I have been diagnosed with MS (diagnosed 5 to 6 years ago). Initially treated with a couple years of Lemtrada , then a couple years of Aubagio. Now taking Zeposia with stable results. Well supported by MS team
My biggest problem is - getting Dx in the first place. In NZ, seeing a Specialist hinges on getting a referral from a GP. And that GP won't have good knowledge of autoimmune/neuro matters & their input likely will be counterproductive. The public hospital system is overloaded.
The 50 year old ANA test & its shortcomings, particularly for women. I've read on the stats re successful testing/false negatives (recognising it's not diagnostic) for XX chromosone PTs (women). And understand a new test is now rolled out. Is it available now in USA? Any intel on when it will be available world-wide/in Australasia?
Thank you so much for your videos. I am still in the process of ruling everything else out, but it is looking like a ms diagnosis is in my near future. I appreciate you so much, I am getting a basic understanding of ms and what to expect from your videos.
Sad I missed you in real time, but grateful to be catching up now. Thanks Dr Boster - this was a really interesting listen. I would love to hear a discussion between you and Dr Bieber. Enjoy the rest of your day.
Happy Hanukkah 🕎 Dr Boster 😁. Awesome AMA and love the northern lights scene! I think the plan to have you and Dr Beaber talk to health insurance and how it impacts patient care as a brilliant idea 💡 🔥🔥❤️🔥🔥🔥
Only other comment is exercise, but when you have lost all your power even that becomes a struggle. The only positive experience I have had and one you mentioned that helps is to meditate. For example I will leave the world behind during a workout, jam with some bluegrass and lift weights. Feels good to find inner peace, and to think about things alone.
My name is Lee Ann from Foster City Ca. I have ppms and I am concerned about mobility. I don’t have a preference way of getting information . I watch some form daily or weekly depending on the subject. I had my second Ocrevus infusion yesterday. Yes, I feel supported by my neurologist and her team. I have heard that Ocrevus is a 4 course treatment over 6 months. Is that true? And then what?
Again this is a great livestream- sorry I missed you live- but there where some great questions by the village- #Sharingiscaring Thank you again for sharing your knowledge with us- which definitely helps calm my anxiety and i know others- knowing is half the battle- merry Christmas 🎄
I finally got to see a neurologist after 20 years of systemic issues. He made a point of saying that he will not and will never order ANY imaging on spine or brain. That it doesn't help him at all as a neurologist. Unfortunately he is looking at a single rheum saying it's just fibro (who dx me with that after no imaging, no tests, and looking at me for 5 minutes? and never touched me)...and seems like the neuro is trying to "confirm fibro" instead of giving me an objective exam. He also left out details of the appointment....like I had a positive Babinski sign - dr. marked it as normal. I was unable to keep balance, walk normally, and in pain during the walking part on heels and toes...he marked it as normal with encouragement. He did ordered a few tests....but made sure to tell me that he expects ALL of them to be negative. I already have a slew of other diagnoses that doesn't support "just fibro". On your channels you talk about imaging and MRI's a bunch....Haven't had the testing done yet...(luckily with someone different), but should I fight more to get spine and mri imaging done? I've never had spine or brain mri done, but spine issues was the first symptom I had.
Hi from Israel always waiting to hear your video can you talk about changing treatment from Tysabri to Ocrevus what is the best way that you suggest thanks dear doctor
i LOVE coffee, but not black. I add coffee mate or international delight and have 3 to 4 cups daily. i know this is BAD and trying to cut down so i am happy to know that coffee in moderation is ok for me to have. will try my level best to do so. because I DO NOT drink juice or soda, but love water, just not drinking enough of it. am starting today. thanks Dr. Boster
Great stream, hope I can catch the next one!! I am now with back pain cause osteoporosis 😢. But I had mi ocrevus this month and seems to be under control.
Whoops! ! I missed the "live stream", so I won't be asking any questions this month. I'll listen to the recording to see if someone else already asked the same question. The "lives" really have great energy, but there is also a special honor to be able to make the very first comment. Happy New Year & happy holidays to all!
Question: Although scientific explanations help understanding, MS is not for sissys .. In addition to symptoms of MS what is the key to overcoming psychological obstacles, other than more pills or cannabis. What are long term effects of Cannibus?? Weight gain? Lacksidaisiness?? What are long term effects of meds for depression?? Are there studies related to long term effects of anything related to ppms since it occurs when person is older?
Sure wish I had gotten established as your patient back in the day when Dr. Kottil Rammohan left Columbus but don't know that I was given much choice in that at the time. Feel like that ship has sailed now.
My husband and I drove from north central Missouri to get a second opinion from Dr. Boster back in July...well worth the 19 hour round trip. I'm planning to go every summer. I am so grateful for Dr. Boster and his TH-cam videos...I learn lots on my long daily walks with him!
Thank Dr Boster , it’s a blessing to have a Dr like you , that is committed to help people 🙏🏼 hope soon I’ll be able to see Dr Beaber .
I have been diagnosed with MS (diagnosed 5 to 6 years ago). Initially treated with a couple years of Lemtrada , then a couple years of Aubagio. Now taking Zeposia with stable results. Well supported by MS team
Thanks again Dr Boster for sharing your knowledge and great tips to live our best lives with MS
Always welcome
My biggest problem is - getting Dx in the first place.
In NZ, seeing a Specialist hinges on getting a referral from a GP. And that GP won't have good knowledge of autoimmune/neuro matters & their input likely will be counterproductive.
The public hospital system is overloaded.
The 50 year old ANA test & its shortcomings, particularly for women. I've read on the stats re successful testing/false negatives (recognising it's not diagnostic) for XX chromosone PTs (women). And understand a new test is now rolled out. Is it available now in USA? Any intel on when it will be available world-wide/in Australasia?
Gidday, all.
Down Under in New Zealand, and once more listening with interest.
Merry Christmas! Thank you
Thank you so much for your videos. I am still in the process of ruling everything else out, but it is looking like a ms diagnosis is in my near future. I appreciate you so much, I am getting a basic understanding of ms and what to expect from your videos.
Absolutely a YES on the Dr. Bieber discussing insurance hoops! Dr. Bieber is the other videos I watch and this would be great if it can happen :)
Agreed!
Thanks for doing another live!!🔥🔥🔥
Sad I missed you in real time, but grateful to be catching up now. Thanks Dr Boster - this was a really interesting listen. I would love to hear a discussion between you and Dr Bieber. Enjoy the rest of your day.
Happy Hanukkah 🕎 Dr Boster 😁. Awesome AMA and love the northern lights scene! I think the plan to have you and Dr Beaber talk to health insurance and how it impacts patient care as a brilliant idea 💡 🔥🔥❤️🔥🔥🔥
Only other comment is exercise, but when you have lost all your power even that becomes a struggle. The only positive experience I have had and one you mentioned that helps is to meditate. For example I will leave the world behind during a workout, jam with some bluegrass and lift weights. Feels good to find inner peace, and to think about things alone.
I would love to hear you and Dr Beaber teamed up.
Agree, all the above symptoms mentioned!
My name is Lee Ann from Foster City Ca.
I have ppms and I am concerned about mobility. I don’t have a preference way of getting information . I watch some form daily or weekly depending on the subject. I had my second
Ocrevus infusion yesterday. Yes, I feel supported by my neurologist and her team. I have heard that Ocrevus is a 4 course treatment over 6 months. Is that true? And then what?
Years before the diagnostic,I was always tired,even if I was climbing a pair of steps,and then I had optical neurite,hello from Italy!
Again this is a great livestream- sorry I missed you live- but there where some great questions by the village- #Sharingiscaring
Thank you again for sharing your knowledge with us- which definitely helps calm my anxiety and i know others- knowing is half the battle- merry Christmas 🎄
Viewing all your videos from France, I learned so much ! thks for that...
C'est mon plaisir. Merci d'avoir regardé mes vidéos !
Pareil !
Je suis juste obligé d'attendre un peu pour avoir la traduction sinon je les regarderai en direct 😅
What a wonderful gift, thank you, truly grateful 🙏 x
You are so welcome
Watching the rerun. I always learn something here from Dr B and also the chat 😊
❤ and 🔥 and Merries and Jollies to everyone x
I finally got to see a neurologist after 20 years of systemic issues. He made a point of saying that he will not and will never order ANY imaging on spine or brain. That it doesn't help him at all as a neurologist. Unfortunately he is looking at a single rheum saying it's just fibro (who dx me with that after no imaging, no tests, and looking at me for 5 minutes? and never touched me)...and seems like the neuro is trying to "confirm fibro" instead of giving me an objective exam. He also left out details of the appointment....like I had a positive Babinski sign - dr. marked it as normal. I was unable to keep balance, walk normally, and in pain during the walking part on heels and toes...he marked it as normal with encouragement. He did ordered a few tests....but made sure to tell me that he expects ALL of them to be negative. I already have a slew of other diagnoses that doesn't support "just fibro". On your channels you talk about imaging and MRI's a bunch....Haven't had the testing done yet...(luckily with someone different), but should I fight more to get spine and mri imaging done? I've never had spine or brain mri done, but spine issues was the first symptom I had.
Hi from Israel always waiting to hear your video can you talk about changing treatment from Tysabri to Ocrevus what is the best way that you suggest thanks dear doctor
my opinion: start ocrevus within 4 weeks of stopping tysabri. NO washout is the key.
Merry Christmas 🎄
hi Doctor - Michael from Chicago
I always miss it!!
i LOVE coffee, but not black. I add coffee mate or international delight and have 3 to 4 cups daily. i know this is BAD and trying to cut down so i am happy to know that coffee in moderation is ok for me to have. will try my level best to do so. because I DO NOT drink juice or soda, but love water, just not drinking enough of it. am starting today. thanks Dr. Boster
Great stream, hope I can catch the next one!! I am now with back pain cause osteoporosis 😢. But I had mi ocrevus this month and seems to be under control.
Whoops! !
I missed the "live stream", so I won't be asking any questions this month.
I'll listen to the recording to see if someone else already asked the same question.
The "lives" really have great energy, but there is also a special honor to be able to make the very first comment. Happy New Year & happy holidays to all!
Diane. Baltimore, Maryland
Sadly I missed your live stream. Can you tell us what you think about the medication cosentyx for MS?
🔥🔥🔥
Late but not forgotten
Preferred way to learn…
Anyway you spittin it..,
From Union Grove, NC
From Hamilton Ohio
Do you know Dr Laganke in Cullman AL?
Thank you doctor Boster 👍🏿😃❤️
Welcome!
love the frame
Have you ever seen on a MRI report a 8mm stone in Periventricular?
Question: Although scientific explanations help understanding, MS is not for sissys ..
In addition to symptoms of MS what is the key to overcoming psychological obstacles, other than more pills or cannabis.
What are long term effects of Cannibus?? Weight gain? Lacksidaisiness??
What are long term effects of meds for depression?? Are there studies related to long term effects of anything related to ppms since it occurs when person is older?
Good morning doctor. From aruba
Is chronic fever a symptom of MS?
What DMT SHOULD we start with?
Access to better treatments.
T7 MRIs are the most important leap for MS. Without gray matter images MS management and treatment misses a big part of MS damage and disability.
Good morning
Sherman, Texas here.
Emotional well-being
Can you talk about PIRA?
Hey Charles!
Reminds me of Pink Floyd’s Wall ..
Leroy from Alberta Canada.
Hi good afternoon
Nicole Barentine from Tulsa Oklahoma and Fatigue
Charleston, SC
From New Orleans
❤❤❤❤❤❤
Sure wish I had gotten established as your patient back in the day when Dr. Kottil Rammohan left Columbus but don't know that I was given much choice in that at the time. Feel like that ship has sailed now.
My husband and I drove from north central Missouri to get a second opinion from Dr. Boster back in July...well worth the 19 hour round trip. I'm planning to go every summer. I am so grateful for Dr. Boster and his TH-cam videos...I learn lots on my long daily walks with him!
Hello everybody - lea from a hot south africa. Mobility a challenge
Does having glandular fever as a kid , have a connection with ms? Thank you Dr Boster
From upstate NY
Mobility is the worst for me
David from athens ga
Research papers.
California is in tha house
Untreatable fatigue.
1st yr, 1992? Rebif
Fatigue for sure
💜
Betaseron 2006
Not really