Kristy's story

แชร์
ฝัง
  • เผยแพร่เมื่อ 2 พ.ย. 2023
  • Kristy Lane shares her experiences of delayed diagnosis
    ------
    #whyarewestillwaiting #breathlessnotvoiceless #pulmonaryhypertension #ph #pah #cteph #diagnosticdelays #rarediseaseawareness

ความคิดเห็น • 1

  • @spartanz7088
    @spartanz7088 หลายเดือนก่อน

    Wow, your pre diagnosis story is a lot like mine. I had been complaining for years about my shortness of breath and was ignored and placated, so I blamed myself. When I finally went into full blown heart failure it was too far advanced for just oral medication. In the 6 years since diagnosis I’m on o2 24/7 and on 3 different medications one which is IV and I’ve been on death’s door 3 times. Please remember to advocate for yourself if you feel your being dismissed get a 2nd opinion.