Thank you for the vlog. This was great love watching what ever or when you do updates. Love the wigs you wear I am trying to do yoga my joint go in flares so find it hard to keep fit. But keep trying. Look forward to future vlogs ❤xx
Thaila just checking in to see how you are doing. I have mixed connective tissue disease with mostly overlaps of Lupus and Scleroderma. A medication that I took, Cytoxan, gave me bladder cancer years later, ended up with a radical cystectomy and a urostomy. The disease has also damaged my kidneys to but limping along. You have gone through so much. I wonder if you have ever had plasmapheresis? In 2000 I had Scleroderma renal crisis which damaged my kidneys and almost killed me. They gave me plasmapheresis and I haven't had a flare since. I don't know if that did it but I thought I would share. Take care and thanks for your videos.
Lovely to see your vlog Thaila x
It's nice to see you again
Thank you for the vlog. This was great love watching what ever or when you do updates. Love the wigs you wear
I am trying to do yoga my joint go in flares so find it hard to keep fit. But keep trying. Look forward to future vlogs ❤xx
Thaila just checking in to see how you are doing. I have mixed connective tissue disease with mostly overlaps of Lupus and Scleroderma. A medication that I took, Cytoxan, gave me bladder cancer years later, ended up with a radical cystectomy and a urostomy. The disease has also damaged my kidneys to but limping along. You have gone through so much. I wonder if you have ever had plasmapheresis? In 2000 I had Scleroderma renal crisis which damaged my kidneys and almost killed me. They gave me plasmapheresis and I haven't had a flare since. I don't know if that did it but I thought I would share. Take care and thanks for your videos.
Long time no see! :-)