotheads think otherwise?
I left my cat in a carrier at an airport in 2000 to get a cup of coffee and came back to have security there, checking for bombs!
@@TheMazinoz For real!
yes there is a time for commenbense to kick in, thx for your comment
I think that’s appalling that uk no longer has a person dedicated to those with disabilities. Bundling different things together gives less time to dedicate to any one thing.
i agree, thx
Thanks!
The primark thing is unfortunately so predictable for them. Whenever they advertise something that people (very understandably in this case) get excited about, they never make enough stock or distribute it among every store. It’s just extra frustrating this time as it’s excited us on an accessibility standpoint, only to disappoint. I’m still holding out hope for getting a couple of pairs of underwear!
well lets hope we can change things , I'm trying to give them the benefit of the doubt and hope that they will listen to the consumers and roll them out into more stores , we can only hope our voice s can make a change ,thx for commenting
Great video!
The Primark undies look good but how strong are those magnets? If you move wrong, will it come undone? The bras don't look particularly supportive, especially if you need a larger size. They may be ok for wearing to bed but not every day wear. I think I'd prefer to have kam snaps fastenings than magnets.
glad to see the adaptive underwear - however for those of use with pacemakers, implanted defibrillators, some pumps and stim devices - we need velcro, not magnets.
There is a story in Canada about a man with cerebral palsy who had to drag himself down the airplane aisle because staff would not bring his wheel chair down the aisle
that is just terrible to hear
😳 omg on the first one sadly NOT the first time Iv heard a story like this. I heard this sort of story (or similar) about someone end of 2023. Makes me soooo angry. No one should have to remove life saving equipment. For F sake airport security- Train your staff. Give staff leaflets behind their desks on what to do when there are people with life saving equipment attached to them.
And the guy who has his car broken into. The thieves knew there was a security camera blindspot if they parked in the way. How many others have had their vehicles broken into or damaged in that spot?
How to put someone off ever flying again! Poor kid. Sick that they would mistreat a child like that!
I have type two diabetes, so managing it is not as complicated as those that have type one. I feel bad for the kid. Having your prosthetic stolen sucks. This is why I would recommend at least carrying crutches as a backup. Of course, if you are a double amputee, a wheelchair is better.
Thanks for watching, thanks for the tips 👍🏻
I have never heard of Primark. I am from Texas, I often wondered if there was underwear made for disability people. I know on some of my major flareup days it hurts just to stand. I often wish I didn’t have to stand to long in the bathroom to pull up my pants. I often wonder what it’s like for those who can’t stand at all.
I hope you do get ahold of the underwear and show us how it works. As well as to show us in the US where or how to get them,
Unfortunately it does NOT surprise me. Primark have always been that certain things are only available in selective stores. So many times Iv wanted things from their Harry potter or Disney range and not been able to get certain things. I know it’s not the same type of product but it’s sadly the way primark run. However it’s even more disgusting that you cannot get it sent to your local store for click and collect. Other store as would atleast get things sent from one store to another for you to collect but not primark.
Sad to see that the Spanish MP is representing the Right wing.
This airline should be closed and the people fired.
Hopefully everyone in question has had some re training
It wasn't an airline or the airport itself, either.
In Australia, airport security, despite being under the auspices of the Department of Home Affairs, is supplied by independent, third party, security firms.
The airports are managed by finance and investment corporations. So, of course the security firm that gets the contract, is the lowest bidder.
And as a direct consequence, you get unthinking, poorly trained, thugs, operating the security theatre designed to make it look as if the government is keeping the terrorists and criminals at bay.
@t4N9410oR it is never mind who did it. The child had doctor's papers and a search was done. How stupid do these people have to be??
@@johnbethea4505 right? ZERO common sense!!
@WholeFoodSpark this answer to a joke is the proof of ZERO common sense. Live long and grow well.
Honestly I was initially kinda weirded out by the jingle the first time I watched this series. Now I love the cheerful little jingle ❤
hahaha Shaun was the same 😁
ADAPTIVE LINGERIE NOT BAD 💝💝💝💖💖💖