BREAKING THE RULES!
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- เผยแพร่เมื่อ 14 ต.ค. 2024
- Vlog 11.5.19 - We realized that we break a lot of the "normal" rules!
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What are some “rules” that you break? We say go grocery shopping when you’re hungry 🤣
The Frey Life reading more than just one book at the time, move a lot even while in a lot of pain, go outside the second it starts raining, having a collection of snow globes out all year long
The Frey Life lately for several years waited until the last day shop christmas gifts 😜
Eat when you’re hungry! Society controlled what I allowed myself to eat for a long time. Not a similar struggle to Mary’s, but definitely a lifelong struggle
I kinda agree to that rule, go at least when you are a little hungry. Or I go in and it's like, do I really want that? Nah, I think I'll pass on that and I walk out of the store with almost anything. It's frustrating!
I don't think it's in my control lol 😂 but I get seasonal affective depression in THE SUMMER! And living in So Cal?? It's not exactly easy to avoid the sun. So that's fun. 😝 When I used to work before I got sick I would NEVER wear makeup because I didn't want to contribute to the double standard of women needing to wear makeup to look "professional." NOPE! So I'd have my professional clothes and hair but I was never going to apply makeup "to be taken seriously." Another "rule" I break is always being the designated driver and not requiring others to be one for me. Ehlers Danlos makes alcohol really not do anything past the first 5-15 minutes lol 😂 so I just kept reducing the number of times I drank to three a year but this year I decided to just stop because it's not fun and it's not worth the risk of my doctors worrying about interaction with meds. So now I'm just the girl with the soda 🤣. Tip: most bartenders will give free soda to designated drivers! I used to bartend when I was in school & I never charged for sodas. 😎 FREE STUFF! 🤗😂
The fact that Mary can babysit, go to the store AND cook dinner in one day is truly awe inspiring 🥰 so thankful for the vertex med
Right?!? I did my physical therapy and grocery shopping and now I'm in bed exhausted. I need Vertex to make a med for my illness. For real tho I met someone who works with Vertex clinical trials and I burst into happy tears. 😭❤️
Mary you have helped me learn that when I'm staring off into space and can't think at all, I should check my blood sugar; thanks!
Watching The Frey Life on a cold rainy day is so cozy! Curled up in a fuzzy blanket enjoying your company.😊
I love cuddling infants. So precious. Love you Frey life
Oh I get it Mary. Sometimes it feels like I have more docs than friends in my phone book
Peter's podcast is brilliant. People you should listen/watch them for sure!!! Agree with going to grocery store when hungry. I shouldn't but I do...
Thanks Jon!
I hope you get your decorations up more quickly than I did. I moved into my home 7 years ago. I just had a large party in October and that finally got me to make the final decisions!
As soon as the ending song came on, medication alarm went off! Perfect timing for an awesome video! Thank you guys for sharing the real and raw moments and thoughts to because we all have them and it can be reassuring knowing other people have them as well 👍
I don't shake hands for the same reasons...in church when Father tells everyone to extend each other the sign of peace ....I smile then pick up my hand and wave ....I think my church family is aware of my health issues and they are very understanding but every now and then there's new parishioners that don't know ....have a great day !
Acorn squash is my favorite! It’s really hard to cut, so be careful. I cut them in half, cut a smidge off the bottom of each half so they sit flat. Scoop out seeds. Put some butter and brown sugar in the cavity and bake until tender. So yummy! 😊
Delicious!
I missed all weeks vlogs, work took over, as I started a new job, but happy to be your fuel, when I can watch!!!
So glad you got some baby👶🏻 time and you're feeling better.
Thanks Johnson Family Vids & Vlogs!
The Frey Life you betcha
I may have gotten very excited for your vlog to be over 17minutes long. 🙌🎉 The bloodsugar struggle is real 💪 you conquerred it!
Hello! Mary, I love how you said messages from viewers make you think 'Mary get the camera out of your purse and talk to your friends '! I don't have CF, but I have asthma pretty bad and the videos that you two make really help keep me going!!!! THANK YOU!!! GOD BLESS!!!!
“Now, I get to choose how I spend my energy”-SO PRECIOUS! I’m overjoyed for u Mary!!! It’s SO incredibly wonderful ur able to be around baby kiddos that “give u life” (as Peter said!!!)-maybe returning to babysitting (occasionally) with under 2yr olds could be a Trikafta possibility?!?!?
That's so scary and you handle it with such grace. God bless you Mary. And Peter your strength helps keep her pushing through. God bless you Peter.
Going to the grocery store hungry doesn't work out to well for me. I usually end up needing a second cart 😂😂😂 Love you guys ♥️
You have to find the perfect balance and that's hard! 😀
@@lizzieturbeville4089 It sure is 😂
I’m LOVING your podcasts Peter!! They are so encouraging to my heart! Thank you!
Holly_Adams thank you! So glad to hear you are enjoying them and that they are a source of encouragement for you!
I love watching home videos too. It just brings memories and happiness of just thoughts in general.
I don’t like to bake either since it generally involves precision-I like cooking too, cause u can “freestyle it”-add what u think will taste good-it doesn’t work out 100% of the time, but when it does-u get a BOMB meal!!
Think it's definitely time to put a little fridge upstairs in your medical closet! I have one in my room that I got when I had bariatric surgery. I live in a townhouse. Kitchen downstairs and bathroom upstairs. When stairs are challenging, I generally stay upstairs because the bathroom is more important.
Peter and Mary, You are a very special part of my day.
I always love hanging out with you three! Now I get to find out what my friends Mary and Peter buy at Aldi!!❤️😀
I love grocery hauls lol
I’m so glad to see both of you so happy and Mary... wow the combo-pills. So happy for her. ❤️💜🙏🏼💜❤️
I love seeing you so full of JOY! I have Lupus so I also don’t shake hands.
I totally love the daily devotional ! Y’all are great I am def a big fan !!! I ordered an Ollie keychain , has not come yet ! Love y’all
Bless your heart. I have Crohn's Disease and when I'm in a flare my blood sugar will go down because of the blazing diarrhea and my husband is just like Peter. He runs and gets me apple juice and then hovers until he is sure my blood sugar is coming back up. It's wonderful to be loved so much.
April your husband sounds so sweet! What a blessing!
I hope you enjoy the acorn squash. I love it stuffed with cut up apples, walnuts, brown sugar, and butter.
I must add a small anecdote to your story of the day. Relating to some boaters knowing how to ride waves and others not so much - my father was driving our family boat back in the day. I was sitting in the bow of the boat and we were following a tug boat maybe a hundredish?? yards behind it. Apparently we were going just a hair faster than we should have been. Because quite suddenly both of my parents could see nothing more than the head on my shoulders. In the space of about a second, we took on a few hundred gallons of water. And we were all swimming quite literally IN the boat. The bulk of the water went out the back side. And the bilge pump was going constantly for roughly the next three days. I remember LOVING it. They didnt seem to think it was all that. I now appreciate their perspective, yet I wouldn't trade that memory for anything.
I am so happy that your little family is in the life of my little family, even though we don’t know each other, I feel like we do! I am so excited to continue to see the amazing progress and improvements in your life with your CF Mary!
Today, I went with my husband to his CF Team Clinic appointment and today was such a good day! I had such a good conversation with his CF doctor and we discussed Trikafta and I also spoke about you. His doctor was at the CF conference last week and heard about all the information regarding the study and the medication. I am soooooo happy and excited to say that his doctor has written a prescription for Trikafta for my husband. I was in tears when he said that he could take the medication and that he would write a prescription for him. I feel like “we” have a new lease on life. This doesn’t just effect my husband, but as you know, first hand, it will effect me as well. Mary & Peter...all I can say is THANK YOU! Thank you continually putting your lives out in front of all of us and truly making a difference in the lives of the CF community and beyond! Love you all!!! ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
So sorry your sugar dropped so low, but I’m thankful you were able to treat it and finally get it to stabilize. I hate the feeling when my blood sugar is that low and I feel like I’m outside my body looking in. It’s like I know what’s going on, but can’t really communicate anything. Blah!! Sending you big hugs and prayers.
Mary I'm glad that you are having a good day
I love baking.
Not cause I wanna eat it tho. Most of the time I give it away. Or at least most of it
If I go grocery shopping after I eat, I will come home without anything to eat when I am hungry.
I love your vlogs!! I look forward to them!😊😊
DeLana Johnson I'm so glad! :)
Low BG SUCKS when it is like "oh you treated, hahahaha, watch THIS nosedive."
Mary, to treat episodes of low blood sugar, consider using glucose tablets. They act quickly due to rapid-acting carbs, are inexpensive and available over-the-counter and made specifically for this. With some experimentation, you'll learn how many to take based on your Dexcom reading. Relying on applesauce, Dr. Pepper and similar foods take too long for the body to absorb, particularly when you hit lows in the 40's and a fast recovery is essential. Talk to your endo team about this, please. High amplitude swings in blood sugars can more easily be remedied by ingesting known quanties of carbs.
Dashboard friends and random location friends for life!
It's been quite a while since I've seen you carrying your feeding tube around. Praise God for that blessing. 😃👋
You gotta get all the essentials when shopping, then go home and look at recipes, make them as gourmet as possible. I got a cold over the weekend and made chicken noodle soup and added 1 can of cream of chicken soup, sage and poultry seasoning and used dumpling noodles by No Yolks, it was out of this world. Simple stuff like pork chops with plenty of fat on them, seasoned and saute, served with chicken stock flavored white rice and some corn. My appetite has been wonky lately too, nothing really sounds good until I make something and sit down to eat and then it's amazing, weird, maybe it's the cold, lol.
Meal plan! Whenever you are hungry, write down what you’re in the mood for. Keep a running list. Then when it’s time to go to the store, work off that list.
My kids saw the part where Peter is running up the stairs with the juice box for Mary and they said "Hey, she drinks the same juice Daddy does!". My husband has type 1 diabetes and the kids are often sent to fetch juice boxes from the pantry. He also wears a Dexcom.
Acorn squash is the best!!! Sometimes we'll cook it and mix it with pasta.
About the tomatoes Mary - it can depend on the type of tomato (cherry tomatoes are verrry likely to cause a reaction), but more so of the time of year. Even if you don't have a noticable hayfever or pollen allergies, it is way more likely that the tomatoes will break your mouth during the spring. Keep an eye on it and you'll be able to avoid it! :)
I love baking for people, tonight I brought cookies that looked like the girl scout logo (sugar cookies with detailed icing) for my daughter's snack at girl scouts
Try acorn squash with brown sugar, butter, and cinnamon. Soo good. Bake at 350 or microwave with all the above until squash is soft
If you shop when you are hungry, you will always have something to eat at home that sounds good. Shopping when you are full, means extra trips to the grocery store........so just shop when you are starving🙂
I just got diagnosed with gastroparesis. recently. I struggle with it all the time, especially when I have anxiety attacks. Goes on and on until I go to the ER. They are so awesome there - They give me IV fluids and such so I can stop becoming so sick. Sadly, I have no one to support me.
omg I remember when I was a teen and had hypoglycemia, and my BS dropped to the 40's and things went back and white and weird and hot. And i felt the my body is a weird shape. so I understand you!!!!
I sure know the crazy things low blood sugars can create, my husband has been a diabetic since he was 19 and all of our 53 years of marriage. I could tell you some funny stories. He’s a retired accountant and thank goodness he had secretaries that took care of him and his blood sugars, ranges down to 20 and up to 900 when they found diabetes. He came home from Vietnam with it not diagnosed. He was a hospital Corman so he worked at Great Lakes Hospital and fell into a coma on his shift. He was in the hospital for 9 1/2 months but anyway what I’m trying to tell you is when you eat something coming out of there low blood sugar‘s it’s better to eat a turkey sandwich or peanut butter sandwich instead of your apple juice and apple sauce because they have sugar and you’ll get a spike of a high right after you eat or drink them you go crashing down. You need a combination of protein and carbs and that will help your blood sugar is a whole lot and also eat a half a turkey sandwich or something like that every two hours this is 53 years of experience have a great day!
Mary, I know what you mean being around sweet babies 💗 I did not have children of my own so I love the opportunity to give baby snuggles. You look great. Blood sugar is tricky. My sister is a type 2 diabetic and constantly struggles with regulating blood sugar. She recently got a continuous glucose monitor that is super helpful. Your house is so nice. Really enjoy your videos. You are truly an inspiration. Peter is the sweetest husband and Ollie boy is a blessing 🙏🏻💗
My husband as a type 2 diabetic also. The answer, after years of medication, was to go on a low carb diet, after 6 months, he's off medications, blood sugar stable, never felt better.
Sandra Bentley that is very interesting. Does he still avoid all sugar? My sister takes insulin injections once per day. Unfortunately she is quiet overweight and still sneaks treats. Her blood sugar can range from the 70s to the 300s. I think she either skips meals or overeats. It is a real struggle. Thx for the suggestion 😊
@@bionicprincess8008 yes, not just sugar, but keeps his carbs to under 20 grams a day. He only eats one meal a day. He has lost 30 lbs. If he snacks, It's like cheese or celery. Snacking is big problem for people with sugar issues, it keeps them in a constant yo yo of sugar ups and downs. The ups and downs are what causes the damage to the organs, kidneys, eyes, liver, pancreas etc. But eating all day long, may keep insulin levels stable but it is just increasing insulin, which, as a diabetic she does not want. Only way is to completely cut out carbs and allow her insulin levels to go down and get the insulin out of her fat, which is another place it hides. Dr. Berry, here on You Tube has helped my husband a lot.
@@bionicprincess8008 here's a good video that explains it. This one is from Dr. Berg th-cam.com/video/H1UTv7GG4Dw/w-d-xo.html
Sandra Bentley thank you so much. You have been very helpful. I worry about my sister’s health a lot. I will check out the suggestions you have made. I really do appreciate your kindness!
Dinner looked sooooooo good!!
I find it easier to just buy basics at the store. I make a protein, starch and veg type meals, I find casseroles to be pricey and more fattening. So I get what protein in on sale and get enough for 7 meals, always have potatoes, onions, rice, macaroni and 7 days of veggies. These kind of meals are quick and easy. Of course you can have Taco night and Spaghetti night, Pizza take out etc.
You're my hero Mary.
I used to work with a man who was diabetic, he'd be sitting in a meeting and I could tell when he stopped tracking. His reactions started getting a little slower. I'd ask him and he's say, "I'm fine" then he'd realize, nope he wasn't. We always had something for him in case his blood sugar dropped. He'd get busy or something and forget to eat enough for his insulin he'd already taken. So if you know someone with blood sugar problems, anyone, just be in tune to the changes in their behavior and be ready like Mary and Peter. 😃👋
One of my best friends is getting both her BSN and Bachelors in Public Health. A couple of days ago she sent me a link to a journal posting of one of the trials of trikafta and I told her how exciting It is. Its crazy how much better people are getting. I was just watching a video from 2015 and my goodness you've both come so far! I'm glad you got to babysit and thanks for spreading awareness.
P.S. my body does the twisty thing too.... I don't think it's from blood sugar changes, but if I am even a little low (I have fibrosis in my pancreas) I start to go into the feeling I get before that happens... Also, I experience sleep paralysis now... Do you or Peter?
There is a recall on frozen fruit from Aldi's for Hepatitis A, I heard it on the radio and thought I'd tell you since you shop there a lot. I'll be thinking of you today with your new Duke appointments. I pray everything and everyone goes well.
Skittles work great raising your sugar or m &ms. I don’t feel it till I’m in the 30s
Lol😂😂love it!! U guys r so Amazing!!
The two of you eat the best looking food.
Over the last few years it seems in Nov and Dec your get so weak and infection sets in and are admitted to the hospital, it’s so great your doing well this Fall and, I’m betting you start decorating for Christmas before Thanksgiving this year 😉 lol 👌🏻❤️
Mary, is it hard for you to eat? Do you try and eat three times a day, plus snacks? I’m diabetic and have experienced several blood sugar drops. It is no fun at all!! I hope and pray that it gets much better for you. Peter, your podcast are soooo good. Look forward to watching them.
My husband loves those boat videos lol
I've never had problems with low blood sugar, so it was interesting (And SO funny!) to hear you describe how it makes you feel!
Y’all need to try Lidl! It’s like if Aldi is Walmart then Lidl is Target!
What is that channel you watch Peter and Mary? I really want to see it now lol.
I have COPD and have major problems with breathing. I fell across your channel over a year ago when I searched for videos of breathing. Glad I did, you two and Ollie have an awesome channel. Love catching up on you every day. You actually teach me so much even though you are CF. Some of the things you do have helped me.
Thank you so much for such an informative channel 😊
Babies are the sweetest! I love that blue top you were wearing.
My husbands second job is a produce guy at a major grocery store. He say's EAT YELLOW TOMATOES, THEY ARE THE LEAST AND LOWEST ACID LEVEL.and enjoy
I break the rules sometimes! I grocery shop when I am hungry and eat stuff that is not on my diet. It’s just not any fun unless I cheat once in a while! Hugs&Prayers from Iowa!
I totally get the my arm feels like its in different shapes😂. I pass out all the time and when I am in the state of not quit fully passed out and not fully back my body feels like it's in different shapes 😂
I feel you, girls. For me, it's like this all the time I close my eyes. And it also feels like I'm falling back until my head is hanging towards the ground. Some days are not as bad, but some days it's so bad, that I don't want to go to sleep. Because on those days it mostly makes me nauseous too.
@@k.elh.8097 I can totally see why it would make you nauseous.
@@breannekuffner9948 it's like getting off a rollercoaster, when it feels like everything is moving but it's not. I now I'm not moving at all but my brain tells me, that I'm falling backwards.
Banana chips and Acorn Squash....2 of my favorite things!!!
Could you all pray for me. I’m starting Fasenra for e asthma. I’m nervous
Thinking of you Jackie.
Sending caring thoughts your way Jackie and hoping this new asthma works for you ♥️
Praying for you Jackie, keep us posted on how the new treatment goes!
@@thefreylife thank you. I'm thinking of and praying for you
Jackie don't be nervous. Sending prayers and well wishes your way. 💜
Aldi's my brother in law loves their Stollen this time of year. I always get their EVOO price is the best. also their Bran cereal. When they have the peaches in the jar it's good also cottage cheese. Their Chocolate Cake is deathly. The best around. I can't think of anything else.
Your arm not feeling the right shape made me laugh. I used to feel like i was walking with my body twisted to the side when it was perfectly straight. Strange sensations difficult to describe, best to look at the funny side .
robinhood 46 laughter is so important :)
You can try adding sugar to your juice to help raise your sugar more.
Cook your acorn squash in the instant pot. So fast and easy!
New subscriber from Jeri-Ann Henson’s channel. Curious, do you you have trouble with your blood sugar because of your CF or are you diabetic? Loving your channel. 😀
Arm feeling like its a different shape is so relate-able! When my sugar goes down it feels like my skin is falling off my face and I feel like I have to hold it in place.
Green Mountain Bellows glad you know it's because of bp!
Mary, I am so very happy for you!! You look amazing!! God Bless You and your amazing husband❤️🙏❣️
Thanks Lori!
Omgosh you guys are really responding to me!! Thank you so much!! I have so much going on in my life and it’s not good but you just made my day🙏‼️❣️
I think everyone who's diabetic hates blood sugar levels. I know I do😂😂😂
Ok I love you guys so much you inspire me every day❤️
Thanks Loren! Keep on keeping on!
Loving the vlogs keep it up Mary and Peter
thanks Caprial!
Most of the time I do the grocery shopping while being hungry. Wich does not happen often. 🙈
Mary I have blood sugar problems and I carry glucose tabs with me everywhere. I get them at Walmartm. Do those help you at all? Juice doesn't seem to help me.
Hey. I don't have cf but I do have a few chronic illnesses. I even gave a few thing my drs r trying to figure out. I love yalls videos.
Mary, I have Rheumatoid Arthritis and I don't shake hands either. I explain to the person about the rheumatoid arthritis and they completely understand.
Try that next time you need to avoid shaking hands. 💜💜
Mary you should have OTC Benefits through your Medicare insurance. I would get you some Glucose Tablets and carry them with you at all times. I get low with my insulin and diabetes sometimes
Love you three ♥️❤️❤️
I wish the new drug was impactful enough that you could revisit being parents. Your joy and love for children is abundant. Here's to seeing more and more improvement!
I was told by my Dietian to GO shopping when I am hungry 😋 so that my hunger will motivate me to buy my favourite foods that I actually be tempted to eat. Oh yes, especially high calorie foods.
You guys should get a mini fridge filled sweet goodies for Mary when her blood sugar drops. Just an idea!
My friend just gave birth to her lovely baby girl. So cute. Can’t wait to meet her 💚
Awe Kris that's so exciting!
Can you eat a very sugary candy bar? I worked with a guy that was a bad diabetic and he had spells at work and they would give him OJ with sugar in it or a candy bar. That helped him. Does it help to try and eat snacks every so many hours to keep your sugars up or glucose tablets. My son's coworker wears a Dexcom.
Two not serius question: have you tryied marmite on a cheese sandwitch? And how does dr pepper taste? 💕love from Sara,sweden
Dr. Pepper is like root beer, as for marmite they would have to answer that.
Dr. Pepper has a bit of a cherry flavor, like rootbeer but a sharper taste.
Dr. Pepper is hard to describe but yes it's similar to an almost rootbeer or birch beer flavor? Never had vegemite! Is it good?? I don't know if they sell it commonly in Pennsylvania USA. anyone know whose had it in PA?
Erin yes its good marmite very salty and lots of B12 i think it might exist in USA i think its from uk or germany, but we have it here in sweden on the foreign foods 😊
First, I never go shopping. I go for blessings, what is manager marked down, what is in season and only buy that unless I am really strapped for onions/potatoes, flour. Right now squash is in season, acorn squash cut in half and cavity filled with pork sausage baked at 350 for about 50 min with cornbread baked at same time is supper tonight. Spaghetti squash cut along the equator and with a bit of garlic and basil in cavity while instant pot cooked is great with all sauces. Chicken thighs are cheap this week and hopefully marked down when I get there so can do soup,BBQ chicken sandwiches or bake some. The thing is by looking at it as blessing rather than what I want we try more, spend less and remember food is not a right in most of the world.
Secondly, how in the name of all that is holy do you get that many doctors to communicate??? I only have 3 specialties and their lack of communication nearly killed me in May. I am told I need to be my own best advocate. scary.
💜❤ Mary I have Major Anxiety and Panic disorder its very bad when I have an anxiety attack my heart races and I get the dizzy it can lead into panic then I sweat and get shacks and my body gets so tight my muscles that I feel like people can see it someone asked me do you have low blood sugar and I said no but I completely understand Mary how you feel I have your back💜 But for me im on medication that alot of doctors/nurse practitioner don't or are very cautious about giving even though its the only thing that works and ive been on it for 11yrs and in the past year they reduced it which is fine its just now I have more anxiety and panic its very hard scary and it adds to my depression exhausting.. But when I do have these bad attacks I remember to slow my breathing down its not that easy when your alone its very scary "All I Have To Do Is Breath"....I Love that song ❤💜 P.s Sending positive thoughts and prayers🙏 always to you could you send some back my way
Yes, shopping when hungry! I am never really hungry anymore due to a total gasrectomy. I am J tube dependent and try to eat food. I never know if my body will accept food. I go to try and pick up food and I leave with nothing.
I love banana chips!
Oh My GoSH I LITERALLY HAD THE SAME SUPPER! except instead of ravioli it was chicken
I love banana chips. They are so good