Doctor's need to have some humility and actually listen to their patients. Kills me the hoops this woman went through to get a real diagnosis when she was being so proactive. Nearly died.
i went to 4 different hospitals before i was taken seriously 2 years ago i just got to where i can walk with a walker then April 1st woke up and and I was in worse shape now im sitting at home in massive pain mouth drooling at my wits end
Sorry for this late reply. I was in ICU for 2.5 months on a ventilator. Then a few more weeks in hospital, then 3 months in rehab. A total of 7 months. I was 48 years old.
You saying "Anxiety" speaks volumes ... how about having GBS and Autonomic Dysreflexia Combined 15 years ago then have having Doctor's saying Anxiety why having autonomic attacks ... I had 3 days in hospital when all that was needed was a BM ... Walk in pain or not is the only thing you can do with GBS
Sad to go home multiple times early on. I had the same experience with doctors and hospitals.
You are an amazing survivor. Keep up the good work
Thank you Tamer! Hope you are keeping well.
Im 13 years old and I also have this
Doctor's need to have some humility and actually listen to their patients. Kills me the hoops this woman went through to get a real diagnosis when she was being so proactive. Nearly died.
i went to 4 different hospitals before i was taken seriously 2 years ago i just got to where i can walk with a walker then April 1st woke up and and I was in worse shape now im sitting at home in massive pain mouth drooling at my wits end
I'm 13 years old and I also have this
I have GBS or GBS like syndrome from the covid vaccine. They are giving me IVIG but I'm sure if it is a varient like this one
How's your recovering looking like
My wife now have amsan 1month she admited ospital in two weeks she walk but have pain
Caould you plz tell me your age when you were suffering from gbs and how long you were on ventilator(months)?
Sorry for this late reply. I was in ICU for 2.5 months on a ventilator. Then a few more weeks in hospital, then 3 months in rehab. A total of 7 months. I was 48 years old.
My doughter is 8 years and she is suffering (AMSAN)
Please dear please guide me what should I do for her reloef I see Dr
But please you also guide me
@@qudsiamalik4538 go to the hospital
I have this motor axonal polyneuropathy . How to treat?
You saying "Anxiety" speaks volumes ... how about having GBS and Autonomic Dysreflexia Combined 15 years ago then have having Doctor's saying Anxiety why having autonomic attacks ... I had 3 days in hospital when all that was needed was a BM ... Walk in pain or not is the only thing you can do with GBS
My son suffer from atypical gbs type aman he not able to speak and swollinng ability you have also this symptoms please reply i am from india .
How is ur sensory now
Can I talk to u I got motor sensory gbs
Please help me I am very poor from India I have same problem
I have poor motor exonal neuropathy I am very poor please help me I have two kids but I am on the bed so I cannot pay money for treatment
@@nancykaur3241 Ask family then
Plz help me I'm gbs patient
What country are you in? I can direct you to support groups. We are here to help!
@@hananhopevanholst6773 hey mam i am also gbs patient tell me what to do can i get you contact no to talk about my condition
Сколько длился ваш синдром?
anxiety anxiety anxiety. sooooo tired of hearing women (mainly) diagnosed and dismissed💀