ความคิดเห็น •

  • @TheSignseeker
    @TheSignseeker ปีที่แล้ว +34

    Eric, you look so defeated. Please don't give up. I hate this for both of you so much.

  • @anonymous-dk3um
    @anonymous-dk3um ปีที่แล้ว +14

    Praying for you both
    This is an outrage

  • @jacobpullen7959
    @jacobpullen7959 ปีที่แล้ว +5

    I absolutely cannot believe that a doctor can turn you down because of a difficult case. That sort of thing should be encouraged in the medical field(albeit unless they're really out of their element or they TRULY feel someone else could provide better care). This just boggles my mind, I'm so sorry with how much of a ringer you guys have had to go through. Sending every bit of love possible for you two to be able to get through this.

  • @Rick50boss
    @Rick50boss ปีที่แล้ว +2

    God bless. I hope y’all are staying strong

  • @__Wanderer
    @__Wanderer ปีที่แล้ว +7

    Fully agree with you doctors even in the netherlands have issues. There is no procedure for particular circumstance and seem to do things based on a whim. My first MS relapse (general CNS inflammation) left me blind in one eye. I found out only afterwards that they gave me a low dose of steriods when what i needed was several days worth of high dose IV steroids to stop the damage being done or plasmapheresis. Both of which weren't discussed despite there being plenty of research to show its effectiveness. Because of incompetence I am now permanently blind in one eye. I am also on immunosuppressants now but slightly lower down the scale. Something I also disagree with and chalk up to incompetence of the neurologist not wanting to take a bigger risk with stronger more effective meds. I really hope the meds do the trick and shuts this awful disease down for you guys. All the best to both of you!

  • @codedestroy680
    @codedestroy680 ปีที่แล้ว +18

    “The doctor that’s prescribing me medication wears pants and I think has balls even though she’s a she.” I’m glad some of your humor can still shine through hope things start getting a lot better here soon!
    *edit: spelling

  • @Specialist01
    @Specialist01 ปีที่แล้ว +8

    Keep at it guys! I know it's incredibly difficult after so many setbacks and nonstop torture for a year and half, but a new possibility is starting soon with the Rituximab. Just keep that in mind. It has a different mode of action than what you've tried before, so there is hope that this may be the ticket. And if it helps, you know the treatment that works and it'll be the beginning of the end. After that, you'll know what will help Eric as well, and can get it for him somehow, someway, eventually. You guys are kicking ass, even though it may not feel like it. You're both incredibly strong, and any lesser men would have folded a long time ago.. Based on that, I know you'll get there sooner or later. I wish I could help with more than just words or money, but you and your story have stuck with me over the months and I'm pulling for ya with all my heart. Your tenacity is inspiring to say the least. Hang in there, this could be the one! 😁

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว +2

      Thank you for such kind words and reminders. I’ll do my best to see the positives. If this treatment works at all, it will really be the beginning of the end.
      Thanks for taking the time to comment.
      -Adam

  • @jontattum1476
    @jontattum1476 ปีที่แล้ว +2

    You guys don’t know how strong you are. Keep it up. You have made progress despite the setbacks.

  • @MsTEllis99
    @MsTEllis99 ปีที่แล้ว +2

    The rollercoaster of emotions from hope to disappointment with doctors is so, so tough. Hang in there, you have made it so far already.

  • @jeff_lamp5471
    @jeff_lamp5471 ปีที่แล้ว +1

    Sorry to hear that Eric, hoping for someone at the next place to finally provide the care you both need

  • @adswar
    @adswar ปีที่แล้ว +1

    Damn man! Your bro looks like he has been through some shit! Sending out hugs to your bro. Wishing you guys the best! And please ask your bro to visit hospitals in PNW or CA. I know its gonna be expensive but I think you will have better luck in finding a great doctor.

  • @yieldofblood
    @yieldofblood ปีที่แล้ว +15

    It took 4 years (the last 4) just to get diagnosed with hypothyroid - one of the most common, easily diagnosed, easily and cheaply treated diseases there is.
    It took 4 years and one nurse practitioner who had hypothyroidism herself to finally diagnose me. I live near Cleveland Ohio, supposedly one of the best places for healthcare in the US. I went from doctor to doctor, specialist to specialist, and almost everyone was incompetent or didn't seem to care at all.
    I believe doctors are severely disillusioned and burned out after the pandemic. They just want to skate by, take no risks, send hard cases to someone else, and get paid long enough to retire. There is no passion for helping people anymore. Just burnout.
    There is no way for patients to hold docs accountable for not doing their job. There are no penalties for docs that dismiss patients they don't want to deal with. So they'll keep doing it.
    It sucks. Healthcare in the US sucks. Good luck with the treatment you were able to get, hope it helps.

    • @riflemanm16a2
      @riflemanm16a2 ปีที่แล้ว

      In my limited experience, I have found that nurse practitioners and sometimes physicians' assistants are more willing to think outside the box and actually discuss hypotheticals and possibilities with the patient. Maybe they have less liability for saying the wrong thing so they are more willing to speak openly. I'm not sure.

    • @aarona4536
      @aarona4536 ปีที่แล้ว

      how did they not test for that sooner? its like a basic thing lots of people get checked for. medical field can be a nightmare sometimes

  • @nanohedron
    @nanohedron ปีที่แล้ว

    God bless you guys.

  • @FormerDelusional
    @FormerDelusional ปีที่แล้ว +5

    I wish Dr "She" would agree to see Eric as well. I don't get it. American health care sucks balls.

  • @herndon39
    @herndon39 ปีที่แล้ว +3

    You guys are tremendously intelligent which makes this even the more frustrating. And you're twins which give the medical system a softball in place of a baseball. How many less educated people have been stomped down the drain in your situation? Eric's getting so F#ckd. You both are.
    When this is over you guys will have a medical center named after you. I'd carry you both to Utah on my back if it would help. Keep going guys.

  • @CynthiaTheHealthExperience
    @CynthiaTheHealthExperience ปีที่แล้ว +1

    i have been reading through the comments and cant believe I havent found a single comment suggesting dietary interventions....look into the autoimmune paleo diet, its worth trying!! Nothing to lose

  • @geeterguy
    @geeterguy ปีที่แล้ว +2

    You guys are two of the finest specimens I know, hehe. Maybe find a female doctor like your bro, as she probably won't get butthurt about you having another appointment. Keep your head up dudes. You are so close don't give up now alright?
    Medicare For All

  • @frankglasco3075
    @frankglasco3075 ปีที่แล้ว

    Gentleman, the two of you are brilliant and extremely knowledgeable about your health issues. In my humble opinion, knowing the twisted and distorted values held by today's US doctors, it's time to look away to anyone in the world who is willing to help you. Please don't limit your research into what the domestic medical system is willing to do for you. Take your knowledge, wisdom, and combined research, to a medical practitioner anywhere in the world. Be it Mexico, Thailand, or wherever. I have offered sincere and heartfelt prayers that your family will find a comfortable and secure place in God's word. As an elderly man, I offer this sincere council. As a Young Man, I felt abandoned by God. But now, as I grow older, I see benefits from my youthful and adult struggles. I hope the same for you both. Finally, if this condition is the result of some medication or procedure that you've undergone, please don't be silent. Others need to know. Love and prayers ...

  • @chikasu10
    @chikasu10 ปีที่แล้ว

    Prayers

  • @TNT_OR
    @TNT_OR ปีที่แล้ว

    Have you looked into Oregon Health & Science University in Portland, Oregon? I was a long time migraine sufferer until one day I thought I was having the worst headache of my life. I was taken to the emergency room in Salem where I was treated for a migraine, released and sent home. Two days later my condition worsened so I was taken back to the emergency room, they did an MRI, found a bleed in my brain and realized I had a stroke (pontine hemorrhage). I was life flighted to OHSU and received the best care by their neurologists and staff. I would highly recommend them. I hope you both get the care you need.🙏🏻🙏🏻

  • @khoahuynh7853
    @khoahuynh7853 ปีที่แล้ว

    sending u a hug virtually brother, stayy strong🫡

  • @johnvargas1159
    @johnvargas1159 ปีที่แล้ว

    just smile man it'll make you feel better just a little

  • @johnguice173
    @johnguice173 3 หลายเดือนก่อน

    Have you looked into Low Dose Naltrexone (LDN) as a possible treatment/complimentary treatment? I have a rare autoimmune condition which I used LDN for as part of my treatment method and it worked for me. It can be used to treat a wide array of autoimmune issues, but most doctors are reluctant to prescribe it because they don’t know about it and it’s not their usual wheelhouse of tools to treat so you’ll have even more fun advocating for yourself with your doctors. However, I highly recommend giving it a try considering how benign and low risk it is. It’s worth looking into. 

So sorry you and your brother have been struggling with your health and the issues of the medical system. I very much can relate. It’s good to see you’re on the mend. Love your videos, thanks for educational content as well as sharing your journey with us. I wish you the best

    • @itmhealth8025
      @itmhealth8025 2 หลายเดือนก่อน

      Thank you for your comment. My neurologist actually casually brought up LDN. It wouldn’t be appropriate now while I’m on cytoxan I wouldn’t think, but I will definitely bring it up as a possible adjunct maintenance therapy to Cellcept once the infusions are over.
      Thank you very much for your comment and advice.
      - Eric

  • @lilstiggyandfriends7808
    @lilstiggyandfriends7808 ปีที่แล้ว

    Has anyone recommended the Mayo Clinic? IMO you both should be seeing the same team of Drs.

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว +1

      We got rejected from Mayo two times

  • @InfernoPhilM
    @InfernoPhilM ปีที่แล้ว +5

    How could you both have the same auto immune disorder? This is mind boggling. What environmental factors are making this happen to you guys?

    • @Jay-vt1mw
      @Jay-vt1mw ปีที่แล้ว +3

      well the fact they have same DNA means it can mutate in exactly the same way,
      It’s probably safe to say it’s not environmental given they both have it perfectly at the same time.

    • @PierSilver
      @PierSilver ปีที่แล้ว +1

      @@Jay-vt1mw If anything, having it at exactly the same time would strenghten the suspicious that at least the trigger was environmental. Or no?

    • @Jay-vt1mw
      @Jay-vt1mw ปีที่แล้ว

      @@PierSilver idk i dont see it like that, they do live together but when it comes to environmental factors theyre so specific that no two people will ever expierence the same environment, espeically on a micro scale which is what i would assume caused these changes.
      So your potensially talking about levels of emotion, types/amount of food igested or what theyve inhailed etc that could cause mutation, it's basically impossible that people will experience the exact same of any factor bar maybe radiation.
      so surely it has to be gene/dna related not environmental? whats your opinon?

    • @MsTEllis99
      @MsTEllis99 ปีที่แล้ว +3

      Same viral trigger.

  • @babaki1
    @babaki1 ปีที่แล้ว +2

    this is MADDENING! Can't you guys go to the same doctor at the same time? At this point, why go in separate directions?

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว +2

      It’s looking like that’s going to be the case starting end of next month. And agreed, it is absolutely maddening.
      - Eric

  • @Agent_Butterman
    @Agent_Butterman ปีที่แล้ว +2

    Thinking about you guys. The health system here is a clown show.

  • @Sayilswtor
    @Sayilswtor ปีที่แล้ว

    It's the same everywhere, doctor has no will to do their job and even refuse to prescribe basic scans. It's awful, if I would refuse to do my job to such a degree I'd be fired, but not doctors!

  • @lifestyles2482
    @lifestyles2482 ปีที่แล้ว +1

    Be careful with that “I will trade my disease“. You don’t want cancer, even though you think it’s a shorter duration and it’s like a sprint and you either beat it or you don’t, you don’t wanna trade and most people would never want to trade their disease.
    I’ve spent 35 years with mine, not in my family history, out of the blue, we checked 200 years of family…nothing.
    I used to think like that, what I wouldn’t give to trade this away for some cancer or quick hard-core disease instead of a marathon that seems to never end but in the end, that’s a hard no.
    I would stick to the UC system in the bay area if you could, or Stanford, Kaiser, UC. It’s not a secret that the best doctors in the entire world or from this region, and some of the most cutting edge medicine is done here.
    I live in the city, if you ever need any help or referrals or even more than that just let me know. I know what it’s like to battle something, some thing that seems never ending and in my case it won’t ever end.

  • @DarkAnihilator
    @DarkAnihilator ปีที่แล้ว

    Consider an elimination diet to pinpoint possible dietary sources of anything inflammatory. Whatever you decide to try, I personally recommend a tapered transition to red meat and salt only and reincorporate foods/spices you enjoy from there one at a time. You’ll learn a lot about how shit affects your body. It helped me, and I think it will help you. Thanks for putting yourselves out here. Please feel free to reach out.

  • @nanohedron
    @nanohedron ปีที่แล้ว

    There is a video from a York Cardiology, a doctor's channel, called "Can this simple treatment transform patients with POTS and Long CV?" This guy covers autoimmune disease, which pertains to your condition. He introduces the idea that Long CV is actually POTS, which was mostly dormant in patients before patients suffered the big increase in immune system activity. He said he has 1000 POTS patients and 100 Long CV patients. He has been giving patients 2 liters of regular saline IV per week. Something about POTS inhibiting a person's ability to absorb water - I didn't get it - still trying to read up on it. But if that's it, you could be dehydrated even if you drink plenty of water, and severe dehydration is is brutal - it can cause everything from loss of energy to dizziness when standing up from blood pooling in the legs to neurological and brain damage and of course dehydration can be fatal.
    One of the final things he talked about was how today's doctors too often ask themselves, "What will happen to me if I treat this patient?" He firmly believes that such doctors should not be in business.

  • @Android.Paranormal
    @Android.Paranormal ปีที่แล้ว

    Why he didn't prescribe it? My guess is his medical insurer said they would not cover him for any litigation costs if there was any from prescribing it. Thats f**ked up if thats why.

  • @Lemonhead707
    @Lemonhead707 ปีที่แล้ว

    Try the Cleveland Clinic.

  • @lmaiden8331
    @lmaiden8331 ปีที่แล้ว

    True North Health Center. Dr Goldhamer

  • @bradmiller1864
    @bradmiller1864 ปีที่แล้ว +1

    Is there anyway you can get it on the black market?

  • @garret2042
    @garret2042 ปีที่แล้ว

    People wonder why we have lost faith in doctors. Covid obviously didn't help and all that goes along with it. But this is the typical treatment, it seems. Doesn't matter if it's a bad knee or Autoimmune Encephalitis. Doctors are more concerned about their own career demise than actually helping people. Half of them can't even think for themselves. It's absolutely brutal.
    I love you two. As usual I'll tell you to hang in there and I hope things get better, but I know it doesn't help. I've been following along the entire time. It's absolute brutal to watch you guys go through this and what an absolute battle it is. Keep fighting.

  • @dano5478
    @dano5478 ปีที่แล้ว +1

    I loathe the healthcare system in this country. As someone also dealing with a chronic issue, one of the most depressing parts of it all are getting appointments and tests set for months out. Appts come around only to be disappointed once again, and before you know it, its a new calendar year and your out-of-pocket max resets, and you know right from the first of the year you are going to be fucking poor again, further in debt than you were last year. I would gladly trade all of my money and belongings to be fixed ( Im sure you would too), and its a colossal kick in the nuts to trade all your money and get fucking nothing in return, just continued suffering. All the while people in your daily life either don't believe you or cannot fathom the extent of your pain.
    My peers are sick of listening to me rant about US healthcare, I'm going to do it in your comment section from now on. Get better dudes, if Adam responds well to Ritux, there is virtually no way another doctor can deny a trial to Eric, your obviously similar genetic makeup I wish carried more weight in these conversations with doctors.
    My brother and I (not twins, 3 years apart) have a similar chronic issue, likely autoimmune related, and finding a doctor who cares, or even just willing to humor you with a test or a medication trial when you ask for it is so much more difficult than it should be. If I ever come across the secret (legal or not) to getting proper medical attention, you'll be the first to hear about it!
    apologies for the scatterbrained nature of this post, something something something brainfog.
    tldr; Don't move to the US if you have any health concerns, you'll be poor regardless of your earning potential

  • @tufaznail
    @tufaznail ปีที่แล้ว +2

    Did you guys get the MRNA shot?

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว

      1 did 1 didn’t

    • @tufaznail
      @tufaznail ปีที่แล้ว +2

      @@itmhealth8025 don't get any more

  • @MandiMillerMakeup
    @MandiMillerMakeup ปีที่แล้ว

    Why don't you guys see the same doctor?

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว +1

      Her schedule is closed to new patients.
      -Eric

    • @MandiMillerMakeup
      @MandiMillerMakeup ปีที่แล้ว +1

      @@itmhealth8025 that's crazy that she wouldn't make an exception for your twin brother who has the same thing!!!! Grr I'm praying that you have started your new medicine by now. In Jesus name heal Adam and Eric!!! Show Yourself strong on their behalf!!!!

  • @bubbahyde8251
    @bubbahyde8251 ปีที่แล้ว

    Why don't you two have the same Dr.? Wouldn't that be the easiest thing to do?

  • @kevinkeys3578
    @kevinkeys3578 ปีที่แล้ว +3

    Am confused - - Simply go to your brother's doc?

    • @itmhealth8025
      @itmhealth8025 ปีที่แล้ว +6

      Her schedule is completely closed to new patients.
      -Eric

    • @Xeirus911
      @Xeirus911 ปีที่แล้ว +3

      @@itmhealth8025 A lot of times a doctor will work in a family member in cases like this.
      I'm sure you asked, but if not I would try to push it again.

    • @auntypc4791
      @auntypc4791 ปีที่แล้ว

      @@itmhealth8025 Yea, this was my gonna be my suggestion. That the obvious solution would be to have your doc prescribe Eric some Retux, too. Maybe if you send her this video, she will be compelled to open her schedule for Eric out of compassion. Maybe her heart will be as big as her balls.

  • @elenak6934
    @elenak6934 ปีที่แล้ว

    My comment keeps being removed by google

  • @thedirtydizzler
    @thedirtydizzler ปีที่แล้ว

    May I ask, have ya'll explored other countries? For example Thailand has some great treatments coming online. The US medical system is a dinosaur.

  • @Ex_877
    @Ex_877 8 หลายเดือนก่อน

    Get on the vitamin D, it really is that simple.

    • @itmhealth8025
      @itmhealth8025 8 หลายเดือนก่อน +3

      I’m on vitamin D, thanks doc

  • @ethangroat8333
    @ethangroat8333 ปีที่แล้ว

    Incompetent government regulation and control on doctors and adjacent industry. It should all be privatized and decentralized so that the market incentives lead to serving patients better.

    • @lilmentor3
      @lilmentor3 ปีที่แล้ว

      um...healthcare is already privatized you fucking idiot. lmao. this is the insurance at play you dumb fuck.

    • @CynthiaTheHealthExperience
      @CynthiaTheHealthExperience ปีที่แล้ว +1

      Agreed, maybe he should see a functional medicine practitioner. More free-market, and people actually achieve remission

  • @StupidManWhore
    @StupidManWhore ปีที่แล้ว

    Try doctors down here in Texas near DFW area, might have some better luck.