Two Sisters Journey with Krabbe disease: The Moore Family Story

Meet the Moore sisters. Raegan missed the window of opportunity for a potentially life-saving intervention because her formal diagnosis did not arrive until she was 9 months old. Raegan faced the heartbreaking challenges of severe neurological deterioration, loss of mobility, and a shortened life expectancy.
Meet Zoey, a joyful and energetic young adult fortunate to be diagnosed with Krabbe disease shortly after birth because of her sister. Early detection through newborn screening allowed her immediate medical intervention. Zoey received a life-saving stem cell transplant that halted the progression of the disease and significantly improved her prognosis. Thanks to the timely diagnosis and treatment, Zoey is thriving and enjoying a relatively normal life. Zoey's story underscores the importance of early detection and the positive impact it can have on children with Krabbe disease.