Dear Dr, Aaron,✍️🐣🐤💌, -Wow, floored, a nice beautiful village turn out including Amber, in the wee early morning, isent it a beautiful thing, to have a Dr share wonderful, absolutely helpful and easy to understand education early in the morning, - to be toogether as a village. Is possiblly pricless. Sincerely, ~Divine 💌✍️🐣 Thank you for all you sacrifice each and every day for us. It's TRULY Honorable.
Howdy Divine! I share your feelings, it's a beautiful thing to gather our global online village together. TY for your participation and, as always, for your continued support of this channel and this growing online community! #WeHaveMS #KickMS
Dr. Boster, I am an MS patient and am so appreciative of your channel. I keep my diagnosis hidden and am only allowed to see my doctor once a year, where I hardly ever get any type of education on MS. All of your videos are great. I have learned so much about MS!! This one, where you discuss "progression" is very similar to what I am going through, and I had no idea what it was or how to describe it. Next time I go to my doctor I will be able to talk about what is bothering me in a more effective way. Thank you again. I wish my neurologist was as helpful and understanding as you are!
Hello AP, 🙋♀️ Welcome to the MS Global Village.🙋♀️ This is the place where you are never too old to have invsible friends, but old enough to live with invisible symptoms. 😕 Looking foward to sharing your MS journey with you. Take care 😊
Don’t be anonymous in this disease!!! It’s a much better path with company!! And take this as a Medal of Honor because you are an MSwarrior now! Learn to listen to your body and believe in energy conservation!! Good luck 😉
Just came to your chanel Dr Boster to tell you how was for me Mavenclad and 2020 was the third year with Mavenclad but wasnt need it and my brain is back and I remember a lot of things that I forgot I knew. Now 49 years last 20 January and soon knowing more people with MS explainning how I had my life back to me 😉 And what I learn with you help me a lot too, Thanks from Portugal 🇵🇹🥰🌟
Thank you, I fit the MS patient that you’ve explained... especially about golf and never having noticeable RR attacks just deteriorating every year. I was on Copaxzone, Tysabri, then Lemtrada and now being switched to MAYZENT and Oceravus maybe after Pandemic when safe to get regular infusions. This was the best explanation of my situation so far, thank you.
I’m sorry that I missed this live stream. I love listening to everything you say. My Neurologist told me years ago, to be my own best advocate. This is very educational and I thank you for taking the time, to talk about everything MS with us. Much love and gratefulness. Be blessed 🌺🌺
Very proud to be here I am Maria from Portugal dianosed with MS 5 August 2018 At the end of 2018 startd with Mavenclad. Don’t felt much but wasn’s bad. And if I remember how my brain and rest was not mutch to complain was bad but could be worst, I have a great doctor Dr. Guerra that I like very much. I lear a lot with you Dr Booster (learn) and sometimes my eyes don’t work well, other times fatigue, others my hands or legs don’t work well, and more but I go in front one day a day. My regards and thanks for this space amazing
Thank you Dr Boster! I now understand that I’ll stay the course with Ocrevus and if it does not work Mavenclad is an option. Nice that there is another treatment (other than Lemtrada) that after two years you have the hope of stopping.
I stopped taking tecfidera. After watching you and listen to what you say and realized I should be taking something. Since I was taking tecfidera what should start with the going back to being on a DMT? Julie from Fort Worth Texas.
Hi Dr. B, I recently came back to TH-cam and found you and your wonderful channel. The live streaming is an amazing tool, wish I would have had it back in the day. My neurologist told me that they no longer use placebos for drug trials, is she correct? Since these are new to market and had to go through years of study maybe things have changed. I really liked your explanation about progression and think it will help so many people! I have some questions of my own but not on this topic and just wanted to say thanks for all you are doing. Andrea from Nevada :-)
Kevin (rom the opposite side of Florida from where Stewart is ), came to this recording bc I have been on Mayzent for a very long time now & my disease seems fairly chill since I've been on Mayzent and Given my current conditions, does it make sense ( @64.5 yrs ).to begin a transition away from Mayzent & on to Mavenclad simply because of how Medicare handles MS DMTs with regards y
Calling from Norco California. I talked to my MS specialist about how cool you are and learned more about MS in an hour listening to you that I learned in 25 years. She actually went to see you her name is Lynsey Lakin
Hey Kim. You took the words out my mouth. I’m in Yorba Linda... not so far from you 😀 Dx’d in 05, Rebif ever since. Now I’m with a less-than HMO that rhymes with Kaiser. My neuro knows near nothing about MS drugs... and here, Boster shares freely info that is actionable and modern. It really is a master class in treating MS. But it’s quite frightening to realize Boster is more informed than any docs I see. The launch of Boster’s clinic is inspiring me replace my HMO with a plan that covers a good clinic in Fullerton. I admire that Boster remains upbeat despite all the horror stories he hears here. Be well, Kim.
I did read some of the stats on this. One of the curious things I saw was the 79% reduction in T2 lesions. Was curious about your thoughts on that. I live in Virginia near DC.
My question or concern would be with the Mayzent, I was going to be put on the Gylenea when it came out but my doc changed his mind because I was having some heart issues. They have since discovered 2 Aneurysms, 1 thoracic & 1 abdominal. Should I be concerned about taking Mayzent with these Medical issues? And I wanted to Thank you for your live stream shows. I truly wish I could find a doctor that cared as much for my well being as you do for your patience. God Bless. Kel Crownover
I am not a doctor, but would say yes. It can increase your blood pressure, which is not good on aneurysms, and it can lower the heart rate. I'm fairly sure the doctor would say no to you taking it?? If you HAVE started it, can you tell me if you have had any side effects? I am starting it over the next few days.
The university of Utah neuroscience doctors won’t let me take those because I have the JC virus and they could cause me to get PML. I’m from Pocatello Idaho
I have severe pain in my lower back tail bone areas and this makes it hard for me to move on some days I know it's a flare up but I'm having a hard time for Doctors to understand how I feel and it makes me frustrated with gives me anxiety so much which makes it more difficult for me to take control over my daily routine I currently have no MS therapy drug because I'm trying to find out more information on the topic of my choice
Hey Christine, You could ask your Neurologist to request an MRI of your lumbar spine the next time you do your brain MRI. You may have some bulging or herniated disks which are pinching some of your nerves. You may have nerve damage, just not directly related to your MS.
Thank you for the great explanation on MS progression. I have a question, do you think that pushing past functional reserve on a regular basis cause faster progression? Thanks again for all you do👍
Oh Dr B so many things I don’t have a clue what 2 do. SPMS here & haven’t taken anything for what 6 yrs. I have POTS with my heart & take 2 meds 2 raise my b.p. So shot I feel like crud , anything safe with my heart that would work. I can’t really walk now. I use a w/c.... what do you do?
Hey Doctor Boster, thank you for you, you're amazing! My neuro is recommending Mayzent and I noticed lactose is an ingredient. I was on Aubagio two years ago and could not tolerate it and am now hesitant, what do you think?
Hello Jenn from ND, I still don’t have a diagnosis of ms, I have had 2 mris done one was 3t imagining I have 9 lesions but they are non specific on both mris with no changes or enhancement and my cervical spine had cord compression and no lesions or enhancement I also had a spinal tap with no bands , i do have a positive Hoffman’s sign and hyper reflexes, and other symptoms of MS. I still don’t think this is just from cord compression with all those lesions and symptoms is it possible to be misdiagnosed or it’s not showing it’s self yet? Thank you love your videos!
Aaron Boster MD your videos have kept me going since being dx in September 2018. Now my son & I watch together & will be participating in the MS Walk in our area...
Hi Dr. Boster I’m from Anderson SC my question is I completed my 2nd year of Mavenclad on November 7 2021 it went well and I was just wondering if my upcoming MRI in January will show that Mavenclad hopefully reduced the number of lesions or shrunk the lesions. We are very hopeful that Mavenclad will help me with my MRI! I love listening to you, you are so helpful!
Thanks for sharing . How did you feel when you started mavenclad? My doctor is suggesting it to me . I'm nervous about taking .. i have a busy life .. how did you feel after
@@losvegas1997 I felt better when Mavenclad..I would highly recommend Mavenclad to anyone. It’s a very easy regimen to taken Mavenclad. I would go on line and read about it! Neurologist are very excited about this I was happy they are happy to recommend it to their patients. Please check it out!
@@losvegas1997 I felt better when I was on it! Wish it wasn’t a 2 year medicine! I was happy to read neurologist highly recommend it! I wish you good luck with this!
@@cathihulbert4937 that's great news! I thought 2 years and you don't have to take anymore meds? Cathi I'm sorry for the questions haha .. just a little nervous
"Clinical Activity relapse flares attacks a large range of Symptoms Radiographic Activity lesion on MRI etc may not manifest clinical Activity and the discussion on progression. When someone with MS gets worse on their Exam but haven't had an attack.." Sounds like a great Meme to end off MS Awareness Month!
@@AaronBosterMD Multiple Sclerosis Progression “Clinical Activity relapse flares attacks a large range of Symptoms Common early signs of multiple sclerosis (MS) include: vision problems. tingling and numbness. pains and spasms. weakness or fatigue. balance problems or dizziness. bladder issues. sexual dysfunction. cognitive problems. Radiographic Activity Seen on MRI lesion ~ may not always manifest clinical Activity ” MRI of the Brain and Spine are important in Determining MS Progression: to prove Patients with MS to determine the prognosis Response to Disease Modifying therapy and to specify an atypical lesion in the spinal cord
This has made me feel more depressed about on what to do and it's hard for me to tell people how I feel when they get involved with my care it's my sister who is trying to help me out but really she's just frustrating me and I'm feeling my symptoms just getting worse
Hi Dr. B. Thank you for this video. I recently finished the phase 3 open trial of Ofatumumab and am now on the extended trial but just had a relapse. My doctor is having me consider Mavenclad but I’m not seeing any earth shattering efficiency results and am uncomfortable with thelack of long term safety info. Do you have an option on Ocrevus vs Ofatumumab? Is Ofa supposed to be as effective as Ocrevus?
Christine R it’s been very hard trying to find information on new drugs. My doc suggested Mavenclad for me but the info out there is minimal and the clinical trial results do not show long term results.
Question: Hi there. I am reaching out in the hopes you might talk about owning pets while taking immunosuppressants. Particularly, I am wondering about specific pets, like rodents: rats, gerbils, mice, etc. Are any particular pets dangerous while immunocompromised? Thank you for any input!
If I have optic neuritis, spots on an MRI and one prior incident of numness in my body, but cannot have lumber puncture (I have a large benign cyst in my brain and my neurologist advises against the procedure for the fear of hemmorage).Do you think I fit the profile for MS diagnosis?
Thank u for all you do Doctor ! I'm coming to Ohio Health april 16 I'm excited ! Just half to say I'm a artist and I can't help but notice the awsome picture in the back ground! Thanks for you time and information !
mavenglad had so sacred I need a stronger medcause walk few blocks then I can't walk l don t want be unable without meds specializes ms is awful unable too walk imfrom new jersey im bothering u
Hello Dr. Boster! Do MS neurologists also read patient MRI or rely on radiologist report? THANK YOU for your time and effort to help educate the MS community!
@@AaronBosterMD , it's divine here, A note 🍃 about MRIs, and radiologists 💨from a patient...to follow Dr . Arron s beat... ~Ok so 20 nerololgists later , and that doesn't mention most ER visits I can tell you Dr b is completely correct, I wanted to back the Dr with a patient opinion;*) if that's ok? in his assumption about other neros , ~ummmmmm,heck yeah, they best be, they all better b falling in line after this guy 🐙🐣💥🐤🐣🐣🐣 , Look, as I know when a very big disservice is being done to a patient,and it can't b any more true... if they don't ask in see the MRI film, or get the actual CD, or have it drafted to the office, via computer,if none of that happened, and the Nero never moved his lips, well either get very comfortable for a very long relationship with major disconnects, and more moments in the dark than light... ~ well, if that's not your fate u want, that your ok with, either insist for it to be different, or repeat after me, Im going to stand , n ask ur aide to call ur ride, or get back in ur wheel chair or turn the switch to on for the ur electric chair or grab ur Caine or crutch and then proceed in grabing the door nob to the nearest exit, to next Nero! it's my understanding you very much need a new nerolgist at that moment!!! Ok argue for a little bit first , of u must, u can even be nice but u get the idea. Because repeat after me " No to the Nerolgist or doctor that can't be bothered with 5 mins of a click of a picture , explain my disease, and or let me ask my questions, well then I have a big NO , to time,there's no more to finish this convo, because my time would be better suited spent finding someone who will check all those boxes" vs making room for hard Dr. Days. We should always be understanding n vs vsa. ~After all a radiologist specializes in film, that's what there trained for, but there not a nero type Dr., furthermore, a nerologist is not just a Nero they should be specific to multiple scerlosis,to be the best for a m.s. patient.even if there just a general Nero, or doctor, I seriously can't express this enough, a plain aka general nerologist is is like apples to oranges I'd go on to compared a generic nerolgist sorry general... It's very broad spectrum, u bypassed this I hope u get my point.ur even board cert. Im not saying they don't have there purpose or that people can't rarely find a good one, but people with in m.s. are so better suited with in someone like Dr Arron booster a imunologist nerologist , a sub~catagory in Nero. Field, An bonofied nerologist who specializes in m.s. and much more. And specifically the immune system. Plz do ur self a favor and find that 🙏 good Nero, the one who took the time to specilize,,u will find more times than not that they have purpose and are fueled for a very good reason, like heart, not pay check. P.s. I was in the ER one day a student Nero was there, he wanted to see me im that weird case every doctor likes on there belt I guess, he had no clue about his major, by the end of the day he was to studying m.s. and he wasn't a plain Jane Nero anymore. It was the highlight to my year.he came back to my hospital room just to tell me this. I truely didn't care what he studied as long as it was something more than John smiths... title Mr. Generic nerolgist. There was a 🔥 fire in his eye when he left that day. Sincerely, DIVINE 🙄💫💨🐣
Thank you for answering me back I'm having a episode it's kind of hard to explain it's like it grabs my right leg with my phone and I'm unable to walk the lag last Sunday and my upper leg I was unable to walk and not being having a pain in my left legI'm about leaving glad the only thing I'm scared of other side effect it says you might get cancer and that is scares me thank you so much for asking me my personal email any form of please I have contacted the MS society Mayzent why you think about infusion and he uses infusion thank you Doctor Boster if you could contact me and anyway you could do so if you need my personal email information to contact me just let me know the email that I use and TH-cam yes I email that I use for I also have a personal thank you so much I'll be waiting for your response thank you Dee Dee
It seams like when you speak about progression you only focus on the brain I have all spinal lesions and in less than 2 years i went from a walker to being paraplegic in a wheelchair. My Dr has classified me as primary progressive. So when I was diagnosed 10 years ago i had 2 small brain lesions that have not changed or ever enhanced but my spinal cord is riddled with spots and atrophy. So my question is, is this a correct diagnosis from my Dr.?
My neurologist actually told me to smoke Marijuana for my ms as it truely does help with pain.however this is in a state that it is legal.i don’t like weed tho but I fully believe it is a awesome medicine for some people.
Dear Dr, Aaron,✍️🐣🐤💌,
-Wow, floored, a nice beautiful village turn out including Amber, in the wee early morning, isent it a beautiful thing, to have a Dr share wonderful, absolutely helpful and easy to understand education early in the morning, - to be toogether as a village. Is possiblly pricless.
Sincerely,
~Divine 💌✍️🐣
Thank you for all you sacrifice each and every day for us. It's TRULY Honorable.
Howdy Divine! I share your feelings, it's a beautiful thing to gather our global online village together. TY for your participation and, as always, for your continued support of this channel and this growing online community! #WeHaveMS #KickMS
If you are here to hear about Mavenclad or cladrebine skip to minute 50:00
Bless you kind soul
Dr. Boster, I am an MS patient and am so appreciative of your channel. I keep my diagnosis hidden and am only allowed to see my doctor once a year, where I hardly ever get any type of education on MS. All of your videos are great. I have learned so much about MS!! This one, where you discuss "progression" is very similar to what I am going through, and I had no idea what it was or how to describe it. Next time I go to my doctor I will be able to talk about what is bothering me in a more effective way. Thank you again. I wish my neurologist was as helpful and understanding as you are!
You are NOT alone AP. There is an online village here supporting you. I'm here supporting you. You're not alone.
Hello AP,
🙋♀️ Welcome to the MS Global Village.🙋♀️ This is the place where you are never too old to have invsible friends, but old enough to live with invisible symptoms. 😕
Looking foward to sharing your MS journey with you. Take care 😊
#WeHaveMS
Don’t be anonymous in this disease!!! It’s a much better path with company!! And take this as a Medal of Honor because you are an MSwarrior now! Learn to listen to your body and believe in energy conservation!! Good luck 😉
Just came to your chanel Dr Boster to tell you how was for me Mavenclad and 2020 was the third year with Mavenclad but wasnt need it and my brain is back and I remember a lot of things that I forgot I knew. Now 49 years last 20 January and soon knowing more people with MS explainning how I had my life back to me 😉 And what I learn with you help me a lot too, Thanks from Portugal 🇵🇹🥰🌟
Thank you, I fit the MS patient that you’ve explained... especially about golf and never having noticeable RR attacks just deteriorating every year. I was on Copaxzone, Tysabri, then Lemtrada and now being switched to MAYZENT and Oceravus maybe after Pandemic when safe to get regular infusions. This was the best explanation of my situation so far, thank you.
I’m sorry that I missed this live stream. I love listening to everything you say. My Neurologist told me years ago, to be my own best advocate. This is very educational and I thank you for taking the time, to talk about everything MS with us. Much love and gratefulness. Be blessed 🌺🌺
Do you see Michigan patients with Medicaid?
I miss him to often but I’m in mountain standard time.
Hi! Listen ing your lectures from Belgrade, Serbia! I love it, thank you so much! ❤
You're so welcome!
Love your videos, and you and your hair look great !
Very proud to be here I am Maria from Portugal dianosed with MS 5 August 2018 At the end of 2018 startd with Mavenclad. Don’t felt much but wasn’s bad. And if I remember how my brain and rest was not mutch to complain was bad but could be worst, I have a great doctor Dr. Guerra that I like very much. I lear a lot with you Dr Booster (learn) and sometimes my eyes don’t work well, other times fatigue, others my hands or legs don’t work well, and more but I go in front one day a day. My regards and thanks for this space amazing
Friday was a difficult day for me and very tired. And my mother don’t help because she think she knows more then you and anybody. Always good to ear.
Thank you Dr Boster! I now understand that I’ll stay the course with Ocrevus and if it does not work Mavenclad is an option. Nice that there is another treatment (other than Lemtrada) that after two years you have the hope of stopping.
options for patients are always good!!
I stopped taking tecfidera. After watching you and listen to what you say and realized I should be taking something. Since I was taking tecfidera what should start with the going back to being on a DMT? Julie from Fort Worth Texas.
Very interesting. Only got this recording now. New in South Africa
I just got approved by my insurance for Mavenclad here in Thailand...today Day 1...excited!
congrats!
Hi Dr. B, I recently came back to TH-cam and found you and your wonderful channel. The live streaming is an amazing tool, wish I would have had it back in the day. My neurologist told me that they no longer use placebos for drug trials, is she correct? Since these are new to market and had to go through years of study maybe things have changed. I really liked your explanation about progression and think it will help so many people! I have some questions of my own but not on this topic and just wanted to say thanks for all you are doing. Andrea from Nevada :-)
Kevin (rom the opposite side of Florida from where Stewart is ), came to this recording bc I have been on Mayzent for a very long time now & my disease seems fairly chill since I've been on Mayzent and
Given my current conditions, does it make sense ( @64.5 yrs ).to begin a transition away from Mayzent & on to Mavenclad simply because of how Medicare handles MS DMTs with regards y
Calling from Norco California. I talked to my MS specialist about how cool you are and learned more about MS in an hour listening to you that I learned in 25 years. She actually went to see you her name is Lynsey Lakin
That's really cool! TY for sharing that!
Hey Kim. You took the words out my mouth. I’m in Yorba Linda... not so far from you 😀 Dx’d in 05, Rebif ever since. Now I’m with a less-than HMO that rhymes with Kaiser. My neuro knows near nothing about MS drugs... and here, Boster shares freely info that is actionable and modern. It really is a master class in treating MS. But it’s quite frightening to realize Boster is more informed than any docs I see. The launch of Boster’s clinic is inspiring me replace my HMO with a plan that covers a good clinic in Fullerton.
I admire that Boster remains upbeat despite all the horror stories he hears here. Be well, Kim.
Hi Dr B, wish we had you here in the uk.
Howdy Lindsey!
Thank you for all the information. 👍
YW Brenda!
I did read some of the stats on this. One of the curious things I saw was the 79% reduction in T2 lesions. Was curious about your thoughts on that. I live in Virginia near DC.
Thanks for help doctor god bless you, best regards from San diego,excelent job
YW Oswaldo!
G'day from Australis.
Woo hoo a video with mavenclad as a topic. I am starting this in May
More to come once I review the PI
Gdday mate, How'd you go on mavenclad?
My question or concern would be with the Mayzent, I was going to be put on the Gylenea when it came out but my doc changed his mind because I was having some heart issues. They have since discovered 2 Aneurysms, 1 thoracic & 1 abdominal. Should I be concerned about taking Mayzent with these Medical issues? And I wanted to Thank you for your live stream shows. I truly wish I could find a doctor that cared as much for my well being as you do for your patience. God Bless. Kel Crownover
#MSWarrior
I am not a doctor, but would say yes. It can increase your blood pressure, which is not good on aneurysms, and it can lower the heart rate. I'm fairly sure the doctor would say no to you taking it?? If you HAVE started it, can you tell me if you have had any side effects? I am starting it over the next few days.
Liked it very much. Keep in the fight ok keep good
Right on
The university of Utah neuroscience doctors won’t let me take those because I have the JC virus and they could cause me to get PML. I’m from Pocatello Idaho
Sorry that I missed you and the group Dr. B. Thank you as always.
Sorry we missed you Cameron. Hope that you can enjoy the replay!
Dr. Boster, have you herd about the Wahls protocol? If so what do you think of it and why haven’t more doctors help spread the word?
Here is a playlist on MS and nutrition. I answer your question in a few of these vids. th-cam.com/video/ykv5dt-bHoI/w-d-xo.html
I have severe pain in my lower back tail bone areas and this makes it hard for me to move on some days I know it's a flare up but I'm having a hard time for Doctors to understand how I feel and it makes me frustrated with gives me anxiety so much which makes it more difficult for me to take control over my daily routine I currently have no MS therapy drug because I'm trying to find out more information on the topic of my choice
From what I have researched, ms does not affect that low on the back. Did you get a spinal tap in that area?
Hey Christine,
You could ask your Neurologist to request an MRI of your lumbar spine the next time you do your brain MRI.
You may have some bulging or herniated disks which are pinching some of your nerves. You may have nerve damage, just not directly related to your MS.
He has my MRI's I can always have a 2nd opinion
I have been giving you rave reviews to both friends and medics here in London! I appreciate your support in an unpatronising manner.
Thanks Georgina!
Albert Chicago
I have spasm and tremmers.
Could you please let me know what you would recommend?
Thank you for the great explanation on MS progression. I have a question, do you think that pushing past functional reserve on a regular basis cause faster progression? Thanks again for all you do👍
quick answer is NO. I don't think so!
Oh Dr B so many things I don’t have a clue what 2 do. SPMS here & haven’t taken anything for what 6 yrs. I have POTS with my heart & take 2 meds 2 raise my b.p. So shot I feel like crud , anything safe with my heart that would work. I can’t really walk now. I use a w/c.... what do you do?
So how are ppl doing they found
Hi I’m a MS patients from LA, what date and time in PST are your live chats?
Here online from Ireland
Hey Doctor Boster, thank you for you, you're amazing! My neuro is recommending Mayzent and I noticed lactose is an ingredient. I was on Aubagio two years ago and could not tolerate it and am now hesitant, what do you think?
What are your thoughts on the MS gym?
Thank you!
Dr. Boster do you think that there will be a med to repair the damage of the myelin in the future?
I hope so
@@davidking6617 Thankyou David that's very interesting. Could you explain that in a little more detail when you have the chance?
Should I be concerned about clinical attacks even if they do not show up as new lesions on my MRI?
yes you should be concerned
Hello Jenn from ND, I still don’t have a diagnosis of ms, I have had 2 mris done one was 3t imagining I have 9 lesions but they are non specific on both mris with no changes or enhancement and my cervical spine had cord compression and no lesions or enhancement I also had a spinal tap with no bands , i do have a positive Hoffman’s sign and hyper reflexes, and other symptoms of MS. I still don’t think this is just from cord compression with all those lesions and symptoms is it possible to be misdiagnosed or it’s not showing it’s self yet? Thank you love your videos!
Hang in there Jennifer!
Thanks Dr. B...I’m in the Charlotte NC area. I used one of your videos to help tell my 13 year-old about my Diagnosis...
Wow! Thank you for sharing that with me Annette! That makes me feel amazing. I'm so glad the vid helped!
Aaron Boster MD your videos have kept me going since being dx in September 2018. Now my son & I watch together & will be participating in the MS Walk in our area...
Hi Dr. Boster I’m from Anderson SC my question is I completed my 2nd year of Mavenclad on November 7 2021 it went well and I was just wondering if my upcoming MRI in January will show that Mavenclad hopefully reduced the number of lesions or shrunk the lesions. We are very hopeful that Mavenclad will help me with my MRI! I love listening to you, you are so helpful!
Thanks for sharing . How did you feel when you started mavenclad? My doctor is suggesting it to me . I'm nervous about taking .. i have a busy life .. how did you feel after
@@losvegas1997 I felt better when Mavenclad..I would highly recommend Mavenclad to anyone. It’s a very easy regimen to taken Mavenclad. I would go on line and read about it! Neurologist are very excited about this I was happy they are happy to recommend it to their patients. Please check it out!
@@cathihulbert4937 thanks so much for replying .. how did you feel on it ? Did you have any side effects when on it ?
@@losvegas1997 I felt better when I was on it! Wish it wasn’t a 2 year medicine! I was happy to read neurologist highly recommend it! I wish you good luck with this!
@@cathihulbert4937 that's great news! I thought 2 years and you don't have to take anymore meds? Cathi I'm sorry for the questions haha .. just a little nervous
HI all !!!
How long does Maveclad begin to exert its effect?
Thank you from Doug from Lyndhurst
YW
"Clinical Activity relapse flares attacks a large range of Symptoms
Radiographic Activity lesion on MRI etc may not manifest clinical Activity and the discussion on progression. When someone with MS gets worse on their Exam but haven't had an attack.." Sounds like a great Meme to end off MS Awareness Month!
@@AaronBosterMD Multiple Sclerosis Progression
“Clinical Activity relapse flares attacks a large range of Symptoms
Common early signs of multiple sclerosis (MS) include:
vision problems.
tingling and numbness.
pains and spasms.
weakness or fatigue.
balance problems or dizziness.
bladder issues.
sexual dysfunction.
cognitive problems.
Radiographic Activity Seen on MRI
lesion ~ may not always manifest clinical Activity ”
MRI of the Brain and Spine are important
in Determining MS Progression:
to prove Patients with MS to determine the prognosis
Response to Disease Modifying therapy
and to specify an atypical lesion in the spinal cord
#WeHaveMS
This has made me feel more depressed about on what to do and it's hard for me to tell people how I feel when they get involved with my care it's my sister who is trying to help me out but really she's just frustrating me and I'm feeling my symptoms just getting worse
Hi Dr. B. Thank you for this video. I recently finished the phase 3 open trial of Ofatumumab and am now on the extended trial but just had a relapse. My doctor is having me consider Mavenclad but I’m not seeing any earth shattering efficiency results and am uncomfortable with thelack of long term safety info.
Do you have an option on Ocrevus vs Ofatumumab? Is Ofa supposed to be as effective as Ocrevus?
Christine R it’s been very hard trying to find information on new drugs. My doc suggested Mavenclad for me but the info out there is minimal and the clinical trial results do not show long term results.
Question: Hi there. I am reaching out in the hopes you might talk about owning pets while taking immunosuppressants. Particularly, I am wondering about specific pets, like rodents: rats, gerbils, mice, etc. Are any particular pets dangerous while immunocompromised? Thank you for any input!
I'll answer this one on a livestream soon. It's a great question!
That would be so helpful! Thank you!
No problem. Stay tuned!
Does Mavenclad have the same risk of developing a thyroid disorder like Lemtrada?
If I have optic neuritis, spots on an MRI and one prior incident of numness in my body, but cannot have lumber puncture (I have a large benign cyst in my brain and my neurologist advises against the procedure for the fear of hemmorage).Do you think I fit the profile for MS diagnosis?
not enough information for my to provider an answer slobor3.
@@AaronBosterMD thanks for the feedback!
Thank u for all you do Doctor ! I'm coming to Ohio Health april 16 I'm excited ! Just half to say I'm a artist and I can't help but notice the awsome picture in the back ground! Thanks for you time and information !
Awesome Sauce! TY for the kind words!
We need power for some sort of cure Manchester UK
thank u answering me back
mavenglad had so sacred I need a stronger medcause walk few blocks then I can't walk l don t want be unable without meds specializes ms is awful unable too walk imfrom new jersey im bothering u
Hello from Norway 🇳🇴👋🏻
I was wondering do you know if we are higher in risk to develop ms because of our gen pool from the Neanderthals?
as a population of people, yes.
Hello Dr. Boster!
Do MS neurologists also read patient MRI or rely on radiologist report?
THANK YOU for your time and effort to help educate the MS community!
It's my opinion that a Neurologist must read his/her own MRI images themselves. Just my 2 cents.
@@AaronBosterMD , it's divine here,
A note 🍃
about MRIs, and radiologists 💨from a patient...to follow Dr . Arron s beat...
~Ok so 20 nerololgists later , and that doesn't mention most ER visits I can tell you Dr b is completely correct, I wanted to back the Dr with a patient opinion;*) if that's ok?
in his assumption about other neros ,
~ummmmmm,heck yeah, they best be, they all better b falling in line after this guy 🐙🐣💥🐤🐣🐣🐣 ,
Look, as I know when a very big disservice is being done to a patient,and it can't b any more true... if they don't ask in see the MRI film, or get the actual CD, or have it drafted to the office, via computer,if none of that happened, and the Nero never moved his lips, well either get very comfortable for a very long relationship with major disconnects, and more moments in the dark than light...
~ well, if that's not your fate u want, that your ok with, either insist for it to be different, or
repeat after me,
Im going to stand , n ask ur aide to call ur ride, or get back in ur wheel chair or turn the switch to on for the ur electric chair or grab ur Caine or crutch and then proceed in grabing the door nob to the nearest exit, to next Nero!
it's my understanding you very much need a new nerolgist at that moment!!! Ok argue for a little bit first , of u must, u can even be nice but u get the idea.
Because repeat after me
" No to the Nerolgist or doctor that can't be bothered with 5 mins of a click of a picture , explain my disease, and or let me ask my questions, well then I have a big NO , to time,there's no more to finish this convo, because my time would be better suited spent finding someone who will check all those boxes" vs making room for hard Dr. Days. We should always be understanding n vs vsa.
~After all a radiologist specializes in film, that's what there trained for, but there not a nero type Dr., furthermore, a nerologist is not just a Nero they should be specific to multiple scerlosis,to be the best for a m.s. patient.even if there just a general Nero, or doctor, I seriously can't express this enough, a plain aka general nerologist is is like apples to oranges I'd go on to compared a generic nerolgist sorry general...
It's very broad spectrum, u bypassed this I hope u get my point.ur even board cert.
Im not saying they don't have there purpose or that people can't rarely find a good one, but people with in m.s. are so better suited with in someone like Dr Arron booster a imunologist nerologist , a sub~catagory in Nero. Field, An bonofied nerologist who specializes in m.s. and much more. And specifically the immune system.
Plz do ur self a favor and find that 🙏 good Nero, the one who took the time to specilize,,u will find more times than not that they have purpose and are fueled for a very good reason, like heart, not pay check.
P.s. I was in the ER one day a student Nero was there, he wanted to see me im that weird case every doctor likes on there belt I guess, he had no clue about his major, by the end of the day he was to studying m.s. and he wasn't a plain Jane Nero anymore.
It was the highlight to my year.he came back to my hospital room just to tell me this.
I truely didn't care what he studied as long as it was something more than
John smiths... title Mr. Generic nerolgist.
There was a 🔥 fire in his eye when he left that day.
Sincerely,
DIVINE 🙄💫💨🐣
h iDR B im NJ vitamin 52,000 unit that what I use that is good???
im talking vitamin D I used 52,0000 unit
hi dr lm from New jersey have ms 21yrs my wants give me mavenglad I used rebif
I certainly think mavenclad is likely to be more effective than rebif
Thank you for answering me back I'm having a episode it's kind of hard to explain it's like it grabs my right leg with my phone and I'm unable to walk the lag last Sunday and my upper leg I was unable to walk and not being having a pain in my left legI'm about leaving glad the only thing I'm scared of other side effect it says you might get cancer and that is scares me thank you so much for asking me my personal email any form of please I have contacted the MS society Mayzent why you think about infusion and he uses infusion thank you Doctor Boster if you could contact me and anyway you could do so if you need my personal email information to contact me just let me know the email that I use and TH-cam yes I email that I use for I also have a personal thank you so much I'll be waiting for your response thank you Dee Dee
I also walk with a cane I also walk with a walker but with the Walker only in the neighborhood when I need to I but the cane I use it more
36:40 MAYZENT
It seams like when you speak about progression you only focus on the brain I have all spinal lesions and in less than 2 years i went from a walker to being paraplegic in a wheelchair. My Dr has classified me as primary progressive. So when I was diagnosed 10 years ago i had 2 small brain lesions that have not changed or ever enhanced but my spinal cord is riddled with spots and atrophy. So my question is, is this a correct diagnosis from my Dr.?
Not enough info for me to be able to provide a proper answer Kapluchi.
Coffee with a spot of cream
spot on
Vodka AGAIN.....Irish Baileys & coffee. Ok ok WATER
Love you, don't get me wrong, but it's not fair to have to wait for 100 people to have to hear the main topic - What I tuned in for-the 2 new drugs.
Sorry Felicia!
During your latest video in your home I see a picture of a young man with hair. Is that you. From Doug from Lyndhurst
I'll answer this question live on my next livestream!
Can I smoke weed if I have MS? I really mean to smoke, not other way of using it.
From an overall health standpoint, inhaling smoke from combusted plant material doesn't make you healthier.
@@AaronBosterMD So weed, when smoked, does not accelerate the progression of MS like tobacco
What if you are not smoking but getting CBD oil or lotions? It helps reduce pain
My neurologist actually told me to smoke Marijuana for my ms as it truely does help with pain.however this is in a state that it is legal.i don’t like weed tho but I fully believe it is a awesome medicine for some people.
Smoking marijuana is way better then taking any narcotic pain meds that are addictive..
joel from maine
Howdy
Howdy
👍🏼
Forgive me...
Thank you
Hugs! No worries!
scared side effects mavenclad cancer