Seizures in Music Class
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- เผยแพร่เมื่อ 11 ก.ย. 2024
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TikTok ▹ / zeezee25
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Stream my song "She's Mine" here 👇🏻
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FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
‣ fndhope.org/fn...
5. What is Tourette's?
‣ www.cdc.gov/nc...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, TH-cam and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!
I'm so sorry you go through this. Thank you for sharing your experience. As a nurse, this helps me
@bread32 lol ok
@bread32how are you gonna tell someone you’ve never seen that they aren’t a nurse?
I have seizures to you know
@@kimndang7464who even are you??
@@Hina_my_beloved_dont ask who he is whoever has a seizure is sad
I was diagnosed with Epilepsy when I was 2.
I had a Seizure in Kindergarten and the Teacher called my Mom to take me home.
Both my Mom and Dad were Army National Guard back then.
When I was 8 I had a Brain Tumor surgically removed.
24 years Seizure free.
nice!
I know there's a girl in my class who has a similar condition. I remember her having to lie on the floor once because of it and some of her friends sat with her to keep her company as she came out of it.
I have this and myoclonus but none anymore so far
Seizures usually lying down is safe.
The need for attention is very strong in the youth.
@@andrewhall7176 If I'm being honest here, I don't think having a seizure is attention seeking
@@BeanieBabyXx No, but I think Zara is seeking attention.
My boyfriend has epilepsy and he gets absent seizures sometimes so I know what your going through and I’m sorry that you have to go through that but I’m glad people like you raise awareness ❤
My uncle had is and before a full on shaking on floor seizure he would start pointing to words in a book.
sorry you have to go through this. you are very pretty and sweet. life is fked up and i wish you the best
Is she faking this for tiktok clout or is this for real??
She’s for real
@TwilightKing0 it is real
@@LeonSKennedy7777it is real but her seizures are from a psychological origin rather than your classical epileptic origin. An epileptic absence seizure looks similar to this but is slightly different. Both types are involuntary and real, but epileptic absences are caused by electrical activity in the brain changing (it's physiological). In her case, the electrical patterns stay the same, and on a psychological level something changes. Either way she is very brave to share her story and raise awareness, wishing her strong thoughts and admiring her drive to carry on with her day to day activities ❤
My cousin, who is 24 years old, has special needs and requires a caregiver. Additionally, she has been diagnosed with seizures but we will always love her and we are sorry you have to go through that😊😢
Special needs from seizures only??
@@sky-hv4zono they said additionally, she had been diagnosed with seizures
I'm sorry for your burden. Honestly, no one would judge you if she accidentally rolled down a hill somehow or fell out of a car.
@@spackerinternational6131 seriously? Ok that's messed up. People with special needs are BLESSINGS, not burdens!
I’m 43 but I remember in 6th grade there was a girl in my class who had something similar. Being nasty children, everyone thought she was faking it for attention. Also the late 80’s and early 90’s we weren’t very informed. I feel guilt when I think back at nobody believing her. Thank you for your videos. You are helping to educate people and bring awareness to a pretty silent topic (by silent I just mean that there isn’t much talk or education about it). Thank you for teaching this old lady new stuff. You are strong and brave. Wishing you so much happiness 💜💙
Im so sorry that you have to go through this, we all have challenges in life, all different and unique. But thats what makes us unique. Your so gorgeous but more importantly your so amazing and have such a good personality. Im in rough times right now, but every time i see you post on yt or insta it makes my heart so happy to see you and how you are, good or bad. Your golden and i hope you know that, you make a difference, your making one right now, stay safe and stay you. Love you!
I know how it feels. I have it too. I try to ignore the pain. As a man. Nobody gives a shit. Until it gets critical. Fainting away. Usually when I have it. I cant tell someone. Because it affects my words. Usually try to ignore it. The overheating and the pain. Until I can get safe place. Or find someone that can help me. But its tough. Its a huge struggle.
Yes, i too
I wish society didn't make it seem like if men had problems, were sick or showing emotions they were weak. Everyone has feelings and shouldn't be treated any less cause they were showing 'weakness'. everyone deserves the right to receive help or support and not be judged for it. I hope you have some people to lean on. You deserve it.
I'm so sorry that this happens but you're so positive and deserve the world
My friend has fnd so she knows how this feels. I have to help her sometimes, for instant she scratches herself and doesn't realise so I have to hold her hands apart to stop her from damaging herself. I know it's hard but we all are here to help ❤.
You are a real friend we need more people like you in this world and spread awareness ❤
@@Stawrberii functional neurological disorder. I'm not the one to explain so the NHS website might be better
I’m so sorry for what you go through. I want you to know that we all love you and support you and I’ll be here any time. I’ll pray for your health, happiness, anything. I just want you to be safe, love u 🙏🏻💗
You’re so strong Zara. Luv ya 🫶🫶🫶🫶
I remember in 6th grade I was in math class and a kid started having a seizure and started saying protect my shoe! Protect my shoe! And then started to fall so my teacher pushed a kid out of the way and dived headfirst catching her.
Thank you for sharing this with us. I hope you go through this journey perseveringly in prayer and patience, and that people around you will understand and be a help to you. May God bless you always!
As a severe epileptic who has several types of seizures myself, this was very anxiety endusing to watch. Sometimes i think its harder on my family then myself. Sorry kiddo. Please don't let this define who u are. ❤️
Damn I feel you. I’ve had 10 in a 7 year span being unpredictable and recently have gotten worse and has caused me to develop very bad anxiety to where I can confuse it with a seizure coming sometimes. Just know you’re not alone and I understand the fear and feeling of it
I have recently been diagnosed with epilepsy at the age of 27, and have tonic-clonic seizures. The most recent one has cut my eyebrow open and the back of head. I wouldnt wish it upon my worst enemies. I hope you are well and p.s you're a very beautiful lady ❤️
Your story is so close to mine, I had my first one driving after trying to stop smoking weed for a few days after doing it my whole life. Then totaled my wife’s car and was arrested because I couldn’t pass a field sobriety test. Because I didn’t know what tf just happened.. been dealing with them for 6 years now since. Hope life brings you everything you want and then some. Shits so scary with my kids man
I kind of having seizures, it happens once a year, but this year it happened twice; once in my Mom's car, way to college and another one in the campus, in the classroom. My classmates told me, that they're scared and watches me laying on the floor, while thrashing about and screaming or talking incoherent words, and while my lecturer try to calm me down, they call for my parents to help. I woke up after a few hours later and my Mom took me home..
Since that accident, I become overthinking and anxious around my classmates, scared that if my seizure happened again and scared them. I just feel bad about them, that I'm afraid they don't want to become my friends again..
I haven't been diagnosed with it tho because of financial problem, but I'm sure I have it, because it happened. It was so sudden and it happened in public place, when before that, it only happened at home and only my family know it..
(Sorry if this confusing and bad grammar..)
You are going through stuff but we are your friends and we will support you through the way
I do this also, but never knew about until this very second. I've been doing this for year's. I never realized that was the cause. Thank you for posting this, my goodness............🕊️
Awww you are quite an amazing person. Strong through and through
your eyes are so pretty
Everyday you put forth more energy and effort just to get through each moment. I think people with disabilities are the real heroes.
Me too!
I wish more everyday people were as strong as you, your an amazing young lady and you never quit at success! Bless you❤
I’d never realized seizures were this scary in person until yesterday. My one year old baby brother had a seizure due to a high temperature fever. 106 was the temp. Nothing we did would help get it down. I was terrified, at the age of 13 in hysterics as I voiced my fears to the 911 operator on the phone. My mother was panicking screaming and pleading for him to be okay as we watched his head jerk and I counted his each breathe.
I’m forever greatful for those who showed up yesterday, they were there within literally 3 minutes. I was terrified to even hold the baby that day. He would shake and shiver and I’d freak out because I was alone as I watched him. My mother was sick, so I was left to the task of babysitting. It was so scary, poor baby.
I remember in high school I took a ‘bathroom break’ and just started walking the hallways. I go down the stairs and a girl in my grade was having a seizure (apparently they had everyone on lockdown after I left so nobody would see it), a bunch of admins and the nurse around her. None of them thought to support her head, so I took my sweatshirt off and my t shirt went with it. I was pretty hefty at the time, but wasn’t thinking about that, just placed it under her head so she wasn’t banging her head on tile floor. We became really good friends after that.
No one deserves this,I’m so sorry this has happened to you,I hope your ok
I have Epilepsy, but idk how to controll my Seizures, cuz i am still a kid sometimes i feel dizzy too but I always distract myself from the fact that I am healthy because I always panic about getting a seizure. I love how the way you are. You're such a great person. I hope one day That you are healthy and will lead a great life!❤
I was diagnosed with Epilepsy when I was 2.
I remember my Mom telling me about the time I was in Kindergarten and I had a Seizure and the School called my Mom.
Both my Mom and Dad were Army National Guard.
I had a Tumor surgically removed when I was 8.
24 years Seizure free.
I fainted at a funeral… they thought I was next 😭
😭😭😭 that's funny but also, are you okay
I have seizures too. I had one in the car and I knew it was coming, but good thing the car was parked 😥
The fact that you still live your life an do normal things is awesome!! I pray things gets better for you an everyone that suffers with this syndrome… Be safe Godspeed
That must be so difficult ❤ thank god you have 242k people supporting you
I want to say thank you for sharing your experiences this has really opened my eyes I've been experiencing this for years now and I didn't know what was going on thank you for having the courage to show the world you're an amazing person and you're a beautiful person inside and out you're strong woman thank you again
I understand EXACTLY what you're going through, as I have had a couple this year already & I think its one thing for people who witness, but a whole other for the ones experiencing it & I can tell you, even at 39 years old, feeling one coming on is SCARY! I will lie down & just keep telling mySelf to go to sleep, so I don't have to stay conscious for the twitches & spacy feeling... also, do your hands & feet get clammy? Mine do & thats a sure sign for me, that I'm about to have one...
I feel for you I know the pain would never want anyone to go through this alone 💜💜
I’m so sorry you have to live with this. I developed seizures after a traumatic brain injury and I’ve had anxiety, and PTSD about ever having another one. There is nothing scarier in this world. I personally lose consciousness and pass out on to the floor every time. Thank god I can get out 2 words yelling for help.
I spend so much time in absentee seizure activity. I have had to be put in medically induced for unstoppable Grand Mal seizures that lasted so long that fluid accumulated in my lungs. Prayers for you beautiful and precious lady.
Hi Zara, hope your doing ok, I’d hope for some more info about your fainting episodes because I don’t fully understand (if you are comfortable with sharing)
May God watch over u 😢 This breaks my heart. I have SVT not the same but people who have physical problems we can feel when something is about to start. It's the worst feeling. I'll pray for u sweetie 🙏
Thank you for sharing all your videos. I'm so sorry you have to go through all of this 😢
I have POTS and am getting tested for absence seizures because I have points in time that I don’t remember and trying to remember is like running into a brick wall. The testing is just a precaution because it could just be a lack of oxygenation to my brain. I had a tilt table test, and the oxygenation to my brain goes down 48% when I stand up.
Hi I really feel for you. I also have epilepsy and it's put me in a coma before. Although before the coma I couldn't tell if a seizure was coming or not but since the coma I can tell about 90percent of the time and that's really scary as I still hit the floor and lose consciousness. All my love ♥️
It's a love hate with these type of videos. I love your courageous enough to show us and educate us.. but I hate how heartbreaking it is to watch a beautiful soul deal with such an ugly condition.
Are you kidding??.what's so heartbreaking about gently dozing off??..
After having multiple TIA (mini strokes ) in 2023 December 2023 I had my first seizure. I'm documenting my life since. I'm 27 now and never saw my life like this but thankful for everyday and my family helps keep me mentally healthy while my physical body goes through so many changes. I hope my journey gives someone comfort peace.
Oh Zara ...this just sucks so bad. But you are so strong getting through all of it. I couldn't even imagine. My heart just breaks every time. Maybe because I'm a mom. Maybe because of how unfair it is. Idk. But you are such a trooper and we just love you ❤
I'm so sorry
I had a period in my life when I used to get daily auras , flashy eyes, and numb hands. I would get a migraine on the opposite side of my head, depending on which hand went numb. One day I had physio on my back, she decided to work on a park of my back that I had no idea was a problem. I screamed when she pressed on it. After working on my mid back with ultra sound and acupuncture, my migraines disappeared. It was life changing.
I say this because sometimes it might be an underlying physical cause. B4 the physio I was on all sorts of serotonin medication, beta blockers etc. But all it took was a physio to think outside the box.
She has FND. Functional Neurological Disorder.
The music sounds relaxing 😊
ikr
Thank you, genuinely, for making a video of this. I've never heard of FND before and you seem to have almost all the symptoms I do. I've been to the ER twice for my seizures and never gotten much help. And I've been trying to get a diagnosis for over two years. This probably isn't just this, but it could have something to do with my health issues, and I'll grasp any straws I can get at this point.
I now how it feels stay strong gurl 😢😢
I can relate to this 100% I have epilepsy with absent seizures and half the time I can’t talk and I will either stare off into space or I’m making a chewing motion with my mouth, and over the last 2 years I’ve had 13 seizures at school. Last year and the year before all together I missed a total of a whole year of school. The only way to get through it is to keep fighting. I always say to other who have epilepsy is “you are one of the strongest warriors on the planet. Nobody who doesn’t have epilepsy can say anything different. Remember to keep fighting and no matter what you will always win over the fight against epilepsy even if it means you’re in a hospital with an IV in your arm.”
This so hurts me inside for her. I wish i had the power to cure her ❤❤
My daughter has partial or focal seizures that she can usually feel coming on. You kids that have to deal with this, at school or at the store are so strong!
You're a soldier even with this stay strong
I think this might be happening to me… I’m in 7th grade and every day I’m getting dizzy one time I passed out during class I stood up and passed out right away my friend caught me before I could slam my head on the desk and I’ve went to the drs I’ve gotta get a heart monitor and I’ve been zoning out so much every day I get so dizzy to the point I can’t feel anything or I can barely hear and I’m getting scared I’m only 13 and like I’m so ready for this to be over i
The piano in the background is beautiful and eerie all at once
I pray you're doing well
Your such a beautiful person, love watching your shorts.❤
Thank you for sharing this! I am writing a character with seizures, which has been really difficult to do since I myself do not have seizures. So I really appreciate people sharing their real life experiences and so grateful that others will learn what seizures look like. I think you’re going to help a lot of people, both with this and your videos on Tourettes (I think I have a couple tics, so those videos have been especially nice : ) )
Hi I couldn't help but offer some information which could help, as I work in Neuro with epileptic patients and deal with seizures daily. A seizure is basically abnormal excessive synchronous neuronal activity and usually results from the neurons firing in the way I just described (this is not how the brain usually fires neuronal signals). On a EEG (an electrical brain scan), during a seizure the brain activity will change and seizure patterns will occur during a seizure event. The seizures shown here in this video are what used to be referred to as non-epileptic attacks (NEA)/ and in some contexts, dissociative seziures. They are another class of seizures caused by a psychological origin. On an EEG you will not see a change in the brain activities for NEA, however a patient will visibly be displaying seizure-like symptoms and they are usually unable to control this (it's involuntary), despite the electrical brain activity not actually changing. Both types are real, although there are differences. In a typical Absence seizure usually there is a complete behavioural arrest, the patient will go completely still and stares blankly without any warning, and small ticks and jerks don't usually occur and the patient returns to normal immediately with no residual symptoms afterwards. They usually can't tell they've had one, unless their surroundings make it obvious that they've 'blanked out' for a little while. There are variations of Absence seizures, such as atypical absences where small movements can still occur. The lovely brave person in this video, to my understanding, has non-epileptic absence seizures in keeping with her FND condition, so the symptoms you see in this video are similar but are different from someone diagnosed with epileptic absence seizures. I hope this helps with your understanding ☺️
@@sairachohan9723 you’re literally the best oh my gosh. Tysm, know that you have helped me a lot by saying all of this and hopefully it’ll go towards me more accurately representing seizures in my writing
@@xill4008 you're very welcome ! I'm happy this can help you in some way 😊
this is a random question so please don’t take it seriously if it is secret information but have u had tourette’s+seizures+fainting condition ur whole life even when u were a little kid?
im sorry to everybody who has to deal with this💔🤦🏾♀️
wow I have tourette's and absence seizures too I've been diagnosed with a lot of things too. It's hard to get use to especially in public I have tourettes seizures schizophrenia and a little more 9 pills a day used to be 10 but we decrease it. you're very brave to get on a camera and show what you have keep up the good videos I'm looking forward to watch more 💕
Hey I'm a new supporter but I have a question and I'm sorry if its stupid. But what is FND? You don't have to answer obviously but I'm curious. Keep up the good work xx
FND stands for functional neurological disorder. It can show in many different symptoms such as paralysis, tics and seizures but also many others. It basically comes down to a problem in the nervous system where the brain either isn't sending signals or is sending too many. It's usually described as by using a computer to help so there isn't a problem in the hardware but in the software.
Hope this helps.
@Chicken Cactus hi, thanks so much. That Really helped.
@@millyscothern9270 I'm happy to help
@@chickencactus1451 it’s not a problem with the nervous system, it is psychological thing where you get physical symptoms as a result of your brain not knowing how to deal with certain stress or emotional problems. It is 100% very real though and people with it have no control over it and it’s not there fault in the slightest
@@picassothedog4011 No, that's a different thing - FND is called Functional Neurological Disorder, because it's Neurological, not Psychological. Psychology involves mental disorders and illnesses, usually resulting from chemical imbalances - Neurology means there's an issue with the brain's wiring itself or the electrical signals it's sending. Not much is known yet on why FND happens, but neuroimaging has shown that for people with FND there are entire sections of brain circuit that don't function correctly - it's not psychological, but neurological.
This is also the reason that autism, adhd, ocd and others are considered neurological disorders, not mental illnesses - the problem is a result of the brain's circuitry malfunctioning.
Great job being positive about it, Zara 🫶🏼
have the same problem here. I play mobile games, I just lose my self I am a little bit aware but I truly zone out and right after time has passed at little makes me feel annoyed as i only get a few seconds to do a quick move in chess. It gets on my nerves I just quit playing and I really think it was just daydreaming but when i watch clips about a seizure I relate on it more
As a fellow epileptic person, I feel you. It’s so scary to “awaken” from a seizure and have no idea what happened or what you did while experiencing it.
I got TLE diagnosed legitimately for the first time after the started after my 2nd brain surgery for Arachnoid Cyst in 2007 just a few months ago. I thank god i found a doctor who listened to me and prescribed me with a Benzo based Medication. I feel this girls pain because people will call you attention seeking or crazy making you second guess yourself you are having a panic attack. But i hope she is thankful, because there are people out there who have up to 50to 60 attacks a day. God bless you. Also Just remember epilepsy has been considered through out history THE DEVINE ILLNESS. if people like me and her or you lived in the 17th 18th and 19th century we would be burned at the stake. People with epilepsy have a very complex perspective with the world around us especially when it comes to the human consciousness.
I went from watching an itsartemm TH-cam short to watching these poor souls suffer like this. I feel terrible for these people.
I have epilepsy, this happened to me during class in 3rd grade when I was first diagnosed with epilepsy, I feel happy that there are others going through the same thing as me, and just know, your not the only one going through this
I have it too and it’s really scary😭💔💔💔
Aw I feel bad for you I hope your feeling better now😊
Your teaching me a lot about this. I really appreciate you putting your story out there for others to learn from.
I saw in a different video, where you got an instant headache & this time it was chest pain. Do you usually have some type of pain after each episode?
I pray for you to feel Gods loving hands over you, His comfort and strength whenever you feel this come on 🙏🏻❤️🩹
I hope all is well I personally group up with epilepsy at the age of 9 until I was 16 years old they discharged me there was no more seizure activity. However I know how you feel during this type of moment keep strong there is hope all of it will go away one day.
Beautiful girl have strength and faith this will pass when you grow older ❤
Petite mal…I have these. They were worst when I was younger but I grew “out” them I’m 33 and they come and go. The last one I remember is like 4 years ago while I was driving made it home from one city to another and didn’t remember how I got there.
That sucks .Feel for your pain .
I hope you were okay 👍😢
This is literally me before a tonic clonic 😢
God bless ❤❤
I pray you get better and better each day!!
Remember, Guys. Seizures can be different for each individual. I was diagnosed, but every time I have a seizure, it always comes in the form of parasympathetic movements (Nonvoluntary). I jerk my head every time, and it's uncontrollable. It hurts, but I've learned to manage.
I hate that you have to endure this, I know what you’re going through! I have Epilepsy and it’s scary, I have went through a seizure at work and it scared my manager and the people who were there enjoying a game of bowling 🎳. I am a housekeeper at a bowling alley.
So sorry, I know what it's like ❤
Its Strange for me when I have seizures. I've noticed music is a trigger for me (or menstrual). She was able to stay sitting upward mine use to nearly make me fold over as if I were severely drunk and would lose eye sight ... now mostly controlled by medicine, I usually stay conscious but I hold me head because I can feel a "vibration" /glitching in my head. And still smell burning rubber
I have tonic clonic seizures, and there's a lot more time spent between the phases. It's also difficult to breathe and your awareness isn't there even when it's over. You almost forget everything around you
Thanks for sharing!
Helpful for research!👍
U should always stay with someone near you, the chest pain to me it looks like u stoped breathing when u spaced out ( I might be wrong but it really looks like you chest stoped moving) stay safe girl! U are a precious human being ^-^
Dear Sister, read some Indian spiritual/Philosophy book( Autobiography of a yogi by Paramahansa Yogananda, Living with the Himalayan masters by Swami Rama, Meditation and mantras by Swami Vishnu Devananda). Turn your neurological issue for spiritual upliftment. Else it will be difficult to cope up with life. Also check whether your issue is caused due to food colour (yellow/red) or preservatives (chemicals) which directly affects the nervous system.
I had my first seizure last week and craned my car into a lamp post, then took another 2 within 8 hours after that, i just wanted to thank you for posting these videos, ive watched them for a while and it not only helps me feel less alone, but was also reasuring to know what i went through when i was unconscious
i had a seizure today and im watching videos to help me get aware of how to stop it more
Maybe next time you feel like one is happening,You probably should try tell your teacher and if you can’t,try giving them the SOS sign with your hands, you just put your thumb in the palm of your hands and fold your four fingers up and down
It is so difficult to explain to people the aura (pre-sezuire) or absent seizure. Thank you for showing what it is.
Mine are completely different. I have full frontal lobe grand mals. To where I'm on the floor having convulsions biting my toungue so bad it bleeds down my chin. I would give anything to more mild seizures like this.
Aw, poor baby om sorry you have thisndition
I know how she feels as all my best friends have it😮😢
I feel you very much because I also have epilepsy
You're out here doing great, Zara.
I dont have epilepsy but my brother does but i have POTS i still dont understand it so i totally understand and our parents always say which ones which 😅 im just trying to lighten people's mood
It is a better idea to record a person having a seizure or an animal having a seizure. Because then you can take that video on your phone and show the Doctors or paramedics what is going on. Instead of trying to remember what has happened. And them asking you questions like how long was the seizure and what was the symptoms of the person or animal was having the seizure. So if a person or animal is having a seizure record it or have another person record it so you have a record of it to show Doctors and nurses or paramedics incase you forget a symptom or the duration of the seizure.
I always see your videos and just want to say the first thought that comes to mind is "wow, she is so grogeous!"
gorgeous*