My first time hearing about CMV was as a nursing student after having had my boys and I was in my 30's. I was doing my pediatric rotation and our instructor came into the conference room and asked us who could no longer have children as she had a child with CMV that she could assign as she explained anyone who could get pregnant it would be bad for them and their baby to get this virus. As I had had a hysterectomy before nursing school, I volunteered. The child was a very sad case, with no abilities other than to breath on their own at somewhere between 8-10. Years later when doing bloodwork to see if they could figure out why my body went to pot all at once, my doctor called me to tell me that I had the CMV in my blood. Turns out I had very severe RA. It has been a long almost 20 years.
I am pregnant now and grateful that I know I had CMV in college and now have antibodies! I agree that CMV isn’t talked about as much as it probably should be. I hope that this cute little girl continues to rise above her challenges.
My son was born in 2009 congenital CMV I I knew there was something wrong he wasn't growing as fast enough in my womb and they had me on bed rest for 3 weeks and a genetic specialist and they would have just had to give me a simple test for CMV but they did not I did not know until they sent the placenta to pathology and that's how we found out. My son now is an 11 year old perfect boy. Hey is deaf in his left ear and besides that no one would know any difference but we went through many struggles and your struggles will overcome as well they're just developmentally delayed quite a bit until their six or seven.
Thank you for sharing this.. My daughter has it and im taking it very hard.. All that's happened is that she failed the hearing test in her right ear, and tested positive for cmv in her saliva, followed by urine.. But still i cant stop crying, and im extremely upset. So thank you for this hope.. I really really needed this..
@@dannythompson1948 ~ if you have any questions feel free to contact me; I would not mind that at all, I would really love to help a follow parent out with any questions during their struggle period of the unknown. valnvin90@gmail.com.
Good that your son is doing much better now, I'm wondering if he's still developemantally delayed or if he's able to go in a regular class in school and follow the rest of the students or does he gave special education
When you are pregnant, you start hearing about all the probability of that or this...you realize that having a perfect normal healthy baby is not that « natural ». Life is hard even at the first moment.
as a reborn artist, my work is more of a curiosity than a shopping focus so i use my site to give info. CMV is part of my focus and charity. Newborns should be tested at birth, mothers should be tested every month of pregnancy. i just hope she drops her older daughter out of the conversation because she will carry that guilt.
One thing I found out, that not many people know, is if you have a cold sore and have oral sex with your partner, you can spread it, I find it unreal people are so misinformed about the smallest things but will sit on Google for 28 hours looking up the proper way to fold a sheet
All the doctors should warn women once they test positive for pregnancy and women who are trying to conceive it should be mandatory to avoid heart break .
@@keishakashefamily6301 my daughter's right ear has moderate to mild hearing damage, but the left is perfect. Today the Dr's checked her eyes for active infection, but found none thank god.. Her skull and brain are normal too, so at this point she's a perfect baby, other than the hearing.. Don't know if we're gonna do the anti viral treatment yet.. What do you know about your baby at this point? I read EVERYTHING there is to read out there, and im a smart dude ( healthcare engineer) so if i can help, please ask..
Two years I lost my baby boy I was 16 weeks unfortunately I lost my baby hydrops and a hygroma after that I did the torch I came possitive for simplex herpes virus cold sores and they told me that I had a old infection for cmv can I get preg again
. She says someone should have told her she wish she would have known?. Dr offices sometimes give pamphlets and information every day but patients don't remember or take heed or even read it. It is up to every PARENT MOTHERS & FATHERS to do your research to use your common sense!! . In this day and age where he can find everything on the Internet there's no excuse to be this ignorant and then say I should have known someone should have told me? Common sense should tell every mother never eat any meat EVER! This is not the mothers fault 'm not saying that.. . But for her to put the blame on others and say I'm angry because someone should have told me is what's really irritating!
I had to brow beat my doctor to test for it. I have had three children no obgyn has ever mentioned it. I was lectured about Zika and lunch meat though. The only reason my child who was born with it was tested was because I already knew I seroconverted during pregnancy, because I was getting myself screened.
My first time hearing about CMV was as a nursing student after having had my boys and I was in my 30's. I was doing my pediatric rotation and our instructor came into the conference room and asked us who could no longer have children as she had a child with CMV that she could assign as she explained anyone who could get pregnant it would be bad for them and their baby to get this virus. As I had had a hysterectomy before nursing school, I volunteered. The child was a very sad case, with no abilities other than to breath on their own at somewhere between 8-10. Years later when doing bloodwork to see if they could figure out why my body went to pot all at once, my doctor called me to tell me that I had the CMV in my blood. Turns out I had very severe RA. It has been a long almost 20 years.
Completely crazy that throughout this whole video, nobody even tried to explain what it is
I know exactly how the mother feels such heart break
I have it right now! It’s not mild... this lady is wrong. I’ve been in hospital very ill. It almost killed me.
I am pregnant now and grateful that I know I had CMV in college and now have antibodies! I agree that CMV isn’t talked about as much as it probably should be. I hope that this cute little girl continues to rise above her challenges.
@Mimi Issac It didn’t affect mine. I had a healthy little boy 3 weeks ago. He’s had all normal newborn screening tests.
My son was born in 2009 congenital CMV I I knew there was something wrong he wasn't growing as fast enough in my womb and they had me on bed rest for 3 weeks and a genetic specialist and they would have just had to give me a simple test for CMV but they did not I did not know until they sent the placenta to pathology and that's how we found out. My son now is an 11 year old perfect boy. Hey is deaf in his left ear and besides that no one would know any difference but we went through many struggles and your struggles will overcome as well they're just developmentally delayed quite a bit until their six or seven.
Thank you for sharing this.. My daughter has it and im taking it very hard.. All that's happened is that she failed the hearing test in her right ear, and tested positive for cmv in her saliva, followed by urine.. But still i cant stop crying, and im extremely upset. So thank you for this hope.. I really really needed this..
@@dannythompson1948 ~ if you have any questions feel free to contact me; I would not mind that at all, I would really love to help a follow parent out with any questions during their struggle period of the unknown. valnvin90@gmail.com.
Good that your son is doing much better now, I'm wondering if he's still developemantally delayed or if he's able to go in a regular class in school and follow the rest of the students or does he gave special education
Aww... what a beautiful baby 💯🥰
When you are pregnant, you start hearing about all the probability of that or this...you realize that having a perfect normal healthy baby is not that « natural ». Life is hard even at the first moment.
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There's a clinical trial for CMV vaccine going on now.
Her little gold shoes oh gosh 🥰🥰😘
as a reborn artist, my work is more of a curiosity than a shopping focus so i use my site to give info. CMV is part of my focus and charity. Newborns should be tested at birth, mothers should be tested every month of pregnancy. i just hope she drops her older daughter out of the conversation because she will carry that guilt.
D Thank you for the helpful info 🙏 . As I had no idea of this virus before and just finding out now about it...
Dr said usually children carry this well yeah cause a grownup passed it on. Many children have cold soars cause mom or dad passed it on.
One thing I found out, that not many people know, is if you have a cold sore and have oral sex with your partner, you can spread it, I find it unreal people are so misinformed about the smallest things but will sit on Google for 28 hours looking up the proper way to fold a sheet
All the doctors should warn women once they test positive for pregnancy and women who are trying to conceive it should be mandatory to avoid heart break .
I just found out my baby has cmv
Hi how is your little one doing now?
Hey, how's your baby?? Mine does too and i can't stop crying. I could really use some hope right now..
Mines too 😭 how’s the baby doing?
@@keishakashefamily6301 my daughter's right ear has moderate to mild hearing damage, but the left is perfect. Today the Dr's checked her eyes for active infection, but found none thank god.. Her skull and brain are normal too, so at this point she's a perfect baby, other than the hearing.. Don't know if we're gonna do the anti viral treatment yet.. What do you know about your baby at this point? I read EVERYTHING there is to read out there, and im a smart dude ( healthcare engineer) so if i can help, please ask..
Seek all available help you can get. Fine support groups and just continue loving your baby.
Two years I lost my baby boy I was 16 weeks unfortunately I lost my baby hydrops and a hygroma after that I did the torch I came possitive for simplex herpes virus cold sores and they told me that I had a old infection for cmv can I get preg again
Yes you can get pregnant again duh.. but did you get antibodies
My son has cmv
Probably does not have to do with injecting anything into the blood stream like preservatives or metals.
Hi iam from India my baby also cmv patient 😭😭
. She says someone should have told her she wish she would have known?. Dr offices sometimes give pamphlets and information every day but patients don't remember or take heed or even read it. It is up to every PARENT MOTHERS & FATHERS to do your research to use your common sense!! . In this day and age where he can find everything on the Internet there's no excuse to be this ignorant and then say I should have known someone should have told me? Common sense should tell every mother never eat any meat EVER! This is not the mothers fault 'm not saying that.. . But for her to put the blame on others and say I'm angry because someone should have told me is what's really irritating!
Exactly 🤌🤌
I had to brow beat my doctor to test for it. I have had three children no obgyn has ever mentioned it. I was lectured about Zika and lunch meat though. The only reason my child who was born with it was tested was because I already knew I seroconverted during pregnancy, because I was getting myself screened.