💉 IVIG Round Five & Installing a Shelf on My Wheelchair! ♿ (12/8/17)

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  • เผยแพร่เมื่อ 24 พ.ย. 2024

ความคิดเห็น • 112

  • @oliviajones6188
    @oliviajones6188 7 ปีที่แล้ว +6

    I've watched all your videos. I think you're such a huge inspiration to everyone who has chronic illnesses and even those like me who don't. Watching you makes me appreciate the simpler things in life. Thank you for everything you do. I love you Jaquie!

  • @0cherriesd506
    @0cherriesd506 7 ปีที่แล้ว +28

    I keep forgetting Jaquie lives in Florida. Because in the northern states there’s already snow! I keep wondering why aren’t they wearing coats?! xD glad the IVIG went well! Also great job Harlow! Whoo!

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 7 ปีที่แล้ว

      it's snowing in the mid Atlantic now! 👍

    • @haddockandbentley2903
      @haddockandbentley2903 7 ปีที่แล้ว +1

      It's snowing in the Nederlands to. Yesterday first snow of this year. And last year and the year before that we only had 1 day snow and now already 2 and Tomorrow it's going to snow even more!!! I love it. Will it snow ever where Jaquie lives?

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 7 ปีที่แล้ว +1

      Haddock And Bentley It probably will unfortunately. I say unfortunately because of global warming. It has snowed in Atlanta and Texas.

  • @rosieinocencia7302
    @rosieinocencia7302 7 ปีที่แล้ว +14

    Your positivity is infectious 💞thank you

  • @charlottestandage2765
    @charlottestandage2765 ปีที่แล้ว

    I still watch these videos. I miss Jacquie so much. I now have a diagnosis of hEDS and am so grateful for all she did. Xxx

  • @erictaylor5462
    @erictaylor5462 7 ปีที่แล้ว +8

    There are MANY reasons Judd is amazing.

    • @abhayrajopadhye
      @abhayrajopadhye 7 ปีที่แล้ว +1

      Eric Taylor
      Judd is a police man

  • @jaymebaldwin4276
    @jaymebaldwin4276 7 ปีที่แล้ว +9

    Hey Jaquie, have you ever thought of looking into rechargable batteries for your infusion or your feeding tube? I don't know what kind of batteries you need but I would suggest looking on Amazon

  • @carolinehonse35
    @carolinehonse35 7 ปีที่แล้ว +1

    It's good to see you again. I've been wondering about people with your disorders a hundred years ago before the inventions of medical equipment and medications that are available now.The prognosis now must be light years ahead of a hundred years ago. Anyway, it's great to see the three of you again. I'm impressed with all three of you but today I realized how intuitive Judd is about knowing just how far to go in helping you without "babying" you as he put it in his comments on a video. Bravo Judd, Harlow, and Jaquie!

    • @anushkabahutule4970
      @anushkabahutule4970 7 ปีที่แล้ว +2

      Caroline Honse
      not to sound grim, but people just died a hundred(s) years ago if they were sick. Also as we evolve and healthcare is better.. sick gene people are surviving and passing on the defective genes to the next generation and hence more illnesses but also more medical discoveries too. Just a general scenario not pin pointing any particular disease (condition)
      I am talking from a strict scientific point of view.

  • @laurenboddy1211
    @laurenboddy1211 7 ปีที่แล้ว +2

    Hi Jaquie, I suffer from sciatica which is chronic pain . I know how you must feel too. It's definitely tough day to day . Hello to Judd and Harlow and may you have a terrific Christmas

  • @lilac1397
    @lilac1397 7 ปีที่แล้ว +15

    Weird Question: Do you need to pee more during/after your infusions? Also, whenever you call Judd a trooper I imagine him as a stormtrooper!

    • @jennacarey3247
      @jennacarey3247 7 ปีที่แล้ว +7

      I was just gonna ask the same question!!! Especially with having to do more infusions before and after IVIG, I imagine that you would have to pee more often.

    • @DaizyDeb
      @DaizyDeb 7 ปีที่แล้ว +6

      I was thinking this also- I can only imagine with that much saline/fluids, it would run straight through me!!

    • @rebekahbridges-tervydis5054
      @rebekahbridges-tervydis5054 7 ปีที่แล้ว +1

      Me, too! Every time I have iv's the second bag makes to start to pee. Like every 20 minutes!

    • @marti4203
      @marti4203 7 ปีที่แล้ว +1

      I’m wondering the same. She’s not ingesting it so you wouldn’t think it’ll go to her bladder ?

    • @mysticash550
      @mysticash550 7 ปีที่แล้ว +1

      Hi guys, most people Intake 2-3 liters of fluids a day.. the only difference with intake is how.. iv or feeding tube can be cycled by the body much quicker so you may have to pee more, but since we often don’t Intake much by mouth, dehydration will make it so it’s about normal output as people who don’t do iv/feeds

  • @AirellSkye
    @AirellSkye 7 ปีที่แล้ว +9

    Yay for handy husbands! Snowing in Ohio right now so it's it's time to see the idiots come out of the closet when they drive. Still praying that the symptoms were less this time. Have a wonderful day Jaq!

  • @kelsiwasherelol
    @kelsiwasherelol 7 ปีที่แล้ว +7

    So glad your doing better with IVIG !! How's Judd's arm doing ?? I see its still wrapped :/ did his cultures come back yet ?? Hope you guys are doing well and enjoy the cold front :)

  • @tessakievit6876
    @tessakievit6876 7 ปีที่แล้ว

    Hey jaquie I just wanted to say how amazing you are and that you really inspire me. Every day I wake up thinking I wonder what Jackie did today. I may not be battling the same illnesses as you but I do have some mental illnesses that are in my life. I don’t know what I would do if I couldn’t listen to your voice and watch your blogs everyday. You keep me going.

    • @tessakievit6876
      @tessakievit6876 7 ปีที่แล้ว

      Sorry watch your vlogs

    • @tessakievit6876
      @tessakievit6876 7 ปีที่แล้ว

      I hope your bracing goes well I have special braces for my knee and ankle that I wear

  • @NeverSilenceLove
    @NeverSilenceLove 7 ปีที่แล้ว +4

    Sending you love and light. Thank you so much for sharing your life with us. You always help me with my anxiety for some reason. I was wondering do you recycle all those batteries and other medical supplies? If so where? Hope you feel the benefits of IVIG soon, keep on fighting!

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 7 ปีที่แล้ว +1

    So glad IVIG went well for you. Exciting news! London has been threatened with snow tomorrow!! ⛄️ ❄️⛄️❄️⛄️❄️⛄️

  • @aliciamalave3771
    @aliciamalave3771 7 ปีที่แล้ว +2

    "Hippo.. sandwich." Sorry, Judd. It doesn't work that way. 😂😂

  • @disrael5199
    @disrael5199 7 ปีที่แล้ว +2

    Hope you are feeling better today and didn’t have too bad of a night.

  • @Julia-fh2ke
    @Julia-fh2ke 7 ปีที่แล้ว

    You’re almost at 100,000 subscribers! You are such an amazing and strong woman! ❤️

  • @jjuullzzz
    @jjuullzzz 7 ปีที่แล้ว

    I wish you and Harlow were in youtube rewind that would've been so cool

  • @laurenboddy1211
    @laurenboddy1211 7 ปีที่แล้ว +2

    Happy holidays sweet Jaquie

  • @lucyrogers7196
    @lucyrogers7196 7 ปีที่แล้ว +3

    Off topic from the vlog, but I really hope your bracing appointment goes well. I’m looking into a brace for my right hip because it’s ALWAYS sliding out of place. Living that EDS life haha! :) I’m looking forward to seeing how that turns out for the both of us!

    • @zoesteiner7689
      @zoesteiner7689 7 ปีที่แล้ว

      look online for a "hip belt"! i have one and while it's not a cure all because it's very small and only goes around the main part of your hip, not around your thighs and lower abdomen like a normal hip brace, it's really helpful! it's velcro and it velcros one strap across and two straps on either side, but they overlap one another so it looks like one straight line. but you can tighten it to your body and it's very helpful. bit pricy though, mine was about $50 on amazon. but if you look up "hip brace belt" on amazon, it's a dark-ish blue color. if you can't find it, let me know and i'll go look up the name for it. good luck!

    • @zoesteiner7689
      @zoesteiner7689 7 ปีที่แล้ว +1

      both of my hips sublux EVERY SINGLE TIME i take a step😩😩 each side just goes click, click, click, click 24/7. the brace really helps to hold them in place

  • @MakyeaMarie
    @MakyeaMarie 7 ปีที่แล้ว

    IVIG was the worst experience of my life. Watching how well you handle it really humbled that feeling.

  • @3534MilanDrive
    @3534MilanDrive 7 ปีที่แล้ว +1

    Cool shelf. We have a little black bag that fits over the handles of a transport chair but that is neat!

  • @ChaseCharnley
    @ChaseCharnley 7 ปีที่แล้ว +11

    Can Harlow get any cuter!?
    Glad IVIG went well ❤️

  • @lailalaila4088
    @lailalaila4088 7 ปีที่แล้ว +2

    My brother walked in and said you’re watching chronically jac-k-wee again and I felt the pain when people get your name so wrong 😂

  • @brandieblakley7214
    @brandieblakley7214 5 ปีที่แล้ว

    Judd-how is your arm?
    Awesome wheelchair gadget!
    Harlow-adorable as always!
    Jaquie-always an awesome inspiration!!

  • @VulcanOnWheels
    @VulcanOnWheels 7 ปีที่แล้ว +2

    6:57 I have something like that, only with 2 compartments. 1 with a zipper, and 1 with velcro.

  • @kristyinkentucky
    @kristyinkentucky 7 ปีที่แล้ว

    I had infusions yesterday too (for a relentless migraine) and on my birthday no less.

  • @flossieshelley1838
    @flossieshelley1838 7 ปีที่แล้ว

    Wally is one my husbands favorite Walt Disney movies

  • @rachaeltucker7263
    @rachaeltucker7263 7 ปีที่แล้ว +1

    I love you and Judd. Harlow is so cute and funny. Praying for you family.🙏❤👃

  • @oneeyedhusky
    @oneeyedhusky 7 ปีที่แล้ว +1

    I love your videos! Thank you so much for posting!

  • @emilyjane4395
    @emilyjane4395 7 ปีที่แล้ว

    'Hippo.. sandwich' hahaha best part 😂

  • @sarah56968
    @sarah56968 7 ปีที่แล้ว

    I love how you have such an amazing support system

  • @soof9727
    @soof9727 7 ปีที่แล้ว

    I LOVE the bit of purple you have on your wheelchair😍💜💜

  • @emmalis5152
    @emmalis5152 7 ปีที่แล้ว +2

    What about the smart drive? Does it still work with the shelf?
    Also, if you’re interested in other wheelchair gadgets you can check out prettysicksupply.com it is basically a compilation of different shops that sell stuff for chronic illness supplies

  • @ClimbMountains
    @ClimbMountains 7 ปีที่แล้ว

    I've always said that, too. I have book smarts, but no common sense.😂

  • @wt0416
    @wt0416 7 ปีที่แล้ว +3

    Judd is being a handy man just like Paul. What a nice hubby Judd!! How long does Judd need to have that bandage on his arm? I hope he's getting better.

  • @dejadefrance3206
    @dejadefrance3206 7 ปีที่แล้ว +2

    how is judds arm doing? i see he still has the wrap on it. i hope yall are having a good day!

  • @dovestone_
    @dovestone_ 7 ปีที่แล้ว

    You’ve got such clear skin!

  • @abhayrajopadhye
    @abhayrajopadhye 7 ปีที่แล้ว +1

    Amazing couple with such a lovely dog..god bless u

  • @Mother_daughter_adventures
    @Mother_daughter_adventures 7 ปีที่แล้ว

    I get what you mean when you say that you don’t want to take up allot of room. It’s just easier to deal with when you are in small spaces and crowds.

  • @nicolledelgado331
    @nicolledelgado331 7 ปีที่แล้ว +2

    Is so different how you seem this time after IVIG, do you think ketamine helped with pain?

  • @kristirebbert1518
    @kristirebbert1518 7 ปีที่แล้ว +2

    Iv toradol is a wonder drug! I have had it for migraines before..... but just be careful with it because it is rough on your kidneys....

  • @mistered1907dj
    @mistered1907dj 7 ปีที่แล้ว

    I have mine in the morning. Hope your feeling well tonight.

  • @lizzie2k17
    @lizzie2k17 7 ปีที่แล้ว +4

    Does your mouth ever get dry from not drinking? I know you drink sometimes, I’m just curious. I didn’t know if the fluids also keep your mouth from getting dry.

    • @Trintneyw
      @Trintneyw 7 ปีที่แล้ว +1

      Lizzie Hill I was wondering the same :)

    • @gabigese
      @gabigese 6 ปีที่แล้ว

      A dry mouth is how your body says you're dehydrated. She stays well hydrated so I'd assume not.

  • @theforgotten8363
    @theforgotten8363 7 ปีที่แล้ว

    Hope the rest of your day is lovely!
    i live in Florida and its been pretty cold! hope you have a merry Christmas!! :D

  • @wtpb
    @wtpb 7 ปีที่แล้ว +1

    Wow, what a huge day. I wonder if having the Ketamine so close to IVIG helps any with the body pains? Hope your day of recovery is going well.

  • @jenbarrett8966
    @jenbarrett8966 7 ปีที่แล้ว

    its nice to see judd again. your wheelchair is awesome. If you think something would improve your life. I wouldn't feel bad about it or apologize for it. Bible says take care of your self first.

  • @Nameless-w-y4z
    @Nameless-w-y4z 7 ปีที่แล้ว

    Good luck, it’s starting to get cold in Florida.

  • @loopzcreate99
    @loopzcreate99 7 ปีที่แล้ว

    You may of addressed this already, sorry if you have, my memory isn't great. How do you not get your hair caught in anything, as notice you always wear your hair down, I know you move it out the way when infusing, just wondered if you ever get ya hair caught in anything, and btw how do you always have flawless hair.. Thanks for taking us on your journey x

  • @alishal6031
    @alishal6031 7 ปีที่แล้ว +1

    I’m glad that you have a good support system!!! Do you know any good tips about muscle stiffness in dogs? My middle aged lab is getting stiff and im not sure how to help her she seems to be in a lot of pain!

  • @jpjpvds
    @jpjpvds 7 ปีที่แล้ว +6

    Now, if you just avoid meningitis and the other ivig side effect crap, this time it seemed to go really well!!!

  • @mandm2054
    @mandm2054 7 ปีที่แล้ว

    "the sound of our people" lol

  • @aileenking6262
    @aileenking6262 7 ปีที่แล้ว +1

    Love you Jaq. Hope after effects aren’t too bad. How tall are you, Judd, and Harlow?

  • @shelbijackson5829
    @shelbijackson5829 7 ปีที่แล้ว +5

    Clicked so I can hopefully make it easier to shop in a wheelchair. I'm a child and my arms are weak so my mom pushes me and it's hard.

    • @JuliaN-kb5fh
      @JuliaN-kb5fh 7 ปีที่แล้ว

      Maybe get a wheelchair like hers? So you can get around easier? Idk, just a thought

    • @shelbijackson5829
      @shelbijackson5829 7 ปีที่แล้ว

      +Jules’ Pets it's not having enough room. The wheelchair is rented because pots can go away not likely but can. (20-25)

  • @ashleylu3687
    @ashleylu3687 7 ปีที่แล้ว

    Love you Jaquie! and Harlow is such a cutie!

  • @533134
    @533134 7 ปีที่แล้ว +6

    Jaquie, have you heard about the IV fluid shortage? Does that worry you being that you rely on IV fluids?

    • @jennacarey3247
      @jennacarey3247 7 ปีที่แล้ว +1

      That's a good point! I noticed the shortage of fluids when I was in my last clinical in the hospital for nursing school! The hospital that I have my clinicals at no longer runs meds with full bags of fluids, they just mix it with sterile water and do an IV push instead. Great question!

  • @sadiepeek7960
    @sadiepeek7960 7 ปีที่แล้ว

    Did the anodizing (purple bits) on your wheelchair cost you extra personally? I’m getting the exact same chair and I want matte black with sapphire anodizing but if we have to pay I can’t afford it so I’ll get navy blue instead

  • @Taffiluna
    @Taffiluna 7 ปีที่แล้ว +1

    Yall are so cute Harlow and all lol :)

  • @Fighting_for_freedom
    @Fighting_for_freedom 7 ปีที่แล้ว +1

    I have a lot of the same medical conditions you have but was wondering what the IVIGs helped with as I wasn’t sure if it would be something I may want to look into as well.. but not sure which specialist I’d even talk to about it. I’m assuming a mix of the cardiologist and gastro doctor? Sorry if this was in another video! I’d love to be more informed on it though! Hope your doing well!

    • @piercetheveil5
      @piercetheveil5 7 ปีที่แล้ว

      Desiree Schwartz she has a playist for ivig!I believe she's using it mainly to hell with her mast cell activation disorder

  • @theblindalien3668
    @theblindalien3668 7 ปีที่แล้ว

    Hey I love your videos. I have golden har syndrome and I used to have scoliosis but it got treated when i was 2 so I only have to deal with bad back pain now which I guess is better than what you have to deal with xx

  • @sueg2658
    @sueg2658 7 ปีที่แล้ว

    How is Judds bobo? Great video as always. Love you guys :-)

  • @seskikris
    @seskikris 6 ปีที่แล้ว

    What brand facial mask are you wearing? Or what’s that kind called? I just got back from UAB’s Dysautonomia clinic and I noticed some people wearing them. I just forgot to ask them about it.

  • @guineapigshfl
    @guineapigshfl 7 ปีที่แล้ว

    The sound of our people! If that ain't the truth haha

  • @meganlovesdisneyandcrafts4780
    @meganlovesdisneyandcrafts4780 7 ปีที่แล้ว

    Glad everything went well! Does the ketamine not work for pain after IVIG? I like that shelf!

  • @patriciac4245
    @patriciac4245 7 ปีที่แล้ว +1

    Since you get so many fluids do you still need to drink water?

  • @jamspeight
    @jamspeight 7 ปีที่แล้ว

    Hi i love your videos I have watched them all and I love your family I have a ? What do you do with your empty syringe I'm all about recycling I'm a crafter and I use the for crafting things if you can ship them I'll pay the fee thank you for sharing you story

  • @Fattiapples
    @Fattiapples 7 ปีที่แล้ว

    Never thought of it yet but how old are jaq and Judd? Thanks!

  • @rayyy1117
    @rayyy1117 7 ปีที่แล้ว

    Ow Judds now got moustache😛😛

  • @TheKeyMargo
    @TheKeyMargo 7 ปีที่แล้ว

    Can you eat baked sweet potato mashed up with butter and a little cinnamon? One of my most favorite side dishes.

  • @BlueMist007
    @BlueMist007 7 ปีที่แล้ว

    Hey Jaquie I love yall and your videos

  • @moomoo02
    @moomoo02 7 ปีที่แล้ว

    😆 the video thumbnail kinda looks like you’re flying first class!

  • @nojustnoffs
    @nojustnoffs 5 ปีที่แล้ว

    Judd

  • @jessicanoble5944
    @jessicanoble5944 7 ปีที่แล้ว +1

    Yay for handy man husband's!

  • @madelinebata8851
    @madelinebata8851 7 ปีที่แล้ว

    How do you defrost Harlow's raw food every day?

  • @deannuna25
    @deannuna25 7 ปีที่แล้ว

    I like your video!! Have a nice day!👍

  • @hayleefine3671
    @hayleefine3671 7 ปีที่แล้ว

    Where do you get your masks?

  • @claireelizabethblake8911
    @claireelizabethblake8911 7 ปีที่แล้ว

    You always get so pale after IVIG... I love the shelf thing!

  • @belindaong5415
    @belindaong5415 7 ปีที่แล้ว

    Why is gastrectomy not an option?

  • @maureenelizabeth5853
    @maureenelizabeth5853 7 ปีที่แล้ว

    I don't understand why you bring Harlow to the Hospital?

  • @yote2203
    @yote2203 7 ปีที่แล้ว

    I’m going crazy I’m in class rn and right when you said “oh we are watching Wallie” my teacher played wallie.

  • @tracimilstead7626
    @tracimilstead7626 7 ปีที่แล้ว

    Good 😀

  • @MsShutupndance
    @MsShutupndance 7 ปีที่แล้ว

    i hope that the next few days arent too hard on you Jacquie

  • @morgancalvi6675
    @morgancalvi6675 4 ปีที่แล้ว

    I'm 130 pounds and 20 grams is it.

  • @erictaylor5462
    @erictaylor5462 7 ปีที่แล้ว

    Harlow wonders you you are so bald. If you had fur like her you wouldn't need a blanket.

  • @teriruiz8292
    @teriruiz8292 7 ปีที่แล้ว

    girl, you made me really nervous when you were out at night by yourself, even though you were only in the parking lot, it's still too dangerous so get a small LED flashlight and have Judd the wonder man, figure a way to clamp it onto the underside of the armrest so it points the way ahead. Please?

  • @Cuddlesandcookies
    @Cuddlesandcookies 7 ปีที่แล้ว +2

    Does jud ever feel like his youth is taken from him because he is held back from doing as much ?I bet he just gets frustrated and exhausted somtimes. Can you talk about some of those things that might go along with families with chronic illness? Were you this sick when you gpt married etc...etc..

    • @BabePandahh
      @BabePandahh 7 ปีที่แล้ว +10

      xoxo lover her symptoms started to go crazy about half a uear into their relationship while they were in highschool. She gave him a chance to leave her because of it. When you love someone, it doesnt matter what they are struggling with and how it affects your life. You just want to be with them and care for them.

    • @3534MilanDrive
      @3534MilanDrive 7 ปีที่แล้ว +1

      They have covered this in a bunch of their videos. I don't really see what he could be missing?? It appears their home is spotless, the laundry gets done, she cooks for him, they go on adventures, and they spend time binge watching tv together. I have been married 15 years, seems like they have everything covered!