Importance of Genetic Testing and Updates on Clinical Trials for Inherited Retinal Diseases

The Retina Foundation of the Southwest's Rose-Silverthorne Retinal Degenerations Laboratory is an international leader in research for inherited retinal diseases.
In this Spring 2020 video update, Kaylie Jones, M.S., Senior Research Associate discusses the importance of genetic testing and the steps involved in the process for patients or family members of individuals with a known or suspected inherited eye disease. Then, Kirsten Locke, CRA, FOPS, Clinical Trial Manager provides updates on current clinical trials for X-linked retinitis pigmentosa (XLRP) and Choroideremia.
Should you have any questions, please submit them to [e-mail]. We welcome your questions and feedback, and look forward to sharing our innovative research with you!
To view more videos from this series, please visit our website at www.retinafoundation.org/news/2020-research-updates.

[@hawitekalignbeyene285]

I have Retinitis pigmentosa usher syndrome 3
And doctors tell me i will end up blind and deaf at age of 60 or 70 ... I can't afford the genetic testing 😔 i live in east Africa Ethiopia am 24 years old
And am happy to participate in any research or treatment testing

[@aryanjaiswal661]

Any treatment of rp

[@drm.nasimjaved5640]

Any advancement treatment of rp

[@anusrivastava1083]

Any treatment for stargadts 1

[@elenaberwick3980]

Genetic testing is important but too expensive

[@aryanjaiswal661]

Plz reply

[@punamthakur671]

Plz rp can cover properly

[@aryanjaiswal661]

Any treatment of rp

[@aryanjaiswal661]

Any treatment of rp

[@ashokgoel2730]

There is lots of developments and hopefully it will be available within 2/3 yrs.

[@nagender.anagender.a9904]

@@ashokgoel2730 what will be the cost of treatment approx??