Akathisia dystonia medication side effects akathisia commerical
ฝัง
- เผยแพร่เมื่อ 30 ส.ค. 2017
- (This is akathisia and dystonia during a "calm" time)
"Its a living nightmare. Its constant panic, constant pain, constant terror, constant wanting to die. Its worse than a horror movie.
There is no bad guy out there coming to get me, the bad buy is in me, tearing me apart from the inside."
"There is a whole other world out there full of pain, misery, suffering and death."
"Dont ever mistake education for intelligence"
Josh has been suffering since Jan 2014 with akathisia, parkinsonism and dystonia as a result of medication side effects and then being polydrugged.
This video started after viewing the new Akathisia commercial now going around. Josh shares his personal experience over the past few years, what he thinks of the commercial, how you get akathisia, living with akathisia or other side effects, the physical AND mental aspects, suicidal thoughts, background of what happend to Josh at the beginning with the ER and then being polydrugged, the revolving door of the medical industry, doctors, pharma side effects, tolerance, tapering, withdrawal, do your research and dont trust blindly, dont give away your power, Thank you to all the good doctors, "rare" is a comfort word, Listen to the experts which are the ones living the side effects, the daily levels of akathisia, agoraphobia, how the chemicals change you, you are a guinea pig for the Phase 4 clinical study, dont disregard the sufferers, listen to your loved ones over a degree, there is nothing wrong with you, homicidal effects, Akathisia and the bathroom, etc.
Ann Blake Tracy
Gwen Olsen
To see Joshs other videos check the youtube channel
To donate to Josh and to read his whole story click here
www.gofundme.com/holdingtohop...
****WE ARE NOT ADVISING ANYONE TO JUST GET OFF MEDICATION JUST TO DO YOUR RESEARCH AND TAPER PROPERLY IF YOU CHOOSE THAT ROUTE AND RESEARCH BEFORE STARTING ANY MEDICATION. ****
This video is 100% truth. I will never trust a doctor ever again. I'm so sorry for you and your family.
thank you for watching and being informed!
Listen dont not trust all doctors because of rare disorders. Josh is an extremely brave man and he suffered very badly but antidepressants do help a lot of people who have tried everything else too. Its not all black and white, the world is filled with shades of grey. Do I believe they over prescribe these pills for profit? I sure do but that doesnt mean all cases are like that. There are many studies done that have double-blind control groups and these drugs need to pass many stages of approval before they go to market. But like almost anything in life its a double-edged sword. Josh unfortunately was on the wrong side of the blade. While in Joshs specific circumstance, and Im sure many many other peoples circumstances its the right thing to do. But these drugs do help people too. The pills arent evil. Doctors don't learn medicine to hurt people. There are limits to our knowledge and our medical technology. The human brain and how it works is largely still a mystery. Josh is an extremely strong person. I have some chronic medical conditions myself and I dont think I could ever deal with what he has. I probably would have been one of the people who didnt make it. Hes a god damn warrior.
T Greaux akathisia isnt a rare disorder. psychiatry is a pseudoscience, the DSM 5 is pseudoscience. psychotropics only mask symptoms and eventually make people worse. Drug companies settle out of court and go through bogus clinical trials to get and keep these neurotoxins on the market. Research peter breggins books
T Greaux just dont trust psychiatrists that push meds
Man I am in tears right now watching this I have been dealing with this for 5 years now after tapering off an ssri. I was in the hospital and given more drugs when everyone there thought I was nuts and sent me home twice. This condition is hell on earth. May there be peace for us.
we are so sorry you have been dealing with this. Please join our support group on facebook so you know you aren't alone. You can search for "Living with Akathisia"
I’m also 6 years in to akathisia from ssris, hope you are doing well, I have no idea when I’ll be saved from this
I wish you well...the best. I'm sure you must know, but you need to get a good understanding pain management doctor and/or neurologist. I'm right there with you. I have it too.
Dan Jones same as me, cry daily. What can I do?
Hi,I've had akathisia for 20 years,not as bad as that,these mental health doctors are out of control,if u read the brochure that comes with the meds it tells u its a adverse reaction and should be stop all lowered
Wow. Great video. You are so brave. Keep fighting the fight. So many people are injured in so many ways through psych drugs.
thank you so much
Como está seu esposo atualmente @@AimeeJoshJensen
Amen preach it guys!!Great job spreading awareness on what these medications and psych drs are doing to people!
thank you
You are a great man josh, im with you. Stay strong. People look up to you and need you bro. Especially me.
Thank you for your support
Thank you, my daughter was prescribed a pyschostimulant today your story is helping me fight my wife and save my daughter by keeping her off it, it’s an uphill battle with society sometimes, the prescribing doctor didn’t even know about Akathisia
Wow how scary! They prescribe so easily and have no idea what the outcome could be.
Save her
I've watched several of your videos multiple times over the last few years for one reason or another and every time I just wish I could do something to help you. I've experienced akathisia and dystonia both, akathisia from stopping a medication and dystonia from being on one, but my experiences were limited or brief and have not as of yet happened again. I know I was deeply disturbed by what I went through, but I cannot even begin to imagine how this has affected your life. Your will to survive and push through is simply astounding. I just wish I had more to offer than words.
Thank you for your support. We are so sorry you had to experience it for any amount of time but so glad it wasn't that long. Its a horrible thing to live through even if only a day.
Elliot Gillum may I ask what medication you stopped that gave you akathisia?
Thanks for this video, Josh and Aimee!!!
We are here.... we have a voice... we will make the change... you are so brave josh... thanks for getting the word out... you are doing a very important job...
thank you!
Thank you for sharing this. This took a lot of courage to do and to post.
thank you
God Bless You 💜
I've just been educated.
I had never heard of this.
Thank You So Much, for taking the time to make this video. 😇
thank you!
I never knew SSRI'S could cause so much damage until I've experienced it myself. So many people are suffering because of these drugs. Doctors hand them out like candy! We only wanted to get help but they made us worse. They turned our pain into worse pain straight from Hell. I hope we all heal from this and that we won't give up. Thank you for sharing your story and I hope Josh heals soon!
Thank you! Hope you are doing better and so sorry you expereinced it
Thank you for making this video. I have become very ill after taking mirtazapine, and the doctors I've seen refuse to acknowledge it. I am very angry that this is happening to people. We need more awareness.
So sorry you are dealing with this! hope you are doing better since your comment. I agree they need to acknowledge it for sure
Thank YOU. I was in the system for almost 30 years.
I have tartive Akathisia. You have given me strength.
This is SO true...thank you for saying it like it actually is within the medical community..I hate them so much...I think you're amazing to be able to articulate it...glad you have support..
The health system in Australia has the same ethics ... thankyou for posting your vids ...I feel less alone and stronger ... Much love and blessings
We have a support group on Facebook called "Living with akathisia" if you need more online support. Im so sorry its the same over where you live
get well soon buddy you are a real worrier with all this outstanding fighting spirit you have
thank you
Thank you for this Josh. You are correct. If you haven’t had akathisia you will never understand the torture. My heart goes out to you.
I had the same fight. I totally get it. I am no longer on any psychotropic drug. I continue to try and help others understand what these drugs can do. I am talking to walls though. Bless you for making this video. You have wised up about the pharmaceuticals and doctors. I will never just trust what the doctors say ever again.
Thank you for your support and for spreading the truth
Thank you so much for sharing this. I am actually in pharmacy school and this video was shown during a lecture to highlight the side effect of akathisia and it breaks my heart that you are going through this. I read a bunch of the comments and saw that it was induced by an SNRI, which I have never heard of, but I will never forget. I completely understand your anger and frustration toward psych medications and how unfair it is that this could happen. The truth is that we DON'T understand mental illness or the brain in general. We were presented about 5 potential theories for depression, all of which have their weaknesses. It's hard to study the brain. It's impossible really. I saw that others have recommended treatment meds and that nothing has worked so I won't bother with that. I just wanted to reach out and say I hope things get better for you, and I really am going to push for the appropriate and judicious use of medications in my future and thank you for helping bring awareness to not just patients, but providers/future providers.
That is amazing it was shared in school! Thank you so much for sharing that with us and for being open to being a more knowledgeable provider!
Dude you’re a fucking genius, you took every word from my mouth, I’ve been trying to say this exact thing for years, I’m still in akathisia now from ssris, your video is keeping me hanging on man, you’re a serious fucking hero
Josh says thank you so much! So sorry for your suffering and glad the video helped you feel validated
Did u get better
I love you, Josh. You are so right! And you and your family are true warriors in this fight. Thank you for speaking out for all of us who suffer in silence because we know there is no real medical help. I hope you get a never-ending window soon.
thank you
Thank you for sharing your story. I had a reaction after first dose. It changed me tremendously. I have had same experience in the hospital. Once they gave Gabba to everyone. I called them out and was sent home. I have been yelled at as well. I twitch sometimes. My leg has been shaking since my first dose of a litany of meds. I was told it's normal as well. I was never suicidal or depressed. I have been flagged for speaking out. I have serious pain, but the emotional pain is ten fold. I'm so sorry you are going through this 💔 turned out I had early onset dementia. Meds caused depression. They even told me years later.
so sorry you experienced it. I hope you are doing better since your comment
Thank you for this video . I have decided it’s time to go , I have no help and need the pain to stop . I don’t want to cause anymore harm to my family they have suffered enough and final doesn’t mean peace but it does give them a place they can move forward without seeing someone they love suffer even more .. I have never been believed from the beginning and made the mistake of going to hospitals for help which only made things worse . Keep spreading the message it needs to be heard . I would like that work aka brought up every time you pick up your medication … ❤️🙏🏻
Oh no! Are you still here with us? I hope you had the strength to hang on. ❤ You are loved
And Aimee... you are just as brave... no one should have to go though this..... big love to you both..
thank you :)
Thank you for explaining exactly what I’ve been saying since I have been in hell and where are you are from being prescribed two different medication long-term I appreciate you God bless you and I will keep praying for you and your family please pray for me and mine because as you know it affects the whole family and friends
This is exactly why I have doctor issues! I agree with everything this man has said. I’m so sorry this has interrupted your life. Pills Pills Pills!!! I’ve been trying to come off klonopin since 2014. I’m on my forth doctor and many many meds later. They all have the same concept!!! Just stop abruptly, ignore the horror stories.....
They do sadly. Their only answer is more drugs
Did you ever get off it?
Frankly, Josh is an incredibly awesome dude. It's a shame to see him go through this. I hope you find peace and recovery.
Preach on brother. I was forced to stop meds after an injury caused me to lose my job and insurance coverage. I feel exactly how you explain. Emergency room visits were dead ends...my family isn't even understanding, theyd rather assume that I'm taking something else and not telling them. Seeing as I can't afford a Big Gulp, if love to know how they think I have means to buy anything....not to mention I'm basically on house arrest by order of my body and all the debilitating withdrawal symptoms...I can hardly eat, I can hardly get up for the bathroom.... I hope your doing better now than in this video. Thanks for sharing your experience!
So sorry you are dealing with this. It isn't right at all! Hope you are doing better since your comment
how are you now bro, i hope you are doing well?
Did you ever get your disability? I just saw your video "Akathisia and Dystonia." I hope things have changed for you! If there is something I can sign to help get what you need please let me kknow. Your rock and are brave to continually shed light on this!!!
He finally was approved late last year. It covers our home and electricity so we are so grateful that is consistently paid for :)
Thank you so much
From 3:06, you have summed up everything i have trouble explaining to others about how it feels to have these "refractory symptoms." Symptoms for which there is no cure. You are not alone Josh.
thank you! So glad it helped you in how you were feeling but sorry you understand how it feels
You are a great spokesman. I have a movement disorder caused by Gabapentin, generic for Neurontin, which is Bi-Ballism. Of course doctors won't admit it. There were two doctors who took Neurontin, in 2003, and 2004 and developed severe Akathisia. They couldn't figure out what was causing it, because they believed the pharmaceutical reps who told them how safe it was. The complete account is under, "Neurontin Killed Our Husbands, We Believe." There are too many drugs ruining the nervous system, and these doctors who see it happen aren't reporting. It should be a law that they have to report. If it wasn't for victims like you and I making TH-cam videos, there wouldn't be any evidence to what they are causing. Thanks for your reporting.
Thank you for speaking out too! Its insane how its not reported and yet happens so much! Im so sorry you have delt with this and the doctors who diminish it!
I'm so sorry that your experience with mental health professionals hasn't been positive. As a future Psychiatric Nurse your videos have been very informative, but also make me so angry, and sad. I definitely agree with your views on medication. I see the positive of them in certain situations, however they are very over prescribed. It is a cost / risk benefit. It is very unfortunate that the pharmaceutical companies have a monopoly on the health care systems here in North America. There are many alternative therapies for mental illness, and it is such a shame that doctors and other mental health providers are pushed to prescribe, or they will not be paid. I hear your frustrations, angry, sadness, and it is all valid. I hope that I can be a part of a new generation of mental health providers that use medication as a last resort, instead of the first option.
Thank you for watching and learning so you can better serve your patients
Well done Josh, well done, bravo!
thank you
My story is so similar to yours. I agree with everything you say. It's absolutely disgusting. I am sorry and I admire your bravery.
I had Akathisia from Prozac. You describe it perfectly: worse than a horror movie, a living nightmare! It was just horrible! I was running 10 miles per day and swimming every day, could only manage this condition by exercising till total exhaustion. I hated everything and everybody and wanted to die. I had the feeling of burning from the inside, my whole body seemed to be on fire. I just wanted to crawl out of my skin and scream. I was in constant panic and anxiety. Fortunately everything went away by stopping Prozac but it took about 10 days. I could ease the pain with Ativan.
So sorry you had to go through this. So glad it went away for you
I have akathisia from prozac also, I stopped 2 months ago and am still suffering. Using Ativan but know it also causes akathisia on withdrawl
@@beautifullybroken1591 so sorry to hear this :(
@@AimeeJoshJensen The strength of your family has given me strength also, thank you for your video's. I have uploaded a version of my events on my new channel if you ever get time to watch. Love and hugs xx
@@beautifullybroken1591 I will go look now. Great job at recording and sharing!
You're so brave dude... I agree with what you said.... I myself have facial dystonia and motility disorders including severe gastro intestinal issues... I stopped working eventually.... I stay home most of the times and can't get a life.... one thing I can advise you is to do some handicrafts or other kinds of jobs that doesn't require strict intellectual or intensive labor... I've been doing some electronic lamp shades and have been getting some few profits from caring individuals and friends. You have to run your reward system, it can help you a lot by being occupied. I've gone to a homeopath / integrative doctor and it's improving a bit. Some probiotics and colloidal silver and liver detox is working for me.
We are so sorry you have gone through that and thrilled to hear your detox is working. That is great you are able to do those shades and getting profit from people. Josh just started doing more of his lightpainting :)
illuminated-essence.com/
Just seeing how your doing?? I’m in same boat, sending good vibes from California 💪🏻
we are working on an update video thanks for asking! He is microdosing cannabis still for much needed relief :) So sorry you are experiencing it. hope since your comment you are doing better
I never heard of this before, which is crazy-- this should be more well known, especially the fact that it can come from antibiotics, etc. You're brave to share, and such a good looking man! God bless you, I will pray for you and everyone suffering from this. Jesus is the healer. God bless you
thank you so much
Thank you both for posting this. Prayers for you from Australia. I came across your videos as I my housemate has this condition and I was not sure what it was from. It is extremely hard to find any information on it. He is still on a number of anti-psychotics and various other medication due to PTSD from a car accident where he lost one of his arms decades ago, schizophrenia (I think) and now years of meth abuse. He has recently stopped talking altogether and grunts and paces, sweats and looks like he is so much agony, distress and sometimes seems aggressive. We thought he just needed to get out for a walk as he spends alot of time in his bedroom, which I think is to try and stop himself from being disruptive. This is frightening that so many prescription pills can cause this as they are easily prescribed. Do you have any advice on how to interact with him when he like this? I just pretend not to notice and try to keep some normality about it but my partner prefers to be honest with him and to make him aware of it. Again, thank you for helping so many people.
oh my gosh we are so sorry to read this!!! I know your comment was a year ago and we hope he is doing better now. Thank you for researching it for him as validation is HUGE when they are being gaslighted and dismissed by the medical industry. The best thing to do is make sure they know they are loved and NOT crazy. There is nothing to do when it gets bad, they can't stop it, but just knowing they aren't crazy and you dont think they are is the difference between life and death for so many.
Thank you for sharing your story and through about the medical mafia! Please post your progress as you go though this experience. Do you still take any medications or you stopped? What medications were you on?
This is so exactly like it is!! The madness and the hell that is the medical system 😢 it's frightening
I hope you get relief very soon. *big invisible hugs*
Thank you man for sub!!i give it the same for you. Take care man. I have to watch your all videos and heare something about your situation. Big up from poland brotha!!!!!
Thank you
I was running hills when I had akathisia, no joke, I made myself so tired to get rid of the pain. Unfortunately I developed a cervicogenic headache/occipital neuralgia issue after my withdraw, I was so mad that I had won a battle against akathisia but was left with another big battle to face, I’ve been in physical pain in my head for 5 months now, it’s been horrific
Oh no we are so sorry to hear that. Hope you find relief soon
I feel you, literally. I have involuntary whole body movements also,. Going on 1 year now since symptoms began. Heavily looking into it with doctors for three months now without a diagnosis. I’m not and haven’t been on any medications. I only take herbs. Also I have brain lesions. Do you have brain or spinal lesions?
Hoping for your and our healings!
They always told us he moved to much for accurate scans/eegs, etc. So sorry you are experiencing symptoms. Hope you are doing better since your comment.
I’m so sorry you have had to endure this! Does dancing help? I use poi as a healing movement art and I wonder if it would be helpful
This video resonates with me very strongly and everything said is true.
I don’t trust Doctors at all and they lack empathy towards the patient and rarely believe what we say.
I had this when i was given anti-Psychotic medication this man is telling the truth. Psychiatry is very cruel to people. My distonic reactions we're so bad my toungue would have spasms and my body would twist its was awful
thank you! So sorry you went through it
This made me cry my heart breaks so much for you. I beg God to make you whole again.
thank you
@@AimeeJoshJensen Have y'all found any relief yet? I found it through high doses of gabapentin (600mg 2-3x a day), but that has its own side effects including chemical dependency with tolerance, kinda like opiates. Another thing worth mentioning that is more natural & holistic would be black seed oil. Among a TON of huge benefits, it has calming effects on the nervous system and has been described as "a cure for every but death" by ancient healers. This in combo with magnesium and zinc could do wonders? Can get on Amazon. The B. S. O. has a very pungent bitter taste so capsules may be taken to avoid that. Or mix the liquid with food.
I'm hoping it would be worth a shot I just know what it's like suffering from this condition but not near as long as poor Josh and I'm hoping and praying for a miracle 🙏🏼 following you guys, much love 💕
@@phiwei3734 thank you. We are working on a updated video but he uses cannabis and microdoses daily to get much needed relief :)
Would love to know how Josh is now? Pacing as a write this. He couldn’t be more accurate on this. Nervous about doctor appointment today.
I've only come across your videos,. I wish I would have came across them last year. I was on clonazapan for 12 weeks stopped abruptly, I went into phycosis, I was given meds to stop them and then got Akathesia. Every thing u explained was the exact same for me,..I kept ringing helplines,..I literally wouldn't leave the hospital they got me arrested and put me in a cage at the back of their vans. I ended up in a mental home for 5months,. After about 3 months it stopped, I'm on 4 different types of meds and am so worried about if it comes back or when I have to come off. I went through hell they would tell me to "relax"...I overdosed on a break home from the hospital, well they had thrown me out at that stage. The overdose didn't kill me,as u can see. I'd love to know how you are now. I am traumatised almost from it all, but much better its gone,I still have other symptoms like fatigue insomnia. But they're nothing like Akathesia, thankyou for this video.
You most likely got akathesia from the dose they gave you to treat the psychosis. I got it from a anti nausea med
The Overpill documentary brought me here. You guys are so brave and I really appreciate your stand against big pharma. If I was in your area I would ride my bike with Josh. Also, I'm curious. What caused Josh's depression that lead to the start of anti depression drugs?
Thank you so much for your support. He was put on an anti anxiety med for occasional anxiety
Aimee & Josh Jensen .You are very welcome. Do you know what lead to the anxiety that leas to the meds?
Yes Complex ptsd. Years of counseling they offered him meds and he would always so no but in talk therapy talking about past trauma just wasn't helping so he finally took what they offered and within days this happend :(
Man! So sorry to hear about the past trauma. This is largely why many get on meds. Has he tried detoxing the system? Meds are very toxic. This is an old clip but chekc this out.This woman developed dystonia from a reaction to a flu shot. Some say she was faking but who knows. th-cam.com/video/oRw5s_04lMw/w-d-xo.html
Thank you for the link. Yes he has tried detoxing :)
Daddy God loves us, sees us, fights for us. I love you guys and believe one day you will be healed. It's a very lonely thing this brain damage in addition to all the other issues in life. Keep your eyes on the Lord's promised love and compassion ❤️
thank you
i'm on latuda, an anti psychotic drug, I feel slight akathesia with restless muscles, but not as bad as you. I appreciate you sharing the video and your story. Have you tried taking propranolol (inderal) for akathesia? I am prescribed that for akathesia and i think its helping me but I'm not sure if it would help in your case. Please let me know
So sorry you experienced this. And yes propolonol he tried and he had a horrible reaction to it.
Holy shit man!!! I joined your group not long ago to learn a bit about it, wow.s the wrong word i know but wow!!! That shit is bad!!!!! I wd.d from effexor and am ready for hell if i go there just like you said but you.d laugh at the worst possible torture chamber in the whole place!!!! A total warrior!! I really hope one day this lifts for you. Great job with your group too. I had to laugh when you said your dr told you it.s all in your head. I.ve heard the same. The thing is though, they.re right. Not for the reason they say it though. It IS in our head because that.s the part of our bodies these drugs fuck the most, and our cns.s.
Thank you so much. So true with the head being what the drugs effect most for sure
@@AimeeJoshJensen thanks for your reply. It's very sad that yhis happens and I really feel for you. I wont ask as sadly I think I know the answer already. I don't know if it was in this clip or another of yours i listened to but one of the biggest things I think you said was "QUESTION THEM!!". If they can't give accurate answers or start getting defensive etc it's time to move on, don.t you think?
@@suckermofo1 yes for sure!!! Alot of times they would stop making eye contact too and some verbally defensive, rude, abusive and gaslighting. Totally dont trust them if they do that
Hi Josh. I am in a psichyatric treatment with antipsycotics 2 months ago... After see this, i don’t want to take the meds anymore. I want to know how longer you were in treatment before the acathisia appears. I really wish you could get better. I write from colombia. Thank you for your response.
The akathisia showed up just days after starting Effexor. Some get it tapering to fast though as well so please be careful
I came off my meds and had this for few week it was the most torture and the scariest thing iv ever experienced in my life I immediately went back on and now I’m absolutely terrified of even tapering how on earth has he lived with this for 4 years? It’s a torture no human or animal should ever go through
so sorry you went through that! Agree no one should have to go through it
EXACTLY! EXACTLY! EXACTLY!
:)
Thank you for sharing your story, I’ve been suffering from a list of symptoms that I am yet to confirm is akathisia or not. After a few occasion uses of alcohol and cocaine use (6 months ago) I get buzzing/crawling sensations, internal muscle tremors/vibrations, muscle twitching, heart palpitations, itchy tingling sensations, racing thoughts, restlessness and unable to stay still etc. I’ve read cocaine can be a major contributor to akathisia, dystonia and other motor function disorders. Had all medical tests ruled out to be told it’s just anxiety however this can be strongly questioned. These symptoms come in waves as well. From your knowledge and experience, do you know if this can be common for akathisia?
I know that akathisia wont show up on tests besides a visual check from a doctor and check marking the symptoms. They will always say its anxiety though, they will never admit akathisia unless you get a doctor who will actually admit the drugs caused it. and Yes it can come in waves. We are so sorry you are going through it
@@AimeeJoshJensen I had this and endured it for about three months. I went through all the three ring system circus B.S. . Yes I know Klonopin can cause it, especially attempting to detox from them, but that’s not what caused mine, it did however put it into remission, but now I’m stuck on 1mg a day of it . I’m familiar with Jordon Petersons story . It’s all inexplicably sad, which I presume you appreciate that doesn’t even begin to describe it . I can’t imagine continuing to live with it as you do . I can only offer my prayers that @ some point a miracle transpires that A. Makes it stop for you, and B. someday I’m able to get off of the Benzo with out re-triggering it, and having to endure the other deviating things that, that nightmare causes .
I have secondary or facial dystonia, so I am lucky it just effects my mouth. I have BOTOX every 10 weeks. I got it from an anti-depressant drug called escitalopram. I also developed akathisia for 3 years. I became an alcohol-dependent patient overnight to control the symptoms. I found out that my D2 receptors had been permanently damaged. I managed to work out myself that the akathesia could be dealt with as my 5HT-2A receptors were over active resulting in my D2 receptors not working at all. I took cyproheptadine for 3 months which is a 5HT2A and 5TH2C antagonist. So that cured my akathesia, my dystonia though was permanent. But I had to do this all on my own!
What you are feeling makes me cry, because i feel exactly what you did. I am not sure what drug caused this, but it is the down relegation of D2 receptors that caused my akathesia, but I also found out what caused the down relegation (after 2-3 years of drinking a bottle of whisky - and I wasn't even drunk, it just made me feel normal for a few hours). But please do not do this and stick to the cannibis, it is much safer as I ended up in hospital with hepatitus and kidney failure.
We'll done you two, for promoting this disease to help find a cure, as no medication helped me at all, except clonazepam a little, but benzo's are nasty and addictive.
Don't give up the fight!!!!!!!!!!!!!!!
We are so sorry you have gone through all this. Please know you can join our akathisia support group if you even need support from the trauma you went through with it. So glad to hear you dont have that anymore.
facebook.com/groups/LivingWithAkathisia/
Thank you for saying schizophrenics are not crazy. I take meds for psychosis but the meds sometimes gives akathesia
If you find you are still bad off josh I know something you are good at.... Explaining this issue and it's not small I respect your explanation even if agitated bc it's normal
thank you
I’m in the same state. Terrifying for me and minimal help or understanding from everyone. Fall daily. Can’t hold, play, or interact with grandchildren. I bite my lips, cheek, and tongue daily too. How long have you displayed sign/symptoms. Does it ever stop?
oh no we are so sorry to hear this. We hope you are doing better since your comment.
Are you doing okay now?
I understand. I have to keep moving.. I have my best exercise when I am having an attack, The next day I don't remember, what I did unless there are some clues I leave behind. I have to exhaust myself before I am relieved. Do you get any relive from this horrible reaction that no one understands. The only thing I find that helps a little is Vicodin, and then again Vicodin could make it worse But Dr's would not prescribe that. THANK YOU! I am not going to change any of my meds because the last one he gave me made the Akathisia worse. Thank you.
So glad you are aware it can make it worse so you make informed choices :)
When we go for help, they make us worse. Many of us are forced into the state hospital where we are drugged up forever. God have mercy.
It is backwards for sure!
I can't even watch this because I had this for nearly a year and I know it's real, it is the worst thing in the world. This is not just a mental feeling you want to jump out of your skin, You can't stay still because you are in constant need to keep moving but you don't get any relief at any time.
We are so sorry you had this for nearly a year. You explained it perfect, its just torture.
Aimee & Josh Jensen Have you tried propranolol it is a beta blocker, I took it for two weeks and my akhatisia stopped but I could not feel it working so I don't know if it was the propranolol that stopped the akhatisia or if it went away on its own. I don't see any harm in trying it.
Actually there is quite a bit of harm in trying any pharma drug. Akathisia is a side effect of that drug as well and has hurt alot who have tried it with akathisia. When they gave Josh one dose in 2014 he had a mini stroke and heart attack symptoms from the propranolol and it amped up every other symptom within hours. I am glad you felt relief with it though :)
It's beta blocker it is not anything like psych drugs, I would have taken anything if I thought it would get rid of the akhatisia. I took it only until the alhatisia stopped and I am not sure if it was that but I am surprise you would not want to try as it is recommended on the Rxisk website which is against pharmaceutical products
I already said in my reply to you before that he did try it. It landed him in the ER within hours from the mini stroke and heart attack symptoms.
Much love to you bud will this condition leave you at any point hope so
thank you! Hope so :)
I had my first experience with akathisia when I was given Reglan 20 years ago- something to do with the dopamine receptors. It’s like sheer panic on steroids- like being buried alive and trying to fight your way to the surface with no air! Sheer terror!People cannot see what is happening inside you and only see some restless movements which doesn’t even begin to explain it all!
I got a flu that never went away10 yrs ago (It’s called myelitis encephalomyelitis (ME) or chronic fatigue syndrome (CFS) in the US). ME is a medical condition that psychiatrists tried to get their hands on to profit off of. Thanks to Simon Wesley a lazy ass psychiatrist over in great Britain who thought it would be a great idea to go in where there was an epidemic of this illness going on and without examining a single patient decree that they were all suffering from mass hysteria or conversion disorder. He later laughed about how it was an easy thesis paper to write in order to get his degree! He managed to get it published and that was the start of a whole population of patients being scorned and left to suffer in hell with no research carried out until recently as the numbers of cases suddenly began to increase!! Simon Wesley was proven wrong by endless amounts of medical research in the past decade showing the actual physiological problems causing this living hell, but for over 50 years these desperately sick patients were abused and told it was all in their heads.
Something caused me to go into a state of akathisia for up to 8 hours daily starting about 6 months ago. The cause may be that I’ve been on the same dose of fentanyl for pain for 6 yrs and developed a tolerance-not addiction to it. This week I was finally given a minor fentanyl dose increase after months of begging because my pain is out of control on top of having the akathisia! It seems to have settled it down a little, but it is still occurring intermittently for hours at a time. They’ve also given me to clonidine which helps a little, but makes me drowsy. I don’t know if that is a medication you have tried but, I just thought I would mention it. The disease I have called ME, took me from bicycling 2 hundred miles a week to only being able to get from my bed to a recliner or the toilet. The akathisia is leaving me in a state of unbelievable torment physically and mentally as I rock constantly and twist and writhe about in bed. Even though I’m so weak I can barely get to the bathroom, I feel compelled to pace for relief!! You are describing this perfectly and watching you is stirring up panic within me!!! I cannot imagine being permanently trapped feeling like this constantly! Holy Jesus! God have mercy on you, please keep advocating for yourself because in this outrageous medical system no one gets it!! Doctors are trained by the pharmaceutical industry, so all they know how to do is hand out pills!! I pray to God someone will find an answer for you! You have done an excellent job of describing the sheer terror of this physical condition and the constant thoughts of suicide to escape the nightmare of its torment!!!
Thank you so much and so sorry you are dealing with this.
Hey yesterday night I had 20mg of Metoclopramide (Reglan) and started developing akathisia. It seems to be better today but im worried.
Are u still getting the symptoms?
He is so brave
thank you
RIGHT! THATS ALWAYS A DOCTOR CLASSIC: "ITS ALL IN YOUR HEAD" OR "ANXIETY" AND ITS LIKE OK YA IF I HAVE ANXIETY OR WHATEVER ITS BECAUSE OF THE ACTUAL PHYSICAL REAL DISORDER THATS CAUSING IT!
so frustrating for sure
Hey bro I was wondering if you healed? Or gotten better?
I'm so sorry what you have to go through everyday I seriously can't imagine. These damn drugs need to be banned never given out ssris/benzodiazepines are horrific and cause lasting injuries
agree! Its very scary
Did your akathisia improve over time since the medication or has it remained the same or worse?
he has been microdosing cannabis and gets relief with that :)
I wish the world would support assisted death so much pain.....
How are you doing now? I hope you have been healed. ❤
i was put on prozac 10 mg but went off it because i was feeling extremely restless and agitated now im on trazadone 50 mg and it feels like hell. im getting off trazadone right away. SSRIs and other antidepressants/antispychotics are not meant to be put in your body
So sorry you delt with it. Hope you are doing better now since your comment
TRUE THAT JOSH
Hugs today what is the title of the video for that cannabis types that you use in a vaporizers I am tired of smoking marijuana it’s hurting my lungs it doesn’t help all the time do you have the inner akathisia too?
I have been struggling very badly with her suicidal ideation‘s from the shit in the medication that was supposed to treat it don’t work and then they cold turkey me
Off the benzodiazepines that were being used to treat it for 12 years they added antipsychotics because he thought that I was bipolar and it was akathisia they antipsychotics made it worse I never knew it was akathisia I didn’t know the term or what it was. Now i’m in hell like you. This shit when’s me in the psych ward two times in October and they keep threatening longer stay for me at the psych ward trying to force medication on me that makes it worse
I have exactly what you have Josh. Since four years ago. It's lonely because nobody can understand what we go through. Doctors are either skeptical, don't believe you, or don't know how to have a conversation about it. I've never taken psychotropic medication, but I think mine is from peripheral neuropathy and the drugs I've been prescribed since 1999. Opiates (since it's a dopamine thing) are the only thing that works for me. I don't know about you? I would like to talk to you about it and compare notes. I know your pain. You can't focus on a task or anything when you are consumed with the intensity of this indescribable excruciating pain. Pace, pace, pace. Lay down cause your so exhausted, then start kicking your legs and get back up. pace, pace, pace, and sit down because you're so exhausted and rock back and forth for days, but it never goes away. Pace, pace, pace...and so it goes...days and days without any sleep because it's perpetual...IT NEVER STOPS OR GOES AWAY.. I want to talk to you when you're in the right mind for it.
We are so sorry you have been suffering for that long. It is torture and No one seems to believe it and it helps to know others know exactly what you are going through. On facebook we have a support group called "living with akathisia" if you want to join for validation.
Also Josh is on facebook as well you can message him :)
Thank you Aimee, you must feel so helpless and I want to thank you for hanging in there with your man. I don't do FB but I'm just glad to know I'm not the only one out there. This movement disorder is SO rare not many out there have heard about it (yet). It affects not only the affected but their families too. I don't really know how to get a private message to you guys but maybe if I can, i can tell you what works for me to keep me out of the symptoms and the meds I take that keep the dark thoughts away, but I feel it would or may benefit you all to know, so if you haven't tried the medication (and the only medications) that work for me, I can maybe help. You need to get a good Neurologist, they are the only ones who will listen. Not pain management docs, but a good Neurologist who can try to understand and listen. We are a limited few who have it beyond severely. Please get back to me.
@@jimmiemclovin how are you now Jimmy
Ok HES NOT TRYING TO SCARE OTHER PEOPLE ON FRICKING PURPOSE! GET A FRICKING GRIP LADY! I JUST LOVE HOW PEOPLE OVERLOOK THE ACTUAL NATURE OF THE SITUATION OF THE ACTUAL ROOT CONDITION! GODDDDDDDDD! I GET SO ANNOYED TOO! YOUR NOT ALONE DUDE, I TOTALLY AND COMPLETELY UNDERSTAND WHAT HE'S SAYING 100%
exactly! thank you!
If I make it through this, as a lawyer, I’m coming for the people who did this to me (us).
100% right Josh... that commercial was a joke.
thank you!
how do you sleep? hope your are better now my friend
we are working on an update video thanks for asking! He is microdosing cannabis still for much needed relief :)
After I'm done with my valium taper, how should I taper the lexapro? 10mg... opinions much appreciated. 💚
Safest I have heard is 5% every two weeks. Use a nail file and dont drop more then that at one time. Aston Manual I have heard has good resources on tapering but I haven't looked at it so I dont know
Hey, i got a question: I took 10mg Abilify for half a year and then suddenly stopped. Now half a year after stopping, i am in the situation where i don’t feel pain as intense as before, i can hardly feel any pain at all and when i look in the lights of cars it is fascinating me, didn’t had that before. I am not the same person anymore. Any solutions for this? The half life of abilify is 94 hours so it should be all gone after 20 days but i am still not the same person.
So sorry to hear this. Even though the drug says the life of it is a certain amount of time it might have not cycled through your system. There are many that showed up on Joshs blood tests months after he stopped taking them
@@AimeeJoshJensen are the changes to the dopamine and serotonine receptors in the brain permanent ?
@@rainbow8198 we hope not. The body is strong and amazing and can totally heal we believe :)
psychiatry and their drugs have also ruined my life, it is so sad what they are doing to us. I am too angry to even tell my story. but my family are the ones who have pushed me to be on these drugs and never say anything bad about a Dr. or else I get it.
So sorry you have suffered
My partner has been on antipsychotics for the past 12years
Weve been gradually tapering off the past year
She’s been on one of the lowest doses you can go
And that’s 78mg
Although they do make a 39mg shot which the psychiatrist doesn’t want to work with us to get off the shot
She saids schizophrenia is permanent
The drug is called Invega
She’s experiencing akathasia and dystonia
She’s been on 78mg the past 6 month
We are not sure to just cut it cold turkey from here and stay in this dose a little while longer in hopes that the dystonia and akathasia will go away..
Or attempt our best to advocate for a lower shot of 39mg to our non helpful psychiatrist..
She tells us they don’t make it..
I had to contact the company to assure that they do make it ..
Anyways
We would really like that last shot reduction
Thank you so much for your videos..
You are not alone in your journey guys
Remember that!
oh my gosh so sorry to read this. I hope that she is doing better since your comment!
I got this once when I was given Invega shot for schizophrenia.
so sorry! Hope you are doing better now
unfortunately once you have it, it is always there. i began taking pregabalin years ago. If I miss 1 dose i get withdrawal akathisia. I wonder how Josh is now.
we are working on an update video thanks for asking! He is microdosing cannabis still for much needed relief :) So sorry you are dealing with it
I had been told everything is in my fkin head and I started injecting b12 and supplement like crazy. Somehow I healed my neuropathy, maybe just maybe akthesia is a nerve condition and the brain is miss firing messages through the nerves, making your skin feel on fire have that from nerve damage. B12 made me much better within a month, I was dying a slow painful death. Doctors just told me I'm crazy, I'm glad I started injecting b12. I'm heading, but slow and steady
So sorry you went through that. I am so glad to hear that you are feeling its getting better and hope since your comment it has gotten better
What was the culprit medication in Josh's case?
His akathisia started with effexor
To those of you who have experienced this for a long time, is it something that comes and goes or it constant?
for many it goes away after stopping the offending drug. For others they are polydrugged like Josh causing more damage and it lasts longer
It's the doctors and hospitals causing this shit I suffer too after tapering my (non psychotic) meds
How is he doing now?!?
I eventually got here after looking up Restless Leg Syndrome & stumbling onto this video; th-cam.com/video/luKsQaj0hzs/w-d-xo.html
Josh I can’t begin to imagine your turmoil & that of your loved ones - thank God you have Aimee standing by you. Back in the 00’s, I got myself off Zoloft after 7 years of feeling like a flat version of someone who resembled me. I didn’t have the luxury of the internet to do research. I can only think myself lucky that I’m ‘relatively’ unscathed. Drs have wanted to put me back on ‘something’ but I have flatly refused. I’m dealing with my depression with alternative methods which is mostly working. I will never go down the med route again.
You are absolutely correct - the people are test subjects; guinea pigs. Drs only ‘know’ A) what the drug companies tell them & B) what only the latest test & research shows - which could change next week!
Thank you for your bravery & conviction to raise awareness. You & your lady are very admirable human beings. I wish you the very best & mostly, to find some relief from your painful prison. Bless you guys. 🦋
Thank you so much for watching and so glad you are making informed choices. It is sad what they know from the drug companies but sadly most aren't open to see what is in front of them as well.
TRUE
Thank you for your courageous information video and I am profoundly sorry for what the lowdown filthy “legal” drug trade has done to you. The world is well and truly overdue for a *formal Global Apology* for the devastation and profundity of its crimes against all humanity and the planet generally. We are all overdue to easily access *genuine* - i.e. real - *Health Care* which therefore naturally includes holistic options and for a user friendly cost! The Global “healthcare” Industry has been rigged up otherwise - I have done no shortage of research on this... it is *NOT* about the caring folks. The “healthcare” industry is guilty of abusing this compound word and *pushing product for profit*. (I am one of the people *yet to heal* from such “healthcare” and as such I am on a government benefit - as truth-telling writers such as the award winning journalist into science and medicine Robert Whitaker speaks of). Professor Peter Gotzsche is one of the outstandingly courageous medical professionals who continue to speak out the truth and suffers the results of the *pathetically petulant* and *vengeful* drug industry. The multitude of individuals personally responsible for the insane and insatiable greed of the drug industry are *literally guilty* of *murder*. Such *insane* greed is the most *profound stupidity* and *ugliness*. In truth this type of *pathetic* “successful business model” is *cowardly* and is a *felony*. CEOs that are directly responsible for *knowingly pushing dangerous drugs* out onto the market are *way overdue* to be *slammed in jail*. They laugh at the billions of dollars fines and keep right on gluttonising because it “pays”. Since going through the indescribable torture of tardive akathisia myself I remain incredulous at what is considered “normal” and “successful”, when the manner in which far too many “executive” types and “professionals” are greedily devouring *extortionate* amounts of money - being the most extreme *low-grade* mentality that they are - and are directly *guilty* of immeasurable harm and *premature iatrogenic death*. My contempt for these types of disgusting *criminals* knows no bounds. Their ignorance is that of the most profoundly dangerous form. All my best wishes for healing to all of those who suffer from their crimes.
Thank you so much!
I MEAN SOMETHING HAS TO BE PRESENTLY OCCURING TO CAUSE ANXIETY. YOU DONT JUST GET IT OUT OF THE BLUE OR SOMETHING
Isn't there one doctor in USA that would take over to help you? Dr Phil maybe?
We have written into all those shows. They have so much funding from Pharma they would never touch his story