Marlo, I havent laughed in weeks but like me you havent lost your sense of humour and saying the f word in a story does make it funny. I have every symptom of ms, its getting rapidly worse and like you I work in the city, dress glam for work and really tried to carry on as normal. I wish you all the best x
I have Ms for over 10years. I suddenly decided to get an e-bike because I hate walking in the summer. It’s currently 1am and I am still trying to ride with both feet 😂 My coordination is so off. But I’m confident I will eventually be able to ride again
ok so i'm willing to share my story....if you please turn it into an animated short. So i'm a fan of trainers or sneakers, in particular Saucony - i'd scoured the internet high and low for an obscure pair and finally got them. on the way back from picking them up with the box in my hand i was dashing to get across the tram track to get on {note i didn't need to rush at all, but my brain got a little befuddled} so anyway dashing across the crossing with by box in hand i fell in front of the tram! luckily the tram driver stopped and gave me time to get myself together....... i needed this because whilst i had badly grazed my knee....my biggest shock and amusement was reserved for when i realised my pants had somehow fallen down!!!! There being embarrassed and then realising you've fallen over in front of a tram and somehow ended up with your pants around your ankles!!! i was genuinely in shock but once i composed myself got on the tram and got home, told my workmates i could see the funny side of the situation!! i'd like to think i'm pretty cool......i didn't realise then just how much this was to do with my MS and so it's a good lesson to others to get checked out.
Good for you! We gotta own that shit! It’s part of who we are! My employers know I have MS, because Lord knows I walk around stumbling and veering like a drunken sailor! Thank you for sharing your authentic self🧡
Does the balance and coordination get progressively worse and worse? I’ve been having issues with the pace I walk, my ability to wing in and out between people at a decent rate, extreme stiffness in my legs, fatigue, and I occasionally lose my balance when I’m very tired. Example, I was having to get up multiple times through the night to help both our babies, and at times I was getting so tired that I was just about falling on my @$$ when trying to head over to help them. I don’t get the bubble feeling… but I wasn’t sure if that is something that gets worse over time?
Have you to tried HSCT? America is backwards. Northwestern University is trying to get this approved (they've know if works for 15 years) but the pharma companies are blocking them. It's sad.
I have optic neuritis last january and my balance is off i felt dizzy everytime. Even if i was just lying in bed seems my surroundings are spinning. I am not diagnosed with MS yet but i think I have too 😭
What are your experiences of balance and coordination around MS? Share your experience on in the comments below 👇
Marlo, I havent laughed in weeks but like me you havent lost your sense of humour and saying the f word in a story does make it funny. I have every symptom of ms, its getting rapidly worse and like you I work in the city, dress glam for work and really tried to carry on as normal. I wish you all the best x
I have Ms for over 10years. I suddenly decided to get an e-bike because I hate walking in the summer.
It’s currently 1am and I am still trying to ride with both feet 😂
My coordination is so off. But I’m confident I will eventually be able to ride again
Marlo!!! I love this so much - thank you!!
ok so i'm willing to share my story....if you please turn it into an animated short.
So i'm a fan of trainers or sneakers, in particular Saucony - i'd scoured the internet high and low for an obscure pair and finally got them. on the way back from picking them up with the box in my hand i was dashing to get across the tram track to get on {note i didn't need to rush at all, but my brain got a little befuddled} so anyway dashing across the crossing with by box in hand i fell in front of the tram! luckily the tram driver stopped and gave me time to get myself together.......
i needed this because whilst i had badly grazed my knee....my biggest shock and amusement was reserved for when i realised my pants had somehow fallen down!!!! There being embarrassed and then realising you've fallen over in front of a tram and somehow ended up with your pants around your ankles!!!
i was genuinely in shock but once i composed myself got on the tram and got home, told my workmates i could see the funny side of the situation!!
i'd like to think i'm pretty cool......i didn't realise then just how much this was to do with my MS and so it's a good lesson to others to get checked out.
Good for you! We gotta own that shit! It’s part of who we are! My employers know I have MS, because Lord knows I walk around stumbling and veering like a drunken sailor! Thank you for sharing your authentic self🧡
I’ve lost count of the number of times I’ve fallen down on my street - because of my MS
Does the balance and coordination get progressively worse and worse? I’ve been having issues with the pace I walk, my ability to wing in and out between people at a decent rate, extreme stiffness in my legs, fatigue, and I occasionally lose my balance when I’m very tired. Example, I was having to get up multiple times through the night to help both our babies, and at times I was getting so tired that I was just about falling on my @$$ when trying to head over to help them. I don’t get the bubble feeling… but I wasn’t sure if that is something that gets worse over time?
Have you to tried HSCT? America is backwards. Northwestern University is trying to get this approved (they've know if works for 15 years) but the pharma companies are blocking them. It's sad.
I have optic neuritis last january and my balance is off i felt dizzy everytime. Even if i was just lying in bed seems my surroundings are spinning. I am not diagnosed with MS yet but i think I have too 😭
Do u have ms ?
Marlo your looks shouldn't have made a difference you tryed