Jasmine Aamira haha no it's not weird and people ask me that a lot! & no people with a Jpouch are told not to stick anything up there! Of course scopes and stuff are done but because things down there are so delicate with the pouch, you can't. I'm not quite sure how that affects gay relationships, I'm sure it is an adjustment! I will probably cover this in my "sex and dating with an ostomy" video
I literally just found your channel at last night at around 11 and have watched all of your videos since. I don't have Ulcerative Colitis or anything like what you've been through but I still fell in love with your channel and just your attitude and positivity. I was happy to see that you uploaded another video today 😊
i had a temp ileostomy 5 years ago and then got a j pouch, i ended up having problems with leakages and incontinence. two weeks ago i got surgery for a permanent ileostomy and im so happy. i really hope the j pouch works out for you.
Just found your channel a couple days ago and I’m honestly in love. You’re such a beautiful girl and such an inspiration. My mom has a colostomy that she has to have for the rest of her life and its really interesting to learn more about other people’s stories. I don’t know you and I just found your channel but I’m so proud of you and you are so strong! ❤️
I just found your channel today, while I was procrastinating studying for my Nursing exam. I immediately was taken in by your spirit and your resilience. I’m in Nursing 1, the first semester of nursing school, and this end part of the semester has made me so stressed and worried about why I’m doing this. Your favorite part about being in the hospital made me start crying as well, and made me remember why I tried so hard to get into this program in the first place. I hope I can be someone’s favorite memory and help someone the way your nurses and healthcare professionals helped you. You’re an inspiration, and I can’t wait to see more content!!
So happy I found your channel! Love your story, you are SO SO strong. You are so positive and well spoken. I’m 20 and you feel like an older sister to me.❤️ your videos make me feel so happy, thank you for being so open and transparent.
I'm planning on doing a day in a life soon! I think maybe a "what I eat in a day" could be fun too, especially since I could tie that into having this disease. I just really want to make sure I have a good mix between ostomy/health disease videos and normal videos for everyone else. What do you think about maybe Tuesday is health day & Friday is other videos day?
Emily Parris that’s a good schedule! Either way I love watching your videos, I love that you’re 22, even though I don’t have an ostomy I just love how informative you are!
I love watching your videos. They are so informative, especially to me since I had no idea about any of this stuff before hand. So sorry you had to go through all of that but you seem to have kept high spirits and stayed so positive. Such an amazing trait to have.
I love your videos. Ur makeup looks great. And ur attitude is very positive yet honest. I'm 22 too and pregnant with my second baby. I've never heard of any of this didn't even know it was a thing. Thank you so much for sharing your journey. I look forward to seeing your life get better and better. 💪💋❤❤❤
Thank you so much for your videos, for telling your story, and for raising awareness about IBD and other so-called invisible illnesses/diseases. I was almost positive you were a Christian even before you said it directly in this video. I just wanted you to know that it's apparent in your words, the way you approach your circumstances, and the compassion you have for others. I too walk by faith. I don't have IBD or Crohn's, but I have Mitochondrial Disease. In short, the various system's don't have enough energy due to faulty or missing mitochondria (the powerhouse of the cell), so they run slower and slower and eventually shut down completely. When I wake up in the morning, I never know if I'll be in the ICU or the OR by that night, or end up admitted again for a month. We make the best of what we are given and find God''s purpose for us while we are here. We should aim to do well, but much more importantly to do good. (sorry for that novella, night med kicked in. But I meant everything I said). I am praying for you and I would love to talk with you more. I followed you on Insragram.Jeremiah 29:11 --Jenn
Honestly I think this has got to be the best compliment I have ever received. I think as a Christian we all strive to be good examples and to let your light shine for Christ and the fact that you noticed means the world to me! I am so sorry to hear about your disease. I know how mentally exhausting it can be to go through this day in and day out. God doesn't want us to be overwhelmed by illness, but rather overwhelmed by His love.
I love your videos. You’re so inspiring, I’ve had UC for 10 years now I found out when I was 14. I’m no where near having to get an Ostomy but I’ve always been curious to see what it’s like having one. Thank you for all your videos and getting the awareness out for people with this disease.
I found your channel last night through recommended videos and I’m hooked! I don’t have UC or anything like that but I watched all of your videos because I love your personality :) I have psoriasic arthritis so I can relate to having an auto immune disease like you. I love your positivity, it helps me to keep a smile on my face even if i’m in a flare :)
Just stumbled upon your channel and watched ALL your videos! First of all, you're amazing! You are so brave and positive and inspiring and so pretty! I love your channel and keep doing what your doing girl! Love ya ❤️ #TeamGod
I have chrone's, and have a ileostomy bag. Though it's crap, it's also a lifesaver, because i actually function day to day now. But i would love to get my insides put back inside at some point. Have had the bag for 1 1/2 years now. You are awesome btw :)
You are so very brave! I’ve watched your videos and you are so great about information regarding UC and iliostomy and jpouches. I had ulcerative colitis the whole entire colon was removed. I had a jpouch for about a year but it did not work for me I had chronic pouchites. So in February 2017 I had a permanent iliostomy constructed also removal of my rectom and anus yes Barbie butt. All of my surgeries were “open” not laporscopic. God Bless You!! Thank you for making your videos!
I love the fact you use the term butthole lol makes me laugh that you aren’t all technical. Found your channel a few days ago and I’ve been obsessed since ❤️
Thanks for answering my question! I showed my boyfriend your videos and he’s decided to cut out red meat & a lot of dairy out of his diet. I love that you did a GRWM & answered questions, I love makeup and learning more about UC!
I think it would be cool if you made a video about the parts of UC that are lesser known. I think a lot of people don’t realize that is it so much more than just a “pooping problem.”
Hi I’m new to your channel and was wondering why you had your surgery on base which I’m thinking would be a military base? Btw I love your channel my fiancé recently got diagnosed with colitis and he also bleeding ulcers and by watching your videos helps me understand a little bit what he’s dealing with and helps me make sure he’s taking care of himself and watching his stomach to make sure it doesn’t become worse! Thanks so much :)
My dad is in the military and that's where my doctor was for my UC so that's where it all was happening. Once they realized how bad things were I was too unstable to move to another hospital. We never thought I was getting less than amazing care. But my surgeon on base couldn't do the reconstructive surgeries so she referred me a former colleague of hers at the University of Cincinnati.
Your inspiring. I am 27 and when i was 17 they took out my gall bladder out and cut my bile duct. My stomach filled with bile and i had an emergency laporatomy ever since i have suffered from ibs and my stomach works completely different. I have so many troubles with everything to do with my stomach. i have a scar all down my stomach and when i have to go to the er it is so hard because they don't get that my stomach isnt the same as others. It is so hard not to feel like I am in a hopeless situation and it makes it harder to deal with when you look at me and i look fine. so many er doctors look at me like why are you here you look fine. Its very depressing and frustrating because until i get so bad they cant ignore me they try to push me off. Rarely do i get a doctor who will listen and then get it.
I wish I was looked as good as you a month after surgery. I felt like death for a few months after. I had a two step where in step two they created the pouch, connected it and about 7 days later starts using it. They only removed my colon and hooked up an end ostomy in step one.
Amen I got crohns and im 16 although ive been really sick with perirectal abscesses im thanking god everyday that im breathing and alive at first when I was in the hospital they told me that I have a real bad gastroinfection I thought I was gonna die but they put me on flagil and mesalamine and I feel fine but im sick right now and I pray for everyone to not suffer im real positive myself but I used to get made fun of m7y freshm7an year for soiling myself but people understand now and im7 glad your ok :)
Hi Emily i love watching your video's. I am 40 years old and I was diagnosed when I was 22 with ulcerative colitis. I had and baby and a 2 year old at the time. I was on pill form of medication. I was doing so well that at age 24 i stopped taking the medicine. Was in remission for 14 years. I had Major spine surgery. I quit smoking for the surgery and one month later i was in a horrible flare. I was put on infusions and was very sick with side effects (Remicade and intiveo) i now am having a really bad flare and was tested for c-diff. Which was negative. I was wondering if you have any ideas for better way of eating? I try to have a better diet. But have just been so depressed i just eat whatever. The only thing that helps me get through my day is my grandson.
I personally hate using public restrooms for #2, I get so much anxiety when I get the feeling of having to go. How do you feel about using the public restrooms?
Would you be intrigued if you went on a date with a guy and found out he had an ostomy? I have some little people friends that have strong opinions about dating other LP’s. Pro and con. How would you feel about dating ostomates?
I actually talked about this very thing recently with a friend! I'll probably talk more about this in an upcoming "sex and dating with an ostomy" video!
I met my soon-to-be fiancé thanks to our ileostomies! He has had an Ileostomy since age 16 (he's 25 now) and I recently had surgery for it this past August. We've been together over a year and I'm incredibly grateful for him 🤗 💖
I'm having trouble keeping my urostomy bag attached to my skin the adhesive I have is thick and don't work and I have had to change it everyday for 3 days now any suggestions
What products are you using on your skin before applying the wafer? It may be those. Is it the entire wafer coming off or is it a leak that makes it come off. If it's a leak I would use something like stoma paste or a barrier ring. I'm not as familiar with urostomies.. do you have a stoma similar to ileostomy patients? I'm just not sure what they bring through the abdominal wall.
Laura Third when you have your large intestine removed you no longer have place to store stool before you expel it. She no longer has a large intestine due to it becoming inflamed and almost rupturing. She had to have emergency surgery and they removed her lower intestine and gave her a stoma, which is where she had the bag on her stomach that she would expel waste from. As you can imagine this is not exactly something anyone would wanbt to live with, but at 22 it was hard I'm sure. So she decided to get a Jpouch which basically gave her a way to hold stool they pull the small in stone down to where your rectum is and flip one side up to make a j or pouch to store stool, than at the bottom of that j they attach the rectum. I hope that explains it better but if not on her videos look for the one where she talks in detail about having the surgery.
Good question! For a couple of reasons- 1. My colon ruptured & I was going into septic shock. My heart had already stopped twice in the weeks prior to my emergency surgery. So they just wanted to get me in and out of surgery as fast as possible. 2. Some people who go into this surgery with a little more preparation might not know that they want a Jpouch yet. A lot of people choose to have their ostomy forever but once a Jpouch is formed there's really no going back. 3. This surgery is HUGE on your body & while some people do choose to do it in one surgery (have their colon removed and Jpouch formed) it can be too much for your body to take at once. So doctors like to do it in three steps to give your body more time to heal in between. I hope this answered your question!
But even if you choose to have your colon removed and Jpouch formed in the same surgery you have to have an ostomy. You have to give your Jpouch time to heal before you can start using it.
Oh interesting! Do you deal with skin breakdown like ileostomy and colostomy patients do? Or is the urine not as toxic? I really should educate myself more on the urostomy side of things.
My skin gets really red if the urine touches it I had my surgery a year ago November 10th was in the hospital till November 30th because I didn't feel like eating and I couldn't poop so the Dr gave me medical marijuana pills 5 days before I went home and I was able to poop 2 days before I went home they wanted me to eat and poop before I went home and when I did I asked my Dr when could I go home and he said he couldn't release me even though I was eating a popping so I signed myself out he only wanted to keep me there because of my insurance
I have a permanent ileostomy but I still have my rectum so I don't have a barbie butt! Its weird cause I still have a butt hole but just don't use it. Sometimes I get mucus that comes out but otherwise its just there and I just don't use it.
Yeah I'm in a support group and a girl has the same situation as you. Her doctors weren't pressuring her to get out it but she has UC in her rectum still and it was causing her a lot of symptoms still. How annoying huh. I've heard the barbie butt surgery is a really hard one! Every person in my support group that has it said recovery took a long time, so hold onto that rectum as long as possible!
I'm aware of that thank you, but being that I don't have a colon or a rectum- both of which help you hold in stool, my doctors have told me that my chances of incontinence are a lot higher especially given that I haven't had children yet.
Omg. I started watching you just last video but didn't know about your HSP. My daughter had HSP last January. It's terrible. Are your kidneys ok? Just before you said HSP I had a sinking feeling that's what you were going to say. I hate it. :(
Yeah my kidneys ended up being okay for the most part. They were really concerned because along with the HSP I get kidney infections a lot, so they were checking my urine like crazy! I'm so sorry to hear about your daughter. It was honestly one of the scariest and worst pains I've ever been in. It literally felt like I had snapped both my legs in half and then I couldn't feel them at all. It was really weird because normally HSP comes to boys ages 2-12.. I'm a 22 year old woman so they aren't sure what brought it on.
I meant to say I had my colostomy in 1981 when I was 26yrs old. They only gave my a 50/50 chance of making it out of surgery. Well I beat the odds. Anyway I have had mine at 26 and I'm 68 now. This is the only way I know about. Thank you for letting me respond to your quustions.
It honestly just feel like throwing up normally but the smell is REALLY nasty. When you don't have a colon your poop isn't hard so it's not like I was throwing up turds or anything haha.
yuckie... Im so sorry you had to go through all of this. I know you don't want people to feel sorry for you but it all seems really tough. i love your channel btw!!
I love the fact you use the term butthole lol makes me laugh that you aren’t all technical. Found your channel a few days ago and I’ve been obsessed since ❤️
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Let me know some videos you'd like to see! Advice, funny, beauty, health, fitness, fashion? LET ME KNOW!
A storytime!!
Maybe a 50 facts about me for people like me who are new to your channel
Jasmine Aamira haha no it's not weird and people ask me that a lot! & no people with a Jpouch are told not to stick anything up there! Of course scopes and stuff are done but because things down there are so delicate with the pouch, you can't. I'm not quite sure how that affects gay relationships, I'm sure it is an adjustment! I will probably cover this in my "sex and dating with an ostomy" video
A story time, makeup
Draw my life!
I literally just found your channel at last night at around 11 and have watched all of your videos since. I don't have Ulcerative Colitis or anything like what you've been through but I still fell in love with your channel and just your attitude and positivity. I was happy to see that you uploaded another video today 😊
i had a temp ileostomy 5 years ago and then got a j pouch, i ended up having problems with leakages and incontinence. two weeks ago i got surgery for a permanent ileostomy and im so happy. i really hope the j pouch works out for you.
Girl. I'm obsessed with u! U have the BEST attitude and can talk so straight forward. I've learned so much from u!
Just found your channel a couple days ago and I’m honestly in love. You’re such a beautiful girl and such an inspiration. My mom has a colostomy that she has to have for the rest of her life and its really interesting to learn more about other people’s stories. I don’t know you and I just found your channel but I’m so proud of you and you are so strong! ❤️
I just found your channel today, while I was procrastinating studying for my Nursing exam. I immediately was taken in by your spirit and your resilience. I’m in Nursing 1, the first semester of nursing school, and this end part of the semester has made me so stressed and worried about why I’m doing this. Your favorite part about being in the hospital made me start crying as well, and made me remember why I tried so hard to get into this program in the first place. I hope I can be someone’s favorite memory and help someone the way your nurses and healthcare professionals helped you. You’re an inspiration, and I can’t wait to see more content!!
i love emily u are amazing u are such an inspiration u deserve a lot more subscribers im glad i subscribed
So happy I found your channel! Love your story, you are SO SO strong. You are so positive and well spoken. I’m 20 and you feel like an older sister to me.❤️ your videos make me feel so happy, thank you for being so open and transparent.
Oh I love that! Thank you.
Your so beautiful with or without makeup no matter what anyone tells you love your channel please do morning routine ! ❤️
you look so good! can't imagine what you have gone thru, but it makes me appreciative of something as simple as going to the bathroom!
A day in the life video would be fun! Or a makeup tutorial, your foundation is stunning!
I'm planning on doing a day in a life soon! I think maybe a "what I eat in a day" could be fun too, especially since I could tie that into having this disease. I just really want to make sure I have a good mix between ostomy/health disease videos and normal videos for everyone else. What do you think about maybe Tuesday is health day & Friday is other videos day?
Emily Parris that’s a good schedule! Either way I love watching your videos, I love that you’re 22, even though I don’t have an ostomy I just love how informative you are!
I love watching your videos. They are so informative, especially to me since I had no idea about any of this stuff before hand. So sorry you had to go through all of that but you seem to have kept high spirits and stayed so positive. Such an amazing trait to have.
I love your videos. Ur makeup looks great. And ur attitude is very positive yet honest. I'm 22 too and pregnant with my second baby. I've never heard of any of this didn't even know it was a thing. Thank you so much for sharing your journey. I look forward to seeing your life get better and better. 💪💋❤❤❤
Congratulations! Do you know what you're having yet?
Emily Parris thank you! I have a 1 and half yr old boy named eli and I'm having a girl!!! dec 4th and calling her Emmy!
I get told that I look like Kristen Bell a lot but to me, you REALLY look like her!
Haha thanks! People tell me that allll the time and I'm always so flattered 😊
Emily Parris Me too! She’s beautiful so it’s definitely a huge compliment!
Emily Parris I see Kristen Bell and Shawn Johnson (the gymnast!). You have the same smile as Shawn.
Oh my god wow! Thank you! Two amazing women so that's a huge compliment.
Dani0Jo oh yeah I can totally see that too!
Thank you so much for your videos, for telling your story, and for raising awareness about IBD and other so-called invisible illnesses/diseases. I was almost positive you were a Christian even before you said it directly in this video. I just wanted you to know that it's apparent in your words, the way you approach your circumstances, and the compassion you have for others. I too walk by faith. I don't have IBD or Crohn's, but I have Mitochondrial Disease. In short, the various system's don't have enough energy due to faulty or missing mitochondria (the powerhouse of the cell), so they run slower and slower and eventually shut down completely. When I wake up in the morning, I never know if I'll be in the ICU or the OR by that night, or end up admitted again for a month. We make the best of what we are given and find God''s purpose for us while we are here. We should aim to do well, but much more importantly to do good. (sorry for that novella, night med kicked in. But I meant everything I said). I am praying for you and I would love to talk with you more. I followed you on Insragram.Jeremiah 29:11
--Jenn
Honestly I think this has got to be the best compliment I have ever received. I think as a Christian we all strive to be good examples and to let your light shine for Christ and the fact that you noticed means the world to me! I am so sorry to hear about your disease. I know how mentally exhausting it can be to go through this day in and day out. God doesn't want us to be overwhelmed by illness, but rather overwhelmed by His love.
I love your videos. You’re so inspiring, I’ve had UC for 10 years now I found out when I was 14. I’m no where near having to get an Ostomy but I’ve always been curious to see what it’s like having one. Thank you for all your videos and getting the awareness out for people with this disease.
I just recently came across your channel and I just fell in love with your personality. You’re also absolutely gorgeous.
You have a great personality, very real and nothing about you seems contrived. Love it.
I found your channel last night through recommended videos and I’m hooked! I don’t have UC or anything like that but I watched all of your videos because I love your personality :) I have psoriasic arthritis so I can relate to having an auto immune disease like you. I love your positivity, it helps me to keep a smile on my face even if i’m in a flare :)
Just stumbled upon your channel and watched ALL your videos! First of all, you're amazing! You are so brave and positive and inspiring and so pretty! I love your channel and keep doing what your doing girl! Love ya ❤️ #TeamGod
I have chrone's, and have a ileostomy bag. Though it's crap, it's also a lifesaver, because i actually function day to day now. But i would love to get my insides put back inside at some point. Have had the bag for 1 1/2 years now. You are awesome btw :)
I am thrilled to see your channel thriving!!! You deserve it
I’ve been following your channel recently and I love it! :)
ugh you just seem so wonderful, beautiful, and pure 👏💓
I've been waiting for another upload! yay! 💙💙💙 I'm like the first to comment. badass 👀👽
You are so very brave! I’ve watched your videos and you are so great about information regarding UC and iliostomy and jpouches. I had ulcerative colitis the whole entire colon was removed. I had a jpouch for about a year but it did not work for me I had chronic pouchites. So in February 2017 I had a permanent iliostomy constructed also removal of my rectom and anus yes Barbie butt. All of my surgeries were “open” not laporscopic. God Bless You!! Thank you for making your videos!
I love the fact you use the term butthole lol makes me laugh that you aren’t all technical. Found your channel a few days ago and I’ve been obsessed since ❤️
Thanks for answering my question! I showed my boyfriend your videos and he’s decided to cut out red meat & a lot of dairy out of his diet. I love that you did a GRWM & answered questions, I love makeup and learning more about UC!
Omg you gained so much in a week!!!
You don't need makeup 🤗 You're Rad as you are.
I think it would be cool if you made a video about the parts of UC that are lesser known. I think a lot of people don’t realize that is it so much more than just a “pooping problem.”
GOOD IDEA! I'm going to do an entire video about mental illness and how they play a role in physical illnesses.
You are so pretty, and so strong
Natural beauty without makeup, very rare
You should start writing the list of makeup you use! People like that
That's a really good idea!
Also do a tutorial on how to do winged eyeliner!
Hi I’m new to your channel and was wondering why you had your surgery on base which I’m thinking would be a military base? Btw I love your channel my fiancé recently got diagnosed with colitis and he also bleeding ulcers and by watching your videos helps me understand a little bit what he’s dealing with and helps me make sure he’s taking care of himself and watching his stomach to make sure it doesn’t become worse! Thanks so much :)
My dad is in the military and that's where my doctor was for my UC so that's where it all was happening. Once they realized how bad things were I was too unstable to move to another hospital. We never thought I was getting less than amazing care. But my surgeon on base couldn't do the reconstructive surgeries so she referred me a former colleague of hers at the University of Cincinnati.
You are amazing
Your inspiring. I am 27 and when i was 17 they took out my gall bladder out and cut my bile duct. My stomach filled with bile and i had an emergency laporatomy ever since i have suffered from ibs and my stomach works completely different. I have so many troubles with everything to do with my stomach. i have a scar all down my stomach and when i have to go to the er it is so hard because they don't get that my stomach isnt the same as others. It is so hard not to feel like I am in a hopeless situation and it makes it harder to deal with when you look at me and i look fine. so many er doctors look at me like why are you here you look fine. Its very depressing and frustrating because until i get so bad they cant ignore me they try to push me off. Rarely do i get a doctor who will listen and then get it.
Love this video.
I had my colostomy since 1981 I was 26yrs old i am 68 yrs old. I am so use to it
Can you list the makeup products, brushes and palettes you used?
You are so pretty!
I wish I was looked as good as you a month after surgery. I felt like death for a few months after. I had a two step where in step two they created the pouch, connected it and about 7 days later starts using it. They only removed my colon and hooked up an end ostomy in step one.
Amen I got crohns and im 16 although ive been really sick with perirectal abscesses im thanking god everyday that im breathing and alive at first when I was in the hospital they told me that I have a real bad gastroinfection I thought I was gonna die but they put me on flagil and mesalamine and I feel fine but im sick right now and I pray for everyone to not suffer im real positive myself but I used to get made fun of m7y freshm7an year for soiling myself but people understand now and im7 glad your ok :)
Hi Emily i love watching your video's. I am 40 years old and I was diagnosed when I was 22 with ulcerative colitis. I had and baby and a 2 year old at the time. I was on pill form of medication. I was doing so well that at age 24 i stopped taking the medicine. Was in remission for 14 years. I had Major spine surgery. I quit smoking for the surgery and one month later i was in a horrible flare. I was put on infusions and was very sick with side effects (Remicade and intiveo) i now am having a really bad flare and was tested for c-diff. Which was negative. I was wondering if you have any ideas for better way of eating? I try to have a better diet. But have just been so depressed i just eat whatever. The only thing that helps me get through my day is my grandson.
In a previous video she said she stopped eating red meat and became a vegan
I personally hate using public restrooms for #2, I get so much anxiety when I get the feeling of having to go. How do you feel about using the public restrooms?
What kind of foundation do you use?! And what kind of bronzer? I love it
My foundation is a mix between Urban Decay Naked & L'Oreal True Match. The bronzer is a Laura Geller baked bronzer.
you are such a super cool, funny chic!
You are beautiful!
Would you be intrigued if you went on a date with a guy and found out he had an ostomy? I have some little people friends that have strong opinions about dating other LP’s. Pro and con. How would you feel about dating ostomates?
I actually talked about this very thing recently with a friend! I'll probably talk more about this in an upcoming "sex and dating with an ostomy" video!
I met my soon-to-be fiancé thanks to our ileostomies! He has had an Ileostomy since age 16 (he's 25 now) and I recently had surgery for it this past August. We've been together over a year and I'm incredibly grateful for him 🤗 💖
Btw, I’m married. Not trying to creep on you! ; )
I'm having trouble keeping my urostomy bag attached to my skin the adhesive I have is thick and don't work and I have had to change it everyday for 3 days now any suggestions
What products are you using on your skin before applying the wafer? It may be those. Is it the entire wafer coming off or is it a leak that makes it come off. If it's a leak I would use something like stoma paste or a barrier ring. I'm not as familiar with urostomies.. do you have a stoma similar to ileostomy patients? I'm just not sure what they bring through the abdominal wall.
Do you have dietary restrictions?
I'm going to do a "what I eat in a day" video and I'll talk more about the restriction for ostomy patients then.
What exactly is a j pouch
Laura Third when you have your large intestine removed you no longer have place to store stool before you expel it. She no longer has a large intestine due to it becoming inflamed and almost rupturing. She had to have emergency surgery and they removed her lower intestine and gave her a stoma, which is where she had the bag on her stomach that she would expel waste from. As you can imagine this is not exactly something anyone would wanbt to live with, but at 22 it was hard I'm sure. So she decided to get a Jpouch which basically gave her a way to hold stool they pull the small in stone down to where your rectum is and flip one side up to make a j or pouch to store stool, than at the bottom of that j they attach the rectum. I hope that explains it better but if not on her videos look for the one where she talks in detail about having the surgery.
Why did they have to do an ostomy first then jpouch- why couldn't they do the jpouch to begin with?
Good question! For a couple of reasons- 1. My colon ruptured & I was going into septic shock. My heart had already stopped twice in the weeks prior to my emergency surgery. So they just wanted to get me in and out of surgery as fast as possible. 2. Some people who go into this surgery with a little more preparation might not know that they want a Jpouch yet. A lot of people choose to have their ostomy forever but once a Jpouch is formed there's really no going back. 3. This surgery is HUGE on your body & while some people do choose to do it in one surgery (have their colon removed and Jpouch formed) it can be too much for your body to take at once. So doctors like to do it in three steps to give your body more time to heal in between.
I hope this answered your question!
But even if you choose to have your colon removed and Jpouch formed in the same surgery you have to have an ostomy. You have to give your Jpouch time to heal before you can start using it.
Emily I have a Urostomy and I have a stoma as well and the pee comes out of the stoma
Dianna Schafer I havent looked too much into urostomies.. does your stoma look similar to those of an ileostomy or a colostomy? I've always wondered
The stoma sticks out normally but mine didn't pop out a little like its suppose to the call mine an inny
Oh interesting! Do you deal with skin breakdown like ileostomy and colostomy patients do? Or is the urine not as toxic? I really should educate myself more on the urostomy side of things.
My skin gets really red if the urine touches it I had my surgery a year ago November 10th was in the hospital till November 30th because I didn't feel like eating and I couldn't poop so the Dr gave me medical marijuana pills 5 days before I went home and I was able to poop 2 days before I went home they wanted me to eat and poop before I went home and when I did I asked my Dr when could I go home and he said he couldn't release me even though I was eating a popping so I signed myself out he only wanted to keep me there because of my insurance
I have a permanent ileostomy but I still have my rectum so I don't have a barbie butt! Its weird cause I still have a butt hole but just don't use it. Sometimes I get mucus that comes out but otherwise its just there and I just don't use it.
Yeah I'm in a support group and a girl has the same situation as you. Her doctors weren't pressuring her to get out it but she has UC in her rectum still and it was causing her a lot of symptoms still. How annoying huh. I've heard the barbie butt surgery is a really hard one! Every person in my support group that has it said recovery took a long time, so hold onto that rectum as long as possible!
being old does not mean you will have incontinence
I'm aware of that thank you, but being that I don't have a colon or a rectum- both of which help you hold in stool, my doctors have told me that my chances of incontinence are a lot higher especially given that I haven't had children yet.
Omg. I started watching you just last video but didn't know about your HSP. My daughter had HSP last January. It's terrible. Are your kidneys ok? Just before you said HSP I had a sinking feeling that's what you were going to say. I hate it. :(
Yeah my kidneys ended up being okay for the most part. They were really concerned because along with the HSP I get kidney infections a lot, so they were checking my urine like crazy! I'm so sorry to hear about your daughter. It was honestly one of the scariest and worst pains I've ever been in. It literally felt like I had snapped both my legs in half and then I couldn't feel them at all. It was really weird because normally HSP comes to boys ages 2-12.. I'm a 22 year old woman so they aren't sure what brought it on.
Why dont u have a bag now? I has mine on my birthday in 1981
I meant to say I had my colostomy in 1981 when I was 26yrs old. They only gave my a 50/50 chance of making it out of surgery. Well I beat the odds. Anyway I have had mine at 26 and I'm 68 now. This is the only way I know about. Thank you for letting me respond to your quustions.
you're so cute and sweet, i would love to be friends with you
I don't know why but I'm really curious what it was like to throw up your poop... I'm sure it was awful.
It honestly just feel like throwing up normally but the smell is REALLY nasty. When you don't have a colon your poop isn't hard so it's not like I was throwing up turds or anything haha.
yuckie... Im so sorry you had to go through all of this. I know you don't want people to feel sorry for you but it all seems really tough. i love your channel btw!!
You are so beautiful and cute girl..wish i could date you and be with you
I love the fact you use the term butthole lol makes me laugh that you aren’t all technical. Found your channel a few days ago and I’ve been obsessed since ❤️