That operation for the blocked tear ducts was done on me without anasthesia when I was little. My mum wasnt allowed inside so she just heard me screaming and got her screaming, crying child handed back. So yeah
If his is atypical CF it could very well go undetected for years even into adulthood. Atypical CF doesn’t necessarily show up as fast or as bad symptom wise as classic CF
I’ve had seizures for 10yrs. I used to space out, throw up, and sleep for many hrs. I’ve had 2 brain surgeries for mine. I’ve been 6yrs seizure free almost 7yrs.
My friend was also 23 years old, he was the loveliest human I could ever have had the pleasure of knowing, funeral also next week :( I’m sorry for your loss x
The lady with the child that has CF, she’s worried about the small chest tube that may prolong his life over vanity issues, that’s her first thought......OMG your child has a chronic medical condition with no cure just treatment to prolong life and your worried about the look of a chest tube WOW.
She should put him on Trikafta if he qualifies because it is targeted treatment specifically for 95% of CF patients. Getting on it early may save the liver. But I agree, vanity should not be a factor in making medical choices.
I don't think I was vanity .. I think it was more that she didn't want him to be different to his peers .. which I can understand. He is already living with a life limiting illness.
I think it was less about the vanity and more about her not wanting her child to feel different or be bullied for being different. As someone who was born with a visible, physical condition, she's right to worry. He has been lucky if he hasn't been bullied about it, but I fear that as his condition deteriorates, that's when his peers are more likely to see him as different, perhaps being outcasted by people he thought were friends, or even worse, pittied and used as a pawn for others to make themselves look good, by faking to be his friend. Kids and teens are cruel and there are unfortunately people, even well meaning ones, who are hurtful to people who are different than themselves, and sometimes they don't know they are being hurtful when they are actually trying to be helpful or just curious.
SpeedDS DemonStar I understand you’re opinion, the fact is he is different in a critical way. I grew up with debilitating asthma and had to carry my rescue inhaler and breathing machine with me. Taking treatments at school after recess and gym. All the kids knew, it wasn’t big deal; kids at young ages are more inquisitive than mean; second this appears to be something small and very discreet that can be easily hidden under a shirt especially with a wrap that keeps it close to the body. Something that is clearing the lungs is going to prolong the ability for him to thrive which is the most important thing.
I agree I thought her views on the disease were pretty skewed. Her son is the one suffering. Let him make some decisions. Just seems like she takes her control over more serious issues.
The boy with CF is most likely no longer with us as he was born in 1998 (it was mentioned in the beginning of the video somewhere). I hope he is still ok however if not RIP and best wishes to his family and friends
I was born with a blocked tear duct. Had I think 7 surgeries to correct it. Those were done when I was a baby. Have bad eyesight because of it. (Amazing how medicine has changed since the late 70s)
My heart goes out to all these patients and their families. Also, God bless the absolutely wonderful doctors and nurses!! ❤️❤️👍👍 🇮🇪 🇮🇪 Greetings from Sweden 🇸🇪 🇸🇪
The dad of that little Asian boy clearly has such a kind soul...bless him. 💜💜
Amen
That operation for the blocked tear ducts was done on me without anasthesia when I was little. My mum wasnt allowed inside so she just heard me screaming and got her screaming, crying child handed back. So yeah
Oooh :shudder:
They missed cystic fibrosis for 5 yrs ? He is lucky to be alive.
I know! Perhaps his is a less severe form of CF? So excited to hear about the new drug available for many CF sufferers.
If his is atypical CF it could very well go undetected for years even into adulthood. Atypical CF doesn’t necessarily show up as fast or as bad symptom wise as classic CF
As I was 12 years old the doctors tested me for cystic fibrosis.
When i had my brain tumor removed from my brain the roommate i had at the hospital in iowa city had cystic fibrosis
Matt's mom needs to be strong for him, it wears on a child when they see their parents so down and hopeless. 🙏🙏🙏
I’ve had seizures for 10yrs. I used to space out, throw up, and sleep for many hrs. I’ve had 2 brain surgeries for mine. I’ve been 6yrs seizure free almost 7yrs.
We just lost a part of the family due to cf... he was 23 years old 😢😢😢😢 funeral is next week and I’m dreading it x
natalie Stevens I’m so sorry
My friend was also 23 years old, he was the loveliest human I could ever have had the pleasure of knowing, funeral also next week :( I’m sorry for your loss x
natalie Stevens Im so sorry
natalie Stevens I’m here for u xx
So sorry for your lose. Stay strong and safe. 😳😳
I wich them all good health
Dear little poppets I hope they and their families are all doing well wherever they are 💓
The lady with the child that has CF, she’s worried about the small chest tube that may prolong his life over vanity issues, that’s her first thought......OMG your child has a chronic medical condition with no cure just treatment to prolong life and your worried about the look of a chest tube WOW.
She should put him on Trikafta if he qualifies because it is targeted treatment specifically for 95% of CF patients. Getting on it early may save the liver. But I agree, vanity should not be a factor in making medical choices.
I don't think I was vanity .. I think it was more that she didn't want him to be different to his peers .. which I can understand. He is already living with a life limiting illness.
I think it was less about the vanity and more about her not wanting her child to feel different or be bullied for being different. As someone who was born with a visible, physical condition, she's right to worry. He has been lucky if he hasn't been bullied about it, but I fear that as his condition deteriorates, that's when his peers are more likely to see him as different, perhaps being outcasted by people he thought were friends, or even worse, pittied and used as a pawn for others to make themselves look good, by faking to be his friend. Kids and teens are cruel and there are unfortunately people, even well meaning ones, who are hurtful to people who are different than themselves, and sometimes they don't know they are being hurtful when they are actually trying to be helpful or just curious.
SpeedDS DemonStar I understand you’re opinion, the fact is he is different in a critical way. I grew up with debilitating asthma and had to carry my rescue inhaler and breathing machine with me. Taking treatments at school after recess and gym. All the kids knew, it wasn’t big deal; kids at young ages are more inquisitive than mean; second this appears to be something small and very discreet that can be easily hidden under a shirt especially with a wrap that keeps it close to the body. Something that is clearing the lungs is going to prolong the ability for him to thrive which is the most important thing.
I agree I thought her views on the disease were pretty skewed. Her son is the one suffering. Let him make some decisions. Just seems like she takes her control over more serious issues.
The boy with CF is most likely no longer with us as he was born in 1998 (it was mentioned in the beginning of the video somewhere). I hope he is still ok however if not RIP and best wishes to his family and friends
Tyler Nicholas he’s 21 I think
If they were born 1998 would be 21 or very soon to be :) - I was born 1998
He's still alive. Here.www.irishmirror.ie/news/irish-news/cystic-fibrosis-sufferer-reveals-frustrations-13611374
This was Nov. 18 2018
Born in September
@@Quinn_Grey_Writes thank goodness!
I was born with a blocked tear duct. Had I think 7 surgeries to correct it. Those were done when I was a baby. Have bad eyesight because of it. (Amazing how medicine has changed since the late 70s)
What a wonderful hospital and staff for children with special needs
I have aniridia
Awww I feel for these kids hope they get Weil soon
My heart goes out to all these patients and their families. Also, God bless the absolutely wonderful doctors and nurses!! ❤️❤️👍👍 🇮🇪 🇮🇪 Greetings from Sweden 🇸🇪 🇸🇪
I would love to be friends with the kids in this show!
Same!
Alana is so CUTE!! 🥰🥰
9:20 coda From criminal minds is that you?
I Recognized that too yes it
than you for sharing
I KOW HOW AWFUL SEIZURES ARE.
Seems I have seen this before ..is this a repeat ...what year was this filmed ?
is it just me or does that little boy looks like a girl
He is clearly a girl. Probably a boy with long hair. Bit wierd
I thought the boy with the lung problems was the guy that had the seizure.
She is very lucky
My name is Alana and my baby sister has a tear duck
Everyone has tear ducts...
@Alfreda Harris do you have graves disease?
good for you Alana mate
Everyone has tear ducts they become a problem when they become blocked hope your sister is feeling better now.
👁👄👁... 💧🦆
how old is matt
if I'm seeing it correctly Matt should be 22 by now, if he's still alive, of course...
poor babys
iam sorry
Is he a boy??
if you are referring to the Asian child: yes, that's a boy
Why the Mongolian dad dressed his son as a girl?
i jus triinngyou
lam in hospital